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Vitamins. Do we really need them?


cyclinglady

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cyclinglady Grand Master

I saw this cute video about vitamins and thought I would share.  As newly diagnosed celiacs we may need extra vitamins due to intestinal damage, but do we need them once healed?  Do healthy people need vitamins?  Vitamin supplements are a huge industry and are largely unregulated in the U.S.  Do we even know where raw materials are sourced from?  What are your thoughts?  

 


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Ennis-TX Grand Master

If you can not eat a varied diet, do not eat the "vitamin sprayed" enriched foods, and or have any kind of intestinal damage, inflammation, etc. I would say yes. Fact is even the recommendations and daily values they suggested are the bare minimums, and many people genetically require more of certain ones and many are only soluble or usable under certain circumstances or in combinations with others foods.

I have tried to stop taking certain things, B-vitamins, magnesium, high iron foods, vitamin K, vitamin D, vitamin C...I drop supplementing any of them and in 24 hours to a week notice issues depending on how and if my body stockpiled them and solubility.

Again this all varies from person to person, with genetics, damage, and diet all being factors.

Shantel Rookie

I try to go without Vitamins and I’m down in the slump for years I was told I have trouble absorbing iron but was never told why until my celiac was discovered. Now that I am gluten free I don’t need vitamins as much or as often as I did before but I still experience benefits from taking them especially iron B vitamins and zinc. 

Posterboy Mentor

Cyclinglady,

Do we need Vitamins?

Absolutely! Be we need to be in the Goldilocks zone.

A common term used to described earths distance to the sun.

Here is are some good summaries/research that explains it well.

See this new research on Manganese and Scoliosis.

https://www.upi.com/Health_News/2018/10/09/Scoliosis-linked-to-inability-to-utilize-manganese/9231539087539/

our genetic makeup may make us low in those prone to Scoliosis thus depleting our Manganese levels.

The same is true for Spine density and low Manganese Levels.

However too much of anything can be bad for us.

Including water, right but with water soluble vitamins this is very hard to achieve.

The video mentions overdoses of Fat Soluble Vitamins.

And why Manganese is  Mineral and can be stored I am using Minerals/Vitamins interchange ably in this analogy as both are essential in the proper amounts.

See this research on Thiamine and Niacin on Kidney health.

Could vitamin B3 treat acute kidney injury?

https://www.eurekalert.org/pub_releases/2018-08/bidm-cvb081718.php

Thiamine 'reverses kidney damage'

http://news.bbc.co.uk/2/hi/health/7796073.stm

in fact the kidney damage associated with diabetes might just be low thiamine levels aka Beri Beri.

At least the Frustrated Pharphamcist thinks so.

http://orthomolecular.org/resources/omns/v08n05.shtml

and the earlier research reported in 2008 supports this conclusion......

But they (doctor's) advise people to not take Thiamine (a Vitamin we need in a minimum amount) without we can have kidney damage. . . and even reverse it with supplementation.

Ennis_tx summarized it well.

But the Goldilocks zone is my analog for what it's worth!

What is is not included and I don't have time to explain now is Ratio/Co-Factor but Dr. Heaney explains well in his series of article on this topic.  Like taking Zinc/Cooper together etc. to keep the proper ratio(s.) etc.

Provided here if some want's to read some excellent articles about the topic of Vitamins.

http://blogs.creighton.edu/heaney/2013/06/25/some-rules-for-studies-evaluating-nutrient-effects/

And as Knitty Kitty likes to point out she feels better at higher Vitamin D levels and as Dr. Heaney admits they have set the "normal" healthy levels/RDD for Vitamin D as/are too low and otherwise healthy people can develop undiangosed Ricketts ie, thin bone etc. from perfectly normal range of Vitamin D levels.

http://blogs.creighton.edu/heaney/2015/02/13/the-iom-miscalculated-its-rda-for-vitamin-d/

the same can be said for "normal" Thiamine levels.

See this research that bears out how Thiamine supplementation can help CFS symptom's much like supplementing with Magnesium does by restoring the Krebs' cycle the body's way to Metabolise/make energy.

When this is (Krebs cycle) broken. . .inflammation ultimately flares it head and evenently sickness when we get (too) low in Vitamins/Minerals like IDA (Iron Deficient Anemia) etc.

I think is why I my GI symptoms improved with Niacinamide supplementation in part because we have set the levels too low and in in part like Magnesium there is not reliable test to measure our deficiency of these critically important nutrients.

Here is where I explain as a Celiac I also developed Pellagra maybe it will help someone else /t he next person who reads this but I don't think it will help those who think  they don't need to supplement. I can only tell you it helped me!

https://www.celiac.com/blogs/entry/2101-i-had-celiac-disease-and-developed-pellagra/

We call them Vitamins for a reason.. ..we neeed them at a higher level (often even than the RDA) especially if it is already set too low like the Doctor's (Dr. Heaney) admits it was!

Especially if we are having more STRESS!  Stress makes us low in B-Vitamins and we already know B-Vitamins Help Celiac's.

https://www.celiac.com/celiac-disease/celiac-disease-diagnosis-testing-amp-treatment/b-vitamins-beneficial-for-celiacs-on-gluten-free-diet-r1416/

It seems like a no brainer to me. This research will soon be 10 years in another 6 months about B-Vitamins helping Celiac's and we are still discussing whether we (any of us) especially Celiac's need to take Vitamins.

Yes! Yes! Yes! in moderation for a "cycle" of time say 3 to 6 months in a B-Vitamins case 2/day or you will be half low the rest of the day because they are essentially pissed out each day by our kidneys and why Ennix_tx  can tell when he is low after a few days off his B-Complex.

Here is the original research on low B-Vitamin status in Celiac's entitled  "Evidence of poor vitamin status in celiac patients on a gluten‐free diet for 10 years"

https://onlinelibrary.wiley.com/doi/full/10.1046/j.1365-2036.2002.01283.x?inf_contact_key=ea0f2a766da007cd64921c490e0f3144800b47a6bffe30d3db72e448ff52727e&

15+ years old and we still have trouble taking/understanding Vitamins make and keep us healthy.

I am glad I found supplementation early with Magnesium Citrate and a good B-complex it had made all the difference for me!

I hope this is helpful but it is not medical advice.

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.

It bears repeating though I said it earlier **** Note: This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen.

Good luck on your journey who ever reads this and believes Vitamins can do keep us healthy in a appropriate way  and I hope it helps you the way it seemed to/did help me.

*****Not supplements but Vitamins/Minerals . . .we need in a minimum amount without which we become sick and stay there!

In the spirit of 2 Corinthians 1: 3, 4 I hope it helps you too hear when rightly done supplementation with B-Vitamin can does/did help me.

Praise be too God!

2 Corinthians 1: 3, 4

3 Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort;

4 Who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God.

Posterboy by God’s Grace!

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    • trents
      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
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