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Do I Need To Re-introduce Gluten For An Endoscopy When My Iga, Igg Are Still Abnornal?

nathela

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nathela Rookie
nathela
Posted

:blink: I feel awful! My GI tells me that I HAVE to eat gluten again if I want to have a clear understanding of my biopsy. I started to be on gluten-free diet three months ago. My igg, iga are still abnormal: 16 and 8.

Why for god sake do I need to induce myself with gluten when I still have a positive blood celiac panel?!!!

What do we look for? A confirmation of celiac disease? Or, a history? I am really confused..

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lovegrov Collaborator
lovegrov
Posted

I wouldn't do it. Some people require up to 18 months for their blood tests to return to normal.

richard

darlindeb25 Collaborator
darlindeb25
Posted

Absolutely--I agree with Richard. There is no reason for you to return to gluten for a test. Why do doctors want to torture us? I have never had an official diagnosis and I know I absolutely cannot ever have gluten again. The doctor I am seeing now tells me he would never ask me to do a gluten challenge, he says without a test he is 99% sure I am celiac. Truthfully, it wouldn't matter to me if he believed me or not--it's great that he does! I am going to him for my neuropathy now, which is a result of being a celiac for so long and not knowing it. I am celiac and always will be, that I cant change--now I also have neuropathy, which there is no cure for either. The doc told me that all they can do for neuropathy is keep us as comfortable as they possibly can. Don't do the gluten challenge--tell your doctor that enough is enough. Deb

par18 Apprentice
par18
Posted
:blink: I feel awful! My GI tells me that I HAVE to eat gluten again if I want to have a clear understanding of my biopsy. I started to be on gluten-free diet three months ago. My igg, iga are still abnormal: 16 and 8.

Why for god sake do I need to induce myself with gluten when I still have a positive blood celiac panel?!!!

What do we look for? A confirmation of celiac disease? Or, a history? I am really confused..

How do you feel since going gluten-free? If ok then what is the reason to get an "official" diagnosis? Does GI need a new car?

Nevadan Contributor
Nevadan
Posted
How do you feel since going gluten-free? If ok then what is the reason to get an "official" diagnosis? Does GI need a new car?

Right on!!

George

VydorScope Proficient
VydorScope
Posted

There are insurance reasons for geting the postive bisopy. So the GI might have a vaild reason. That being said, I would tell the GI that I do no want an Endoscope, that postive blood work was enough for me, and I will try the diet for a while and see how it goes.

But thats just me. :)

Judyin Philly Enthusiast
Judyin Philly
Posted

Why for god sake do I need to induce myself with gluten when I still have a positive blood celiac panel?!!!

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jerseyangel Proficient
jerseyangel
Posted

Hey Judy--love your GI, too! That was great :D

As Deb said, enough is enough.

KaitiUSA Enthusiast
KaitiUSA
Posted

I would not do that. First, it can take time for your blood to go back to normal. Second, have you been 100% gluten free including products such as makeup. I would re-evaluate everything that you are using and consuming to make sure nothing is sneaking in. I have some lists if you would like them...not sure if you have them or not but they help for a general guideline.

nathela Rookie
nathela
Posted
  • Author
Why for god sake do I need to induce myself with gluten when I still have a positive blood celiac panel?!!!

I asked my GI about the gluten challange and he said, AND I QUOTE HIM, " Judy, If I lit a candle and said put your finger in the flame to see if you get burned" would you have to do it to prove it will burn you???

Love my GI....Loved the post...'does your GI need a new car:)

Judy in Philly

:lol: That's funny. Do I need to have a biopsy, though? A way to know that my small intestine is ok? What do you think?

I would not do that. First, it can take time for your blood to go back to normal. Second, have you been 100% gluten free including products such as makeup. I would re-evaluate everything that you are using and consuming to make sure nothing is sneaking in. I have some lists if you would like them...not sure if you have them or not but they help for a general guideline.

:lol: Thank you I would love to have the list ... I have hard time to find a body lotion, and sf30 sunscreen, and make-up... Nathela.

Guest nini
Guest nini
Posted

my thought would be that since you have positive bloodwork, you do not need the biopsy. What you do need to do is make sure that you are 100% gluten free, no accidents, no cross contamination, NO CHEATING, including personal care products like hair, makeup, and skin... yes it matters. I did not have the biopsy. I will not EVER have the biopsy. I will not ever subject my child to the biopsy. I KNOW beyond a shadow of a doubt that gluten is our enemy. Gluten very nearly killed me. My positive bloodwork was enough for me. My follow up bloodwork had all returned to "normal" so by that standard someone might say I do not have Celiac. NO,maybe not right now, but I AM gluten intolerant and if I injest even one molecule of gluten it makes me ill. (I do know that I do have Celiac beyond a shadow of a doubt and so does my daughter)... Just ask her when she turns down birthday cake at her cousins birthday party... "I AM DISEASED" she says... LOL...

VydorScope Proficient
VydorScope
Posted

The only reason to get the bisopy if you have postive blood work is for insurance reasons. Some Insurance companies will not cover vit tests, bone scans, presciption vits, and etc with out hte biopsy. But remeber to do the biospy you have to do MORE damage to your system and set back your recovery...

Guest nini
Guest nini
Posted

on the dark side of the insurance argument, with a positive biopsy, if you go to change insurance companies, you stand a very good chance of them DENYING coverage because of it. (I didn't even have the biopsy and yet with the positive dx of Celiac on my medical charts, I had at least 4 different insurance companies refuse to cover me)

VydorScope Proficient
VydorScope
Posted
on the dark side of the insurance argument, with a positive biopsy, if you go to change insurance companies, you stand a very good chance of them DENYING coverage because of it. (I didn't even have the biopsy and yet with the positive dx of Celiac on my medical charts, I had at least 4 different insurance companies refuse to cover me)

Yea theres that to consider too. :(

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