Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Month Did You Get Dx'ed?


anerissara

Recommended Posts

anerissara Enthusiast

I was just wondering what month you were diagnosed in, or specifically how many people got really sick (perhaps leading to diagnosis or to trying the gluten-free diet) around the holidays? Last Christmas/Thanksgiving and the year before that were my sickest times, and this year (first one gluten-free) has been much much better. Just wondering if all those holiday cookies and rolls might have caused a crisis! My 1 year gluten-free aniversary will by the end of January.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rmmadden Contributor

Interesting point. I think you are right with all the gluten involved in traditional holiday celebrations.

Thanksgiving weekend '04 I almost passed out from all the stuffing, pies, cookies, etc. I was diagnosed 1-1/2 weeks later in early December '04 and have felt a lot better this holiday season.

Best Of Luck!

Cleveland Bob B)

Canadian Karen Community Regular

I was also diagnosed around Christmastime (3 or 4 years ago, I can't remember, I know the boys were already born though and they are 4 yrs old). The first time I was diagnosed (in my early 20's, I can't remember what month that was......)

Karen

Carriefaith Enthusiast

I started getting really sick in October 2003 and I was diagnosed in March 2004.

jerseyangel Proficient

I started getting very ill in the fall of 2003. At that time, my Dr. felt that my anemia was caused by heavy monthly blood loss. In Mar. 04, I had a procedure under general anesthetic to control it. After that, the accute symptoms of Celiac kicked in worse than ever before. I was diagnosed in June of 2005.

carriecraig Enthusiast

I started getting really sick in March '05, and was diagnosed in June '05. I don't remember if the holiday food made me feel really bad last year or not.

uclangel422 Apprentice

I started feeling really sick in January 2005 and diagnosed in April 2005. I guess i was pretty lucky that it only took four months.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



4getgluten Rookie

I too started to get really sick last year around the holidays. I continued to get worse until March 05 when I switched to a gulten-free diet. Last New Year I was sick and depressed, this New Year's I feel great. I am so thankful that my health is back... and so very thankful for all the wonderful people on this board! I have spent hours reading your posts and learning everything I could about a gluten-free diet.

Ursa Major Collaborator

I have been sick all my life, but got REALLY sick in May 2005, and diagnosed myself with Celiac disease in October 2005, confirmed by my doctor. I've been feeling terrible this Christmas, probably because now apparently a severe sensitivity to salicylates has kicked in (or wasn't as noticable when glutened, or now my intestines are healing and taking up the salicylates better, which is probably the best theory).

But it seems, looking back, that around Christmastime I'd always be feeling even worse than the rest of the year.

chuikov Newbie

I've never been diagnosed by a doctor. I had always been prone to diarrhea, and it was gradually getting worse over the years. My older sister was much worse, and was misdiagnosed many times before a bright doctor told her to try a gluten free diet almost ten years ago. It helped alot after a short while. I quickly noticed that I tended to get very bad and painful diarrhea after eating things like pizza, pasta or subs. I had never made the connection to something as seemingly benign as wheat flour. I tried cutting out other foods like dairy, meat, spicy stuff, before but not surprizingly, it didn't help. In fact cutting out meat made it much worse because I ended up eating more gluten.

I never bothered to go to a doctor about it because it was pretty obvious what was going on once my sister was properly diagnosed.

dlp252 Apprentice

I don't have an official diagnosis, but I've put the pieces together from the Enterolab testing I had done in November and the positive response to diet. Looking back, the past few years (including this one) I did get sick around this time. Last year I was VERY sick from November to February or March. Interestingly, I had been eating a low carb diet for at least two years before that, but loosened up around the holidays last year and enjoyed some of my mothers yummy cookies that she only makes at Christmas. I also sampled goodies people brought to work--not a lot--just a little here and there. This year I started early--after a cruise at the end of August, I started eating breads and stuff again...sure enough I was sick for the entire month of October and the first half of November.

traveljunkie Rookie

My son and I both got sick in Feb 2005 and finally dx in summer. After a very frust

rating journey to health, we are finally feeling better! :)

Charlene

NYCisTHEplaceTObe Rookie

i have been sick for many many years but it got really bad around 2001 and I finally self diagnosed myself with at least a gluten intolerance fall of 2005.

sillyyak Enthusiast

I got sick in August 2005 and got diagnosed in November 2005.

loraleena Contributor
I was just wondering what month you were diagnosed in, or specifically how many people got really sick (perhaps leading to diagnosis or to trying the gluten-free diet) around the holidays? Last Christmas/Thanksgiving and the year before that were my sickest times, and this year (first one gluten-free) has been much much better. Just wondering if all those holiday cookies and rolls might have caused a crisis! My 1 year gluten-free aniversary will by the end of January.

I have had problems for years, but got really sick in March after a stomach flu. I had fevers and "chronic fatigue for months. Then in July I read about gluten intolerance and it fit what was happening. I was told to stop wheat, but not gluten in April. I was eating lots of spelt and nauseaus every day. I got tested by enterolab in July and was pos for gluten int. I have been gluten free since, and am doing much better.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    2. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

    3. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    4. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.