Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Urgent-help! Serious Pain!

mightymorg

By mightymorg
in Coping with Celiac Disease

Recommended Posts

mightymorg Rookie
mightymorg
Posted

I don't know what happened! I was starting my workout, and just 10 minutes into my elliptical exercise I got very serious pain in my gut, right below my belly button. It's not gas, and it's not a pulled muscle, it hurts like hell from the inside and I can't stand up...it hurts too much. It burns almost. The closest thing I can describe it to is that it feels exactly like when I had a cyst on my fallopian tube and it started leaking. My boyfriend is at work, so I'm home alone...I don't have a fever, the pain is just excrutiating! Any ideas?!? :o

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


elisabet Contributor
elisabet
Posted

I am so sorry,please contact your doctor and let us know the resault.

best wishes elisabet

jenvan Collaborator
jenvan
Posted

Does it hurt from your belly button downward in a line like? Does it hurt constantly or when you lean a certain way?

mightymorg Rookie
mightymorg
Posted
  • Author

it is hurting from the bellybutton and down, but now the pain is spreading up on the right side of the bellybutton. it hurts no matter what position i'm in, and it's giving me chills...it's worse if I stand up...i have to stay hunched over. thank y'all for replying

Canadian Karen Community Regular
Canadian Karen
Posted

Is it close to your fallopian tubes or your ovaries? That's the only thing that I can think of. Sometimes when I am ovulating, I have excrutiating pain for a couple of hours then it goes away.

I would strongly recommend you contact your doctor though. Don't leave it go too long.....

Keep us posted.

Karen

jenvan Collaborator
jenvan
Posted

boy, i'd say is near impossible for us to know what it is!! but as has been said, you may need to give the doc a call. appendicitis is near your area of pain. Open Original Shared Link have you been feeling okay otherwise?

gabby Enthusiast
gabby
Posted

Could it be a hernia? Regardless, get to the hospital and find out for sure.

good luck

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

I agree, go to the hospital emergency right now. If you can't drive yourself, call the hospital and ask them what they think, if they think it's serious, they might send an ambulance. Or you might get a friend to drive you. But do go.

Carriefaith Enthusiast
Carriefaith
Posted

The pain could be from appendicitis. You should go see a doctor ASAP.

minibabe Contributor
minibabe
Posted

Let us know how you are doing, keep us posted. Hope that you feel better soon.

Judyin Philly Enthusiast
Judyin Philly
Posted
The pain could be from appendicitis. You should go see a doctor ASAP.

Agree with Carriefaith--came on tonight to see how you were doing and didn't see an answer...

so hope you got to the dr or hospital to get ck'd out....Thanks Jenvan for the appendicitis sight for her to see.

this is one caring group of people--- :)

Judy in PHilly

ebrbetty Rising Star
ebrbetty
Posted

Did you call the hospital? are you feeling better?

mightymorg Rookie
mightymorg
Posted
  • Author

Thank y'all so much for the help! I did go to the ER. They did blood work and a CT scan to rule out appendicitis, which they did....however, we found out the pain is from a new cyst on my right side, about the size of a mandarin orange. Not bad considering my last cyst (on right f. tube) grew to the size of a baseball (had a lap to remove it). We guess it leaked a tiny bit of fluid, which caused the pain. Weird, because that first cyst is why I got on BC anyway to try and shrink it (which it didn't), but I've stayed on it...so, theoretically, I shouldn't be getting cysts since I'm not ovulating (I take it like clockwork). They wrote me an Rx for vicodin for the pain if it comes back, and I'm calling my GYN tomorrow for a follow-up. I'd like to NOT have another surgery for a danged cyst, but we'll see in time I guess!

Thank you all for the kind wishes!

Ursa Major Collaborator
Ursa Major
Posted

I'm sorry about the cyst, but glad you had it checked out and its not appendicitis. Keep us posted on what will be done.

All the best

Judyin Philly Enthusiast
Judyin Philly
Posted

just got on to see if you were home safe and ok

Glad no surgery for you today.

Judy in Philly

ebrbetty Rising Star
ebrbetty
Posted

happy to hear you're ok. hopefully you won't need surgery.

mightymorg Rookie
mightymorg
Posted
  • Author

Thanks again for all the kind words!

Becky6 Enthusiast
Becky6
Posted

I am sorry about that! But glad you know what it is and that all is well!

jenvan Collaborator
jenvan
Posted

Glad you got it figured out--but cysts can be so painful!! I've had a few :( Hope you are feeling better now!

jerseyangel Proficient
jerseyangel
Posted

Hi--I've been following this since yesterday and am glad to see you're okay :) . I had nothing to add to the recomendations to seek medical help and was hoping you did that without delay. I have a cyst on my ovary that they are "watching". Several times, the pain was so intense--but knowing what it was, I waited it out and the pain usually lasts about 1 or 2 days. It would even be painful if I touched the skin in the area. Thankfully, it hasn't flared up in a while. Good luck with everything.

mightymorg Rookie
mightymorg
Posted
  • Author

Thanks for the warm wishes. :) I had a rough time sleeping last night...I'm used to falling asleep on my stomach, but it hurt to stretch out so I couldn't fall asleep on my sides. However, I filled my Rx for the Vicodin, took some, and I can feel it working like a charm! :P Now I need to call my gyn...

Canadian Karen Community Regular
Canadian Karen
Posted

I am so glad you got checked out and figured out what it was. I thought it kinda sounded fallopian tubish....LOL! Hope you are feeling better really soon!

Hugs.

Karen

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,333
    • Most Online (within 30 mins)
      7,748
    Donna Chem
    Newest Member
    Donna Chem
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.