Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Quinoa


Rachel--24

Recommended Posts

Rachel--24 Collaborator

I really dont care for quinoa (tried it a long time ago pre-gluten-free) but thought I'd give it another chance. I ate it for breakfast last Thursday and have been REALLY messed up ever since. I have every symptom of a glutening but I know it wasnt contaminated. My doctor told me to avoid both quinoa and amaranth because even though they are gluten-free they are too similar structurally to gluten and therefore some people react....same with soy protein isolate (whatever that is). I didnt really believe him since 9 out of 10 websites say they are safe...sooo I went ahead and ate quinoa. Now I am still sick. :(

I asked my doctor about this and he said this is why he told me not to eat it....because some people DO react to it. He said while some of his patients do fine with it...others have gluten reactions from it. I'm confused about this. I knew even the purest of oats could cause trouble for some but quinoa??? :huh:

Did anyone else have a gluten reaction from quinoa?

P.S. I'm not at all sad about giving up quinoa...cuz its gross....but just wanna know if it could cause that reaction.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

dunno, I think it's gross too.

Rachel--24 Collaborator
dunno, I think it's gross too.

LOL...I'm thinking noones gonna answer cuz probably everyone here feels the same. I'm the only one dumb enough to try it twice. :lol::lol:

angel-jd1 Community Regular

I put it in meatloaf ,meatballs, cookies, and things sometimes. I have also used it ontop of apple crisp. I have also eaten it as a hot cereal with a little butter and sugar. I don't think it is bad and it hasn't made me sick at all. By the way, I used the flakes.

-Jessica :rolleyes:

I really dont care for quinoa (tried it a long time ago pre-gluten-free) but thought I'd give it another chance. I ate it for breakfast last Thursday and have been REALLY messed up ever since. I have every symptom of a glutening but I know it wasnt contaminated. My doctor told me to avoid both quinoa and amaranth because even though they are gluten-free they are too similar structurally to gluten and therefore some people react....same with soy protein isolate (whatever that is). I didnt really believe him since 9 out of 10 websites say they are safe...sooo I went ahead and ate quinoa. Now I am still sick. :(

I asked my doctor about this and he said this is why he told me not to eat it....because some people DO react to it. He said while some of his patients do fine with it...others have gluten reactions from it. I'm confused about this. I knew even the purest of oats could cause trouble for some but quinoa??? :huh:

Did anyone else have a gluten reaction from quinoa?

P.S. I'm not at all sad about giving up quinoa...cuz its gross....but just wanna know if it could cause that reaction.

psawyer Proficient

I eat it from time to time. It is a nice change of pace from all the rice and potatoes. I don't think it is gross at all. And it is gluten free and natural. However, I suppose you could be one of the people who react to it.

ianm Apprentice

I never had any reaction from quinoa but it is gross so I don't eat it. I read on a quinoa package that the plant produces a soap like substance as a natural insect repellent and can have a bitter taste.

Mango04 Enthusiast

Maybe I'm totally weird - b/c I think it's good! Did you rinse it really well before you cooked it? If not, it has this soapy coating that can make you really sick. It's some sort of natural pesticide that you have to entirely clean off before you cook it...and it tastes really bad if you don't get rid of it. A lot of the time when you buy quinoa that soapy stuff is already rinsed off though...so maybe that wasn't the problem. Hope you feel better.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frenchiemama Collaborator

I thought that the quinoa flakes were completely gross, but I like whole quinoa. Especially since it cooks so much faster than rice. Never gotten sick from it though.

hez Enthusiast

I have never gotten sick from Quinoa. However, as a hot cereal and pasta I think it is gross. I do like quinoa as a substitute for couscous.

Feel better soon!

Hez

psawyer Proficient

You do have to make sure it is thoroughly rinsed to remove any saponin (the soaplike coating) before preparing it. This may have been done before you get it, but I always put it in a strainer and run plenty of cold water through it to ensure that it is clean. When the water runs clear the saponin has been eliminated.

tarnalberry Community Regular

I eat it with no problems.

Merika Contributor

I like it but it makes me feel sort of bad, so I don't eat it anymore. :( When I did allergy tests one year post-gluten-free, I tested positive to every grain out there (except for wheat, rye, barley, oats, LOL - because I'd avoided them I suspect). I think if your insides are really messed up, any grain is hard to digest. In time, you may be ok eating them (like 3 years.....).

Merika

jenvan Collaborator

I eat with no issues...ate it last night-yum! :) I always cook it in a broth or seasonings like saffron.

marciab Enthusiast

I don't have any problems with quinoa, but brown rice tears up me up some times. marcia

Rachel--24 Collaborator
Maybe I'm totally weird - b/c I think it's good!

Yeah...you're TOTALLY weird! :lol::lol: j/k

apparantly there are a few of you weirdos on this thread. ;)

I'm not a picky eater and I even like the dry amaranth snaps but I just dont go for quinoa at all.

Did you rinse it really well before you cooked it? If not, it has this soapy coating that can make you really sick. It's some sort of natural pesticide that you have to entirely clean off before you cook it...and it tastes really bad if you don't get rid of it. A lot of the time when you buy quinoa that soapy stuff is already rinsed off though...so maybe that wasn't the problem. Hope you feel better.

I did not know it came with a soapy chemical on it. :huh:

Great....if I was gonna get sick I'd rather it have been pizza...not some soapy quinoa. Gross.

How do I know if the chemical was washed off or not? It was hot cereal (Ancient Harvest) and it was flakes not those little round things. I don't think I could have washed off the flakes because they were real tiny...they probably would have disintegrated or something. :unsure:

I wonder if residues could have gotten me sick since I am extremely sensitive to any chemicals? I think even a natural pesticide would definately make me sick.

jenvan Collaborator

I was curious on the "soap" so looked it up here. It said:

Open Original Shared Link

Preparation

Quinoa's survival through the millennia may be attributed to the resinous, bitter coating that protects its seeds from birds and insects--and also shields them from the intense high-altitude sunlight. This coating, called saponin, is soapy and must be removed in a strong alkaline solution to make the grain palatable. Most quinoa sold in this country has already been cleansed of its saponin. But quinoa should be rinsed thoroughly before cooking to remove any powdery residue of saponin. Place the grain in a fine strainer and hold it under cold running water until the water runs clear; drain well.

Sterndogg Apprentice

I like it as a substitute too for couscous and use chicken broth or beef stock instead of water for flavoring if having as a side dish with dinner.

Rachel--24 Collaborator
Quinoa's survival through the millennia may be attributed to the resinous, bitter coating that protects its seeds from birds and insects--and also shields them from the intense high-altitude sunlight. This coating, called saponin, is soapy and must be removed in a strong alkaline solution to make the grain palatable. Most quinoa sold in this country has already been cleansed of its saponin. But quinoa should be rinsed thoroughly before cooking to remove any powdery residue of saponin. Place the grain in a fine strainer and hold it under cold running water until the water runs clear; drain well.

Thanks Jen,

Maybe I should have washed the flakes...wonder if that would have helped. Well....now I know and I wont be eating them again....thats for sure. I bet it was residue that got me sick. I looked at the box and it says nothing about the saponin. I think if I was healthy it wouldnt have bothered me but my immune system is definately under some serious stress so it doesnt take a whole lot to make things worse.

Mango04 Enthusiast
Yeah...you're TOTALLY weird! :lol::lol: j/k

apparantly there are a few of you weirdos on this thread. ;)

hahahahahahaha :lol:

The only thing I don't like about quinoa is it's really hard to wash. Maybe I just don't have the right kind of strainer. Hmmm. Go figure we have to worry about strange soapy stuff being in the foods that are supposedly safe and naturally gluten-free. <_<

Rachel--24 Collaborator
Go figure we have to worry about strange soapy stuff being in the foods that are supposedly safe and naturally gluten-free. <_<

Yeah...I never woulda thought there was insect repellent on my cereal! What the... :blink:

jerseyangel Proficient
:D:D I bought a box of quinoa several months ago. I didn't know of a good way to make it, so I just kind of forgot about it. After hearing what everyone is saying, I don't think I'll be trying it anytime soon!
psawyer Proficient

Everbody needs to keep this in perspective. Saponin is a natural part of the plant, just like the shell is a natural part of a walnut, or the stone is a natural part of an apricot. It is not a soap or chemical added by man. BTW, apricot stones are poisonous due to large quantities of naturally occuring cyanide, but that doesn't mean you should not eat the flesh.

If the quinoa has been processed into flakes or some other form besides whole grain, then the saponin would have been removed. The caution only applies to whole quinoa, where some residue may remain.

Mango04 Enthusiast
Everbody needs to keep this in perspective. Saponin is a natural part of the plant, just like the shell is a natural part of a walnut, or the stone is a natural part of an apricot. It is not a soap or chemical added by man. BTW, apricot stones are poisonous due to large quantities of naturally occuring cyanide, but that doesn't mean you should not eat the flesh.

If the quinoa has been processed into flakes or some other form besides whole grain, then the saponin would have been removed. The caution only applies to whole quinoa, where some residue may remain.

Yeah definitely. It's just kind of a pain to wash when you buy the whole qunioa....but I still think it's really good. Actually thinking of making some tonight. :)

Rachel--24 Collaborator
Everbody needs to keep this in perspective. Saponin is a natural part of the plant, just like the shell is a natural part of a walnut, or the stone is a natural part of an apricot. It is not a soap or chemical added by man. BTW, apricot stones are poisonous due to large quantities of naturally occuring cyanide, but that doesn't mean you should not eat the flesh.

Yeah...I understood about it being a natural occuring chemical and not synthetic. I was just being silly about not wanting soapy insect repellent on my cereal. :lol:

Since I ate flakes I'm sure the saponin was washed out but can it really be 100% removed? All I know is I got really sick so its definately not worth it to me to eat it again...I mean, it's not like its chocolate or anything super yummy like that. ;)

psawyer Proficient

Rachel, I'm cool with what you said. I just didn't want anybody to think there was anything about whole quinoa what was not natural or organic.

Your body may have a problem with quinoa even if the saponin is completely removed.

Peace. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    2. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - Scott Adams replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      12

      gluten free cookie recipes

    4. - Florence Lillian replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fermented foods, Kefir, Kombucha?

    5. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,910
    • Most Online (within 30 mins)
      7,748

    probinson3870
    Newest Member
    probinson3870
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
    • Florence Lillian
      I have had celiac for many years and still had terrible digestion. I cook from scratch, never eat anything with gluten ( A Gut that needs special attention seems to affect many who suffer from celiac) .  I made my own Kombucha, it helped my Gut much more than the yogurt I made but I still had issues. Water Kefir did nothing. As a last resort I made MILK Kefir and it has really started healing my Gut. It has been about 2 months now and I am doing so much better. It was trial and error getting the right PH in the Kefir ferment that agreed with my stomach, too little ferment, too much, I finally hit the right one for me. Milk Kefir has the most probiotics than any of the other. I can't find my notes right now but there are at least 30 probiotics in Kefir, Kombucha has about 5-7 and yogurt around 3 if I recall correctly.  I wish you all the best, I know how frustrating this condition can be. 
    • Charlie1946
      @cristiana Hi, thank you so much, I will look into those books for sure! And get bloodwork at my next appointment. I have never been told I have TMJ, but I have seen information on it and the nerve issue while googling this devil plague in my mouth. Thank you so much for the advice!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.