Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weird Question:


GlutenFreeAl

Recommended Posts

GlutenFreeAl Contributor

Ok weird question for everyone.

I used to pee constantly. I'm not even kidding you when I tell you that my friends in college called me "the urinator."

Now that I'm gluten free, I pee sooooo much less frequently! I can get through the workday only peeing twice, whereas it used to be like 7 or 8 times a day! Except when I get glutened. Then I get all bloated and pee every 20 minutes :angry:

I was just curious if anyone experienced the same thing. There 's probably zero correlation between the two problems...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elonwy Enthusiast

There is a correlation. Same thing. When I've been glutened I feel like I pee every ten minutes. I also wake up in the middle of the night and pee. When I'm as gluten free as can be....normal pee-er again. Body trying to flush out "toxins"?

Elonwy

mytummyhurts Contributor

Now that you mention it, yes!

Wow! I hadn't really thought about why. But I used to pee all the time and now I only do a few times a day. Hmmm, cool.

michellehunt Newbie
Ok weird question for everyone.

I used to pee constantly. I'm not even kidding you when I tell you that my friends in college called me "the urinator."

Now that I'm gluten free, I pee sooooo much less frequently! I can get through the workday only peeing twice, whereas it used to be like 7 or 8 times a day! Except when I get glutened. Then I get all bloated and pee every 20 minutes :angry:

I was just curious if anyone experienced the same thing. There 's probably zero correlation between the two problems...

I agree, I think the gluten makes us so thirsty. I am much more like a normal person in so many ways

i canary Rookie

I too noticed less peeing, but I didn't realize it was a gluten thing! :rolleyes:

Guest cassidy

I pee all the time! I have been gluten free for about 3 weeks, but I have been glutened a few times. I already feel so much better, it would be nice if I started peeing less as well.

I am in sales so I'm in my car all day long. I can't tell you how many nasty gas stations I've stopped in because there was no other choice.

I can't ever make it throught the night without getting up to pee. Once I wake up, I have a heard time going back to sleep because I've been so stressed lately. I would love not to get up at 4:30 anymore. That really isn't the morning.

How soon did you all notice a difference?

Judyin Philly Enthusiast

Agree--and my incontanence has gone away :rolleyes:

Gluten free for 6 months...

Must be something to this I think

Judy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mookie03 Contributor

one thing i noticed about before i went gluten-free (or when i am glutened) is that after ingesting gluten, i would suddenly have to pee w/ extreme urgency. I would go, then 15-20 mins later, i had to pee again, and thats when i would get sick-- its weird b/c even if i dont know i am glutened, i will know by the constant peeing w/ urgency after the meal...its like the warning signal now! And also, yes, i have def found that when im glutened i am thirsty to a point where i can never drink enough water (hence all the peeing)

lorka150 Collaborator

before i read who started the topic, i had a feeling this was you........... :D

seriously.

DonnaD Apprentice

We have this in our family. Mine got so bad I would get up 3-4 times a night and my colleagues in the office used to make jokes about how many times I went to the loo. (about every 30 mins or do). I had a bladder scan, tests for cyctitis and other tests over the years, all negative. My sister is also gluten sensitive and has the same problem. Interestingly it can also be a side effect of taking too much Ventolin inhaler for Asthma.

When I was Dx with fibromyalgia 2 years ago I happened to mention it to the Rheumatologist. He said it was an 'Irritable Bladder' (to go with the Irritable Bowel!) and common with fibro.Now I take 1 Tolterodine tab daily. The difference was amazing, I only get up once in the night if at all. I go 'normally' now, I even have to remind myself to go!.

Since being gluten-free in Mid November it is better still, except when I'v been accidentally gluted. I am concidering stopping the meds now. I am probably drinking more now than when it was really bad so it wasn't a volume issue.

My doctor said in my case it is a neurological problem with the nerve between brain/bladder as tolterodine works on a very specific muscel at the neck of the bladder that gets overactive.

Donna

Generic Apprentice

I have also had that problem. I think it has to do with when you get glutend you dont absorb real well, and it just filters thru you like a big britta pitcher. When I get glutened, I get dehydrated real fast. It only takes a matter of a few hours, sometimes.

GlutenFreeAl Contributor

Wow, thanks for all of your responses! I was just kind of grabbing at straws, but it seems like maybe there is a connection!?!

Last night I literally got up to pee 5 times to pee within an hour and a half period. And I was incredibly hyper. (Needless to say, I didn't get a great night's sleep last night.)

Based on your answers, and even though I didn't feel sick to my stomach, is it possible I accidentally got glutened?

Anyone else feel hyper and agitated when glutened?

Thanks!!!

Nantzie Collaborator

Yep, hyper and aggitated. If I get glutened later in the evening and then try to go to sleep, there's no way. It's like I'm buzzing. And not "buzzing", but like an internal vibration almost. And my brain goes 100 miles an hour and I get aggitated. Before I knew about gluten, I just thought I was frustrated because I couldn't sleep. But once I went gluten-free, I noticed that if I got glutened in the evening, that's what would happen. Same thing happens if I get glutened during the day - irritable and restless, but I'm also running after my kids, so it's less noticable.

I've also noticed that I'm less thirsty off gluten, and pee less. I was always thirsty before.

Nancy

MACE Rookie

i have noticed a difference also, but had not thought of it being because of the gluten.

Nancym Enthusiast

Hmmm... now that you mention it yes! I used to get up a pee 3-4 times a night. Now sometimes I sleep right through or just wake up once or twice. Although I have also gotten off dairy too.

It wasn't like my bladder was full either, just a strong urge to go.

DonnaD Apprentice

I have heard that hyper aggitated feeling described as 'tired but wired'.that fits me! and I notice it much more now i'm gluten & dairy free when I accidentally slip up.

Donna

  • 2 weeks later...
fritzicurls Rookie

You guys might also want to check out if you have a yeast overgrowth infection. This stopped for me completely (glutened or not) when I began to get control over my yeast infection. Great website candidafree.com.

fritzicurls

  • 2 weeks later...
slpinsd Contributor

I had the same symptoms. My bladder would feel full and pressurey alot and I had to go all of the time. Now I think it may have been correlated with bloating. Also, yes, when I get glutened I feel anxious and panicked.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    2. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    3. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    4. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      34

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,311
    • Most Online (within 30 mins)
      7,748

    EMP6543
    Newest Member
    EMP6543
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold.  Our bodies have difficulty absorbing and utilizing it.  Only 30% is absorbed and less can be utilized.   There's some question as to how well multivitamins dissolve in the digestive tract.  You can test this at home.  YouTube has instructional videos.   Talk to your nutritionist about adding a B Complex.  The B vitamins are water soluble, so any excess is easily excreted if not needed.  Consider adding additional Thiamine in the forms Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) or thiamine hydrochloride.   Thiamine is needed to help control electrolytes.  Without sufficient thiamine, the kidneys loose electrolytes easily resulting in low sodium and chloride.   We need extra thiamine when we're emotionally stressed, physically ill, and when we exercise regularly, are an athlete, or do physical labor outdoors, and in hot weather.  Your return to activities and athletics may have depleted your thiamine and other B vitamins to a point symptoms are appearing.   The deficiency symptoms of B vitamins overlap, and can be pretty vague, or easily written off as due to something else like being tired after a busy day.  The symptoms you listed are the same as early B vitamin deficiency symptoms, especially Thiamine.  Thiamine deficiency symptoms can appear in as little as three days.  I recognize the symptoms as those I had when I was deficient.  It can get much worse. "My symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell." I took a B 50 Complex twice a day and extra thiamine in the forms Benfotiamine and TTFD.  I currently take the Ex Plus supplement used in this study which shows B vitamins, especially Thiamine B 1, Riboflavin B2, Pyridoxine B 6, and B12 Cobalamine are very helpful.   A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://pmc.ncbi.nlm.nih.gov/articles/PMC10542023/
    • Scatterbrain
      I am taking a multivitamin which is pretty bolstered with B’s.  Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol.  Started Creapure creatine monohydrate in June for athletic recovery and brain fog.  I have been working with a Nutritionist along side my Dr. since February.  My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t know the exact number since it was so high).  All my other labs were normal except Sodium and Chloride which were low.  I have more labs coming up in Dec.  I make my own bread, and don’t eat a lot of processed gluten-free snacks.
    • knitty kitty
      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
    • knitty kitty
      Vitamin and mineral deficiencies can make TMJ worse.  Vitamins like B12 , Thiamine B1, and Pyridoxine B6 help relieve pain.  Half of the patients in one study were deficient in these three vitamins in one study below. Malabsorption of vitamins and minerals is common in celiac disease.  It's important to eat healthy nutrient dense diets like the Autoimmune Protocol Diet, a Paleo diet that has similarities to the Mediterranean diet mentioned in one of the studies.   Is there a link between diet and painful temporomandibular disorders? A cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC12442269/   Nutritional Strategies for Chronic Craniofacial Pain and Temporomandibular Disorders: Current Clinical and Preclinical Insights https://pmc.ncbi.nlm.nih.gov/articles/PMC11397166/   Serum nutrient deficiencies in the patient with complex temporomandibular joint problems https://pmc.ncbi.nlm.nih.gov/articles/PMC2446412/  
    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.