burning sensation after going gluten free

[Dimitri berveglieri]

Hi guys, some months ago I found out I'm celiac and removed gluten from my diet like 4 weeks ago but I'm experience horrible symptoms like muscle twitching is happening all the time in different parts of my body.
I started to feel some kind of burning feeling in my arms and legs.
I don't have more stomach problems at all, my stomach feels great but I'm quite worried about these symptoms and I was reading that are like MS.
someone already felt the same after going gluten free?
 

[BuddhaBar]

I'm experiencing the same type of symptoms right now. Muscle twitches and burning sensation, but the burning is located in my feet. 
I had another episode of this 4 years ago and it was even worse then. This was before I found out I had celiac disease. It disappeared after I found out I had a severe vitamin D deficiency. But it took a while. I took monster doses of vitamin D and the worse symptoms disappeared after 3-4 months, but the muscle twitches was lingering for a couple of years. And yep, I thought I had MS too. Both I and my doctor suspect I might have hyperthyroidism. Have you checked your vitamin D level and your thyroid? Do you have a "pins and needles" sensation too? 

Keep in mind that celiac disease is not just stomach issues. You have an illness that affects your whole body. 

[Ennis-TX]

Magnesium deficiency was my issues for the burning feeling, also had some other muscle issues related to it. Still to this day I take Magnesium and a Electrolyte replacement powder.
B-vitamins and Vitamin D are other things to consider. B-vitamins are sprayed on or added to most gluten food to "enrich" them, gluten free foods do not get this treatment so you need to eat a well rounded diet and many times supplement as your gut can not absorb enough when damaged and celiacs metabolically require more of many if I recall.

[NNowak]

I was diagnosed 24 years ago, avoided Drs like the plague due to a busy household and limited finances. Also,  very leary of the typical Celiac experience of being discounted because I’m ‘doing this on purpose,’ or it’s all in my head. That thinking lead to a fall on my steps fracturing my spine in 4 places, breaking 2 ribs and puncturing my lung. 
 

That was March of 2017 and I’m still narrowing down the diagnosis. I had the unsteadiness, pins and needs in my feet and finger tips, tingling in my lips, everything hurt, I was exhausted, I couldn’t rely on my legs working or my brain staying focused, I could hear my blood pumping and my voice echoed in my left ear and I had black watery diarrhea. I am 5’7” and was a very muscular 140# at the start of this. This past summer I weighed 111#. My internist finally texted me for Folate and B12 deficiency - pernicious anemia runs in the family with Celiac. Folate came back below detectable amounts and B12 was barely low. My internist didn’t want to treat my B12. We need B12 to convert Folate in a form usable to our body. The B12 level by itself isn’t reliable, you need the MMA and Homocysteine levels to determine if it’s just a B12 deficiency, or both. If you’re deficient in these, you need to be screened for other deficiencies such as D and iron. Don’t supplement without this knowledge. I discovered I was also deficient in D and had extremely high ferritin and iron.

 

It took me 2 internists, 2 GIs and a functional medicine doctor in 3 years to get to this point. Treating the B12 deficiency brought up my Folate and B12 improving my symptoms by 80%.  The remaining issues are from another condition yet to be identified.
 

I highly encourage you to maintain a productive relationship with your GP and get to the bottom of this. Hopefully it’s a simple deficiency that can be treated giving you fast relief. 
 

[John Spoolman]

On 1/2/2020 at 11:09 AM, Dimitri berveglieri said:

Hi guys, some months ago I found out I'm celiac and removed gluten from my diet like 4 weeks ago but I'm experience horrible symptoms like muscle twitching is happening all the time in different parts of my body.
I started to feel some kind of burning feeling in my arms and legs.
I don't have more stomach problems at all, my stomach feels great but I'm quite worried about these symptoms and I was reading that are like MS.
someone already felt the same after going gluten free?
 

Sorry for your added troubles!  I've been a celiac for over 20 years and have had to figure out a lot of dietary problems as I've gone along.  Are you taking a daily multi-vitamin?  Once off gluten it's easy to gradually develop a severely unbalanced diet as you eliminate a number of foods with key ingredients that you once took for granted.  Even if taking a multi-vitamin, a celiac has trouble absorbing many B vitamins, especially vitamins B6 and B12. You will have to ask specifically for a blood test for these vitamins, insist on it, because they are hardly ever tested for "normal" people.  A B6 deficiency or lower levels of B6 may result in muscle spasms and in a worst case, even seizures.  This may not solve your muscle spasm problem, but it's a good possibility.  Most doctors aren't up on this stuff - you have to do your own research on all aspects of your new diet.  Eliminating gluten is just the beginning! 

Good luck! 

[aperlo34]

On 1/3/2020 at 1:09 AM, Dimitri berveglieri said:

Hi guys, some months ago I found out I'm celiac and removed gluten from my diet like 4 weeks ago but I'm experience horrible symptoms like muscle twitching is happening all the time in different parts of my body.
I started to feel some kind of burning feeling in my arms and legs.
I don't have more stomach problems at all, my stomach feels great but I'm quite worried about these symptoms and I was reading that are like MS.
someone already felt the same after going gluten free?
 

Did you figure this out?? 2.5 months in and have similar feelings.