Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Allergic?

gointribal

Recommended Posts

gointribal Enthusiast
gointribal
Posted

The doctor is running tests to see if I am allergic to wheat and milk, did anyone else have this test done and did it help?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dlp252 Apprentice
dlp252
Posted

I had a skin scratch test for both environmental and food allergens...I did not show any reaction to wheat, oats or rye, but did show a slight reaction to barley. I am NOT allergic to them, but I AM DEFINITELY intolerant to them.

ETA: I didn't show any reaction to milk either, but likewise, I am definitely intolerant. I have the antibodies in my system against both gluten and casein.

tarnalberry Community Regular
tarnalberry
Posted

a wheat allergy and a wheat intolerance are two different things. an allergy test will detect the former, but not the later. the later can cause celiac disease, but you can be intolerant without having any of the diagnostics for celiac disease.

chrissy Collaborator
chrissy
Posted

one of my celiac kids has had allergy testing done and she is not "allergic" to wheat.

christine

Rachel--24 Collaborator
Rachel--24
Posted

I had the tests and I'm not allergic to wheat or dairy.

chrissy Collaborator
chrissy
Posted

our allergist was going to wait to do a celiac screen on me IF my allergy test was positive for wheat or barley etc. LOL!!!!LOL!!!!LOL!!! why doesn't an allergist know the difference between celiac and an allergy?

christine

nogluten- Newbie
nogluten-
Posted

My allergy tests didn't show a wheat or dairy allergy, but my intestines are definately intolerant to both and I have celiac.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Carriefaith Enthusiast
Carriefaith
Posted
The doctor is running tests to see if I am allergic to wheat and milk, did anyone else have this test done and did it help?
I have had two tests for wheat allergy, a blood test and a skin prick test. The skin prick test was a 3/4 rating, meaning that I am quite allergic to wheat. And, I had a blood test for wheat allergy and my GI doc said that is was postive.
tiredofdoctors Enthusiast
tiredofdoctors
Posted

Can't remember if wheat was on my scratch and/or injection tests. I know I had a BUNCH of food allergies -- including soy, so I avoid it. The MD said that I traded my environmental allergies as a child for food allergies as an adult. Will check and get back to you. Don't know if that had any influence on me developing antibodies to gluten.

Rusla Enthusiast
Rusla
Posted

Many years ago when I had the the allergy test for eggs, dairy, wheat, environmental things etc. I was found to be allergic to those. I had decided at that point as long as the wheat was not causing me distress I would continue to eat it. Well, now it is no longer the problem of the allergy but that I have Celiac. So being Celiac made me quit where being allergic didn't.

gointribal Enthusiast
gointribal
Posted
  • Author

You all have been so helpful, thanks a million! I just got my test back yesterday and they were negative to wheat and milk. I was highly discouraged! I go in for a EDG next month and I hope they find something, because something is definatly wrong with me! Does anyone know if they combine the celiac blood tests to get a percentage? Because they did something like that with mine. I was in the normal range but when they combined it I wasn't normal? I'm trusting these doctors to read these test correctly and I'm beginning to wonder if they even know how to read the tests????

Rad3737 Rookie
Rad3737
Posted

Interesting subject. Had an appointment with a Naturopath yesterday who is telling me I am not allergic to wheat. And that it's an allergy to caffiene that is causing my Celiac Disease. I explained to him that Celiac Disease only relates to gluten (or am I wrong). From reading your posts, my Naturopath appears ignorant of Celiac Disease, but will take what I can from him regarding the allergy to caffiene.

Dianna

Carriefaith Enthusiast
Carriefaith
Posted
I just got my test back yesterday and they were negative to wheat and milk. I was highly discouraged!
You could still have an intolerance to dairy or wheat.
francelajoie Explorer
francelajoie
Posted

My tests were pretty normal too. My doctor said that the wheat test was just a slight bit high. With my symptoms (I thought I had IBS), she said to go gluten-free and dairy-free for 6 weeks or until my symptoms were completely gone. Then, slowly introduce dairy back into my diet. If I still felt better, than I had a gluten intolorence but not to dairy.

I feel awesome now. I think I got caught on time cause the only symptoms I ever got were diahrea, constipation, and bloating. For the longest time, I was taking a powder supplement called Revitalex. It actually helped me alot. I still have it in my cupboard for when i get glutened! Take that stuff and you get better within 24 hours.

gointribal Enthusiast
gointribal
Posted
  • Author

I've never heard of the supplement called Revitalex?! What is it and what does it do? Does anyone have any good vitamins they would recomend?

  • 3 weeks later...
slpinsd Contributor
slpinsd
Posted

I had a negative scratch test for allergies to ANYTHING. Wheat, oats, barley, rye, were negative on an IgG food allergy test (delayed food allergies). I was positive anti-gliadin indicating gluten intolerance. Dr. said that IgG food allergies can come and go, gluten intolerance is something you're stuck with :)

CMCM Rising Star
CMCM
Posted
Interesting subject. Had an appointment with a Naturopath yesterday who is telling me I am not allergic to wheat. And that it's an allergy to caffiene that is causing my Celiac Disease. I explained to him that Celiac Disease only relates to gluten (or am I wrong). From reading your posts, my Naturopath appears ignorant of Celiac Disease, but will take what I can from him regarding the allergy to caffiene.

Dianna

Frankly, I wouldn't have a lot of faith in what that naturopath says about ANYTHING if he would tell you such an ignorant, totally silly thing (i.e. that caffeine caused celiac disease). It's one thing to not know about something and admit to that fact, but to conjure up such an erroneous statement is irresponsible and dangerous to YOUR health.

Rachel--24 Collaborator
Rachel--24
Posted
Frankly, I wouldn't have a lot of faith in what that naturopath says about ANYTHING if he would tell you such an ignorant, totally silly thing (i.e. that caffeine caused celiac disease). It's one thing to not know about something and admit to that fact, but to conjure up such an erroneous statement is irresponsible and dangerous to YOUR health.

I agree. If I was to start a thread titled "Stupid Things Doctors Say"....that would definately in the top 5. :blink:

skurtz Explorer
skurtz
Posted

so does anmyone that has celiac get a rash or bumps that are not itchy?

Claire Collaborator
Claire
Posted
Interesting subject. Had an appointment with a Naturopath yesterday who is telling me I am not allergic to wheat. And that it's an allergy to caffiene that is causing my Celiac Disease. I explained to him that Celiac Disease only relates to gluten (or am I wrong). From reading your posts, my Naturopath appears ignorant of Celiac Disease, but will take what I can from him regarding the allergy to caffiene.

Dianna

Hi there. The Naturopaths are usually pretty good. This guy is not operating with a full deck. You can test the caffiene yourself. It certainly is not the cause of Celiac. You should point out to him that he is giving out false information. Celiacs do not need that. Claire

Interesting subject. Had an appointment with a Naturopath yesterday who is telling me I am not allergic to wheat. And that it's an allergy to caffiene that is causing my Celiac Disease. I explained to him that Celiac Disease only relates to gluten (or am I wrong). From reading your posts, my Naturopath appears ignorant of Celiac Disease, but will take what I can from him regarding the allergy to caffiene.

Dianna

Hi there. The Naturopaths are usually pretty good. This guy is not operating with a full deck. You can test the caffiene yourself. It certainly is not the cause of Celiac. You should point out to him that he is giving out false information. Celiacs do not need that.

On the subject of this thread - you can have a wheat allergy. You can have gluten intolerance (this is genetic and will not show up in any 'allergy' testing - i.e. skin pricks and patches. Then you can have celiac disease which like 'gluten intolerance' is genetic and won't show up as an allergy. You do not have to have a wheat allergy to have either of the other two conditions but you can have a wheat allergy and one or the other of the genetic disorders. You can also have genetic markers for both Celiac and gluten intolerance. Now are you confused? You should be.

I have been skin pricked and patched for everything one can imagine. Allergic to nothing! But I can't eat a piece a bread! Claire

jenvan Collaborator
jenvan
Posted

As Tiffany said, a food intolerance (IgG) is different from an allergy (IgE) and it will not show up on a conventional allergy test. Case in point--I am "allergic" IgE to nothing, but I am intolerant to many many foods. If you want ot ck either of these you must be sure to get the correct tests.

aaascr Apprentice
aaascr
Posted

I was tested a long time ago -

allergic to rye barley corn soy

dairy eggs beans - to name just a few

of my 20+ food allergies.

But did not show allergy to wheat -

go figure.

Glad there is flaxseed, hemp seed, rice

bran and quinoa!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    2. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in...
    3. SilkieFairy
      - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash...
    4. catnapt
      - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      learned I had a high PTH level in 2022 suspected to be due to low vit D got my vit D level up a bit but still have high PTH I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

      I am on day 13 of eating gluten and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.