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Guest DawterAod

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celiac3270 Collaborator

LOL......that's rather funny and ironic, Peg. :lol::lol::lol:


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  • Replies 117
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stargirl Apprentice

:D Bakersfield, CA

Laura

Guest Lindam
:rolleyes: I am from Lombard, Illinois. About 20 miles from Chicago. :)
  • 5 weeks later...
Sterndogg Apprentice

Boston (North End), MA

SOX Baby!!!

  • 3 weeks later...
Guest cowboy
How do you like this....I'm from Wheaton, IL

Peg

Me too!

I never made the connection WHEATon, Illinois until I saw your post.

darlindeb25 Collaborator
:lol: ashley michigan--hehe--try to find this needle in the haystack town :lol: hint--in the middle of the mitten---deb :lol:
celiac3270 Collaborator
Boston (North End), MA

SOX Baby!!!

I'm a New Yorker, but I 100% agree on the Bosox....this is their year....and you couldn't get a more perfect scenario than making a comeback to win four straight and take down the Yankees.......


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RavenFeather Newbie

Raleigh, North Carolina, Email me if your in the area, I would to love too meet another person with celiac disease besides my teacher.

Guest gfinnebraska
:D Auburn, Nebraska :D I would love to meet someone with celiac disease in my area ~ didn't see any other NE out there... :(
num1habsfan Rising Star

Saskatchewan, Canada

~lisa~

Guest sushi

Kaneohe, Hawaii

Susette

scudderkidwell Rookie

My husband and I are from Mouse country and Hurricane Central

Orlando, Fl. :rolleyes: Jean

cdobbs Rookie

Central Texas

christi

rattaway Newbie

Hey! We are located in Farmington, New Mexico. Looks like I am the most southwestern member here so far. Hope someone else is from the four corners area. Rian

Guest gliX

northern virginia

kschmitz Newbie

I'm from St. Louis, Mo. Go Cards!!!!

ks

llj012564 Newbie

Northern Minnesota ;)

Tim297 Newbie

I'm twenty minutes away from Cleveland, Ohio. Anyone else from this area?

burdee Enthusiast

Rachel: No, you're not the only one from Washington State. I live in Seattle, Washington, by Greenlake. We have lots of local celiac support groups in this area. Maybe few Seattle celiacs post on this site, because we have great local support. ;) However, I need all the help I can get. :lol:

BURDEE

pixiegirl Enthusiast

Cape Cod, MA

Susan

B)

stef-the-kicking-cuty Enthusiast

Carlisle (near Harrisburg), PA

snipe12 Rookie

I am from Yorkshire in England and I live in the countryside part.

WSLIZ Newbie

I am from West Springfield, Massachusetts

  • 2 weeks later...
leapingllama05 Newbie

Im from Kansas City and I'm 18. I'd love to talk to anyone around here. I need some help.

I'm more celiac than you Newbie
hey im from michigan it would be really nice to talk to someone from michigan with celiac disease the only people i talk to that have celiac disease are from canada (which there is nothing wrong with that) but it would be kinda nice to know there is someone that may live near you that is "like you" know what i mean? it would be really cool if some of us michigan people could swap email addresses or somethin! mines pippigirl32@hotmail.com email me when ever ya wanna i would love to hear from ya!

Julianne

PS if you are from a diff counrty or state thats cool i would still love to talk to you! Im always up for meeting new people! :D

I'm from ann arbor, michigan

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    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
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