Disappointed

[Guest stef 4 dogs]

I have to say today was my first day signing on. I was really hoping to meet people with similar problems to relate too. Instead I feel locked out! I haven't had any responses to anything! Guess new commers are not welcome! I don't have anyone to relate too that has this disease. I feel like an intrusion to your secret club instead of someplace to come to seek answers. Not a very good forum for any discussion.....

Stef 4 dogs

cujolu@msn.com

[jenvan]

Wow Stef, I'd say that is a very unfair judgment. I think this place is very welcoming! I think the majority of peeps check posts at night. And your only thread was on weight loss supplements, which is a very specific topic, and considering most of the people here have been under weight, there is probably only a minority familiar with diet supplements. Be patient...I have had threads that didn't get very many answers either. We're all in this together, hope you choose to stick around!

[IronedOut]

I have to say today was my first day signing on. I was really hoping to meet people with similar problems to relate too. Instead I feel locked out! I haven't had any responses to anything! Guess new commers are not welcome! I don't have anyone to relate too that has this disease. I feel like an intrusion to your secret club instead of someplace to come to seek answers. Not a very good forum for any discussion.....

Stef 4 dogs

cujolu@msn.com

Hi - I think I responded to your weight loss Q on the wrong thread. I'll try and repost. I'm an asymptomatic Celiac and at first found some of the info and responses didn't match my needs. But the more I search and post, the more I find that helps. Please think about giving it another try.

Julie

[jerseyangel]

Hi Stef--I saw your post, but had no experience with diet pills, so I really did not have any input for you. Like Jen said, maybe tonight when more people are on, someone will weigh in. This forum is not in any way a closed group--everyone is welcome here and we do our best to try and help when we can and make newcomers feel welcome. Especially with a specific question like yours, you need to give it a bit more time--that way more people will have a chance to see it.

[DingoGirl]

Oh dear....did you not get my reply? I responded to your pm, I think it was yesterday, wrote a rather lengthy message. Let me know if you got it or not, it seems to me some people are having trouble with private messaging.....

I was diagnosed just one week ago and cried for the first three days. Thought life was over. But, after 6 days of being gluten-free, I feel really wonderful. Somehow not as lonely, I do take comfort from the posts here and I am VERY new as well. I think it just takes time, and patience, but take heart, I think we will feel much much better, in so many ways! I already feel like a different person!

[Guest nini]

I swear I replied to your post about weight loss supplements...

Every time I come on to check this board there are literally hundreds of new messages to sift through. I work and am a busy mom of a five year old who also has Celiac... sometimes it takes a while for people to see your posts and for the right people to respond to them... (those being someone who would have something to say about the subject)...

This is not a live chat room where things happen instantly, please don't feel like you are being ignored, most of us try to get to the newbies and welcome you as soon as possible, we really try.

[ianm]

It depends upon what time of day you post and what question you are asking. In a forum like this it can take a while for a response.

[cgilsing]

Hi Stef -

I hope you give this board a second try! Sometimes it just takes time for people to see your posts, or like someone else said if we don't have experience with a specific issue we may not respond to it. Overall I think this board is a great asset and really one of the best groups I have seen! Everyone is always willing to offer suppport, and rarely have a I seen judgmental attitudes around here.....actually I think I am more comfortable talking about such subjects as poop and gas on this board than I am with my Dr. I know sometimes it can be frustrating if you are looking for answers and they are slow in coming....but hang in there...no one is intentionally ignored around here!

[Judyin Philly]

I have to say today was my first day signing on. I was really hoping to meet people with similar problems to relate too. Instead I feel locked out! I haven't had any responses to anything! Guess new commers are not welcome! I don't have anyone to relate too that has this disease. I feel like an intrusion to your secret club instead of someplace to come to seek answers. Not a very good forum for any discussion.....

Stef 4 dogs

cujolu@msn.com

Stef,

I'm so sorry about you not getting responces. Please don't feel alone.

I think most have said the reasons for it.

I found when I first went on the forum 4 months ago it was so hard to figure out where to put the question.

I don't know how to figure out where you made your original post, but people who are interested and have knowlege in a area will go to those threads. Did you post your question under medicines?...was it about diet aids..or diet pills? See, I would have skipped by that even if you were new because if i saw it, which i didn't, i would have gone on knowing someone who knows about that issue could be of more help.

I've had 2 posts on 1 for a week and one all day today and 18 people looked at it but didn't post.

Please bear with us. I have rec'd so much help here. I don't know your health issues but I'm over weight, not like most on board but have lost weight just going gluten-free I hope I could help alittle and make yu feel less alone.

Judy in Philly

[psawyer]

Aside from this one, you have started two other threads: Any Guidelines for Losing Weight and Kellog's Corn Pops. They have had 22 and 5 replies respectively, as of a few minutes ago. I have not read them, so I can't comment on whether the replies were useful, or even on topic. But you have not been ignored.

Sometimes it takes a while before somebody who has the answer you need sees your post and responds.

We all face the challenge of avoiding gluten, and we share our ideas freely and without judging each other (okay, there are a small number of exceptions to that).

[DingoGirl]

Um, wait a minute....where is that Kellogg's Corn Pops information? My heart is pounding......can I really eat those? that would make me extremely happy, and replace my pretzel habit at night.....

[Guest nini]

Um, wait a minute....where is that Kellogg's Corn Pops information? My heart is pounding......can I really eat those? that would make me extremely happy, and replace my pretzel habit at night.....

sorry to burst your bubble, but no, Kellogg's Corn Pops are not safe, they contain Wheat Starch... they used to be safe, but some "genius" decided to "improve" them and added wheat starch about a year ago... some Dr.s are still handing out information to the contrary.

[Rusla]

Sorry Stef...I have not seen your posts, I can't even remember yesterday. However, I have no info on weight loss supplements.

Give it some time. I have had lots of things that don't get answered and that is because if no one knows the answer or has experience with that particular thing, they won't answer.

[darlindeb25]

Well Stef--I am guilty of not reading in this forum everyday--I belong to so many other forums. I dont know anything about diet drinks and probably wouldnt try any because of not knowing the ingredients to be safe.. Jen, I must add here that most celiacs are not wieght loss victims. It truthfully runs about half and half. Some of us dont lose when sick because our bodies over conpensate for the problem and the fat stays. We are just as unhealthy as the skinny ones, but in a different way. When I went gluten-free, I lost 60# in the first few months--I was very happy about it. Email me anytime with questions..anyone and everyone--just put in the subject line--celiac forum. Sorry you felt left out hun--Deb darlindeb25@aol.com

[Nantzie]

I just looked at the topic, and it sounds like you're more used to chats than message boards, so I can see how you'd be a little offended when nobody acknowledged your post. Message boards are a whole 'nother thing.

This next bit everybody might find boring, but I think it's really cool.

Message boards are really interesting because they're kind of a throw back to the olden days when there was usually one telephone in a town, usually in the general store. They would put a bulletin board next to the phone. When someone would call the shopkeeper would answer the phone. So say a guy named John Smith lives in the area. His brother Bill calls to tell John that they're coming to visit next month and want to know if John wants their Dad's old fishing pole. The shop keeper would write the message down and pin it to the board. A few days later Bill calls back to see if John's been in to answer the message. Shopkeeper checks the board, and no he hasn't. A week later John's at the store he checks to see if there are any messages, and sees the message from his brother. Then he writes on the paper that yes he does and his wife wants their grandma's blueberry pie recipe. A few days after that, Bill calls and gets the answer and says okay. Shopkeeper writes okay on the paper, and the next time John's in he sees it. Topic complete.

One of my friends has a sister who lives way, way WAY up in the mountains, and they do this the exact same way still. They would have to pay to have phone lines put in up their road, and don't have the money to do that. So for local stuff they use a CB, and for phone calls they drive into town. It's still really common where they live to do it like that.

Also, with this celiac message board, your messages aren't "pinned" on the board right away. Especially when you're a new member. Since this is a moderated board, the moderators have to approve messages before they show up. (Cuts down on spammers and such.) If all the mods are busy sometimes your post won't even show up for a while.

For the first week or so I was on here, I couldn't understand why the topics I posted were taking so long to show up, sometimes a day or more. But then when they finally popped up, there would be a bunch of replies.

BUT... There's a way you can see all the pinned and unpinned messages. Right next to the "My Controls" link, there's a link called View New Posts, which will give you all the topics since you logged on, regardless of them being pinned or not.

Well, hope you stick around.

Nancy

[lindalee]

I have to say today was my first day signing on. I was really hoping to meet people with similar problems to relate too. Instead I feel locked out! I haven't had any responses to anything! Guess new commers are not welcome! I don't have anyone to relate too that has this disease. I feel like an intrusion to your secret club instead of someplace to come to seek answers. Not a very good forum for any discussion.....

Stef 4 dogs

cujolu@msn.com

I am new on this forum also - I have learned so much here. Everyone has been so helpful. Hang in there - it has taken me awhile to figure how to get around the site but I am learning. LindaLee

[gbrad71]

Hi Stef--I saw your post, but had no experience with diet pills, so I really did not have any input for you. Like Jen said, maybe tonight when more people are on, someone will weigh in. This forum is not in any way a closed group--everyone is welcome here and we do our best to try and help when we can and make newcomers feel welcome. Especially with a specific question like yours, you need to give it a bit more time--that way more people will have a chance to see it.

What a beautiful kitty! Yours?

[jerseyangel]

What a beautiful kitty! Yours?

Yes--thank you

His name is Allo and he's 15 years old. We just love him to death!

He recently went gluten-free himself (easier for me to deal with-he loves it), hence the "sidekick".

Welcome to the board!