Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New With Questions

popoki321

Recommended Posts

popoki321 Rookie
popoki321
Posted

Hi Everyone,

Sorry if this is a little long.

I am here because my doctor thinks I may have Celiac Disease and I have some questions. I have had blood tests (not sure which tests) and the Dr. feels the results indicate I could have this disease. I am scheduled for an endoscopy/biopsy this Friday morning.

My Dr. has been wonderful and encouraged me to look up Celiac Disease on a search engine and I was lucky enough to come across this web forum.

After all the reading I've been doing about Celiac Disease, I think I could definitely have this disease.

I'm 34 and have suffered with IBS symptoms since my late teens.

A few months ago I wound up in the hospital for a severe pain in my left side, which turned out to be Diverticulitis. I had a very severe infection and was in the hospital for a week. I was unaware that I had this condition.

After coming out of the hospital I was still in alot of pain, especially on my left side. My Gastro thought I should have a colonoscopy to make sure that everything was ok. At the time I had the colonoscopy , the Dr. ordered some blood work as well.

This is when I got the news that he thinks I may have celiac disease.

Thinking back to a few years ago when I was on the Atkins Diet, I felt great- not 100%, but much better than usual. I remember commenting to my boyfriend how great my stomach was feeling all the time.

I can't imagine how great I will feel if I am completely gluten free.

Don't get me wrong, I am also scared, worried and freaking out that I am going to have to change everything I ever knew about eating.

I am already limited as to what I can eat because of the diverticulitis, so having celiac disease will make it even more difficult but my health and feeling good is the most important thing to me right now. I will do whatever I need to keep myself healthy.

I'm currently on NutriSystem to lose some weight but I know I will have to go off if I am diagnosed. The doctor told not to change my diet until after the endoscopy. I still want to lose some weight before June, when I am getting married.

It definitely helps to know there is such a great support system out there.

A few questions:

Will I know the results right away, at the time of the test or does the biopsy have to be sent off for testing? If so, How long does it usually take?

Does anyone else have Diverticulitis? Is this common among people with celiac disease?

Can I still eat fat free/light yogurt if I have celiac disease ?

I'm sure I'll have a million more questions so please bear with me. I'm new at this!

Thank you.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Carriefaith Enthusiast
Carriefaith
Posted

Welcome! I hope that your biopsy goes well on Friday. They will have to send the biopsies to the lab. However, I called my doctors office 2 days after my biopsy and I got my results. I didn't wait for the doctor to call me because I was too impateinet, so I just called them. Please free free to ask questions and we will try our best to help. Also, don't hesitate to ask for meal ideas and recipes.

GlutenFreeAl Contributor
GlutenFreeAl
Posted

Sorry I can't answer all of your questions...I'm fairly new to this myself!

Please please please check those yogurt labels carefully. Some are ok, but I learned the hard way that some brands and some flavors do contain wheat starch. I've heard that Yoplait is ok, but I can't confirm that. My local grocery store labels all of their store brand products with a "G" to indicate gluten free, so I buy a lot of their own store products.

Good luck! And ask any questions you need to. This forum is a lifesaver!

IronedOut Apprentice
IronedOut
Posted

I had to wait on my biopsy results, but they recommended a gluten-free diet just from the visual on the endoscopy. There are yogurts out there, just be sure to read the label!

Sorry I can't answer all of your questions...I'm fairly new to this myself!

Please please please check those yogurt labels carefully. Some are ok, but I learned the hard way that some brands and some flavors do contain wheat starch. I've heard that Yoplait is ok, but I can't confirm that. My local grocery store labels all of their store brand products with a "G" to indicate gluten free, so I buy a lot of their own store products.

Good luck! And ask any questions you need to. This forum is a lifesaver!

Hey Al - If you don't name the grocery store, you're just a tease!!

jerseyangel Proficient
jerseyangel
Posted

I had to wait a week and a half for the results of my biopsy, but the Dr. told me to begin the gluten free/dairy free diet the day of the biopsy.

Yogurt--check the labels--especially the lite or fat free ones.

GlutenFreeAl Contributor
GlutenFreeAl
Posted
Hey Al - If you don't name the grocery store, you're just a tease!!

Sorry. I shop at Wegmans. I think they're only in NY and PA. They're very aware of food sensitivities and even before the new labeling law would label things as lactose free, gluten free, vegan, etc.

If you're ever in the area, check them out!

hez Enthusiast
hez
Posted

Based on my blood work I was told to go gluten-free before my endoscopy. Had my endoscopy 3 or 4 weeks after that. My gi doc could not find one villi standing up. So she was positive I had celiac before the results came back. I think it took about a week for them to call.

I like to eat Mountain High Yogurt (says gluten-free on the label) and mix in honey and frozen fruit. Welcome to the board :)

Hez

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IronedOut Apprentice
IronedOut
Posted

Wegman's has seriously expanded - they are now in NJ, MD, VA and DE. Yeah!

Spoke to quickly - coming SOON to Delaware.

Guest nini
Guest nini
Posted

regardless of the results of your test results, just as soon as you are done with your endoscopy, go ahead and start the diet. the thing with the Atkins diet, is that the majority of the diet is naturally gluten free, at least the first stage of it... My mom had a tremendous amount of success on that diet, which leads me to conclude that she most likely has Celiac too... she's had symptoms as long as I can remember, but she won't get tested and she won't try the diet now...

even if your test results aren't conclusive, give the diet a good effort... really go at it 100% and monitor your symptoms...

good luck with it and feel free to ask any questions that come up.

popoki321 Rookie
popoki321
Posted
  • Author

Thanks so much for all the kind words and for answering some of my questions.

QUOTE(GlutenFreeAl @ Feb 1 2006, 03:40 PM)

Sorry. I shop at Wegmans. I think they're only in NY and PA. They're very aware of food sensitivities and even before the new labeling law would label things as lactose free, gluten free, vegan, etc.

I have been to Wegmans supermarket when I was in Buffalo for work but the closest one to where I live is about 2 1/2 hours away. I wish more supermarkets would do what Wegmans has started.

I'm not nervous about the biopsy, I just want it to be over with and have a definitive answer.

Thanks again and I will let you know how it goes.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,996
    • Most Online (within 30 mins)
      7,748
    Sasha Bondarev
    Newest Member
    Sasha Bondarev
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By knitty kitty · Posted

      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
    • Scott Adams
      Gluten free nuts

      By Scott Adams · Posted

      They are a sponsor here, and I did noticed a free shipping coupon: GFships
    • Scott Adams
      Aldi Pueblo Lindo Yellow Corn Tortillas

      By Scott Adams · Posted

      In general if it is labelled gluten-free then it should be ok for most celiacs, however, those who are super sensitive (which is most who have dermatitis herpetiformis) may want to eat only certified gluten-free items, which are supposed to test down to 10ppm (but don't always!).
    • Wheatwacked
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Wheatwacked · Posted

      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.