Is This Normal?

[Pois]

Hi Im new to all this.

Ive had the test and all came back inconclusive. The blood test had a note on it that said i could be in the 2-3% of celiacs that dont have a high level of something. Or i could just be gluten intolerant. Im going to a dietician in 3 weeks (best appointment i could get) but at the moment im going a bit stir crazy!

I put myself on gluten free this year because i was fairly sure that was the problem and i was starting to feel great! (a little tired but my stomach felt normal for once) but then last saturday all my symptoms appeared again (rash on elbow, diarrhea, crying, bloating, feeling like acid was being poured through my intestines)

Im not sure if i accidentally ingested some gluten - ive been so careful and am pretty sure that i havent, however, if i did - is it normal for my symptoms to still be playing up a week later? (I know the longer youre gluten free usually the more severe your symptoms are if you accidentally ingest it - but i was only gluten free a month.) Or would this indicate another intolerance/problem?

Would be awesome if anyone could just let me know if this is kind of normal - though i know hardly any 2 cases seem to be the same!

Thanks!

[Guest nini]

yep it's normal!

[francelajoie]

Crying? Wow!

Was I diagnosed right? I never went through this stuff. Diareha, constipaton, and bloating is all I've ever benn through.

Man, I really feel bad for what you guys are all going through.

[Pois]

how about symptoms actually being worse a week later? After i posted that i ended up with really bad diarrhea and my stomach has been kind of sore all week when i eat anything

(im just worried that it could be something else after i thought i had it sorted and had accepted it)

[hez]

When I get glutened I do not feel "normal" for 3-4 weeks. I know everyone is different but this first two weeks suck and by the third I am feeling more normal. By week 4 I finally feel good. Hope you feel better soon.

Hez

[jerseyangel]

Crying? Wow!

Was I diagnosed right? I never went through this stuff. Diareha, constipaton, and bloating is all I've ever benn through.

Man, I really feel bad for what you guys are all going through.

Depression and anxiety are two of the symptoms of Celiac. Not everyone gets them, but for those of us that do, crying is sometimes a part of it.

[aikiducky]

how about symptoms actually being worse a week later? After i posted that i ended up with really bad diarrhea and my stomach has been kind of sore all week when i eat anything

(im just worried that it could be something else after i thought i had it sorted and had accepted it)

My symptoms are also worst about a week after being glutened. First I feel bad for a couple days, then I start to feel better, then a week from the glutening I feel the worst, and after that start to feel better quickly. Finally everything returns completely to normal three weeks after.

I used to think it had to be something else as well, until I started to notice this pattern of feeling the worst regularly one week after a glutening.

Pauliina

[4getgluten]

Hang in there, this sounds normal to me too. For me, the healing process was like 2 steps forward, 1 step back. I'd be feeling really great, then bam, I'd feel bad again. Sometimes I could find what caused me to feel sick, sometimes I couldn't.

From my experience, as I began to heal, I also got more sensitive to gluten. Keep looking for hidden sources. I found gluten in my shampoo and my hand lotion. I also found that I had to be careful of cross contamination. Products that are gluten-free, but made at the same facility as gluten containing products, usually don't work for me.

It takes awhile to get used to the diet and to figure out what foods work for you. I've been gluten-free for almost a year now, and I can't believe how good I feel. It will get easier, I promise!

[tiredofdoctors]

I think it's normal . . . I just got "glutened" because my husband had to go on a business trip unexpectedly in the middle of the day (get your stuff, fly out, the client is furious) -- but had eaten Penn Station subs for lunch. With lots of kissing prior to him leaving, and him not flossing beforehand . . . I ended up with increased symptoms this entire week. (I'm hoping that it is going to subside SOON!)

[Pois]

Goodness! I never even thought of that! (i wonder if thats why im having more trouble the last couple of days....im sick of wondering all the time. I think too much!)

Im still kind of stressed that it could be something else cos the diarrhea and bloating dont seem to be going away and ive been super careful(though thankfully the heightened depression feelings have settled down and yesterday i had a crying free day woohoo!)

[Pois]

and now its back! The crying came back today - after being ok all weekend, and the diarrhea hasnt stopped. Its at the point where ANYTHING makes me go. Im a bit of a mess, still wondering if its something else....