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Wow...mouth Ulcers


Celia the Celiac

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Celia the Celiac Apprentice

Well...I've just had a bunch of mouth ulcers pop up. Concerned, I went under askjeeves.com and asked for the causes. Did you know "Celiac" came up in the list of causes. Does anybody have a similar story about this and more info?

Thanks,

Celia


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karisox Newbie

I used to get mouth ulcers all the time before I started the gluten free diet. Now when I get them it's usually because I've eaten flour on accident somewhere.....so thankfully thats not often.

Good luck with them, they are no fun. I used to get them down my throat...sorry i know its gross but it is very difficult to live with.

Guest Viola

Mouth Ulcers seems to be a common problem amoung Celiacs when contaminated with gluten.

Also, they tend to show up when one gets into way too much sugar goodies. :rolleyes:

CeliaCruz Rookie
Also, they tend to show up when one gets into way too much sugar goodies. :rolleyes:

I also get them when I eat too many salty snacks, MSG or anything citrus-y.

jerseyangel Proficient

I used to get them often, pre gluten-free. They usually showed up when I was 'sick'. Now, I only get them if I drink a lot of grape juice.

penguin Community Regular

Most tree nuts (but not almonds and macadamia nuts) do it for me, as well as some dark chocolate...

There's just something in them that doesn't agree with my mouth :o

zip2play Apprentice

When I get glutened I get mouth ulcers, it's typically the first sign I have!

Monica


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Celia the Celiac Apprentice

Thanks everyone on your posts. I went to Houston yesterday and ate out at a Mexican Restaurant. I was real careful with what I ordered but my food must have been contaminated with some gluten. I'm paying for it today. No energy and alot of gas. Yuck....just when I thought I was healing well, a set back!

paulasimone Rookie

there was another forum on this called "mouth sores".

here's my post from there about changing your toothpaste to non-SLS (from a lifetime of horrible ulcers to almost never!) - you can view other posts from there:

Open Original Shared Link

good luck!

:)

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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