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Can Gluten Harm The Colon Too?


sspitzer5

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sspitzer5 Apprentice

Hi, my boyfriend had ulcerative colitis and had to have surgery for it. His colon was very damaged. I know there are some correlations between Celiac and colitis and I've been urging (aka bugging the hell out of) him to get tested for Celiac - he's half Irish and his cousin has derm. hep.

What I'm wondering is if eating gluten can damage not only the small intestine, but the colon. He never had a small intestine biopsy, so I don't know if there is damage there or not. Any info would be appreciated.

S


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Rusla Enthusiast

Yes, it can. I know someone who ended up with colon cancer from Celiac and now he has to have all his waste drained into a bag for the rest of his life.

luvs2eat Collaborator

That molten lava that rushes from my small intestine thru my large intestine as it fights its way out of me CAN'T be good for any part of me, I'm thinkin'!! We're talking alien acid that melts the space ship floor!!

  • 3 months later...
DeeTee33 Newbie

Oh yes, Gluten can harm the colon!

I had been diagnosed with Ulcerative Colitis back in 1989 and it never got better. It actually got worse no matter how much medicine I took. The doctor said they didn't know what caused Ulcerative Colitis and there was no cure for it so I did a little research on my own.

Late 2003 I went on a Gluten-Free diet and started digesting food in less than 2 weeks. I went off all my medicine in a couple months and have never felt better. By the time I found a new doctor and had the blood test for Celiac Disease I had already been on a Gluten-Free diet for over 3 months. The test didn't come back negative though, it came back inconclusive. He offered to do the biopsy but I told him it wasn't necessary. For me Gluten-Free is the key to healthy living!

I encourage anyone diagnosed with Ulcerative Colitis or Crohn's Disease to get tested for Celiac Disease.

corinne Apprentice

I have collagenous colitis (not celiac) and the symptoms quit when I went off gluten (and other grains). My mother is celiac and many people with collagenous colitis have a first degree relative with celiac. For some people, the inflammation of colitis (including ulcerative or crohn's) may be triggered by gluten. It will be interesting to see when I have my next colonoscopy if the damage is reduced.

DeeTee33 Newbie

Just took my 19 year old daughter for the first time to the GI for digestive problems. Even though I haven't been officially diagnosed with Celiac Disease he has decided to give her the blood test next week. I'm really curious on what the results might say.

My mother passed away at the age of 54 with Cancer of the Pancreas. She previosly also had been diagnosed with Colitis and Osteoporosis. At that time neither one of us had heard of Celiac Disease. Hopefully my daughter doesn't follow in either of our footsteps.

Next month I will be having my 1st Colonoscopy since being on a gluten-free diet for 2 1/2 years. I don't know who is more curious of the results, my doctor or me.

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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