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Can Gluten Harm The Colon Too?


sspitzer5

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sspitzer5 Apprentice

Hi, my boyfriend had ulcerative colitis and had to have surgery for it. His colon was very damaged. I know there are some correlations between Celiac and colitis and I've been urging (aka bugging the hell out of) him to get tested for Celiac - he's half Irish and his cousin has derm. hep.

What I'm wondering is if eating gluten can damage not only the small intestine, but the colon. He never had a small intestine biopsy, so I don't know if there is damage there or not. Any info would be appreciated.

S


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Rusla Enthusiast

Yes, it can. I know someone who ended up with colon cancer from Celiac and now he has to have all his waste drained into a bag for the rest of his life.

luvs2eat Collaborator

That molten lava that rushes from my small intestine thru my large intestine as it fights its way out of me CAN'T be good for any part of me, I'm thinkin'!! We're talking alien acid that melts the space ship floor!!

  • 3 months later...
DeeTee33 Newbie

Oh yes, Gluten can harm the colon!

I had been diagnosed with Ulcerative Colitis back in 1989 and it never got better. It actually got worse no matter how much medicine I took. The doctor said they didn't know what caused Ulcerative Colitis and there was no cure for it so I did a little research on my own.

Late 2003 I went on a Gluten-Free diet and started digesting food in less than 2 weeks. I went off all my medicine in a couple months and have never felt better. By the time I found a new doctor and had the blood test for Celiac Disease I had already been on a Gluten-Free diet for over 3 months. The test didn't come back negative though, it came back inconclusive. He offered to do the biopsy but I told him it wasn't necessary. For me Gluten-Free is the key to healthy living!

I encourage anyone diagnosed with Ulcerative Colitis or Crohn's Disease to get tested for Celiac Disease.

corinne Apprentice

I have collagenous colitis (not celiac) and the symptoms quit when I went off gluten (and other grains). My mother is celiac and many people with collagenous colitis have a first degree relative with celiac. For some people, the inflammation of colitis (including ulcerative or crohn's) may be triggered by gluten. It will be interesting to see when I have my next colonoscopy if the damage is reduced.

DeeTee33 Newbie

Just took my 19 year old daughter for the first time to the GI for digestive problems. Even though I haven't been officially diagnosed with Celiac Disease he has decided to give her the blood test next week. I'm really curious on what the results might say.

My mother passed away at the age of 54 with Cancer of the Pancreas. She previosly also had been diagnosed with Colitis and Osteoporosis. At that time neither one of us had heard of Celiac Disease. Hopefully my daughter doesn't follow in either of our footsteps.

Next month I will be having my 1st Colonoscopy since being on a gluten-free diet for 2 1/2 years. I don't know who is more curious of the results, my doctor or me.

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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