Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Itchy Throat?


angielackner

Recommended Posts

angielackner Contributor

Hi, i'm fairly new to this forum, and i have a question. I'm not a diagnosed celiac as i "passed" the blood test and the biopsies, but my GI doc thinks i'm either one of the 2% who has celiac and never tests positive, or i am just gluten intolerant.

now what i am wondering is, when i was first finding out about gluten intolerance, i had mostly D and cramping...then i went gluten free and felt somewhat better...then tried some gluten again just to see, and started getting an itchy throat instead of the D and cramping...it doesnt feel like anaphalaxis (sp?) or anything, but just really itchy...and it usually occurs about 30 mins after i eat gluten...(stuff goes through my body really fast)...does anyone else have this problem...could this be leading up to an anaphalactic (sp?) allergy? i am wondering if i will need an epi-pen down the road :blink:

thanks,

angie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



megsylvan2 Apprentice

Wow, I had the same thing, and the same concerns about the possibility of my throat closing up at some future point and the need for an epi-pen. I had such an immediate reaction one time from eating 2 Triscuits. They burned my entire insides - from the time they touched my lips, down my throat, in my stomach, and all the way down! It was an itchy, burning feeling. Then I started to notice this with other foods too. My throat would get tight, and I'd get a lot of mucous and start coughing a lot.

It worried me so much that I went as soon as I could for allergy testing. I didn't know if I was a hypochondriac or not, but I wasn't going to fool around with those kinds of reactions. The result for me was - no food allergies at all. I don't know about you and others, but it was worth it to me to be tested, for the peace of mind.

The one thing I was surprised at was the way the allergist basically kicked me out the door when they discovered I did not have any igE allergies. I expected them to work with me to discover why I was having such severe GI reactions to certain foods, and do testing for igA and IgG allergies. But no, the attitude was that if you don't have IgE allergies, then you don't have allergies at all and get out of our office, goodbye!

Does anyone know if there are any allergists anywhere that do care about this?

Anyway, I'm glad you asked the question, cause it is nice to know I'm not the only one who had this fear. :)

I also just happened to notice that this is listed as one of the symptoms on Celiac.com - under Q&A - symptoms. That some people have reported burning sensations in the throat. Funny how it is comforting to know that others feel this way and that you are not alone!

paulasimone Rookie
Wow, I had the same thing, and the same concerns about the possibility of my throat closing up at some future point and the need for an epi-pen.

...

Does anyone know if there are any allergists anywhere that do care about this?

1. re: throat - i get an immediate reaction when i get glutened. my mouth and throat feel kind of swelly and tingly, and my nose gets stuffed up. like *immediately*. i'm also mildly freaked out (:blink: is that an oxymoron?) about that. it's nice to be able to tell, though, when there's gluten - it's been an extremely reliable reaction. unfortunately, it's a little thrown off by spicy food, which is also tingly. and i love spicy food. :P

2. i know an allergist who cares about this. he dx'd me!! :D

he's an ENT / allergist in Durham, NC. if anyone lives around there and wants his name, pm me.

:)

paula

chronic Newbie

I have not had the thrhoat closing problem but have seen several allergist with no help

from them. After doing the SAGE test and applying the results religiously my life has improved. This type of allergy testing tells you how foods react WITHIN the body not the skin. Give it some thought.

Chronic

jerseyangel Proficient

Angie--I know how you feel--I have an appt. to see an allergist on Friday. I am hoping he will be willing to help me find the causes of the additional food sensitivites I have "developed" since going gluten-free. In any case, I do want to be tested for true allergies because I react to almonds and walnuts now with itching on the roof of my mouth (never a problem until recently). I do not have a problem with peanuts, but I am kind of afraid to eat them because I fear a true allergic reaction. I think I may be a bit paranoid, but I feel the need to be sure. My husband is allergic to bee stings and I have seen firsthand how awful the anaphalactic reaction is. After the last sting ten years ago, it took them 3 hours to stablize him--one of the scariest night of my life. (he has since taken years of shots for it, and carries an Epi-Pen.)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      32

      Does anyone here also have Afib

    2. - knitty kitty replied to lehum's topic in Super Sensitive People
      9

      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

    3. - Scott Adams replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    4. - Theresa2407 replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    5. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,940
    • Most Online (within 30 mins)
      7,748

    Joyce B
    Newest Member
    Joyce B
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
    • Scott Adams
      The reaction one gets when they get glutened varies a lot from person to person.  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Theresa2407
      A gluten ingestion can last for many months.  Many years ago there was a celiac conference in Fl.  Everyone there got contaminated with some having difficulty 6 months to recover.  It will hit your Lympatic system and spread  through the body and effect your nevous system as well. Most times when I get glutened it is from a prescription med that wasn't checked close enough.  the Pharmacuticals change vendors all the time.
    • Hmart
      Thank you so much for the responses. Every piece of information helps.  I only knowingly ate gluten once, that was four days ago. I had the reaction about 3-4 hours after consuming it. I’m concerned that after 4 days the symptoms aren’t abating and almost seem worse today than yesterday.  I haven’t had either breath test. I did ask about additional testing but the PA recommended me to a celiac specialist. Unfortunately the first available is mid-December.  As far as diet, I am a pescatarian (have been for 25+ years) and I stopped eating dairy mid-last week as my stomach discomfort continued. Right now, I’m having trouble eating anything. Have mostly been focused on bananas, grapes, nut butters, DF yogurt, eggs, veggie broth.   I ordered some gluten-free meal replacements to help.  But I’ll get all the items (thank goodness for Instacart) and try the diet you recommended to get me past this period of feeling completely awful.  Yes, my doctor diagnosed celiac. I was concerned it wasn’t right based on the negative blood test and my continued symptoms.  Even if you are ‘glutened’ it shouldn’t last forever, right? Is four days too long?   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.