Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Amazing

BamBam

By BamBam
in Coping with Celiac Disease

Recommended Posts

BamBam Community Regular
BamBam
Posted

When I joined this board in June of 04, I was #2166 - and if you look today, there is over 7,800 members on this board. I bet by the end of the year we will be 10,000 strong! I know that is a small number when you look at the whole world, but still, having 10,000 people to visit with about our disease/problems is just amazing!

BamBam

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


DingoGirl Enthusiast
DingoGirl
Posted
When I joined this board in June of 04, I was #2166 - and if you look today, there is over 7,800 members on this board. I bet by the end of the year we will be 10,000 strong! I know that is a small number when you look at the whole world, but still, having 10,000 people to visit with about our disease/problems is just amazing!

BamBam

And you know what, it is SO awesome to have this board, since no one in my world understands this like you guys do!! :)

jenvan Collaborator
jenvan
Posted

It is amazing! Well, I guess the more people in here, the more people who will know out there!

Guest Viola
Guest Viola
Posted

And just think, this isn't the only Celiac board on the internet! I think a few doctors would have their eyes opened up if they checked these sites out once in awhile. They have no idea how many there are of us!

chrissy Collaborator
chrissy
Posted

i can't imagine how hard it would have been if my kids had been diagnosed before we had the internet-----i get so much info from the people on this board.

christine

Guest Viola
Guest Viola
Posted

Christine, you are right! It was really difficult before I had internet. We've only had internet in the Valley for almost 9 years. Before that we had party lines, and you can't have internet on party lines :lol: Now, does that tell you that we are living out in the sticks or what? :rolleyes:

I was all alone for 8 years with Celiac. At the time they thought it was extremely rare .. 1 out of every 10,000, now of course we know different and there are lots of Celiacs to talk to. It's so much easier and much more food than the bare meat, veggies and rice. And of course fresh fruit as there was no way for me to check on manufactures. Come to think of it, it never occured to me to even phone them ... guess I was a little dense in those days :lol:

Anyway ... I for one really appreciate all of you out here in cyber land!!!

i canary Rookie
i canary
Posted

This site has been a wonderful blessing for me. People who know what I'm going thru without me having to spend (make that waste) time explaining why certain things are a problem. It's helped my mental health so much - I don't feel like a alien being who got left on the wrong planet at birth. (Surely there is a planet out there that is completely gluten free - or am I thinking of paradise?) :P:P:P

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


flagbabyds Collaborator
flagbabyds
Posted

There are so many, I remen=mber when the website was completely different. Like really weird and old, and now it is all high-techie. I am member number like 20 or something!

chrissy Collaborator
chrissy
Posted

shirley, where are you???? i thought party lines were done away with YEARS ago!!!!!--------and i was thinking that here in southern idaho we are way behind the times. (maybe it is just me??)

christine

kevsmom Contributor
kevsmom
Posted

You guys are my life! :)

Guest Viola
Guest Viola
Posted

Christine, we are in British Columbia, just the province north of you :D But we live on an acreage 35 miles from the nearest town. However there are a few villages in the valley. We are actually supposed to get broadband service out here by the end of the year, but I'm not holding my breath. :lol: So we are still on slow dial up internet service. But I'm not complaining ... we have internet, which means we have all of you out there! :P

debmidge Rising Star
debmidge
Posted

I always include this site when I speak to non celiacs or people who are interesting in knowing more. I tell them to visit Celiac.com and also to read the message board to see what those with Celiac are doing/thinking/living.

Also, I noticed that very often there are annon. or Guests viewing the pages.

jerseyangel Proficient
jerseyangel
Posted

We just always had the internet for the boys. I never used the computer much at all. Everything changed when I happened onto this site while looking up an ingredient. At first, I wasen't sure how to even post! I had to ask my son about a bunch of things. But I was so "hungry" for information and the ability to talk to others living with this, that I learned fast! Now, it's a regular part of my day to check in here. You guys are the best! (It's a little frightening, actually, to think of what the past 9 months would have been like without you) ;)

plantime Contributor
plantime
Posted

I'm glad this site is here. I would not have known about barley and rye without it, and I would still be sick. I just hope that visitors are able to find the answers to their questions here!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748
    maltawildcat
    Newest Member
    maltawildcat
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • NanCel
      Celiac getting dentures

      By NanCel · Posted

    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By knitty kitty · Posted

      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.