Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Amazing

BamBam

By BamBam
in Coping with Celiac Disease

Recommended Posts

BamBam Community Regular
BamBam
Posted

When I joined this board in June of 04, I was #2166 - and if you look today, there is over 7,800 members on this board. I bet by the end of the year we will be 10,000 strong! I know that is a small number when you look at the whole world, but still, having 10,000 people to visit with about our disease/problems is just amazing!

BamBam

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


DingoGirl Enthusiast
DingoGirl
Posted
When I joined this board in June of 04, I was #2166 - and if you look today, there is over 7,800 members on this board. I bet by the end of the year we will be 10,000 strong! I know that is a small number when you look at the whole world, but still, having 10,000 people to visit with about our disease/problems is just amazing!

BamBam

And you know what, it is SO awesome to have this board, since no one in my world understands this like you guys do!! :)

jenvan Collaborator
jenvan
Posted

It is amazing! Well, I guess the more people in here, the more people who will know out there!

Guest Viola
Guest Viola
Posted

And just think, this isn't the only Celiac board on the internet! I think a few doctors would have their eyes opened up if they checked these sites out once in awhile. They have no idea how many there are of us!

chrissy Collaborator
chrissy
Posted

i can't imagine how hard it would have been if my kids had been diagnosed before we had the internet-----i get so much info from the people on this board.

christine

Guest Viola
Guest Viola
Posted

Christine, you are right! It was really difficult before I had internet. We've only had internet in the Valley for almost 9 years. Before that we had party lines, and you can't have internet on party lines :lol: Now, does that tell you that we are living out in the sticks or what? :rolleyes:

I was all alone for 8 years with Celiac. At the time they thought it was extremely rare .. 1 out of every 10,000, now of course we know different and there are lots of Celiacs to talk to. It's so much easier and much more food than the bare meat, veggies and rice. And of course fresh fruit as there was no way for me to check on manufactures. Come to think of it, it never occured to me to even phone them ... guess I was a little dense in those days :lol:

Anyway ... I for one really appreciate all of you out here in cyber land!!!

i canary Rookie
i canary
Posted

This site has been a wonderful blessing for me. People who know what I'm going thru without me having to spend (make that waste) time explaining why certain things are a problem. It's helped my mental health so much - I don't feel like a alien being who got left on the wrong planet at birth. (Surely there is a planet out there that is completely gluten free - or am I thinking of paradise?) :P:P:P

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


flagbabyds Collaborator
flagbabyds
Posted

There are so many, I remen=mber when the website was completely different. Like really weird and old, and now it is all high-techie. I am member number like 20 or something!

chrissy Collaborator
chrissy
Posted

shirley, where are you???? i thought party lines were done away with YEARS ago!!!!!--------and i was thinking that here in southern idaho we are way behind the times. (maybe it is just me??)

christine

kevsmom Contributor
kevsmom
Posted

You guys are my life! :)

Guest Viola
Guest Viola
Posted

Christine, we are in British Columbia, just the province north of you :D But we live on an acreage 35 miles from the nearest town. However there are a few villages in the valley. We are actually supposed to get broadband service out here by the end of the year, but I'm not holding my breath. :lol: So we are still on slow dial up internet service. But I'm not complaining ... we have internet, which means we have all of you out there! :P

debmidge Rising Star
debmidge
Posted

I always include this site when I speak to non celiacs or people who are interesting in knowing more. I tell them to visit Celiac.com and also to read the message board to see what those with Celiac are doing/thinking/living.

Also, I noticed that very often there are annon. or Guests viewing the pages.

jerseyangel Proficient
jerseyangel
Posted

We just always had the internet for the boys. I never used the computer much at all. Everything changed when I happened onto this site while looking up an ingredient. At first, I wasen't sure how to even post! I had to ask my son about a bunch of things. But I was so "hungry" for information and the ability to talk to others living with this, that I learned fast! Now, it's a regular part of my day to check in here. You guys are the best! (It's a little frightening, actually, to think of what the past 9 months would have been like without you) ;)

plantime Contributor
plantime
Posted

I'm glad this site is here. I would not have known about barley and rye without it, and I would still be sick. I just hope that visitors are able to find the answers to their questions here!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,826
    • Most Online (within 30 mins)
      7,748
    Martis
    Newest Member
    Martis
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Nausea

      By Me,Sue · Posted

      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      @fatjacksonthecat I have been doing some digging about the topic of nicotine and celiac.  I came across many studies that showed that the nicotine patch helped many with long covid and chronic fatigue syndrome.  I have a son who was diagnosed with celiac and his symptoms are severe when he is glutened.  He shows a lot of neurological inflammation and suffered with fatigue, brain fog, depression, anxiety and insomnia. There have been studies revealing that nicotine smoke actually masking celiac symptoms.  I also read that microdosing with a nictoine patch prevents one from addiction.  We are currently trying this out and so far it has lifted the brain fog and helped with anxiety and mood.  One of the studies I have read showed that it's not so much the dose, but the length of time a person is on the patch that showed improvements.  Many showed significant improvement as early as week 3 and continued through week 12.  We are taking 3 day breaks in between to make sure we don't down regulate the nicotine receptors.   How have things been for you?  Are you still chewing nicotine gum?  Perhaps, try the patch?  And how long did it take to ease up on your symptoms when glutened?
    • cristiana
      New here

      By cristiana · Posted

      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.