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Chapstick Brand

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Barbie Wickham Explorer
Barbie Wickham
Posted

I too am anxiously awaiting for that miraculous day of “I FEEL GREAT!!”

I do feel a lot better than before my DX and I’m eating 100% gluten-free, and am taking 25 mg of Dapsone a day, every time I try to stop the Dapsone, I break out. So not worth it, guess my body needs that wee boost, but I’m still only about 60% of my former self.... But! We WILL get there. Have faith. ? 

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LilyR Rising Star
LilyR
Posted

I was just coming here to ask people what lip balms or chap sticks you use that seem safe.  I have been using Burt's Bees pomegranate flavor lip balm lately and have been having stomach issues, so it just dawned on me I better check it out.  I see that some posts here people are saying they use Burts Bees with good results, but I looked online at their FAQ section and it says it cannot say their products are gluten free. 

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But I noticed the replies here are a few years old and someone told me Burts Bees was bought out a few years ago, so I was wondering if people are still having good luck using Burts Bees lip products even now? 

What lip balms or chap sticks is everyone here using and happy with in the past year or currently? 

 

Thanks.

cyclinglady Grand Master
cyclinglady
Posted

I buy EOS which marked Gluten Free.  I can get it in bulk at Costco in yummy flavors.  If you are in doubt or in a pinch,  try Plain old Vaseline or Coconut Oil.  

Erica Hendricks Rookie
Erica Hendricks
Posted

I used Burts Bees in the past but also saw on their website that it may not be safe. I've been using Eco Lips or EOS, which are both labeled gluten-free, and haven't had any issues. 

Victoria1234 Experienced
Victoria1234
Posted

Burts bees is not good to me, and neither is carmex. Probably a weird allergy of mine. I've been using my hand lotion that is gluten free over my lips while I'm dragging my feet to find something new. 

LilyR Rising Star
LilyR
Posted

Thanks for the replies, everyone. It helps a lot because my lips are getting horrible and i see that EOS brand in all the stores so I'll grab some tomorrow.I'm not sure I've seen the Eco one. I was just about to go look up Vaseline as worst case scenario.  I like Badger too, but wanted to wait and order from them a little after the holidays and get more sunscreen too and just get it all at once. They have some yummy looking lip flavors in their gluten-free section.  I am glad to know I was not the only one that didn't have luck with Burts Bees.  I was wondering if that was what was bothering my stomach so stopped using it. 

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      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
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