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Barbie Wickham Explorer
Barbie Wickham
Posted

I too am anxiously awaiting for that miraculous day of “I FEEL GREAT!!”

I do feel a lot better than before my DX and I’m eating 100% gluten-free, and am taking 25 mg of Dapsone a day, every time I try to stop the Dapsone, I break out. So not worth it, guess my body needs that wee boost, but I’m still only about 60% of my former self.... But! We WILL get there. Have faith. ? 

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LilyR Rising Star
LilyR
Posted

I was just coming here to ask people what lip balms or chap sticks you use that seem safe.  I have been using Burt's Bees pomegranate flavor lip balm lately and have been having stomach issues, so it just dawned on me I better check it out.  I see that some posts here people are saying they use Burts Bees with good results, but I looked online at their FAQ section and it says it cannot say their products are gluten free. 

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But I noticed the replies here are a few years old and someone told me Burts Bees was bought out a few years ago, so I was wondering if people are still having good luck using Burts Bees lip products even now? 

What lip balms or chap sticks is everyone here using and happy with in the past year or currently? 

 

Thanks.

cyclinglady Grand Master
cyclinglady
Posted

I buy EOS which marked Gluten Free.  I can get it in bulk at Costco in yummy flavors.  If you are in doubt or in a pinch,  try Plain old Vaseline or Coconut Oil.  

Erica Hendricks Rookie
Erica Hendricks
Posted

I used Burts Bees in the past but also saw on their website that it may not be safe. I've been using Eco Lips or EOS, which are both labeled gluten-free, and haven't had any issues. 

Victoria1234 Experienced
Victoria1234
Posted

Burts bees is not good to me, and neither is carmex. Probably a weird allergy of mine. I've been using my hand lotion that is gluten free over my lips while I'm dragging my feet to find something new. 

LilyR Rising Star
LilyR
Posted

Thanks for the replies, everyone. It helps a lot because my lips are getting horrible and i see that EOS brand in all the stores so I'll grab some tomorrow.I'm not sure I've seen the Eco one. I was just about to go look up Vaseline as worst case scenario.  I like Badger too, but wanted to wait and order from them a little after the holidays and get more sunscreen too and just get it all at once. They have some yummy looking lip flavors in their gluten-free section.  I am glad to know I was not the only one that didn't have luck with Burts Bees.  I was wondering if that was what was bothering my stomach so stopped using it. 

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  • Recent Activity

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      - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
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      Severe severe mouth pain

      Aaaackkk!!! Stop with the Omeprazole! It's not good, especially if taken for a long period of time!!! Gerd and Acid Reflux are actually caused by too little digestive enzymes resulting from nutritional deficiencies in Thiamine B1 and Niacin B3 that are needed to make digestive enzymes. Omeprazole is a proton pump inhibitor that has been shown...
    2. trents
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      That makes sense then.
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      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

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      @trents I am really not sure lol. I had a doctor who quit with no notice from 2 different practices and I was her patient both times, I just remember her telling me to take it. I guess for the dysphasia or Barrettes Esophagus? I have been taking it for years
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      @Charlie1946, what are you taking omeprazole for and how long have you been on it?
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    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      Aaaackkk!!!  Stop with the Omeprazole!  It's not good, especially if taken for a long period of time!!!   Gerd and Acid Reflux are actually caused by too little digestive enzymes resulting from nutritional deficiencies in Thiamine B1 and Niacin B3 that are needed to make digestive enzymes.   Omeprazole is a proton pump inhibitor that has been shown to cause continuing villi damage to the small intestines!        Factors associated with villus atrophy in    symptomatic coeliac disease patients on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/28220520/ Proton Pump inhibitors reduce digestive enzymes which results in poorly digested food.  If the food is not broken down by the digestive enzymes, then the nutrients cannot be released from the food and cannot be absorbed by the villi.  Damaged villi cannot absorb nutrients from food.  PPIs block Thiamine B1 transporters, so that thiamine cannot be absorbed.  PPIs reduce the production of the intrinsic factor required for Cobalamine B12 absorption.  The absorption of other vitamins and minerals are affected as well.    The Effects of Proton Pump Inhibitors in Acid Hypersecretion-Induced Vitamin B12 Deficiency: A Systematic Review (2022) https://pubmed.ncbi.nlm.nih.gov/36545170/ Proton Pump Inhibitors like Omeprazole should be used only on a short term basis, like two weeks.  Continued use can cause nutritional deficiencies because PPIs prevent the absorption of vitamins and minerals.      Profound Hypomagnesemia Due to Proton Pump Inhibitor Use-Associated Wernicke’s Encephalopathy: A Case Report on Excitotoxicity https://pmc.ncbi.nlm.nih.gov/articles/PMC12618944/    Proton pump inhibitors and risk of vitamin and mineral deficiency: evidence and clinical implications https://pmc.ncbi.nlm.nih.gov/articles/PMC4110863/ Vitamin and mineral deficiencies contribute to health problems like Non Alcoholic Fatty Liver Disease and Chronic Renal Failure and Osteoporosis.    Association between dietary intakes of B vitamins and nonalcoholic fatty liver disease in postmenopausal women: a cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC10621796/    The association between proton pump inhibitors and hyperparathyroidism: a potential mechanism for increased fracture-results of a large observational cohort study https://pubmed.ncbi.nlm.nih.gov/37530847/ Regular Proton-Pump Inhibitor Intake is Associated with Deterioration of Peripheral Bone Mineral Density, Microarchitecture, and Strength in Older Patients as Assessed by High-Resolution Peripheral Quantitative Computed Tomography (HR-pQCT) https://pmc.ncbi.nlm.nih.gov/articles/PMC12546302/ Vitamins and minerals are essential to our health and can prevent disease. Long term use of PPIs can cause kidney disease and liver disease!    Association between Proton Pump Inhibitor Use and Risk of Incident Chronic Kidney Disease: Systematic Review and Meta-Analysis https://pubmed.ncbi.nlm.nih.gov/39061988/    Proton pump inhibitors use and the risk of fatty liver disease: A nationwide cohort study https://pubmed.ncbi.nlm.nih.gov/32886822/  Thiamine deficiency unrelated to alcohol consumption presented with urinary retention and Wernicke's encephalopathy: A case report https://pmc.ncbi.nlm.nih.gov/articles/PMC10415583/ Essential nutrients are needed to repair and heal the body!    High-dose vitamin B1 therapy prevents the development of experimental fatty liver driven by overnutrition https://pubmed.ncbi.nlm.nih.gov/33608323/ Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ There are liquid forms of B complex vitamins that are available over-the-counter and by prescription.   I pray for ears to hear.
    • trents
      Severe severe mouth pain

      By trents · Posted

      That makes sense then.
    • trents
      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

      By trents · Posted

      Fosamax is a first generation "bone rebuilder" and I have heard there are newer and better things on the market now. I assume Reclast falls in the second category and gets better reviews according to this website: https://www.drugs.com/compare/fosamax-vs-reclast I think some bone rebuilding can happen when a celiac faithfully begins to practice gluten free eating. How much may depend on a number of factors, not the least of which may be the person's age. May we ask how old you are? Gender may also play a part. What are your reservations concerning Reclast as opposed to Fosamax? And does Reclast pose less risk for bleeds/ulcers than Fosamax? I was diagnosed with celiac disease at age 50 and DEXA scans done at that time showed osteopenia. I am male and 74 years of age. I was on Fosamax for a while but discontinued it. I don't remember why I stopped but it may have been because of GERD. I have not had a DEXA scan follow-up so I can't say for sure whether or not going gluten free at age 50 resulted in any recoup of bone density. But, I have had numerous Xrays of this and that body part over the years since then and no doctor has commented on low bone density showing up in the Xrays. Of course, an Xray is not a DEXA scan but I think in a crude way they can reveal bone density because of how bright the bones appear on a Xray. And in around 25 years I have not had any fractures so I think that may say something. Here's an important question with regard to bone health: Are you on a PPI for GERD?
    • Charlie1946
      Severe severe mouth pain

      By Charlie1946 · Posted

      @trents I am really not sure lol. I had a doctor who quit with no notice from 2 different practices and I was her patient both times, I just remember her telling me to take it. I guess for the dysphasia or Barrettes Esophagus? I have been taking it for years 
    • trents
      Severe severe mouth pain

      By trents · Posted

      @Charlie1946, what are you taking omeprazole for and how long have you been on it?
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