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Barbie Wickham Explorer
Barbie Wickham
Posted

I too am anxiously awaiting for that miraculous day of “I FEEL GREAT!!”

I do feel a lot better than before my DX and I’m eating 100% gluten-free, and am taking 25 mg of Dapsone a day, every time I try to stop the Dapsone, I break out. So not worth it, guess my body needs that wee boost, but I’m still only about 60% of my former self.... But! We WILL get there. Have faith. ? 

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LilyR Rising Star
LilyR
Posted

I was just coming here to ask people what lip balms or chap sticks you use that seem safe.  I have been using Burt's Bees pomegranate flavor lip balm lately and have been having stomach issues, so it just dawned on me I better check it out.  I see that some posts here people are saying they use Burts Bees with good results, but I looked online at their FAQ section and it says it cannot say their products are gluten free. 

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But I noticed the replies here are a few years old and someone told me Burts Bees was bought out a few years ago, so I was wondering if people are still having good luck using Burts Bees lip products even now? 

What lip balms or chap sticks is everyone here using and happy with in the past year or currently? 

 

Thanks.

cyclinglady Grand Master
cyclinglady
Posted

I buy EOS which marked Gluten Free.  I can get it in bulk at Costco in yummy flavors.  If you are in doubt or in a pinch,  try Plain old Vaseline or Coconut Oil.  

Erica Hendricks Rookie
Erica Hendricks
Posted

I used Burts Bees in the past but also saw on their website that it may not be safe. I've been using Eco Lips or EOS, which are both labeled gluten-free, and haven't had any issues. 

Victoria1234 Experienced
Victoria1234
Posted

Burts bees is not good to me, and neither is carmex. Probably a weird allergy of mine. I've been using my hand lotion that is gluten free over my lips while I'm dragging my feet to find something new. 

LilyR Rising Star
LilyR
Posted

Thanks for the replies, everyone. It helps a lot because my lips are getting horrible and i see that EOS brand in all the stores so I'll grab some tomorrow.I'm not sure I've seen the Eco one. I was just about to go look up Vaseline as worst case scenario.  I like Badger too, but wanted to wait and order from them a little after the holidays and get more sunscreen too and just get it all at once. They have some yummy looking lip flavors in their gluten-free section.  I am glad to know I was not the only one that didn't have luck with Burts Bees.  I was wondering if that was what was bothering my stomach so stopped using it. 

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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