Celiac Symptoms Resurfacing after diagnosed

[AriannaH]

Thank you for all the suggestions so far, I got tested for most of the things you all suggested so thank you for responding! I really appreciate all the help and some things have helped. I got my lab results back and now i am very confused. I am no longer deficient in any vitams, but I am according my blood test I am allergic to a few things I eat and now I am not sure if I can eat anything according to this. Already being deadly allergic to nuts and having Celiac. According to this I am also allergic to rice, potatoes, oats and a few vegetables. I am not even sure how to go from here. My doctor does not know what to tell me to eat either because beside just meat I am not sure there's much I can eat now. Any suggestions? 

[cyclinglady]

52 minutes ago, AriannaH said:

Thank you for all the suggestions so far, I got tested for most of the things you all suggested so thank you for responding! I really appreciate all the help and some things have helped. I got my lab results back and now i am very confused. I am no longer deficient in any vitams, but I am according my blood test I am allergic to a few things I eat and now I am not sure if I can eat anything according to this. Already being deadly allergic to nuts and having Celiac. According to this I am also allergic to rice, potatoes, oats and a few vegetables. I am not even sure how to go from here. My doctor does not know what to tell me to eat either because beside just meat I am not sure there's much I can eat now. Any suggestions? 

Read this.  Those IgG tests are not accurate per several medical groups:

“Due to the lack of evidence to support its use, many organizations, including the American Academy of Allergy, Asthma & Immunology, the Canadian Society of Allergy and Clinical Immunology and the European Academy of Allergy and Clinical Immunology have recommended against using IgG testing to diagnose food allergies or food intolerances / sensitivities.”

 https://www.aaaai.org/conditions-and-treatments/library/allergy-library/IgG-food-test

Ditch the oats for now.  Keep a food journal to help identify foods that you might be intolerant to. These can be percent or temporary.  

Edited September 27, 2020 by cyclinglady

[AriannaH]

9 minutes ago, cyclinglady said:

Read this.  Those IgG tests are not accurate per several medical groups:

“Due to the lack of evidence to support its use, many organizations, including the American Academy of Allergy, Asthma & Immunology, the Canadian Society of Allergy and Clinical Immunology and the European Academy of Allergy and Clinical Immunology have recommended against using IgG testing to diagnose food allergies or food intolerances / sensitivities.”

 https://www.aaaai.org/conditions-and-treatments/library/allergy-library/IgG-food-test

Ditch the oats for now.  Keep a food journal to help identify foods that you might be intolerant to. These can be percent or temporary.  

Thank you so much. I will try that. This gives me hope that I can still eat food. Thank you so much

[trents]

Take your allergy testing with a grain of salt. They really aren't very useful in my experience. Consider keeping a food log or just pay attention to your allergy symptoms and see if there are patterns there with regard to symptoms and what you eat. Keep in mind there may be many hours, the best part of 24, before symptoms manifest themselves after you eat the offending element.

[AriannaH]

30 minutes ago, trents said:

Take your allergy testing with a grain of salt. They really aren't very useful in my experience. Consider keeping a food log or just pay attention to your allergy symptoms and see if there are patterns there with regard to symptoms and what you eat. Keep in mind there may be many hours, the best part of 24, before symptoms manifest themselves after you eat the offending element.

Thank you. I will keep this in mind and do a food log.

[cyclinglady]

This is important.  Your celiac blood tests have normalized.  Either your celiac disease is active and the blood tests are not reflective of that,  you have developed a new food intolerance or you might have another autoimmune disease or illness.   If things do not improve soon, your GI just might have to order another endoscopy and take a look. 

[AriannaH]

11 minutes ago, cyclinglady said:

This is important.  Your celiac blood tests have normalized.  Either your celiac disease is active and the blood tests are not reflective of that,  you have developed a new food intolerance or you might have another autoimmune disease or illness.   If things do not improve soon, your GI just might have to order another endoscopy and take a look. 

Thank you. I will talk to my GI about it if I dont improve with doing the food journal and cutting out the things that don't do well for my body. What is the best way to do an elimination diet.

[cyclinglady]

1 minute ago, AriannaH said:

Thank you. I will talk to my GI about it if I dont improve with doing the food journal and cutting out the things that don't do well for my body. What is the best way to do an elimination diet.

Consider a rotational diet.  Either a seven or four day diet.  The goal is to not eat the same thing every day.  You can Google how to do it.  
 

I was the opposite.  My antibodies were high but my repeat endoscopy showed a healed small intestine.  But I was diagnosed with another autoimmune disease (have three).  So, not everything is due to celiac disease.  

[AriannaH]

11 hours ago, cyclinglady said:

Consider a rotational diet.  Either a seven or four day diet.  The goal is to not eat the same thing every day.  You can Google how to do it.  
 

I was the opposite.  My antibodies were high but my repeat endoscopy showed a healed small intestine.  But I was diagnosed with another autoimmune disease (have three).  So, not everything is due to celiac disease.  

Thank you. My last GI thought everything was related to Celiacs but since I have turned 18 a few months back I have a new GI. Thank you again for all your help I will try this. 

[Jaffy]

On 9/19/2020 at 2:22 PM, trents said:

There shouldn't be much of a concern there as long as things are washed thoroughly and you don't drink the dish water. Some have expressed concern about using the same cast iron skillets as gluten eaters in the family but I don't know.

I just can't pass up this opportunity to address this matter of drinking the dish water: my husband has dementia and a few months ago started washing the dishes without rinsing them!  I googled and it said the dishes could still be "dirty".  I spoke to hubby about it but I was just "trying to start a fight" which I wasn't.  Now thank you for this "joke" because, about that time is when I began having intestinal cramps, etc that I had never had before.  Yes, I usually do the dishes, myself, but ...

 

[cyclinglady]

58 minutes ago, Jaffy said:

I just can't pass up this opportunity to address this matter of drinking the dish water: my husband has dementia and a few months ago started washing the dishes without rinsing them!  I googled and it said the dishes could still be "dirty".  I spoke to hubby about it but I was just "trying to start a fight" which I wasn't.  Now thank you for this "joke" because, about that time is when I began having intestinal cramps, etc that I had never had before.  Yes, I usually do the dishes, myself, but ...

 

I am sorry about you and your husband dealing with dementia.  Just consuming dishwashing detergent is bad for you! 

[Sharona]

I am sorry your going through a tough time with your hubby with dementia. I was just thinking if you follow the seasoning instructions and heat up the cast iron pan it should not stick and will make it easier to clean. I am really careful with mine. I fortunately do the dishes. Maybe you could make washing the dishes fun and tell your hubby to wash and you rinse them. That way you know they will be okay for you. Nothing worse than cramps and not figuring out why.