Need some help regarding rice

[bmdRsq21]

Hello everyone,

This  is my first post here, although, I read your posts religiously.

Was diagnosed with celiac in 2018, through both genetic testing and scope. Thinking is, I must have had it for at least the last 9 years when I think back on symptoms and when they started. Back in 2012 I became lactose intolerant all of the sudden, bowel movements had no color, and the regular digestive issues. Funny how easily we blow these things off and think they're nothing. Finally decided to get things checked in January 2018, since I was loosing weight like crazy, even though I was eating entire loaves of French bread and, literally 2 dozen gourmet cookies at one sitting and still lose weight. There's another question I'm going to post separately, regarding celiac and tumors. In the fall of 2018 I had to have surgery for 4 retroperitineal sarcoma tumors that literally filled up my entire abdominal space. Smallest was 9 in in diameter, largest 18 in. They were just smashing my intestinal wall and stomach.  Lost a kidney in that surgery.  Almost exactly a year later I had to have emergency surgery for bowel obstruction. When I asked my surgeon how they treated it, he said "they took everything out, layed it on the table and gave it a coating so it wouldn't happen again". Scar tissue from the first surgery was the cause.

Anyway, since that second surgery I've had a hard time trying to get my diet in order. Going gluten free was no problem, but I just cant get my diet in working order. My diet is limited due to histamine intolerance, sugar levels, and the fact that I have to watch my potassium level due to the one kidney.

This is resulting in not getting enough carbs and is now causing GERD. One thing that seemed to be helping was rice cakes. I thought those would be a winner. I caught a few webinars from this glutenology expert in TX who says all grains should be avoided and what he says seems to make sense, and he provides studies to back him up. Now I'm paranoid that I'm making everything worse! Has anybody had trouble with rice. I only eat the rice cakes. Otherwise, I'm not really a rice fan but I just need to have some type of carb that fills me up. I can eat a little sweet potato but they're really high in potassium.

I'm sorry if this is too long. I really just don't know where to start now. I've seen a couple dietitians here and, really, I have to say I know more about celiac then she does. I know many of you have run into the same situation. I just think if I can eat the rice cakes, that will help with calming down the gerd and then move forward from there.

I would really appreciate you're input!

Thank You

[trents]

I would give the rice cakes a try and see if they give you problems. Can you handle nuts? They are high in calories.

[RMJ]

I eat rice cakes every day with no problem.  I like crunchy stuff!

[GodsGal]

Hi! I would try the rice cakes as well. Make sure you read the labels though. Some of them have milk in them.