In a rut, need advice

[trents]

Sometimes it has occurred to me that not being able to drop into any bakery or fast food restaurant is a blessing in disguise as far as my waistline is concerned.

[Ivana]

9 minutes ago, trents said:

Sometimes it has occurred to me that not being able to drop into any bakery or fast food restaurant is a blessing in disguise as far as my waistline is concerned.

How true trents,

I noticed on how many occassions I had to forgo cakes and buiscuts that people offered when I visited their homes, or that they brought to share when celebrating something, or ordered while we were having coffee, that I suddenly became glad that I put that much less sugar and fat into my system. Pre celiac me would take every opportunity . 

[notme]

On 7/20/2021 at 12:00 AM, trents said:

Marry a celiac. That would solve part of the problem.

there is a myth (i don't think they've done a conclusive study but i could be wrong lolz) that autoimmune people are naturally attracted to autoimmune people.  i know a lot of people who are married and both have autoimmune diseases, so i'm inclined to believe it is true!

and, why do GIRLS only get to go on picnics??  lolz!!

i always say:  if you're a celiac, every day's a picnic.  literally.  because you have to bring your own food 😅

[trents]

I think autoimmune diseases are very common in the general population once you get into a certain age group. They are often misdiagnosed because there aren't signs of infections or because the symptoms they produce are common to many health problems. As we age, all of our systems experience deterioration, including our immune system.

[fllstuart77]

On 8/2/2021 at 12:56 PM, Beverage said:

Whoa whoa whoa. This is massively bad and very dangerous advice. Celiac's is an auto immune disease and the only treatment available is to be completely gluten free.

 

not much different from people smoking...   they're inhaling poison daily willingly...    some don't care and accept the fact that it might lead to serious illness.... or might never...

 

 

 

[Onegiantcrunchie]

On 9/6/2021 at 10:13 PM, Tony9k said:

I have had those opportunities arise re just going for a drink. In my head I kind of thought that it would extremely awkward if everyone is eating but you. Is that not the case for you? A few years back I used to go to friends for games/drinks evenings, but everyone would grab a takeaway and I would just wait for them to eat. I found this really difficult, and started to feel like an outsider and stopped going. In hindsight I should of done what Trents suggested and bring my own meals to it.

I think it's only awkward sometimes because lots of people will not feel comfortable with them eating and us not eating and will instead say let's go somewhere where you CAN eat, which is great, but if that became a regular thing and eventually led to them missing out on THEIR favourite places to eat, it would be better to strike that balance. What I've done is identify at least one thing at all the places I'm likely to go and eat with friends, that I can have. In some cases it's just a smoothie or a salad, but it's something at least.

[Onegiantcrunchie]

13 hours ago, notme! said:

there is a myth (i don't think they've done a conclusive study but i could be wrong lolz) that autoimmune people are naturally attracted to autoimmune people.  i know a lot of people who are married and both have autoimmune diseases, so i'm inclined to believe it is true!

That's very interesting. I wonder if they were both autoimmune before they met, or they both became autoimmune afterwards. If it's the latter, maybe that could be explained by shared environmental triggers.

[notme]

8 hours ago, Onegiantcrunchie said:

That's very interesting. I wonder if they were both autoimmune before they met, or they both became autoimmune afterwards. If it's the latter, maybe that could be explained by shared environmental triggers.

some were diagnosed before they met and some were not.  my (future) son-in-law is not diagnosed yet but he responds well to my daughter's (she has celiac) gluten-free diet, for example, and he is being treated for anxiety, one of my daughter's symptoms before she went gluten-free.   my son and his wife (she has hashi's, he is type 1 diabetic) were both diagnosed before they married.    my own husband had carpel tunnel issues, he probably still needs surgery, but since he's been eating mostly gluten free, he hasn't been complaining and doesn't wear the brace on his arm anymore.  if i say he's doing well eating gluten-free, he says that has nothing to do with it, but secretly i am not convinced lolz  

if i had to bet, i would put my $$$ on pheromones.........

also, i would say that another autoimmune person has a greater amount of sympathy & understanding when it comes to what a pain in the butt celiac disease is at times.

[JenniK]

On 7/20/2021 at 12:00 AM, trents said:

Marry a celiac. That would solve part of the problem.

I honestly think this is good advice. I am frequently thankful that i did not have to make all these changes until after i had been married for many years.  I have told my sons that because they’ve learned to look out for gluten for their mom, they will be great boyfriends to girls with celiac, and they should ‘advertise’ that. I know a lovely young lady (20) who is celiac and in year 2 of college and facing the same frustrating, awkward challenges. I suggested to her mom to tell her to look on social media for gluten-free guys to date. For real- what a lovely relief that would be to both people in a relationship!

[AliciaKaur]

If it would help you, I would give you my miserable symptoms. Even the slightest cross contamination makes me so ill. 
 

I would probably be in your situation too. There’s so much social pressure and mainstream jokes about people who need to be gluten free. My symptoms are both a curse and a blessing. Please be positive though about your future. I find when I get  glutened, I am cranky and negative. Things may not be going well now, but it’s not guaranteed to go that way forever. You probably need to find other sources of joy. Honestly for me, gluten foods aren’t even tempting. There are so many gluten free goodies to eat. Either way, food shouldn’t be a pain reliever for other issues. Wishing you the best. You’re not alone.

[Moccajoe]

On 7/19/2021 at 6:26 PM, Tony9k said:

Hey, so first time I have posted looking for support, but could do with some fellow celiac advice.

I have been celiac for about 4 years now and for the most part kept to a strict gluten-free diet, but I fell off the wagon during lockdown and recently had a lot of gluten and can't seem to quit it. 

After diagnosis my social and romantic life kinda just ended. Thing is, eating gluten is intoxicating and feel like I have reclaimed part if my old life, even if it is killing me. The food itself I can be strict and do without, but the lack of a social life is the clincher.I keep saying to myself, ok this week I'll try and be good, and it never happens....

Has anyone else been here? Would honestly appreciate any advice.

Thanks

Tony

It’s hard to accept ‘dinner dates’ at someone’s house. I usually reply, with a laugh, ‘ I’m a terrible diner date! I have a crazy food issue thing, BUT perhaps we can get together for a drink or something? I make a great veggie tray!’ … I find this helps, not giving too much info, but not declining either. I’m quite private and would eat gluten if I had to, I hate to offend a host. .. (my issue) 

[Scott Adams]

My hope is that everyone with celiac disease would be able to decline eating gluten in social situations, but statistics have shown that around 15-20% of celiacs regularly cheat on their diets. I don't every knowingly cheat, but I do eat in restaurants regularly which means that I likely get cross contamination from time to time. For two years now I've been taking AN-PEP enzymes (GliadinX - full disclosure, they are a sponsor here), as they've been shown in multiple studies to break down small amounts of gluten in the stomach, before it reaches the intestines. I would not recommend that anyone use enzymes to purposefully eat gluten, however, for those in the 15-20% who cheat, they should certainly consider taking 2-3 of them before doing so.

[Cindy Neshe]

On 7/19/2021 at 7:26 PM, Tony9k said:

Hey, so first time I have posted looking for support, but could do with some fellow celiac advice.

I have been celiac for about 4 years now and for the most part kept to a strict gluten-free diet, but I fell off the wagon during lockdown and recently had a lot of gluten and can't seem to quit it. 

After diagnosis my social and romantic life kinda just ended. Thing is, eating gluten is intoxicating and feel like I have reclaimed part if my old life, even if it is killing me. The food itself I can be strict and do without, but the lack of a social life is the clincher.I keep saying to myself, ok this week I'll try and be good, and it never happens....

Has anyone else been here? Would honestly appreciate any advice.

Thanks

Tony

Tempted but the consequences are not worth it. There are plenty of gluten free food that are delicious. You just have to do a lot of research, keep notes on what works. Stay away from food that doesn’t agree with you, especially gluten. Think of gluten as poison. Eventually gluten causes worse awful things overtime to your body. I can eat out and do take out.  If you want longevity. Stay away from it.  My drs words exactly back in May 2017. I tested over 100% back then. Highly sensitive to gluten and casein (dairy enzyme). It’s under control by avoiding both.