Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

South Florida

ms-sillyak-screwed

Recommended Posts

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Ms SS--Darn, if I lived in Florida, I would join your club! We could meet on Sunday nights--around 7:30 and then stick around and have a Sopranos party afterwards :D

Really--good luck with it!

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted
  • Author

-

bklyn Enthusiast
bklyn
Posted

I belong to the SE Florida support group. Have you been to a meeting?

  • 1 month later...
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted
  • Author

-

  • 2 months later...
beaglemania Rookie
beaglemania
Posted

I'm from South East Florida. I believe me and my mom might start one someday. We would form one right away but for now my mom is busy taking care of my papa who has a brain tumor.

I'm from South East Florida. I believe me and my mom might start one someday. We would form one right away but for now my mom is busy taking care of my papa who has a brain tumor.

So I know there's one In Boca you could go to, I would go to it if it weren't so far away.

lindalee Enthusiast
lindalee
Posted

Didn't you go to the doctor? Hope it went well. I would go to your group but too far away. Have you ever looked into the SCD? LL

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


samking72 Rookie
samking72
Posted

Im in Orlando... very long drive. I wish I was closer.

beaglemania Rookie
beaglemania
Posted
Im in Orlando... very long drive. I wish I was closer.

I know my mom knows people who have Celiac Disease. Hopefully we may start a group soon in Stuart, Florida. Its about an hour drive from West Palm Beach and the Gardens Mall.

rumbles Newbie
rumbles
Posted

What part of SE Florida?

beaglemania Rookie
beaglemania
Posted

I live in Stuart. In Martin County. Next to Port St. Lucie. And an hour from The Gardens Mall in PGA.

NicoleAJ Enthusiast
NicoleAJ
Posted

My parents live in Miami Shores, but I live in PA. Let me know if you start a group in Miami because I'd like to attend when I go home to visit them in the summer and over holidays.

  • 2 weeks later...
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted
  • Author

-

Cheri A Contributor
Cheri A
Posted

Silly ~ sorry that I'm not in FL anymore to hook up w/you. I used to live in South Florida. My family is still there. But, I'm in Minnesota now :blink:

  • 4 months later...
Stebetty12 Newbie
Stebetty12
Posted

I recently got diagnosed with Celiac and i feel as if i am the only person inn South Florida with it. Its so unfair that i see other cities have full dedicated websites and posting and restaurant options and there is nothing for south Florida. I would love to Join a group. :) and feel there i am not the only one, get helpful advice, exchange ideas, etc.... maybe even star up a website as there is one needed.. :rolleyes:

steveindenver Contributor
steveindenver
Posted

Does anyone have a list or suggestions of places to eat in and around the Boca area? I'm heading down there in March or April to visit my mom, and I've googled for suggestions, but can't find any. Other then the typical PF Changs or Outback, anyone have any suggestions? Thanks so much!

  • 4 weeks later...
jacki Newbie
jacki
Posted
Does anyone have a list or suggestions of places to eat in and around the Boca area? I'm heading down there in March or April to visit my mom, and I've googled for suggestions, but can't find any. Other then the typical PF Changs or Outback, anyone have any suggestions? Thanks so much!
jacki Newbie
jacki
Posted

Legal Seafood at Town Center Mall has a gluten Free menu. There is a new pizza place in Deerfield beach, called Pizza Fusion that has gluten free pizza. Another Pizza Fusion will be opening in Boca, Powerline and Palmetto in April. If you bring your own pasta to Sweet Tomatoes, they will make it for you, but if you are highly sensitive, I would be careful.

steveindenver Contributor
steveindenver
Posted

I'm heading down there in April to visit my mom in Boca area. I hope the new Pizza Fusion is open by then, as I eager to try it!!! If not, we're driving to Deerfield.

Cheri A Contributor
Cheri A
Posted

Definitely visit Pizza Fusion!! I was in South FL visiting family over the holidays and took my dd there for pizza! She loved it and even got a brownie too! One word of warning, though... give them a call before you go there because they need a little notice for the gluten-free crust.

mamaw Community Regular
mamaw
Posted

We will be coming to Florida in April07. Disney for a week then we will go down the East coast. First stop is Junipter, hopefully the guys can get out on a head boat to do some fishing. Then I ask that we stop to try Pizza Fusion. I sure hope it is worth the stop over.Then we are going over 75 to the gulf side. Stopping in Port Charlotte, then onto to Palmetto.If anyone knows any good eating places on this route,Please let me know.

Oh yeah, fishing head boats too???? I forgot we want to stop at Cape Canaveral.

If there are any good gluten-free shopping on our route please fiil us in on that too. I'm always on the look-out for new gluten-free foods that will knock our socks off... I don't get that where I live......

thanks

mamaw

Jprock Newbie
Jprock
Posted

The Southeast Chapter (CSA affiliated) meets too far south for me as I'm in northern Palm Beach County. The Palm Beach County Chapter (CDF affiliated) meets in the Delray area - again, too far away for me, especially during the work week.

I'd love to have a support group in the northern part of the county; anybody out there want to get involved?

  • 4 weeks later...
lovetofysh Newbie
lovetofysh
Posted
I recently got diagnosed with Celiac and i feel as if i am the only person inn South Florida with it. Its so unfair that i see other cities have full dedicated websites and posting and restaurant options and there is nothing for south Florida. I would love to Join a group. :) and feel there i am not the only one, get helpful advice, exchange ideas, etc.... maybe even star up a website as there is one needed.. :rolleyes:

I too am in South FL (Miami) and was recently diagnosed with Celiac. I have done numerous searches on the internet and have found nothing available in this area as well. My search is continuing and I will let you know if I find something!!!

  • 2 months later...
Vince Newbie
Vince
Posted

I live in Boynton Beach and am a Celiac. I do go to school in Connecticut but I am here on breaks and would be interested in interacting with other Celiacs.

RKB-MD Rookie
RKB-MD
Posted

I am possibly moving to Pembroke Pines area in August and would be interested in meeting some others. Is there a WF nearby that has a monthly meeting?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

      @Sarah Grace, Thank you for the update! It's so good to hear from you! I'm glad Thiamine, B Complex and magnesium have helped you. Yes, it's important to take all three together. I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too. They are high in tyrosine, an amino acid, found also in fermented...
    2. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Related issues

      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan...
    4. Scott Adams
      - Scott Adams replied to jessicafreya's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Tamale ingredients

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    5. Wheatwacked
      - Wheatwacked replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      GI DX celiac despite neg serology and no biopsy

      Just a gluten free diet is not enough. Now you have to identify and replenish your malnutrition. Celiac disease is co-morbid with malabsorption syndrome. Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely. It takes...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,144
    • Most Online (within 30 mins)
      7,748
    Jenny0384
    Newest Member
    Jenny0384
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      @Sarah Grace,  Thank you for the update!  It's so good to hear from you!  I'm glad Thiamine, B Complex and magnesium have helped you.  Yes, it's important to take all three together.    I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too.  They are high in tyrosine, an amino acid, found also in fermented foods like sauerkraut and red wine.   I found taking Tryptophan very helpful with migraines.  Tryptophan is a precursor of serotonin and people with migraines are often low in serotonin.  (Don't take tryptophan if you're taking an SSRI.)     This recent study shows tryptophan really helps. The association between dietary tryptophan intake and migraine https://pubmed.ncbi.nlm.nih.gov/31254181/   For immediate respite from a migraine, try smiling REALLY BIG, mouth closed, tongue pressed against roof of mouth, and crinkle up your eyes like you just heard or saw the funniest thing...  This causes an endorphin release in the brain.  Usually it's the funny event, then the endorphin release and then the smile.  Smiling first makes the endorphin center think it missed something and it catches up quickly by releasing endorphins after the big crinkle eyed smile.  Must make crinkly eyes with smile or it won't work.  If you do this too frequently within a short time frame (several hours), you can deplete your endorphins, but you'll make more in a couple of hours, so no worries. Get your thyroid checked, too.  Migraines are also seen in low thyroid function (Hashimoto's or hypothyroidism).  Celiac and thyroid problems go hand in hand.   Vitamin D helps, too.  Low Vitamin D is found in migraine.   I'm so glad you're doing better.  
    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted, leg pain , stomach,skin and eye issues,high blood pressure to name a few all worsen because I was a  school bus driver and few years until my immune system went to hell and was fired because of it.Im still struggling now, Im sibo positive and been told im not celiac and that I am.I have a hernia and dealing with menopause. Its exhausting and is causing depression because of non medical help. Today I saw another gastrointestinalist and he said everything im feeling doesn't add up to celiac disease since my ITg levels are normal so celiac disease is under control and it's something else. I for got I had Barrett's esophagus diagnosed in 2007 because recent doctors down played it just like my celiac disease. Im currently looking for a pcp in my area because it is affecting me personally and professionally. Im told since celiac looks under control it's IBS and I need to see a therapist to control it. Gastrointestinalist around here think only food consumption and if ITG looks normal its bit celiac disease it's something else. Is this right? This is what im being told. I want medical help but told its IBS.Im feel lost by " medical team "
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      Tamale ingredients

      By Scott Adams · Posted

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.