Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

More Questions On This Milk Reaction...


VydorScope

Recommended Posts

VydorScope Proficient

I was just thinking, well trying to...

First refresher... I was suspecting milk was a problem, so I bought some lactait pills and took two of them with around 12 oz of whole milk, and well 24 hours later I am still recovering. Pain, brain fog, gas, etc. I have had the scratch test and showed NO food allergies of any kind. The reaction to the milk was almost instant. Less then a minute thats for sure.

Since I took the lactait, it is not likely to be lactose... and I was thinking milk alergy and that the scratch test was just plan wrong... instant reaction like that is not typical of a intolernce, its more typical of an allergy (expections always exist of course...)

BUT it just occure to me, it cant be an allergy, I am taking Zytrec-D (RX anti-histamean) daily for seasonal allergies and have been for a week or 2 now (season just starting...). That should have prevented/weakened any reaction right????

So it has to be an intolerence to somthing other hte lactose right???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master
I was just thinking, well trying to...

First refresher... I was suspecting milk was a problem, so I bought some lactait pills and took two of them with around 12 oz of whole milk, and well 24 hours later I am still recovering. Pain, brain fog, gas, etc. I have had the scratch test and showed NO food allergies of any kind. The reaction to the milk was almost instant. Less then a minute thats for sure.

Since I took the lactait, it is not likely to be lactose... and I was thinking milk alergy and that the scratch test was just plan wrong... instant reaction like that is not typical of a intolernce, its more typical of an allergy (expections always exist of course...)

BUT it just occure to me, it cant be an allergy, I am taking Zytrec-D (RX anti-histamean) daily for seasonal allergies and have been for a week or 2 now (season just starting...). That should have prevented/weakened any reaction right????

So it has to be an intolerence to somthing other hte lactose right???

I'm not sure Zrteck or any antihistimine is effective in surpressing allergic reactions in the gut. They work for the nasal passages and epidermal areas but I'm not sure it would impact problems in the gut. Maybe somebody else could address this question with more authority than I.

VydorScope Proficient

Well our alergist said if our son got egg to give him benedryl, so I would think its the same basic idea?

StrongerToday Enthusiast

I think they are different medicines... Benedryl blocks the histimine and Zyrtek does .... :blink: ok, I don't know... but it's like comparing Tylonel and Advil - both are pain releivers but do different things.

It could be a lactose thing - the milk may just have been too much for you to process on one little pill. Why don't you try some of that lactose free milk and see if you have a reaction? My friend (who is not gluten-free) can not tolerate any milk, ice cream, or soft cheese (cottage, ricotta, etc.). She can have mozzerella and other hard cheese without any suffering.

VydorScope Proficient
I think they are different medicines... Benedryl blocks the histimine and Zyrtek does .... :blink: ok, I don't know... but it's like comparing Tylonel and Advil - both are pain releivers but do different things.

It could be a lactose thing - the milk may just have been too much for you to process on one little pill. Why don't you try some of that lactose free milk and see if you have a reaction? My friend (who is not gluten-free) can not tolerate any milk, ice cream, or soft cheese (cottage, ricotta, etc.). She can have mozzerella and other hard cheese without any suffering.

Well I took the max dose, 2 :D And I am considering trying lactose free skim milk (incase its milk fat reaction), but right now stranded with out a car cause mines in the shop. I would think if it was lactose the pills would have helped SOME at least. This was as strong of a reaction as I have ever had.

Just wish there was some magic test that I could like spit in cup and they could tell me the asnwer. :(

Zyrtec acording to thier web site is an "antihistamine" so in that sense it is the same.

Mango04 Enthusiast

Lactaid pills do not help me at all whatsoever and I have tested negative to all of the milk allergy tests. I cannot tolerate any trace of dairy product whether it's lactose free rice cheese with casein or a casein free product that contains lactose. Sometimes the best thing to do is eliminate dairy entirely for about six weeks or so and see how you feel. If it makes you sick don't drink it!!!!! :D

Carriefaith Enthusiast

You may be intolerant to casein.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VydorScope Proficient
Lactaid pills do not help me at all whatsoever and I have tested negative to all of the milk allergy tests. I cannot tolerate any trace of dairy product whether it's lactose free rice cheese with casein or a casein free product that contains lactose. Sometimes the best thing to do is eliminate dairy entirely for about six weeks or so and see how you feel. If it makes you sick don't drink it!!!!! :D

How about skim milk ? I have been trying to read up on this stuff and seems some ppl only react to milk fat.

Cheri A Contributor

Vincent ~ the Zyrtec is time released so that it lasts for a longer amount of time. Benadryl is to be used for a quick allergic reaction (like what you described).

Also, my dd used to be on zyrtec chewables until I found out they had lactose in them. Check out the 2 websites I found for you...

Open Original Shared Link

Open Original Shared Link

You can be allergic to casein (milk protein) or lactose (milk sugar). My dd is allergic to both.

I hope you figure this out soon and are feeling better soon.

PS ~ I made egg-free, yummy chocolate chip cookies tonight that actually came out like cookies

flagbabyds Collaborator

I'm allergic to casein and can not use the lactaid pills.

VydorScope Proficient

Oh great just looked at my mulitvi, it has latcose in it too. Adn so does Zyrtec??? bah.

UGH.

OKay from what I can tell there appears to be 3 parts to milk that cuase problems.

1) Milk Fat - seems much rarer though

2) Lactose

3) Casien

Soooo Since I took lactate with my milk, its not likly to be #2, but it was whole milk so #1 and #3 are still in play. I guess the only way to know is to get some lactose free skim milk (saw it in the store) chug that, and if I react then it has to be #3, if I do not then its likely to be Milk Fat, and I next try Lactose free whole milk. If I still do not react then it has to ba lactose and the lactiate pills just suck.

That sound logical?

penguin Community Regular

I'd really reccommend not chugging milk...drinking it slowly is probably a better idea, IMO. Even if it's skim milk, it's still kind of rich... Drinking milk fast will make anyone sick. :blink:

Also, as far as Zyrtec is concerned, I'm allergic to tree nuts (oral allergy syndrome) and my reaction is NOT lessened by allergy meds like Zyrtec or Claritin. Someone mentioned that Zyrtec is slow acting, that's true, benadryl works more acutely, it also knocks you out...

Oh, FYI, my allergist said never to use topical benadryl for your skin in an allergic reaction, he said it makes allergies worse :ph34r:

Kasey'sMom Enthusiast

My dd and I do liquid Zyrtec and it works really well for us. I started taking it several years ago for anaphylatic reactions and now daily. The Zyrtec syrup comes pre-flavored in grape-banana. Yes, Zyrtec is a second-generation anti-histimine. I also take Xolair injections. Xolair is an anit-IgE antibody injection which attaches to the IgE anti-body and passes through the body befor histamines are released. I take the shot every four weeks.

I went off dairy for several months and now I can tolerate it small amounts. My dd and I didn't test positive in the scratch test for dairy (IgE.) She did test positive on the YORK test for dairy (IgG-delayed reaction) so we've taken dairy out of her diet as well.

I did have a disscusion with our allergist and he mentioned that the two hardest sugars for the body to digest are maltos and lactose.

If I still do not react then it has to ba lactose and the lactiate pills just suck.

Sometimes I've found that I have to take 2 lactaid pills. Are you taking additional digestive enzymes?

Soooo Since I took lactate with my milk, its not likly to be #2, but it was whole milk so #1 and #3 are still in play. I guess the only way to know is to get some lactose free skim milk (saw it in the store) chug that, and if I react then it has to be #3, if I do not then its likely to be Milk Fat, and I next try Lactose free whole milk.
To test #3 you might try one of the soy or rice cheese that contain casien but are lactose free.

PS ~ I made egg-free, yummy chocolate chip cookies tonight that actually came out like cookies
Do you mind to share your recipe? My dd is allergic to eggs as well. She tested postive in the single blood test, (IgE -classic allergy) but she didn't test positive in her scratch testing.....kind of weird. I got some Enjoy Life Chocolate Chips since they're safe and I've been dying to make cookies. :lol:
VydorScope Proficient
I did have a disscusion with our allergist and he mentioned that the two hardest sugars for the body to digest are maltos and lactose.

Sometimes I've found that I have to take 2 lactaid pills. Are you taking additional digestive enzymes?

To test #3 you might try one of the soy or rice cheese that contain casien but are lactose free.

Yes took 2, thats the max dose, so thats what I took. Dunno anything about any other enzymes. Up till yesterday I was eating yogurt daily fi that counts.

Did not know that about Rice or Soy cheese, how do I know which have Casien in them?

Thanks!

Kasey'sMom Enthusiast

Kroger has this brand.....Open Original Shared Link

They have both veggie and rice types. I looked at the rice variety the other day and it listed casien in the ingredient list on the back. I'm not sure how great they taste but it might be a good way to test! :D

I don't know anything about soy yogurt but it may have casien in it as well.

Mango04 Enthusiast
How about skim milk ? I have been trying to read up on this stuff and seems some ppl only react to milk fat.

If you're determined to drink milk you might want to try organic raw dairy. Some people who cannot tolerate any other form of dairy can tolerate it raw.

VydorScope Proficient
If you're determined to drink milk you might want to try organic raw dairy. Some people who cannot tolerate any other form of dairy can tolerate it raw.

Im not, but I am detrimined to know what the trigger is.

trents Grand Master

Deleted.

trents Grand Master

I've been reading a book on food allergies and it points out that there are several proteins in milk that can cause allergic reactions. Casseine is jus the most common one.

tarnalberry Community Regular

well, the scratch test would have tested you for IgE mediated casein allergies. IgE mediate allergies are also the ones that release histamine, so are the ones that taking an antihistamine like zyrtec or benadryl would affect. but you could have an IgG intolerance, would wouldn't show up on the scratch test or be affected by the antihistamine.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,956
    • Most Online (within 30 mins)
      7,748

    ramonaja
    Newest Member
    ramonaja
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.