Result for biopsy

[musicalmummy]

I’ve got my daughters biopsy results. It’s a most likely could be coeliac but still not definite .

I’ve got the paperwork if anyone is willing to decipher them 

[Scott Adams]

Feel free to post the results here, and your doctor is the best person to help you understand this. We're not doctors, but may be able to understand them. Please also post the reference ranges for a positive test for any celiac blood tests you share.

[musicalmummy]

[musicalmummy]

https://share.icloud.com/photos/08b3WaoN_BeT1YBn_zfNeMX2g

 

not sure if this works

[RMJ]

As I said answering another of your posts, the pathologist doesn’t have the whole picture (clinical signs/symptoms, serology) so lists all the options to explain what he/she saw. This is standard for pathologists. He/she suggests clinical/serological correlation.

Based on a previous post, your daughter has two positive antibody tests for celiac disease - this is the serological correlation.  Per biopsy her villi are shortened and there are increased epithelial lymphocytes - so two indications from biopsy for celiac disease.  I don’t understand why her doctor is reluctant to diagnose it as such.

[Scott Adams]

I agree.

[musicalmummy]

2 hours ago, RMJ said:

As I said answering another of your posts, the pathologist doesn’t have the whole picture (clinical signs/symptoms, serology) so lists all the options to explain what he/she saw. This is standard for pathologists. He/she suggests clinical/serological correlation.

Based on a previous post, your daughter has two positive antibody tests for celiac disease - this is the serological correlation.  Per biopsy her villi are shortened and there are increased epithelial lymphocytes - so two indications from biopsy for celiac disease.  I don’t understand why her doctor is reluctant to diagnose it as such.

The gastroenterologist has both result and is the one who states it’s probable to be coeliac but he can’t 100% say.  And because of that my daughter wants to continue a normal diet and wait for the bloods and biopsy next year. I

[RMJ]

Can you get a second opinion?  Take the blood and biopsy results to another gastroenterologist? Some doctors, even gastroenterologists, can be real idiots when it comes to celiac disease.

I wonder what it would take for your daughter’s gastroenterologist to say that someone does have celiac disease.  Perhaps total villous atrophy?

Your daughter has autoimmune antibodies that are attacking her body.  Per a previous post, her deamidated gliadin peptide IgG is so high that it’s above the range of the test.  The transglutaminase IgA is five times the top of the normal range. She already has damage to her villi.  Continue feeding her gluten and the damage will just increase. She may have trouble absorbing nutrients just when her growing body needs them most.

[Paula O]

I was also recently diagnosed with celiac disease because of a biopsy taken during an endoscopy and followed up with blood tests, both ordered because my iron level was low. I have absolutely no symptoms if I eat regular food and so sorry for those that do. Is It possible to have celiac but feel perfectly normal and healthy? I have gone on a gluten free diet after seeing a registered dietitian but feel no different. I can’t even tell if I accidentally eat something on the “forbidden list”. How long does it take for intestines to return to normal after being on a gluten-free diet? And would it be possible after that time to start eating gluten again? Thanks, hopefully I’m not the only one with this issue.

[I.M.Celiac]

I had 2 endoscopies because my GI “forgot” to look for Celiac. 
(So expensive!) He is my ex-doctor now. 

My height was probably stunted and my tooth enamel was definitely affected by undiagnosed Celiac. That may motivate your daughter to cut out gluten. Would love to have been taller with better teeth! 
 

Good luck!! 

[RMJ]

1 hour ago, Paula O said:

I was also recently diagnosed with celiac disease because of a biopsy taken during an endoscopy and followed up with blood tests, both ordered because my iron level was low. I have absolutely no symptoms if I eat regular food and so sorry for those that do. Is It possible to have celiac but feel perfectly normal and healthy? I have gone on a gluten free diet after seeing a registered dietitian but feel no different. I can’t even tell if I accidentally eat something on the “forbidden list”. How long does it take for intestines to return to normal after being on a gluten-free diet? And would it be possible after that time to start eating gluten again? Thanks, hopefully I’m not the only one with this issue.

Yes, it is called “silent celiac.”  I have no particular symptoms, although I find that I just feel better now that I am gluten free.  

It is not possible to return to eating gluten again after the intestines heal.  The antibodies would go back up and the damage return.

[RMJ]

2 hours ago, musicalmummy said:

The gastroenterologist has both result and is the one who states it’s probable to be coeliac but he can’t 100% say.  And because of that my daughter wants to continue a normal diet and wait for the bloods and biopsy next year. I

I do worry that if you and your daughter decide that she should go gluten free, she may not be particularly careful, since the doctor gave her the option to continue eating gluten.  If she only goes sort of gluten free it would be hard to evaluate at the one year retest.

[musicalmummy]

18 minutes ago, RMJ said:

I do worry that if you and your daughter decide that she should go gluten free, she may not be particularly careful, since the doctor gave her the option to continue eating gluten.  If she only goes sort of gluten free it would be hard to evaluate at the one year retest.

Yes I agree. Which is why I did let her make the choice. I felt if I made the decision and did everything at home to be gluten-free that she’d then just go out and eat gluten

[trents]

6 minutes ago, musicalmummy said:

Yes I agree. Which is why I did let her make the choice. I felt if I made the decision and did everything at home to be gluten-free that she’d then just go out and eat gluten

You need to get a second opinion, musicalmumm. The first GI doc's conclusions are not in keeping with the actual biopsy results he reports. Not sure why he felt he could not conclusively say she has celiac disease. How old is your daughter?