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Husband just diagnosed with Celiac, need help with vitamins and supplements that will really help


KathleenMK
Go to solution Solved by Scott Adams,

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KathleenMK Rookie

My very health conscious hubby has had some recent health issues that lead to a full array of test that confirmed Celiac with a biopsy. I am suspecting alot of his recent old man issues have roots in this diagnosis because he has been nutritionally deprived. Could his broken bone be lack of calcium absorbed instead of the force of the fall?  His doctor took him off all vitamins and supplements when his PSA was too high. Since that went down when he skipped the the vitamins he is reluctant to take a multi vitamin again but I worry that our healthy diet is not enough with his damaged gut.

What do those of you who are managing your Celiac's disorder find works best or you need the most? I think he needs higher dose easy to absorb nutrients to heal, so would those liquid vitamins for people who had gastric bypasses be better?  Would the collagens I take for joint and skin issues really help his gut heal or is that just hype? What about Fish oil and Omega 3s?

Any tips?

 


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  • Solution
Scott Adams Grand Master

I'm a strong believer that most people with celiac disease definitely need to be taking a good multi-vitamin/mineral formula, and some of my long-time symptoms like numbness and tingling in my toes only went away in the last few years, after I added magnesium citrate and other supplements. You can see my regimen here:

Is there some research on vitamins or minerals that should be avoided when one has high PSA readings? 

trents Grand Master

I find it strange that his doctor took him off of vitamins and supplements. I have never heard before that they can cause elevated PSA levels. In fact, I would think the opposite would be true: https://www.livestrong.com/article/411179-can-vitamins-and-supplements-affect-psa-readings/

Have you and/or your husband researched this issue?

KathleenMK Rookie

I think it was just for the follow up test and I remember him having some article on a specific ingredient which can cause false readings in the PSA. I can't remember the details. I think he attributes the second lower reading to not taking them but I am still seeing him struggle with fatigue even after gluten-free diet has calmed most of the gut symptoms.

trents Grand Master
4 minutes ago, KathleenMK said:

I think it was just for the follow up test and I remember him having some article on a specific ingredient which can cause false readings in the PSA. I can't remember the details. I think he attributes the second lower reading to not taking them but I am still seeing him struggle with fatigue even after gluten-free diet has calmed most of the gut symptoms.

Thanks for the clarification.

KathleenMK Rookie

thanks Scott and Trents for the links.

I think the supplements that they worry will affect a PSA test are the ones that would be taken to improve symptom like saw palmetto and DHEA. iI was something in his regular men's vitamin and it wasn't harmful but  just could raise the scores. And the lower score could be from other factors as well.

trents Grand Master

So the doctor used the shotgun approach and took him off all vitamins and supplements.


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Wheatwacked Veteran
(edited)
7 hours ago, KathleenMK said:

His doctor took him off all vitamins and supplements when his PSA was too high.

Folic Acid is added to almost every multivitamin.  "Folate metabolism may have a complex role in prostate cancer; the effects of folic acid–containing supplements on the risk of prostate cancer may be different those of natural dietary sources. Folic Acid and Risk of Prostate Cancer"

In one clinical trial, the folic acid group had 17% more cancer than the control group.

I was diagnosed with BPH Benign Prostate Hypertrophy wnen I was 21.  I found the Swanson Prostate supplement very effective.  When I started GFD at 63 , it shrank. PSA stayed high and doctors still insisted on a biopsy even though the Digital Rectal Exam showed it normal.  Chance of me have nerve damage from biopsy, 20%,was greater than the chance of me dying of cancer (<1%).  They also forget to mention there are several other causes of high PSA.  Sexual activity within 48 hours of the test is one. I declined the biopsy and found a different Primary Care doctor.

7 hours ago, KathleenMK said:

Could his broken bone be lack of calcium absorbed

Low vitamin D causes poor calcium absorption.  I find it interesting that 40% US adults have low or deficient vitamin D and 51% of adults over 50 have osteoporosis.

My current vitamin regimen:

  • 10,000 IU vitamin D (plasma target is 80 ng/ml equivalent to 200 nmol/L)
  • 500 mg B1
  • 500 mg B3
  • 500 mg B5
  • 1000 mcg (1 mg) B12
  • 960 mg Phosphatidyle Choline = 500 mg cholne.
  • 1000 mg Taurine (an essential amino acid, strong antioxidant, helps protect the eyes from oxiidative stress)
  • 2 ounces cherry flavored Magnesium Citrate (580 mg magnesium) in twenty ounces of water.  Instead of lemonade midday.
  • Vitamins A, E and Folic Acid supplements have been linked in several clinical studies to increased lung and prostate cancers.  I think it b.est to get them in food.  They are used to fortify grain flour and multivitamins because the milling process takes them out.

     This caused me to loose 30 pounds of belly fat over the past year, and compared to what I was, I'm like the energizer bunny.  It can't hurt because they are all well below the Safe Upper Level Intake recommended.  B3 Nicotinic acid relaxes the capillaries, increasing blood flow so for the first few days it can cause annoying flushing and itching.  Other forms of Low Flush B3 are not as effective for this purpose.

A sixty year old makes 10% the DHEA of a twenty year old.  I took it for quite a while. It has been called the youth hormone.  Come to think of it, I should start again.  Of course calcium, zinc, potassium, and others are important and good to track and supplement if needed, but the above supplements has had better results in my recovery. Even got me eating more.

You can create a spreadsheet to track nutrition using the Ag Departmints database SR28

Here is what mine looks like. http://nutrientlog.doodlesnotes.net/

Edited by Wheatwacked
typos
KathleenMK Rookie
On 6/22/2023 at 8:39 PM, Wheatwacked said:

 

  • 2 ounces cherry flavored Magnesium Citrate (580 mg magnesium) in twenty ounces of water.  Instead of lemonade midday.
  • Vitamins A, E and Folic Acid supplements have been linked in several clinical studies to increased lung and prostate cancers.  I think it b.est to get them in food.  They are used to fortify grain flour and multivitamins because the milling process takes them out.

     

Thank you Wheatwacked for a lot of good info, especially bit about Vitamins A E and folic acid supplements increasing cancer risk. these are all ones i had thought to increase for eye health and other reasons. I know all are better from food sources, and we do eat alot of the veggies high in them like leafy greens, etc. I have also thought we need more Magnesium for muscle cramps and better vascular health. I think hubby had used some nutrition app on his phone so those you mentioned may be something he would do. i have trouble just keeping up with spacing out my eye and blood pressure meds.

We had been taking D and zinc since the beginning of the pandemic. Other a very mild case of covid, we have had no season colds or allergies. For me the Supplements suggested by my eye doctor and internist have had positive side effects like better skin. So I hope we can find things that will help rebuild my husband's gut and over all health while not adding to other issues.

 

 

patty-maguire Contributor

Best to get vitamin levels tested rather than just supplement with no info to go on.  Also, getting tested will give you a baseline so you can check later to see if things are improving.  Common deficiencies that go along with celiac are: iron, calcium, magnesium, folate, Vitamin D and B vitamins.  Getting good food sources of these things is the best place to start, then fill in with supplements.  Many of the symptoms of celiac are due to vitamin deficiencies.  

trents Grand Master
10 minutes ago, patty_maguire said:

Best to get vitamin levels tested rather than just supplement with no info to go on.  Also, getting tested will give you a baseline so you can check later to see if things are improving.  Common deficiencies that go along with celiac are: iron, calcium, magnesium, folate, Vitamin D and B vitamins.  Getting good food sources of these things is the best place to start, then fill in with supplements.  Many of the symptoms of celiac are due to vitamin deficiencies.  

The trouble is, it's very difficult to get a medical doctor to agree to run full panel vitamin and mineral deficiency tests. I advocate the shotgun approach just to cover all the bases. Water soluble vitamins (like the B's) are nontoxic in high doses anyway. And it is unlikely that a celiac who has gone untreated for years will have just one or two deficiencies.

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    • trents
      How long have you been strictly gluten free? Certainly, it would be good to look into vitamin and mineral deficiencies and supplementation. The B vitamins, magnesium and D3 are all very important to neurological health. Unfortunately, it can be difficult to reverse gluten-induced neurological damage damage if it has gone on for a long time. 
    • nataliallano
      Thanks Trents I'm strict with my gluten-free diet now. I just don't feel any better. I'm going to get tested for vitamins and minerals to see if I need some supplements. For sure I got some damage that doctors call Menier's and the only way they treat it is with medicine that does damage my body more than it helps.   
    • Zuma888
      Thank you Scott for your helpful response! Based on this, would you say someone who is on a gluten-free diet - but not strict about cross-contamination and occasional cheating - and tests negative for tTg-IgA while having normal total IgA is not likely to have celiac, even if they have been 'gluten-free' for years?
    • Scott Adams
      That’s a really insightful observation about antibody testing and the gluten challenge! You’re absolutely right that antibody levels can remain elevated for months or even years after going gluten-free, especially if there’s ongoing cross-contamination or occasional slip-ups. The immune system doesn’t reset overnight—it can take time for antibodies like tTG-IgA to normalize, which is why many doctors recommend waiting at least 6–12 months of strict gluten-free eating before retesting. For someone who’s been gluten-free for less than two years or hasn’t been meticulous about avoiding cross-contact, there’s absolutely a chance they’d still test positive, since even small amounts of gluten can keep antibodies elevated. This is partly why the gluten challenge (where you eat gluten before testing) exists—it’s designed to provoke a measurable immune response in people who’ve been gluten-free long enough for antibodies to drop. But you raise a great point: the challenge isn’t perfect, and false negatives can happen if the timing or amount of gluten isn’t sufficient to trigger a strong antibody response. This is why diagnosis often combines antibody tests with other tools like genetic testing or endoscopy. Your question highlights just how nuanced celiac testing can be! For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes:      
    • Betsy Crum
      Thank you for your response! I have considered starting a food diary in the past, I suppose this is as good a time as any to start.  
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