Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Good Gfdf Probiotics?

terps19

Recommended Posts

terps19 Contributor
terps19
Posted

I think that the only one I have found is Flora-Q and Florastor (has yeast in it). So I think I am going to give the Flora-Q a try but I also wanted to know if anyone else uses probiotics and if so are they gluten free and dairy free? have they made a difference?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted

Florastor contains lactose so its not casein free.

terps19 Contributor
terps19
Posted
  • Author
Florastor contains lactose so its not casein free.

Interesting about florastor containing lactose... I didnt see that in the ingredients list. Do you kow if Flora-Q is ok?

mookie03 Contributor
mookie03
Posted

I use Jarrodophilus, says on the bottle "contains NO common allergen"- got them at whole foods

www.jarrow.com

jaten Enthusiast
jaten
Posted

My GI gave me samples of FloraQ. Tummy felt pretty yuck for a few days when I first started. Those symptoms settled completely. I suspect it was the battle of good vs. evil :ph34r:

Lisa Mentor
Lisa
Posted

I still don't understand the Probiotics. Rachel, can you spell it out for me in laymens terms. I think that you have to take Pro to counter the Anti-B, when you need them....other than that I don't know. Should I be taking them now .

Lisa

dlp252 Apprentice
dlp252
Posted
I still don't understand the Probiotics. Rachel, can you spell it out for me in laymens terms. I think that you have to take Pro to counter the Anti-B, when you need them....other than that I don't know. Should I be taking them now .

Lisa

I'm not Rachel, but I'll take a stab at it. Our bodies contain bacteria, both good and bad. They live there in a sort of balance until something upsets that balance. If you take antibiotics, for instance, they kill both the good and bad bacteria, but the bad stuff comes back quicker. Other things can upset the balance as well, so we take a probiotic to help balance out the bad stuff. I try to take them all the time because I have sooooo many things going on, lol.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mookie03 Contributor
mookie03
Posted
I'm not Rachel, but I'll take a stab at it. Our bodies contain bacteria, both good and bad. They live there in a sort of balance until something upsets that balance. If you take antibiotics, for instance, they kill both the good and bad bacteria, but the bad stuff comes back quicker. Other things can upset the balance as well, so we take a probiotic to help balance out the bad stuff. I try to take them all the time because I have sooooo many things going on, lol.

Donna- i have a question about this. This was my understanding about using probiotics as well, but i just started taking them last week after a visit to a nutritionist. All of the sudden the last few days i have had a bit of D, but not like i have been glutened, more like my body is trying to flush something out of it (i.e., no pain, cramps, etc. Just D). Could this be the probiotics at work flushing out the bad bacteria? Or does it not work that way?

dlp252 Apprentice
dlp252
Posted
Donna- i have a question about this. This was my understanding about using probiotics as well, but i just started taking them last week after a visit to a nutritionist. All of the sudden the last few days i have had a bit of D, but not like i have been glutened, more like my body is trying to flush something out of it (i.e., no pain, cramps, etc. Just D). Could this be the probiotics at work flushing out the bad bacteria? Or does it not work that way?

Yes, I think they can actually work that way. I'm not sure it's technically flushing out, but I do think that it can cause D sometimes. They don't affect me that way any more but I do believe in the beginning they did.

penguin Community Regular
penguin
Posted

The good bacteria (what's in the probiotics) helps you digest foods in your GI tract.

When you have D, the bacteria gets flushed out and your GI tract is "off", you can be grumbly, irregular, etc. Same thing with antibiotics, because those kill all bacteria. That's why you get yeast infections on antibiotics, too. The good bacteria keep the yeast in check, and can't when they're killed off.

mookie03 Contributor
mookie03
Posted
Yes, I think they can actually work that way. I'm not sure it's technically flushing out, but I do think that it can cause D sometimes. They don't affect me that way any more but I do believe in the beginning they did.

Thanks, that is reassuring. the best i can describe is that it feels like "productive D", if you get what i mean. :D it certainly doesnt feeling like a rxn from food. i'm also getting over a sinus infection which could be part of it too... Chelsea- thanks for the info- i used to take acidophilus daily when i was younger b/c i was on antibiotics throughout my childhood. Never realized until recently that i could take it when i wasnt on antibiotics!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,678
    • Most Online (within 30 mins)
      7,748
    Celiac79
    Newest Member
    Celiac79
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      Cruise and GliadinX

      By Mari · Posted

      Hi StevieP I think it is best to take GliadinX Just before, during or just after you eat a food that may have a small amount of gluten.  Taking 2 capsules of GliadinX in the morning will not protect you all day because it will be long gone when you need it. The upper digestive system is where the digestive enzymes break down gluten. The problem with Celiacs is that normal digestion will only break down gluten to the point where the small fragments will still cause a reaction. GliadinX will break down the fragments so that they are too small to start the autoimmune reaction.  The label on my bottle reads'it works in the stomach' and that is ver concentrated so 1 capsule is the recomm Hope this helps/Have a lovely cruise.ended dose for each meal. 
    • StevieP.
      Cruise and GliadinX

      By StevieP. · Posted

      Thanks so much for that information!! That helps me out alot!!
    • Scott Adams
      Help needed

      By Scott Adams · Posted

      It’s completely understandable to feel confused and anxious—colonoscopy prep can feel overwhelming, especially when you’re already dealing with symptoms like loose stools and elevated inflammation markers (that high calprotectin and CRP definitely warrant further investigation!). Regarding the senna tablets: The warning about avoiding senna with IBD (like Crohn’s or colitis) is typically because it can irritate an already inflamed colon. Since you don’t yet have a confirmed diagnosis—but your brother has colitis—it might be worth calling your gastroenterologist’s office today to clarify if you should skip the senna given your symptoms and family history. Some clinics have an on-call nurse who can advise quickly. For the prep itself: Plenvu is strong, so if your bowels are already loose, the senna might be overkill. Stick to clear liquids tomorrow (broth, apple juice, etc.) and stay near a bathroom! For anxiety, remember the procedure itself is painless (you’ll likely be sedated), and the prep is the hardest part. Bring a phone charger or book to the clinic, and treat yourself afterward to something gentle on your stomach (like mashed potatoes or yogurt). Hang in there—this is a big step toward answers. You’re doing great advocating for yourself!
    • Scott Adams
      Wheat Straw Dishes

      By Scott Adams · Posted

      Great question! Wheat straw dishes are typically made from the stalks of wheat plants (which are naturally gluten-free) combined with a binding resin. While the straw itself shouldn’t contain gluten, the safety depends on how the product is processed. Some manufacturers may use wheat-based binders or process the straw in facilities that handle gluten, creating cross-contact risks. To be safe, I’d recommend reaching out to the company directly to ask: 1) If their wheat straw material is tested to confirm it’s free of gluten proteins, and 2) Whether the production line avoids cross-contamination with gluten-containing ingredients. Many brands now cater to gluten-free consumers and will provide detailed answers. If you’re uncomfortable with the uncertainty, alternatives like bamboo, ceramic, or glass dishes are inherently gluten-free and worry-free. Always better to double-check—your diligence is totally justified!
    • Scott Adams
      Lost

      By Scott Adams · Posted

      I’m so sorry you’ve been struggling for so long without the answers or relief you deserve. It’s incredibly frustrating to have a celiac diagnosis yet still face debilitating symptoms, especially after decades of strict gluten-free living. Your history of chronic health issues—SIBO, food allergies, recurrent infections, and now potential complications like nerve pain (left leg) and mucosal ulcers—suggests there may be overlapping conditions at play, such as autoimmune comorbidities (e.g., Hashimoto’s, Sjögren’s), nutrient deficiencies, or even refractory celiac disease (though rare). Stanford is an excellent step forward, as their specialists may uncover missed connections. The medical gaslighting you’ve endured is unacceptable, and while legal action is an option, focusing on thorough testing (e.g., repeat endoscopy, micronutrient panels, autoimmune markers, skin biopsy for dermatitis herpetiformis) might be more immediately helpful. Menopause can absolutely exacerbate underlying inflammation, so hormonal imbalances should also be explored. For symptom relief, some in the celiac community find low-dose naltrexone (LDN) or mast cell stabilizers helpful for systemic issues, but a functional medicine doctor (if accessible) could tailor supplements to your needs. You’re not alone in this fight—keep advocating fiercely at Stanford. Document everything meticulously; it strengthens both medical and potential disability claims. Sending you strength—this shouldn’t be so hard, and you deserve real solutions.
×
×
  • Create New...