Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

i have been having all the symptoms of celiac since 1999.just was told it was celiac


Jane Phillips

Recommended Posts

Jane Phillips Newbie

i have had these symptoms since 1999. i thought the shock of my husband dying did it to me. it continues all these years tho. i have eaten so much immodium over the years since that is the only thing that woud calm my diarrhea and cramps down, i took my mom to a gastro dr and asjked him before he left room what he thought was wrong with me. that i thought i might have ibs. he immediately said i think you are celiac. take all gluten out of your diet. plus eggs corn and anything else i have noticed has bothered me out f diet.  so i did and i got better. then today i ate with my mother and had corn and one piece of fried chicken. well i have been in bathroom since leaving her house. i did not dissect the food before eating. now im paying for it, of course as soon as i got hit with an attack i knew what had happened. the chicken was battered with flour and i ate corn,  so im back on high alert of all food again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Welcome to the forum, @Jane Phillips!

Though gluten (a protein found only in wheat, barley and rye) is the kingpin food ingredient that must be avoided in celiac disease, many celiacs find there are other foods they do not tolerate well. Common among them are dairy, oats, soy and eggs. Some of these additional sensitivities often disappear in time as healing of the small bowel villous lining progresses, which can often take two years or more, even after going gluten free. 

Without formal testing, it is impossible to tell for sure whether or not you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). They share many of the same symptoms. NCGS is 10x more common but there is no definitive test for it. Celiac disease must first be ruled out. But if you wanted to be tested for celiac disease you would need to go back to eating heavy amounts of gluten for several weeks or the testing would be invalid. It may not be worth it. At the end of the day, the antidote for both conditions is the same: total abstinence from gluten for life. 

It is easy to avoid "macro" amounts of gluten gut it is included in the food supply in so many ways that are hidden or not obvious there needs to be some education. Then there is the whole problem of cross contamination. Eating out safely is the biggest challenge. Here is a primer that may help: 

 

Scott Adams Grand Master

Welcome to the forum! I'm sorry to hear about your husband.

Make sure that your mother and other first degree relatives also get tested for celiac disease, as 30-40% of first degree relatives also have celiac disease. 

Also, you can still have fried chicken, but it needs to be made with gluten-free ingredients. Here are some recipes:

https://www.celiac.com/search/?&q=fried chicken&type=cms_records2&quick=1&search_and_or=and&search_in=titles&sortby=relevancy 

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,746
    • Most Online (within 30 mins)
      7,748

    Hughesy
    Newest Member
    Hughesy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.