Welcome back! It sounds like you’ve been navigating a lot, but it’s encouraging to hear that your last IVIg cycle brought some improvement in vision and ataxia—fingers crossed that continued treatment helps even more over time. The phlebitis must be frustrating, though; hopefully, your care team can find a solution (maybe a different IV site, slower infusion rate, or even a port if needed). On the gluten front, I hear your discouragement about eating out. Even tiny exposures can keep antibody levels elevated, especially with celiac or severe gluten sensitivity. It might be worth trying a strict "home-only" phase for a few months to see if your AGA IgA drops further—then you’ll know for...

Welcome to the forum, @Nattific! First, let's deal with terminology which can be very confusing because there is a great deal of inconsistency in how the terms associated with gluten disorders are used by lay people and even in the medical/scientific literature as well. Having said that, it is probably more accurate to use the term "gluten intolerance" as a general term referring to either celiac disease or NCGS (Non Celiac Gluten Sensitivity). The term "gluten sensitive", therefore, is probably best used to refer to NCGS. Celiac disease is not an allergy. It is an autoimmune disorder whereby the consumption of gluten causes an immune system response in the lining of the...