Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dilation Drops Used For Eye Exam- Are The gluten-free?


Judyin Philly

Recommended Posts

Judyin Philly Enthusiast

UPDATE- DX IS RETINOPATHY

DILATION DROPS- MYDRIACYO (they really couldn't spell it :blink:)

any new ideas--??? :huh:

I've had my eyes dilated before for this exam but before I was dx'd with celiac disease.

called 2 times to make sure the 'new for me' dr knew about celiac disease and was assured they'd tell her about my concerns. Love the opthalmologist but this was a dr who just did the eye exam for glasses.

Just too tired to list all the insults but these 4 are the ones i really resented.

1. Asked..are the dilation drops gluten free?- "how would i know?"

2. Asked..about dry eyes and had blood test done for sjogren's disease..eyes so dry..what about 'schirmer's test' .."if you had sjogren's disease, you'd be sitting here with a bottle of water and drinking all during the apt...my other patients do.. so you don't have it... :blink: " you'd be dried out everywhere..eyes, skin, nose, vaginal area, mouth esp..I said 'dentist said to ck it...tried to tell her other things and she dismissed me and asked more questions brushing me off...

3. Durning the exam, she said, "I've never seen eyes so dry. you need drops in your eyes every 10 min..(did she give me a sample, tell me what drops to use,,of course not) 'Dr says, your tear ducts are totally pulgged up and your not getting any tears at all to lubricate your eyes...I don't need a schirmer's test, your eyes are too dry to even do the test" i can tell by looking...'TELL WHAT--PRAY TELL??? NEVER DID FIND OUT..

4.DR checked the repaired detached retina in the R eye. She didn't like the 'freckle' on the L retina..Want's the L retina ck'd on Friday by retina surgeon IN THEIR OFFICE. I Wanted to see my Opthalmologist THERE and she said no

'he's not an expert on this..." ON WHAT...NEVER DID FIND OUT...

I'M A ASSERTIVE PERSON WITH DR'S AND I JUST GAVE UP AND TOLD RECEPTIONS I'D CALL MY INTERNIST TOMORROW. THEY BOOKED AN APT WITH THEIR DR ON fRIDAY. iF I DIDN'T TAKE THAT ONE WOULD HAVE TO WAIT TILL JUNE TO GET IN.

IF I WAS TO ANSWER A POST LIKE THIS ONE FROM ONE OF YOU.......I'D KNOW WHAT TO SAY...BUT I'M TIRED AND WANT TO GO BACK TO BED. GOT HOME AT 6:00 AND GOT DINNER ON - CLEANED UP AND WENT TO BED FOR 4 HRS. MY EYES' ACHED SO BADLY AND HAD SUCH A HEADACHE...HAD ICE PACKS ON THEM. SLEEPED FROM 8:30- 12:30..UP TO POST AND STILL ACHES BUT NOT DILATED ANYLONGER.

PLAN TO CALL OFFICE TOMORROW AND GET THE NAME OF THE DILATION DROP AND FIND OUT WHEN THE REPORT WILL BE SENT TO MY INTERNIST AND CHIRO..IF IT'S READY I'M GOING TO PICK IT UP.

I WANT TO KNOW WHAT THE DX WAS THAT SHE WANTED TO RETINA SURGON TO CK.

ANY AND ALL IDEAS WOULD BE SOOOO APPRECIATED...ESP ABOUT THE DROPS. IF I FIND THE NAME OF THEM I'LL POST IT HERE.

THANKS FOR TAKING THE TIME TO READ ALL THIS.

JUDY IN PHILLY


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



debbiewil Rookie

Oh Judy,

So sorry to hear what you went through. Drs. can be such A**es. Don't have any help for you, but you've given me one more thing to think about. I haven't had an eye appointment since being gluten-free, but I'm due for one in a couple of months. Hopefully, my doctor will be a little bit more savvy about the drops and more considerate than yours.

Debbie

lovegrov Collaborator

The eye drops are almost certainly gluten-free. And unless the drops are running into your mouth it wouldn't matter anyway.

richard

mommida Enthusiast

I have seen a person react from skin contact of gluten. If a person needs to verify a products gluten free status, we should just give the answer. The person will now how they need to avoid the product.

Laura

jerseyangel Proficient

Judy--Debbie's right, the doctor is an a$$. I can't stand that kind of arrogance. If they don't know the answer to something, why can't they just say so, instead of getting all high and mighty like it's your fault for asking. And saying you can't have something just because you're not sitting there drinking water is the same as telling a Celiac is all in their head because they're not underweight. I wish I could be more help on the drops--Richard says they're ok, so I believe that. I would speak to the doctor you feel comfortable with (the one you said you love) and tell him what happened and that you got sick after the appt, and are still confused about some of the things she told you. I'll be sending you a PM later--just got yours :)

Judyin Philly Enthusiast

Hi Everyone

Thanks for the replys.

Richard--I have a cold or allergies and my nose was running non stopat apt--- if I couldn't get a tissure fast enough some of nasel drip, did get into my mouth. (know this is gross, sorry) but the dr wouldn't let me get a tissue. Of course, after the drops handed me one but then...couldn't use it fast enough for her..sure didn't want to slow down her exam as she had to be at theother office across town and was 'in a hurry' Told her i was sorry i to be taking so much of her time with my questions..she said-

"Well I just keep taking deep breaths" :ph34r:

question, can the drops in eyes go into nasel passage and come down through nasel drip thus, swallowing it?

Deb, thanks for the support..just so tired of getting looked at like a 'freak' or a pain in the a-- becasue i come in with questions-(last 2 pair of glasses in a year out of pocket were over $250 each) and still couldn't see. She said 'this is as good as your vision will get.. :( Made the mistake of asking her why.."think i already answered that question once" :ph34r::ph34r::blink:

Patti- thanks for the support. talk to you later. going to call the office now.

Hugs to you all.

Judy

tiffjake Enthusiast

Oh judy, so sorry to hear about that crummy appointment! To the best of my pharmacy technician knowledge, eye drops must be gluten free. The reason is this: Eye drops must be isotonic solutions. They have to be the same saline/salt ratio as your blood so that they don't burst blood vesels that they come into contact with (by either drawing water out-too much salt, or letting it in-too little salt). That is why eye drops can be used in the ear, but ear drops can NOT be used in the eye. The eye is a permeable membrane. That being said, gluten is not isotonic (it can not pass through the blood vesels) so it would just lay on top of your eye, if it were in an eyedrop. That does not mean that you didn't have a reaction to something else in the solution. And many people can not handle the vertigo-type effect of dialation. I, for one, must go home and go to bed. I get a terrible headache and feel very ill, from the inability to focus and see clearly. Just a thought, hope it helps, Tiffany


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Judyin Philly Enthusiast

And many people can not handle the vertigo-type effect of dialation. I, for one, must go home and go to bed. I get a terrible headache and feel very ill, from the inability to focus and see clearly. Just a thought, hope it helps, Tiffany HAD HORRID HEADACHE AND EYES HURT SO BADLY..HAD TO USE ICE FOR 4 HRS.

Ah, and I tried to talk you out of leaving this crappy job :) see there was a reason you didn't take my advice and split..you stayed on to learn more so you could help me.

ok one piece of the puzzel.

thanks for caring.

judy

mouse Enthusiast

Judy,

You will probably read this tomorrow. But, I am now using the RX Restasis for my dry eyes. It has helped my vision and the pain in the eyes is almost totally gone. The pain only comes when I read far too much. If you don't get any satisfactory answers, why don't you ask your primary care doctor to refer you to a neuro opthamologist. At least I got a fantastic eye exam and found what was really wrong with my eyes. No, TG, no neuro problems. But, he took photo's for future reference.

Hope you are getting a good night sleep as I write this and I hope you get a doctor on Friday that is caring.

tiffjake Enthusiast
And many people can not handle the vertigo-type effect of dialation. I, for one, must go home and go to bed. I get a terrible headache and feel very ill, from the inability to focus and see clearly. Just a thought, hope it helps, Tiffany HAD HORRID HEADACHE AND EYES HURT SO BADLY..HAD TO USE ICE FOR 4 HRS.

Ah, and I tried to talk you out of leaving this crappy job :) see there was a reason you didn't take my advice and split..you stayed on to learn more so you could help me.

ok one piece of the puzzel.

thanks for caring.

judy

Hey, just found your post.....I am so sorry about your headache....hm.....I am not a doctor, so I don't want to give you bad advice, but I know some people take anti-inflam.s before even going so they will be able to stay ahead of the pain. It could be caused by many things, including expired eye drops, if the office isn't careful about that stuff!!!

And by the way, I did quit that job....but I am going to nursing school now, so I am feeling better about that choice. I am "moving up" on the medical food chain! LOL. I really hope you are feeling better (especially since it is the 5th of april, and I think your post was from a week ago!) Tiffany

Lynxear Rookie

You have my sympathies

I had a bad experience with an eye doctor as well....rather it was an assistant who did a test on me.

The stupid assistant thought she had missed my right (the good one) eye with the drops to dilate my eye....so she dosed me again, causing my eye to burn and feel uncomfortable...It was so bad that I went back the next day and had the eye doctor look at the eye....he muttered to himself (almost with relif) that no permanent damage had been done. He gave me artificial tears.

It was 3 weeks until I felt the last discomfort. I was very p!$$ed off. I can tell you!

I doubt though that there is gluten in the drops...antibiotics yes....chloride type chemicals probably.

Take care of those eyes....you only get one set of them

Fiddle-Faddle Community Regular

Judy,

So sorry to hear about your hideous experience. One doesn't expect to end up feeling violated by the medical professionals one goes to for help!

Only helpful thing I can think of (at least, I hope it's helpful) is to drink lots and lots of water--if you're at all dehydrated, your eyes will feel it way before you get thirsty.

Hope you feel much better very soon!

darlindeb25 Collaborator

Another snap judgment call--I think the dilation drops are gluten-free, but it does matter Richard---some of us have contact problems with gluten, maybe you don't. At any rate hun--find a new doctor. I work for an optomitrist and you would never get treatment like that here. He is a wonderful doctor and if he can't help you, he sends you to the best in the business. I get glowing reports from all our patients--many of our patients that have insurance that we don't participate with come anyways for the exam. You should of refused treatment with her and walked out. That's terrible, you should report her. I have dry eye too, celiacs is an autoimmune disease and dry eye is caused by allergies, illnesses, and especially autoimmune diseases. I asked! I have not had my eyes dilated since being here, he checks out eyes for free during work hours and I couldn't work with dilated eyes ;) . How far are you from Long Island--we have a family that comes here from Pennsylvania--they won't give him up as their eye doc. Deb

Judyin Philly Enthusiast

HI GUYS

DIDN'T KNOW YOU WERE STILL POSTING TO ME ON THIS..NOT GETTING ALERTS FROM EMAIL/

APPRECIATE ALL YOUR SUPPORT AND COMMENTS. JUST WROTE AND LONG POST AND LOST IT. SOOOOO GET OFF TO PUT SOME DROPS IN AND LET MY EYES CALM DOWN.

WROTE A POST ABOUT THE FRI RETINAL SPECIALIST APT. SHE WAS WONDERFUL..THE IDIOT DR..HAD EVERYTHING WRONG.. :ph34r: DIDN'T SURPRISE ME IN THE LEAST.

JUDY

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,917
    • Most Online (within 30 mins)
      7,748

    tiffanygosci
    Newest Member
    tiffanygosci
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure! Thank you kitty kitty   I am going to look this diet up right away.  And read the paleo diet and really see if I can make this a better situation then it currently is.  
    • tiffanygosci
      Hi! I had my first episode of AFib last May when I was 30 (I have had some heart stuff my whole life but nothing this extreme). I was not diagnosed with celiac until the beginning of this month in October of 2025. I was in the early stages of celiac, so I'm not sure if they were related (maybe!) All of my heart tests came back normal except for my electrolytes (potassium and magnesium) that were low when the AFib occurred. I also became pregnant with our third and last baby a couple weeks after I came back from that hospital stay. I had no heart complications after that whole thing. And I still haven't over a year later. It was definitely scary and I hope it doesn't happen again. I drink an electrolyte drink mix about every day, and I'm sure being on a gluten-free diet will help my body even more! I will pray for you in this. Taking care of our bodies is so challenging but Jesus is with us every step of the way. He cares and He sees you!
    • knitty kitty
      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.