Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is There Are Any Any Bath Soaks For The Raging Itch?

Guest ellyntoomey

By Guest ellyntoomey
in Dermatitis Herpetiformis

Recommended Posts

Guest ellyntoomey
Guest ellyntoomey
Posted

I have a raging rash and itch. I wake up at night bleeding from the itch. I was on oral steriods, but have weaned off them. Dapsone pills do nothing. The only thing that works is a shot of steriods every 6 weeks, but this can't go on forever. I have steriod cream, but after 7 months of this, it seems to be not as affected.

Is there anything out there, something to soak in, some ointment or meds? I am out of my mind. Is there some medication that I am not taking. I have hydroxzine pills, but they just make me sleep. I have tried other various prescription creams, none of them work.

I am gluten free diet for 6 months and it is as bad as ever.

I am losing hope, please help me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lovegrov Collaborator
lovegrov
Posted

This may be of no help, but if the gluten-free diet and dapsone aren't helping, it sounds like you've got something other than DH.

richard

jerseyangel Proficient
jerseyangel
Posted

If it turns out not to be DH, it sounds a lot like my eczema. Have you ever tried the prescription creme called Elocon? It helped me greatly.

Eve Newbie
Eve
Posted
I have a raging rash and itch. I wake up at night bleeding from the itch. I was on oral steriods, but have weaned off them. Dapsone pills do nothing. The only thing that works is a shot of steriods every 6 weeks, but this can't go on forever. I have steriod cream, but after 7 months of this, it seems to be not as affected.

Is there anything out there, something to soak in, some ointment or meds? I am out of my mind. Is there some medication that I am not taking. I have hydroxzine pills, but they just make me sleep. I have tried other various prescription creams, none of them work.

I am gluten free diet for 6 months and it is as bad as ever.

I am losing hope, please help me.

The best thing for Itch that I know of is Tea Tree Oil..Go to wal mart and get Herbal Harvest Tea Tree oil 100% pure. You shouldent use it on your skin but if you soak in it it should sooth the ich. Nice warm tub not to hot and you can use a bit of baking soda too.. that helps .... Burts bees has some great salves that are gluten free that have helped me.. check them out burtsbees.com. If tha dosen't work Have you tried Reiki or acupuncture? That really helped me..

Eve ;)

Guest ellyntoomey
Guest ellyntoomey
Posted

I have been tested and have Celiac.

I have contacted the University Of Maryland which has the world's largest research center for Celiac Disease. They are running clinical trials for a drug (Dr. Alessio Fasano) that blocks the effects of gluten.

It has shown positive results.

I need relief because the itching and rash are driving me to distraction, hard to focus on work, sleep etc.

The only true fix is a shot of steriods every 6 weeks. not good.

tarnalberry Community Regular
tarnalberry
Posted

Verify that you've got all gluten out of your diet - go over everything you're eating with a fine tooth comb.

Also, make sure to drastically reduce you're iodine consumption until this DH episode goes away fully.

StrongerToday Enthusiast
StrongerToday
Posted

Obviously an oatmeal bath is out - but you try soaking in a tub with some baking soda.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Carriefaith Enthusiast
Carriefaith
Posted

If you have been 100% gluten free for 6 months, then I would think that the dh would have subsided by now. Maybe you are having allergic reactions to something else?

jerseyangel Proficient
jerseyangel
Posted
I have been tested and have Celiac.

I have contacted the University Of Maryland which has the world's largest research center for Celiac Disease. They are running clinical trials for a drug (Dr. Alessio Fasano) that blocks the effects of gluten.

It has shown positive results.

I need relief because the itching and rash are driving me to distraction, hard to focus on work, sleep etc.

The only true fix is a shot of steriods every 6 weeks. not good.

I didn't mean to imply that you don't have Celiac. I have Celiac, and also have eczema. I, too used to get the steroid injections--Decadron. Felt great, until it wore off. I'll be dealing with the long-term side effects of those for the rest of my life. The cream I suggested is useful for all kinds of dermatitis. Hope you find some relief soon :)

lovegrov Collaborator
lovegrov
Posted

But have you been tested for DH? Most people with celiac DON'T have DH. In addition, steroids have no effect on DH.

richard

  • 1 month later...
Guest ellyntoomey
Guest ellyntoomey
Posted

:o

I had the blood test and was positive for the enezyme. Also, my sister has Celiac, but she has the gastro effects. Her intestinal tract is healed after 2 years of gluten free diet.

I am gluten free to the best of my knowledge. I have 2 drinks with Kalhua and vodka when I get home from work. I smoke New ports, but I can't beleive that cigs and a couple of drinks per night affect my DH.

I just am getting health insurance so I can go to a gastro and internist to try to help myself. I am off the presdnisone, and just started dapsone again. But the rash is the worse it has ever been.

I just moved to southern Delaware, and have a new job. I need relief from this intching, need further testing to make sure I have no other allergies and to monitor my blood levels while taking Dapsone. I got Dapsone & Prednisone from a doctor in NH (he did the blood test).

I am really depressed, and my skin rash is out of control. I have been gluten free for 7-8 months to the best of my ability.

If anyone has any suggestions for the rash, let me know.

I have tried elidel, and other creams for execma, cortisone, dapsone, anti biotics, prednisone. The only thing that kicks it is a shot every 6 weeks.

  • 2 weeks later...
elkris Newbie
elkris
Posted
I have a raging rash and itch. I wake up at night bleeding from the itch. I was on oral steriods, but have weaned off them. Dapsone pills do nothing. The only thing that works is a shot of steriods every 6 weeks, but this can't go on forever. I have steriod cream, but after 7 months of this, it seems to be not as affected.

Is there anything out there, something to soak in, some ointment or meds? I am out of my mind. Is there some medication that I am not taking. I have hydroxzine pills, but they just make me sleep. I have tried other various prescription creams, none of them work.

I am gluten free diet for 6 months and it is as bad as ever.

I am losing hope, please help me.

Hi Ellyn. Have you tried taking flax oil pills?? I have had dh since High School. I kind of accidently discovered about 10 years ago that flax pills both prevent the itch and sores aand also help to make them go away.

Good luck.

Ellie

Hi Ellyn. Have you tried taking flax oil pills?? I have had dh since High School. I kind of accidently discovered about 10 years ago that flax pills both prevent the itch and sores aand also help to make them go away.

Good luck.

Ellie

rumbles Newbie
rumbles
Posted

Kahlua has gluten in it. Vodka, unless it's a true potato vodka (such as Glacier brand), has gluten in it.

tarnalberry Community Regular
tarnalberry
Posted
Kahlua has gluten in it. Vodka, unless it's a true potato vodka (such as Glacier brand), has gluten in it.

That is not true. Even vodka distilled from wheat does not have gluten in it because the distillation process simply doesn't allow a molecule as large as gluten through.

(Remember being a kid, and having those toys with the holes and the blocks with pegs that fit in them? There were big holes and little holes, and big blocks and little blocks? Distillation has lots and lots and lots and lots of little holes, and gluten is one really really big block. No shoving occurs in the distillation apparatus, so there's no shoving the big block through the really small holes to the end product.)

(I don't know about Kahlua...)

Claire Collaborator
Claire
Posted

Some things to try:

Baking soda in warm bath water. At least one half cup.

For topical application: spray Solarcane. Works quickly and lasts for quite awhile.

Also Ivy Dry - cream or lotion

Also - Band Aid Itch Relief Gel Spritz (can find this at Wal-Mart)

Hope something here helps. I know just how it is. Claire

Guest nini
Guest nini
Posted

I thought Kahlua had been confirmed gluten-free by the company? I swear I saw that somewhere. :huh:

I would probably soak in a tub with some chamomile to soothe the savage beastie, it also could be systemic candida... I had a real problem with that and had to do a candida cleanse as well as going gluten-free. Systemic candida can cause rash and itching all over and seriously drive you to distraction!

  • 3 months later...
up-late Rookie
up-late
Posted

I get something like that, not sure what causes it. I tried everything even the anti allergy tablets didn't work. The only think that helped was using a topical anasthetic like zylocane, it didn't clear it up but it stopped the itching and burning, I found if I could just stop scratching it improved.

  • 4 weeks later...
iamjv Newbie
iamjv
Posted

Per 'this site' both kahlua and vodka are gluten free. see the link below. JV

spirited drinks

ArtGirl Enthusiast
ArtGirl
Posted

Sounds like you've been given several suggestions that might work for you. I don't have DH, so can't be of help there. But, I do suffer from itchy skin (not as bad as yours, though). I am finding that it is not from gluten, but most likely from some other food allergy. I thought it was corn, and actually, it's less itchy now that I'm off all corn derivatives. I know you said you were going to have tests run for other allergies. If there are other food allergies indicated, then eliminating them may help reduce the itching. Just a thought.

lindalee Enthusiast
lindalee
Posted

Oil of oregano helps me. Put a drop in water and drink and a drop on the itchy area. Its my new perfume! :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,544
    • Most Online (within 30 mins)
      7,748
    Jem68
    Newest Member
    Jem68
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.