Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Heart Arrythmias?

colorado kathy

Recommended Posts

colorado kathy Newbie
colorado kathy
Posted

I've been reading where a number of people have had heart arrythmias w/celiac. Would anyone be willing to share what kinds of problems they've had and what the treatment was? Thanks - Kathy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


whitball Explorer
whitball
Posted
I've been reading where a number of people have had heart arrythmias w/celiac. Would anyone be willing to share what kinds of problems they've had and what the treatment was? Thanks - Kathy

I have had heart issues for awhile, but usually with stress. After I went gluten-free, I had an episode where I had "heart skips" every 2-3 minutes. I had it checked, but turned out to be an extra heart beat, but also could be from aspartame from drinking diet pepsi. So, I have stopped almost all aspartame and have had few issues since.

jaten Enthusiast
jaten
Posted

Yes, I was diagnosed with PVC's (common and often benign) and PAC's (the real trouble) many years ago. I was diagnosed with this long before I was diagnosed with Celiac, but probably not before I was Celiac. Many tests were run, and I have no damage, etc., but the PVC's and PAC's are always evident and frequent. Doc could find no reason for them, but is alarmed at their severity. I have been on med to control them (and it does fairly well), but have to have med changed about once every couple of years because one will stop working after awhile.

Since Celiac diagnosis in Dec., I have read that arrhythmia can be a symptom of Celiac.

Canadian Karen Community Regular
Canadian Karen
Posted

Before going gluten-free, I would get them terrible! They terrified me! It felt like my heart was skipping a beat and then pounding through my chest on the next beat. Sometimes, it would last up to 1 hour. I had the test where I wore the monitor for 24 hours, but it didn't show anything.

After going gluten-free, they went away - totally. I NEVER get them anymore......

Karen

i canary Rookie
i canary
Posted

I have very short episodes where my heart skips. Scary when it happens. As far as I know I'm not taking anything for it. I'm taking 40 pills a day - so I might be confused as to what is for what. Next time I'm talking to my doctor - I'll ask her.

Canary

Carriefaith Enthusiast
Carriefaith
Posted

When I eat gluten by accident, I can get very bad heart palpitations, heart racing, and heart pain. The episodes can be quite scary. During my last severe episode, my heart was skipping beats, racing really fast and then I would get very sweaty, clammy, dizzy, nauseated, and then I'd feel like I would pass out. I think I even blacked out a few times. This all happened within 24 hours of eating at a restaurant. My doctor thinks that the heart problems are a wheat allergy reaction, since I am also allergic to wheat. He told me that I should not be eating food that I haven't seen being prepared, like at restaurants. I only eat food that I, or someone I trust, has prepared.

megsylvan2 Apprentice
megsylvan2
Posted

Yes, I had them too. Some kind of sub atrial/ventricular complexes (don't remember the exact name). It was like Karen described - skipping a beat and then pounding and racing. It was a wild heart arrythmia. It made me cough and was very uncomfortable. I couldn't live with it. Had all the cardio testing done, and it was nothing significant. Was put on Atenolol, and that controlled it very well. Then thought I was getting some adverse side effects from the Atenolol. Happened to mention it to one doctor who told me that more likely the cause of the heart arrythmia was too high a dosage of synthroid - my thyroid medication. Endocrinologist tested that and found it was a little high. Reduced my dose, and I was able to go off they Atenolol without any return of heart symptoms.

All of this was pre-GI problems and pre-gluten free. After gluten free, I even had to give up they synthroid, and when I started taking that again, the heart problems came back. I have read here that gluten-free may help resolve thyroid issues, so now I'll need to work on that. But, long story short, you might want to get your thryoid hormones checked.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenvan Collaborator
jenvan
Posted

I also get PVCs, my dad and I both do. I typically get them when I'm run down or on occasional after stopping suddenly during a work out. They are usually benign and most folks don't need meds. But if it is happening frequently or during activity, I would mention it to the doc. As long as I take care of myself I don't usually have any problems. When I do get them, it feels like the heart is stopping for a moment and I lose my breath. PS--There is some relationship to the Vagus nerve/Digestive system and PVCs also. Many years ago my dad had what we now call the "fake heart attack" with chest pain and arrythmias/palpitations. Docs did all the scans/tests and he was fine. Attributed the symptoms to a heavy meal he had eaten that night and the Vagus nerve :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. KathyR37
      - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      2

      New here

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and gloves when cooking for them. One huge problem...
    2. Scott Adams
      - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      2

      New here

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are fee...
    3. KathyR37
      - KathyR37 posted a topic in Coping with Celiac Disease
      2

      New here

      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels...
    4. Scott Adams
      - Scott Adams replied to Colleen H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Celiac attack confusion and anxiety

      This article, and the comments below it, may be helpful:
    5. Scott Adams
      0

      Coconut Macaroon Sandwiches (Gluten-Free)

  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,808
    • Most Online (within 30 mins)
      7,748
    mhendy123
    Newest Member
    mhendy123
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • KathyR37
      New here

      By KathyR37 · Posted

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      New here

      By Scott Adams · Posted

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      New here

      By KathyR37 · Posted

      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
    • Scott Adams
      Celiac attack confusion and anxiety

      By Scott Adams · Posted

      This article, and the comments below it, may be helpful:    
    • nanny marley
      Manitol and mri

      By nanny marley · Posted

      Oh yes I can understand the tiredness after going threw all that, must be exhausting especially on the mind I have high aniexty so I can understand that , I wish there more easier ways for people to get help , I had a MRI on my spine some years ago without anything it was really quick and no prep , I understand the need for  them to see better with the bowel ,but you think they would use something a little less traumatic  for ibd sufferers on the bowels by now ,I hope your feeling better today 🙏
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.