Is it gluten?

[Woodster991]

I've had ibs for years however I have noticed recently when I've had alcohol and then the usual hangover takeaway I get a whole range of symptoms. To start with 

Gurgling in stomach 

Brain fog

Occasional cramps 

Diarrhea 

Severe constipation where it comes out in slithers and very dry 

Knot in lower right abdo side. Sensitive area to touch 

Alot of mucus when passing stools 

Feel sick 

 

Had tests done but all came back okay apart from low in vitamin d

[nanny marley]

I was also told I had IBS years ago like literally it's just IBS the docter said I've had lots of  the symptoms you say there plus much more but I'm convinced it's not just IBS although I feel very sorry for people who get told this too because IBS is a real problem for people too it's awfull how much ignorance is around in the world these days from docters try the elimination diet like I did gluten free I also did lactose because it was still bothering me I found a real big change I've read some members here say  it can be quite hard to get a diagnosis and help but there is plenty of self help here it's not wrong to self diagnose if you find that it truly is a Life changer be true to your own needs and ask people already suffering for advise it's about your quality of life now and for future this us were I'm heading if I have no luck with docters I will have luck helping myself 🤗

[A Wilson]

Hello,

New to Celiac.com, glad I found this site. I have had a lot of GI issues most of my life. Recently my GI issues got so bad I tried a gluten free diet and made a appointment with my GI doctor. I  got the Celiac disease blood test but I  had been gluten free for two weeks before the test. My doctor told me being gluten free for two weeks would not make a difference in the test results. I am not sure I believe that.  I have been reading a lot of articles about Celiac disease and they all give the same information.

My GI issues are all gone since my gluten free life started around October 16th 2024, and I  don't want to go back to eating gluten. I am nervous about going back to the doctor for my test results. 

 

[trents]

Being gluten free for two weeks prior to testing can make a difference in the test results if the score is borderline.

[Wheatwacked]

Hi @Woodster991,

12 hours ago, Woodster991 said:

Knot in lower right abdo side. Sensitive area to touch 

You do need to see a health professional to make sure it is not appendicitis.  Rebound tenderness, fever.

 

Is it gluten?  Yes. 

It is also serious vitamin and mineral deficiency.  Either by Celiac Disease malabsortion, food avoidance or just not getting enough.  Consider significantly increasing your intake of vitamin D, B1, Choline, Iodine, B2, B3, B5, B12.  The vitamin D test, (25(OH)D, is simple and accurate.

Whole Milk yogurt and berries to populate your gut with benificial bacteria.  I drink Red Bull for energy.  Eat food low in omega 6 fatty acids. The ideal ratio is less than 3 omega 6 to 1 omega 3.  For some, the Modern American Diet is estimated to be more than 14:1.  Very inflammatory.  Wheat flour is 22:1.  Grass fed milk is 1:1.

Whether Celiac Disease (1% of the population) or Non Celiac Gluten Sensitivity (10% of the population) would take blood tests and endoscopy.

It is either that, or you have managed to contract 6 or 7 different diseases at the same time.

You don't need a doctor's permission to not eat gluten anymore than you would to eat Chinese food.

[Wheatwacked]

Hello @A Wilson, Glad you found us.

6 hours ago, A Wilson said:

My GI issues are all gone since my gluten free life started around October 16th 2024,

 

There is your answer.  The results from the tests are just more data to the puzzle.

[nanny marley]

I too have blood tests booked a Wilson and was told it's ok that I've been gluten free since for over 6 months they have also put  me in for a fecal test for calprotein and a milk allergy has I had to  stop lactose too and a IBS blood test I didn't even know you could test for IBS ? I'm going Tuesday but since reading on here I'm thinking now why bother I've been suffering for that long has I can remember I've reached out to docters since I was in my 20s im now Immy 50s was told IBS and health aniexty was my problem what prompted me to go back again this time was the long list of problems I've also had which they also know about but never said any were connected I've had bad bouts that put me in bed for days I cut carbs out years ago and saw a difference but uneducated just thout see it must be a better way of eating didn't realise it was actually showing me to cut gluten out I've been back and forth to docters that much they have put me down has I have health aniexty causing it in a nut shell it's in my head yet over the years I've had sickness medication scans over my kidneys my liver my tummy for the pain flu like symptoms were put down to my bad rhinitis hair shredding was put down to stress vitamin d deficiency put down to food my 3 herniated discs degenerative and slight sclorocis believe it or not was my posture achy legs syndrome and bad blood circulation to my low mobility threw my back I can go on and on what they tryed to tell me I got that bad i realised it's maybe more than IBS and yes I do suffer aniexty but the way they have made me feel like it's all in my head is time to stop because cutting out gluten and lactose had been the best thing I have done I only went back because I was a little worried after struggling for so long if I had damaged my bowel i just hoped I would get help threw tests sorry for long post but you are not alone with the worry of the test results but if you know yourself then you be your docter and help yourself too but always push for help if   you have abdominal pain it could be other things too it took me 15 years to get a MRI for my back you can imagine my thouts Wen I got my results that it wasn't just my posture had I'd been told even unable to walk was my fault lol  so if you are struggling seek out help anyway you can and be consistent till you get answers 🤗

[Scott Adams]

Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. 

 

[Scott Adams]

@Woodster991, were you eating lots of daily gluten in the 6-8 weeks leading up to your blood test for celiac disease? If not, then your results could be false negative. Many of your symptoms are identical to mine before I was diagnosed, with the exception of constipation.

This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.