Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does anyone else have seborrheic dermatitis


CarolTN
Go to solution Solved by Scott Adams,

Recommended Posts

CarolTN Newbie

I have had a scalp issue for years. Nothing big, just a few itchy bumps and sometimes a red, inflammed scalp. I’ve been to the dermatologist and had several stylists look at my scalp. The dermatologist said I probably have seborrheic dermatitis. Does anyone else suffer with this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Welcome to the forum, @CarolTN!

Can you give us some background? Have you been officially diagnosed with either celiac disease or dermatitis herpetiformis or both?

Scott Adams Grand Master

Seborrheic dermatitis can definitely be frustrating, especially when it causes itching and redness. You’re not alone—many people with celiac disease or gluten sensitivity also struggle with skin and scalp conditions, and some find that gluten exposure worsens inflammation. Have you noticed any connection between your diet and flare-ups? Some folks see improvement with gluten-free or anti-inflammatory diets, while others benefit from medicated shampoos (like those with ketoconazole or selenium sulfide). It might be worth tracking symptoms alongside your diet to see if there’s a pattern. Hope you find some relief soon.

cristiana Veteran
(edited)

Hi @CarolTN

I haven't been diagnosed with seborrheic dermatitis but as @Scott Adams says, like a lot of coeliacs I do suffer from itchy skin, and now adult onset eczema. The latter started during one of the lockdowns. 

I find my skin is often itchy if the temperature changes from hot to cold or cold to hot, that seems to set it off. This time of year is bad,  I also get an itchy throat, so maybe pollen is having some effect.

I am not sure where you live but here I'm mentioning the products I buy in the UK that help me - they may be available where you live?

For my scalp, I have used with some success Neutrogena T-Gel, but I think Philp Kingsley's products for flakey, itchy scalps are amazing. I've used the shampoo and the toner.

For the rest of my skin, I use something called Adex Gel after I have showered, and then any really itchy patches I treat with Betnovate, a steroid cream, 20 minutes later, as suggested by a doctor.

I currently have some very stubborn patches around my waist, no idea what they are - Canesten anti-fungal cream makes them worse, so does Betnovate.  But when I rub the patches, they disappear, i.e. blanch, which apparently classic for dermatitis.  It's a constant challenge!

When I first got eczema I had given up chocolate and was eating cakes which contained almonds.  My blood tests showed the markers for eczema were elevated at that time - the  IgE.  I felt there might be a connection. So you  may find something in your diet isn't helping the situation, other than gluten?

Cristiana

 

 

 

Edited by cristiana
bohanley Newbie
On 3/31/2025 at 2:03 PM, CarolTN said:

I have had a scalp issue for years. Nothing big, just a few itchy bumps and sometimes a red, inflammed scalp. I’ve been to the dermatologist and had several stylists look at my scalp. The dermatologist said I probably have seborrheic dermatitis. Does anyone else suffer with this?

Yes I have an itchy scalp and some small area of itchy scaly skin at the base of my scalp on my neck. My hairdresser noticed it also. 

  • 2 weeks later...
CarolTN Newbie

Thank you to Trents, Scott, Christina and Bohanley for your replies! 

I have been gluten-free for about 13 years and mostly dairy-free during that time. I haven't been diagnosed as Celiac. When I did the test I hadn't eaten gluten for two years and the nurse told me the test wouldn't be accurate.

Anyway, once in a blue moon I'll get tempted and take a tiny bite of something. If I do this two or three times close together, I'll get nauseated and if I don't throw up right away to stop it, will spend about 8 hours throwing up off and on before it's over. 

I've been using Ketaconazole shampoo for about two years. I like T-Gel, but the prescription shampoo is the only thing right now that calms my scalp down. Many times, my scalp looks pink or red. It just feels very inflamed. I wash my hair every day and use Ketaconazole pretty much every day. I've noticed that a hot blow dryer seems to calm things down too. 

My dermatologist has guessed (his term) at seborrheic dermatitis. I really need more help than I'm getting. 

Thank you to everybody! Carolyn 

  • Solution
Scott Adams Grand Master

I think it couldn't hurt for you to be sure that your diet is 100% gluten-free with zero cross-contamination for a couple of months to see if that helps. If you're eating out you're likely getting some level of gluten in your diet. It's hard, but at least this would help you determine if gluten is the culprit.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
Morgan Tiernan Rookie

Hi there!

This is something I’ve often wondered too!

I’m still going through the process of getting an official dermatitis herpetiformis diagnosis, however I’ve been battling for 3 years and the dermatologists are pretty certain it’s dermatitis herpetiformis/celiac disease with it’s classic appearance and symptoms (it’s nasty stuff!)

About 2 years ago before dermatitis herpetiformis was on the cards, I suffered with a terrible episode of seb dermatitis, it was absolutely everywhere and was probs left undiagnosed for months before I could get in with a dermatologist! I used ketaconazole and it seemed to do the trick. However, knowing what we do now, the dermatitis herpetiformis was definitely aggravating/causing this and I found that it was the use of too many steroid creams (they thought I had eczema) and heavy moisturisers bothering my dermatitis herpetiformis. 

Since being gluten free for a year, I haven’t really suffered with an episode of the seb dermatitis for a while. Just trying to navigate the dermatitis herpetiformis outbreaks now. 

But definitely feel there could be a correlation! 

Scott Adams Grand Master

It is interesting that ketoconazole seemed to work for dermatitis herpetiformis symptoms, as it seems to be an anti-fungal medication. 

If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,539
    • Most Online (within 30 mins)
      7,748

    Pablohoyasaxa
    Newest Member
    Pablohoyasaxa
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
    • WVGirl
    • RMJ
      It took me 5 years to get one of my celiac antibodies down into the normal range.  A few years later it went up to a low positive. I had started baking with a certain gluten free flour. When I switched to a certified gluten free flour the antibody level went back down to normal. Has anything changed in your diet, supplements, kitchen, etc. that might correlate with the increase?
    • KimMS
      Quick follow up: with strict "home-only" eating, how does this apply to drinks (soda/tea at a restaurant or coffee at Starbucks)? Would you avoid these as well? At times when I know I can't eat something when I'm out with friends, I will just order a drink, but is that okay (for this time period while I'm being strict)?
    • KimMS
      Hello, My daughter (almost 13) was diagnosed with celiac 1.5 years ago. I also have celiac and gluten ataxia so we are on this journey together. In another post, I mentioned how my AGA IgA has not really gone down even though my ttg IgA is down in normal range, and a biopsy one year ago showed my villi were healed/basically normal. My daughter's GI is concerned that her antibody levels are not going down fast enough (they dropped drastically the first year and she grew three inches, but they have slowed the past 6-9 months and her growth has plateaued). Doctor is concerned that she will not grow to her full height if she doesn't get her levels down as low as possible before her growth plates set). It seems the main culprit for both of us is eating out. We are very careful, but I did begin to eat out more when she was diagnosed b/c I didn't want to unnecessarily restrict her (esp. socially), and the celiac nutritionist agreed. But now we are facing the reality that we need to redouble our efforts and only eat at home and possible dedicated gluten-free establishments. This is sad, but her health and growth are worth it (btw, she has been symptom free this whole time, so we thought we were okay, but the bloodwork tells a different story). My questions are: 1) What are ppl's experience with children hitting a growth spurt after going gluten-free? Is this likely that she will grow more if we get her levels down? 2) After her window of growth closes (growth plates set), is it possible for her to eat out again (still being extremely careful) and monitor with bw and possibly repeat biospsy if needed? Her growth is crucial right now, so that is our focus, but I'm wondering if she will be able to expand her eating options at some point when she is older or if she will have to stay this strict for life. 3) What recommendations do you have to navigate this time with an almost teenager (both navigating social things, parties and making sure she has adequate nutrition as she can be picky). I know she can bring her own food to events we anticipate (lots of prepping ahead which makes me tired ::sigh::). But the hardest thing is the spontaneous times where we can't prep ahead. I am concerned about her getting enough variety in her diet and the nutrients she needs (she loves rice and gluten-free pasta - basically rice - but these have little/no nutritional value).
×
×
  • Create New...