Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cross Contamination

ogrestrength

Recommended Posts

ogrestrength Newbie
ogrestrength
Posted

I am new to this and still make mistakes here and there when out eating. I have read concerns of cross contamination and have to ask; Do some of you really get that bad that you are concerned with foods that have touched a wheat product?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rusla Enthusiast
Rusla
Posted

I have gotten violently ill and broken out with horrible dh on my eye and face from just a few crumbs. The longer I am gluten free the sicker I get. I have to wipe down my desk and everything on it at work because a couple of crumbs are enough to make me sick for a few days. Granted some are not as sensative as I am but if it makes me that sick you know it is doing damage.

ogrestrength Newbie
ogrestrength
Posted
  • Author
I have gotten violently ill and broken out with horrible dh on my eye and face from just a few crumbs. The longer I am gluten free the sicker I get. I have to wipe down my desk and everything on it at work because a couple of crumbs are enough to make me sick for a few days. Granted some are not as sensative as I am but if it makes me that sick you know it is doing damage.

Wow! I never knew it could get that bad.

flagbabyds Collaborator
flagbabyds
Posted

I am so worried about CC. everylittle piece makes me barf violently for weeks.

when i go out to restaruants, then i make sure that he clean the pan/grill where they are cooking it.

ravenwoodglass Mentor
ravenwoodglass
Posted
I am new to this and still make mistakes here and there when out eating. I have read concerns of cross contamination and have to ask; Do some of you really get that bad that you are concerned with foods that have touched a wheat product?

I won't even allow gluten products in my home, nothing not toiletries or laundry detergent, not glues or paints (I am an artist and keep them in a totally seperate area from my living quarters), not pet foods or litters. I gave up trying to eat at restaurants long ago. I still get problems with CC at times, usually from a processed food, which makes me violently ill for a long time. Eat something that touched a wheat product? I won't eat it if it's in the same room :D

nettiebeads Apprentice
nettiebeads
Posted

Oh yeah! I have decided to become paranoid about gluten cross contamination. It's only my health, after all. I don't get the violently ill reactions as other do, but I can sure do without the brain fog, chronic fatigue and mood tailspins that even the littlist molecule seems to cause. No kissing hubby if he's "not safe"... I've gotten reactions from him sipping out of my cup when he's had something with gluten and then I drank out of it. Besides, better safe than sorry anyhow.

aikiducky Apprentice
aikiducky
Posted

Heh. I just got glutened yesterday (bah!) because I went to a pancake restaurant with some people. The only thing I had there was a cup of tea, and I borrowed a fork to eat my own fruit salad with. Either one must have had traces of flour in it/on it. Anyway, today I'm bloated and tired, feel like a wet rag...

I did wonder if it was such a good idea before I went there. should have trusted my instincts, sigh.

Pauliina

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


qwertyui Rookie
qwertyui
Posted

Hello!

I got glutened last night by my inlaws. They just don't get it. Both my husband and I have explained a million friggin times, and they don't get it. Anyway, the brain fog, insomnia, cramps, headache and mood swings are in full swing.

Cross contamination is a huge issue that a lot of people don't get. You must be strict about it. The results are not fun. My inlaws seem to try to do the right thing, but I'm always sick afer eating there. I want to bring my own food, but am afraid to insult them. I'll have to figure it out, I guess.

jennyj Collaborator
jennyj
Posted

Being new to all of this I had no idea about cc but it explains so much. I have tried so hard the last three weeks and every once in awhile have a reaction when I know it wasn't me. Also I had no idea that insomnia could be caused by this. No one has been able to tell me why I can't sleep. Thanks so much. This site is so wonderful when you have no clue but know where you can go to get help. THANKS

jerseyangel Proficient
jerseyangel
Posted

CC will make me sick for 3 weeks. I'm just over the last episode. I avoid gluten, anything it touches, etc. like the plague. I din't think I'm paranoid--it really does make me that sick!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. catnapt
      - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      learned I had a high PTH level in 2022 suspected to be due to low vit D got my vit D level up a bit but still have high PTH I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption
    2. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

      I am on day 13 of eating gluten and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone...
    3. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was...
    4. Amy Barnett
      - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

      What is the best liquid multivitamin for celiac disease?
    5. Scott Adams
      0

      Quick Gluten-Free Shrimp Stir-Fry With Crisp Vegetables

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748
    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      Curious question

      By Jmartes71 · Posted

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      Question

      By Amy Barnett · Posted

      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      Alarming

      By Jmartes71 · Posted

      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.