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AmandaD

By AmandaD
in Coping with Celiac Disease

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AmandaD Community Regular
AmandaD
Posted

Anyone else here know that at one point they have or have had low Vitamin D?

And, what did you do about it?

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Jnkmnky Collaborator
Jnkmnky
Posted

Get out into the sun!

jerseyangel Proficient
jerseyangel
Posted

Yes--I have low vitamin D--I take cod liver oil to suppliment. I can't stay out in the sun very long at all--the summer, especially. After just a couple of minutes, I feel faint.

AmandaD Community Regular
AmandaD
Posted
  • Author

Is the supplement gross? Any suggestions on a brand...I'm willing to take a chance!

Yes--I have low vitamin D--I take cod liver oil to suppliment. I can't stay out in the sun very long at all--the summer, especially. After just a couple of minutes, I feel faint.
jerseyangel Proficient
jerseyangel
Posted
Is the supplement gross? Any suggestions on a brand...I'm willing to take a chance!

Amanda--I use Carlson. The lemon flavor. It tastes fine--not fishy or greasy at all, really. It has just a light lemon flavor. It's best to keep it in the fridge--and it tastes better cold. Let me know if you deceide to try it, and how you like it :)

happy4dolphins Enthusiast
happy4dolphins
Posted

I had no idea I was vit. d deficient until I had blood work done at the rheumy's this winter. Though, living in Michigan, it's understandable. I was so low that she perscribed 50,000 ius once a week and I"Ve been taking that for at least three months now.

At first when I took it I hurt more then I did for about 12 hours and this happened for three weeks in a row, but the 4th week, all of a sudden the muslce pains were gone. I no longer felt like I was going to have charlie horses in my legs or arms.

Nicole

mouse Enthusiast
mouse
Posted

My Rheumy found that my D was very low. He said that I just entered the chart. I take 50,000 iu's twice weekly. When my 6 weeks is done, I then get another blood test. The end of last summer my Fibromyalgia started to bother me again after 1 1/2 years with 80% pain reduction. At the same time I started getting more tired. The tiredness and the pain both just kept advancing. I am hoping that this D will work wonders in both departments.

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AmandaD Community Regular
AmandaD
Posted
  • Author

Ok - so my doc is having me take 400 IU's twice a day. Is that just simply way too low?

Hmmmm....what do you think?

mouse Enthusiast
mouse
Posted

I think you have to trust your doctor on this one. It would depend on where you were on the chart. I assume he will do another blood test after a certain length of time.

Clark Bent as Stupor-Man Contributor
Clark Bent as Stupor-Man
Posted

I don't know how low I am, but I just found out this week from my nutritionist that I tested low for vitamin D. She is having me take 2,000 IU once a day. It's some concentrated liquid dropper formula. I haven't taken it yet but will probably start on Monday.

2tired Apprentice
2tired
Posted
I don't know how low I am, but I just found out this week from my nutritionist that I tested low for vitamin D. She is having me take 2,000 IU once a day. It's some concentrated liquid dropper formula. I haven't taken it yet but will probably start on Monday.

I was taking 50.000 iu of Vitamin D weekly in the beginning, but I am down to once a month. According to my dr. I may have to take it for the rest of my life.

Carriefaith Enthusiast
Carriefaith
Posted

Salmon is very high in vitamin D. You can get over 100% of your daily intake of vitamin D in one serving!

Open Original Shared Link

Shrimp is also a good source of vitamin D:

Open Original Shared Link

AmandaD Community Regular
AmandaD
Posted
  • Author

Interesting. I love both salmon and adore shrimp....guess who's going to stock up on those today?

Thank you, thank you, thank you.

mamaw Community Regular
mamaw
Posted

Please make sure you eat wild salmon not the farm raised ...........................

mamaw

there are many places to order from. SEABEAR for one or WHole Foods carries Alaskan salmon

AmandaD Community Regular
AmandaD
Posted
  • Author

I've heard that before - that they add chemicals to the farm raised to keep the coloring...

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      celiac.com support

      By MichaelDG · Posted

      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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