Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Calling All People...

AmandaD

By AmandaD
in Coping with Celiac Disease

Recommended Posts

AmandaD Community Regular
AmandaD
Posted

Anyone else here know that at one point they have or have had low Vitamin D?

And, what did you do about it?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jnkmnky Collaborator
Jnkmnky
Posted

Get out into the sun!

jerseyangel Proficient
jerseyangel
Posted

Yes--I have low vitamin D--I take cod liver oil to suppliment. I can't stay out in the sun very long at all--the summer, especially. After just a couple of minutes, I feel faint.

AmandaD Community Regular
AmandaD
Posted
  • Author

Is the supplement gross? Any suggestions on a brand...I'm willing to take a chance!

Yes--I have low vitamin D--I take cod liver oil to suppliment. I can't stay out in the sun very long at all--the summer, especially. After just a couple of minutes, I feel faint.
jerseyangel Proficient
jerseyangel
Posted
Is the supplement gross? Any suggestions on a brand...I'm willing to take a chance!

Amanda--I use Carlson. The lemon flavor. It tastes fine--not fishy or greasy at all, really. It has just a light lemon flavor. It's best to keep it in the fridge--and it tastes better cold. Let me know if you deceide to try it, and how you like it :)

happy4dolphins Enthusiast
happy4dolphins
Posted

I had no idea I was vit. d deficient until I had blood work done at the rheumy's this winter. Though, living in Michigan, it's understandable. I was so low that she perscribed 50,000 ius once a week and I"Ve been taking that for at least three months now.

At first when I took it I hurt more then I did for about 12 hours and this happened for three weeks in a row, but the 4th week, all of a sudden the muslce pains were gone. I no longer felt like I was going to have charlie horses in my legs or arms.

Nicole

mouse Enthusiast
mouse
Posted

My Rheumy found that my D was very low. He said that I just entered the chart. I take 50,000 iu's twice weekly. When my 6 weeks is done, I then get another blood test. The end of last summer my Fibromyalgia started to bother me again after 1 1/2 years with 80% pain reduction. At the same time I started getting more tired. The tiredness and the pain both just kept advancing. I am hoping that this D will work wonders in both departments.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AmandaD Community Regular
AmandaD
Posted
  • Author

Ok - so my doc is having me take 400 IU's twice a day. Is that just simply way too low?

Hmmmm....what do you think?

mouse Enthusiast
mouse
Posted

I think you have to trust your doctor on this one. It would depend on where you were on the chart. I assume he will do another blood test after a certain length of time.

Clark Bent as Stupor-Man Contributor
Clark Bent as Stupor-Man
Posted

I don't know how low I am, but I just found out this week from my nutritionist that I tested low for vitamin D. She is having me take 2,000 IU once a day. It's some concentrated liquid dropper formula. I haven't taken it yet but will probably start on Monday.

2tired Apprentice
2tired
Posted
I don't know how low I am, but I just found out this week from my nutritionist that I tested low for vitamin D. She is having me take 2,000 IU once a day. It's some concentrated liquid dropper formula. I haven't taken it yet but will probably start on Monday.

I was taking 50.000 iu of Vitamin D weekly in the beginning, but I am down to once a month. According to my dr. I may have to take it for the rest of my life.

Carriefaith Enthusiast
Carriefaith
Posted

Salmon is very high in vitamin D. You can get over 100% of your daily intake of vitamin D in one serving!

Open Original Shared Link

Shrimp is also a good source of vitamin D:

Open Original Shared Link

AmandaD Community Regular
AmandaD
Posted
  • Author

Interesting. I love both salmon and adore shrimp....guess who's going to stock up on those today?

Thank you, thank you, thank you.

mamaw Community Regular
mamaw
Posted

Please make sure you eat wild salmon not the farm raised ...........................

mamaw

there are many places to order from. SEABEAR for one or WHole Foods carries Alaskan salmon

AmandaD Community Regular
AmandaD
Posted
  • Author

I've heard that before - that they add chemicals to the farm raised to keep the coloring...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748
    ZENken
    Newest Member
    ZENken
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.