Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hair Still Falling Out!

DingoGirl

By DingoGirl
in Coping with Celiac Disease

Recommended Posts

DingoGirl Enthusiast
DingoGirl
Posted

Hi all - - I've been gluten-free for nearly three months and my hair is STIll falling out significantly. Am wondering if any of you saw diminishment of this and how long it took. I'm quite concerned. BTW I am 44, so changes will naturally occur, but no signs of menopause yet. I'm no longer anemic, as far as I know....

Help! :o

Susan

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Hi Susan--Gosh. I understand your concern. I had hair loss to the point where I had patches that were thin enough to see my scalp. For me, I began to stop losing after 3-4 months on the gluten-free diet and vitamins. At that point, I had my hair cut so the spots would blend in better. :( It's been 10 months now, and my hair has grown back in pretty well. It's not as thick all over as it once was, but at least there are no more thin areas. Are you feeling better overall at this point? Also, do you take any vitamins--a multi is a good idea. Hopefully, your hair will respond to the positive changes you have made soon. :)

Matilda Enthusiast
Matilda
Posted

..

DingoGirl Enthusiast
DingoGirl
Posted
  • Author

Good news, girls, thanks for replying. Patti, I do take a multi (Centrum), B supplement, and iron. Got blood results back, my iron is now NORMAL for the first time in years!! So, I can only hope the hair loss will end soon......'twould be one less thing to deal with! :)

Thanks!

Susan

sspitzer5 Apprentice
sspitzer5
Posted
Hi all - - I've been gluten-free for nearly three months and my hair is STIll falling out significantly. Am wondering if any of you saw diminishment of this and how long it took. I'm quite concerned. BTW I am 44, so changes will naturally occur, but no signs of menopause yet. I'm no longer anemic, as far as I know....

Help! :o

Susan

Hi Susan,

I'd get your thyroid checked. Low thyroid can cause hair loss and is very common with Celiac.

S

breadlover Newbie
breadlover
Posted

Hi everyone! My hair fell out when I was first diagnosed too. CHECK YOUR SHAMPOO!!! My doctor is very very smart and said to check the ingrediants of my shampoo and conditionor sure enough, Wheat gluten, hydrogolized wheat protion, wheat oil whatever you name it there were like five wheat ingrediants and if your a sensitive celiac is can externally effect you!! I stopped that shampoo got some gluten free stuff from whole foods and now my hair is back thick and gorgous. Good luck!

DingoGirl Enthusiast
DingoGirl
Posted
  • Author

AAAaaaagh!! didn't think of that....I've actually been using Nioxxin shampoo, expensive stuff to keep from LOSING hair - didn't even check ingredients! :ph34r:

did get my thyroid checked two weeks ago and everything looks okay, S, thank you for that as that had occurred to me as well.

One day, this will all make sense.......

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


aaascr Apprentice
aaascr
Posted

It took 6-7 months for my hair to stop

falling out - I also took biotin to help

the new growth.

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

DingoGirl -- STOP SOY!

SOY is poison. It is what caused me my thyroid problem and will cause hair loss.

Have your thyroid checked and remove SOY from your diet. Really give it a try you'll get better. I am not kidding I promise!

I just noticed your last post. What were your thyroid blood levels, if you don't mind me asking??? Because everyones body is different. What is normal for you, might not be normal from me. I went to my doc a few weeks ago. I was bouncing off the walls in the hyper thyroid mode. The doc said "You are in the NORMAL range" it was a few number away from being a huge problem. I knew by listening to my body I was getting too much meduication in my system. She said "...your okay!" I wasn't -- I went to another doc and he changed my medication and I feel so much better.

And P.S. my hair stopped falling out. For me SOY and thyroid hyper or hypo causes hair loss for me.

DingoGirl Enthusiast
DingoGirl
Posted
  • Author

Ms. Sillyak - - I have been concerned about soy, so hardly eating any at this point, but that just started. I think you were the one that posted some info earlier on soy and I had been following that...who knew!!!

And you know what, I think my doctor is kind of sick of me, so I may switch to another - not really liking her too much any more. :angry: She just brushed off my thyroid question and said, everything's fine. My "physical" yesterday, with pap smear? A whole THREE MINUTES. Anyway she wouldn't show me the thyroid numbers. So, I'll get a copy of my bloodwork and consult the experts!

Thanks for that information, hoping to be feeling better soon and stop the hair loss - - -

Susan

Rusla Enthusiast
Rusla
Posted

I agree on having your thyroid check. Make sure they check antibodies and have an ultrasound too. That is because the TSH can read normal when your thyroid isn't. I would lose handfuls due to anemia, thyroid and this. Now I don't lose so much hair but then, I have just eliminated over a foot of hair.

flagbabyds Collaborator
flagbabyds
Posted

For sure check your shampoo/conditioner because that can cause major problems. When I was diagnosed (as a baby) lost all my hair and took at least a year to have it kind of grow back, still took like 2-3 years to have normal hair again, but that was me being a baby.

breadlover Newbie
breadlover
Posted

Dinogirl always get your blood test results and start keeping a file! I have a celiac file and I bust that thing out all the time. Good job on switching doctors if they dont want to listen to our problems and help find someone who does. They dont know whats it like being celiac. Good luck! P.S i went thru the whole tyroid thing. My tests were elavated thyroid levels and then they re-tested and they were fine my bodys crazy i guess who knows.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      I worried at one point on my journey whether I had MS, having many of the symptoms myself. However, my symptoms improved dramatically with high dose thiamine hydrochloride, Benfotiamine, and Thiamine TTFD. Thiamine deficiency symptoms overlap with MS symptoms, including changes on brain MRIs. Thiamine deficiency affected my eyes (light sensitivity),...
    2. trents
      - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products...
    3. Matthias
      - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing...
    4. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    5. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748
    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.