Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
On a serious note--I am worried about the whole eye thing too. Had a visit Fri to the surgeon, I thought the lenses were clouding over or a detached retina, but he said the retina looked ok, but my vision is getting bad again after being pretty good right after the surgery. I broke out in hives from the drops to dilate, and he had me use the prednisone drops 4 times Fri night and keep up 2 times a day and wants me to come back next Fri. The whole thing is upsetting me so much. I knew I couldn't see as well again and when the tech had me read the chart I couldn't believe it. I asked her if I could read the lines before and she said yes, and I couldn't help it, I just started tearing up and crying. I didn't bluther, but I was shocked. Enough whining-----(sorry) Cissy, I have been to so many drs. over this, I don't know who to turn to next. The dr.

Robbin,

I missed this in my "skimming" last night. Kept seeing posts referring to your eyes so had to back into the depths of the thread to find what I'd missed. I'm sorry to hear that your vision isnt what it was after the surgery. I hope the doctors can do something to help....you are definately not "whining". It would be upsetting and frusterating for anyone and we can all feel comfortable to share those feelings here in Racheville. ;)

Is presindency a word?? :unsure:

RELEVATION:

I think I know why the word looked "wrong" to me last night. It is wrong! I think its mispelled....presidency....is that right?? Does that make it a word?? :unsure: I was kind of out of it last night....very very sleepy.

I think I will keep "presindency" as an official R-ville word. ;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
VydorScope Proficient
VydorScope
Posted

7:05am... 40 mins till Megan goes in to surgery. :huh: PLease dont forget about her with all this dingo/geese/bat/spider/etc talk....

Details in this 30 page thread... Open Original Shared Link

jerseyangel Proficient
jerseyangel
Posted
7:05am... 40 mins till Megan goes in to surgery. :huh: PLease dont forget about her with all this dingo/geese/bat/spider/etc talk....

Details in this 30 page thread... Open Original Shared Link

I actually thought about Megan this morning as soon as I woke up. Last night, I told my husband all about her and what they have been going thru. The surgery will, no doubt, take several hours--is that right Vncent?

VydorScope Proficient
VydorScope
Posted
I actually thought about Megan this morning as soon as I woke up. Last night, I told my husband all about her and what they have been going thru. The surgery will, no doubt, take several hours--is that right Vncent?

I would assume so, but I did not ask. I realy did not want to focus on that part when I was talking to her, I was more concerned that she know about the love fo ppl here for her.

Guest Robbin
Guest Robbin
Posted

Megan is on all of our minds this morning. I have been praying for her and her wonderful mom, Tanya this morning. I hope you all check out her website-there is a link on the Megan's gagging isn't getting better thread. The pictures of her on there are so adorable. I echo Vincent in asking everyone to pray for her and to pray for the drs. and the whole family and that they can get a room at the Ronald McD house.

Thank you all as well for the kind words and prayers for the eye problem for me. I am trusting this dr. and hoping for improvement. Our community knows how to support each other even amidst the light-hearted fun and stress-lifting goofiness of our discussions of geese, dingos, spiders, etc. :) . We NEED to have this fun thread to relieve some of the stress of the day to day struggles of life. :) It is a protective place to rest, our "Rachelville". :rolleyes:

VydorScope Proficient
VydorScope
Posted
Megan is on all of our minds this morning. I have been praying for her and her wonderful mom, Tanya this morning. I hope you all check out her website-there is a link on the Megan's gagging isn't getting better thread. The pictures of her on there are so adorable. I echo Vincent in asking everyone to pray for her and to pray for the drs. and the whole family and that they can get a room at the Ronald McD house.

Heres the site she is tlakign about:

Open Original Shared Link

jenyanderson Newbie
jenyanderson
Posted
Ah, Jeny, you're a Southern Girl with some German in your blood. We're probably kin. I know exactly what a "heinie" is! :lol::lol::lol:

Cissie

Amen! :P:P:P But I keep my house at 77-78 F, so when I come to visit you in Rachelville I'll wear my wool underwear! :lol:

Cissie

You're partly right on that one, Sis. I am 3/4 Irish and 1/4 German. :ph34r:

Lisa,

I already suggested you as Mayor! As for me, I can be the marriage counsellor (I'll always have a drawer full of Altoids for my clients......) We will all be happy campers in R-Ville!

:lol:

Hugs.

Karen

:lol::lol::lol:

Yeah, absolutely NO SPIDERS or I'm leaving! We should have bats to control the bad bug population. Bat's love to eat spiders :)

I got bitten by a spider on the face when I was little. Looked like I had been punched in the eye. My mom was afraid to take me to the dr. thinking they'd call her in, but luckily, there were fang marks. :)

All I remember is not being able to open my eye and getting a very painful shot in the butt. :rolleyes:

OUCH!!!!

-------Praying for Megan----------

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenyanderson Newbie
jenyanderson
Posted

Well I have to take DD to her therapy appt today and go rent a movie.. see ya'll later!

penguin Community Regular
penguin
Posted
Penguin - BATS???? :o did you forget my bat terror psychosis/hallucination at the cabin in Big Sur, mentioned in another thread - - scarred for life - - - only if they are far away and cannot get in my hair....or come near me.....

I disagree with Cissie, here. We've got to have bats! They'll be hair-hating bats and will help pollenate our crops. Um, let's make them purple and glittery, just for a little flair!! They will also never go within 100 feet of Susan. Somebody's got to help the overtaxed geese and dingos :rolleyes:

Susan, be like batman! Remember why he chose a bat? Because he was afraid of bats!

7:05am... 40 mins till Megan goes in to surgery. :huh: PLease dont forget about her with all this dingo/geese/bat/spider/etc talk....

Details in this 30 page thread... Open Original Shared Link

I'll be thinking of her all day today...

Camille'sBigSister Newbie
Camille'sBigSister
Posted
You're partly right on that one, Sis. I am 3/4 Irish and 1/4 German. :ph34r:

:lol::lol::lol:

OUCH!!!!

-------Praying for Megan----------

Well, Jeny, I guess I'm about 80% Celtic, 15% English, 5% German. It was all so long ago, even the German part; they didn't come over until 1750. Important to note: They ALL settled in the SOUTH!!!!!

Praying for Megan.

Cissie

Jean-Luc Rookie
Jean-Luc
Posted

Vincent, my prayers are with you, Megan and Tanya

Christine, chin up, I agree with Vincent. Go out with you girlfriends, have a good time and forget about the idiot.

To all no time to really catch-up too much work, see everyone in a day or so.

dlp252 Apprentice
dlp252
Posted
There will be NOOO spiders in Rachelville!!! I think we are all in agreement as far as that goes. ;)

Oh...and if one happens to slip past the geese and dingos...we will send Donna to "relocate" the critter. Ummmm...yes, remember to be delicate with them Donna. :lol:

You can count on me! :lol: I AM in charge of security after all--I think that could fall somewhere under my authority. :lol:

I disagree with Cissie, here. We've got to have bats! They'll be hair-hating bats and will help pollenate our crops. Um, let's make them purple and glittery, just for a little flair!! They will also never go within 100 feet of Susan. Somebody's got to help the overtaxed geese and dingos :rolleyes:

Susan, be like batman! Remember why he chose a bat? Because he was afraid of bats!

I'll be thinking of her all day today...

Yes, and I can help relocate any that choose to attack hair, lol. :lol: My sister lives up near Yosemite out in the country...one of the times I stayed with her, she said "do you want to help me get rid of a bat?" I'm thinking "Okay, I've never seen one, but I'm game". So out we went to "get rid of the bat". It was under the eaves of her second story roof, which from where we were standing was probably about 3 stories up. The only way we could reach it was by water hose. We got the bat to leave but we were drenched by the end of it. Thinking about it now, I'm not sure why it was so important to get rid of the thing...they have tons of mosquitos up there and bats eat mosquitos.

Vincent, my prayers are with you, Megan and Tanya

Mine too! Thanks for the website link Vincent!

YAY, Andrea is back!!!! Missed you!

Okay Rachelvillans, if you don't see me posting much it is because I can probably only post at work until our heatwave ends. When I got home last night we had another brown out, but it might as well have been completely out because there was BARELY any juice. It was out for 5 hours. My mom and aunt have been without power for most of the weekend. I actually unplugged my computer altogether before I left for work yesterday. They're saying that today is also going to be a high power consumption day, so not sure what I'll go home to.

DingoGirl Enthusiast
DingoGirl
Posted

Purple, glittery bats with hair avoidance....yes, I can handle those! :)

No time to write...but thinking of you all and sending love. Big Armenian Funeral this morning....on the hottest day of the year (outdoor burial as well)...will spend time with and love my five nieces and family today. Check in tonight. Needed my daily dose of silliness, information adn news, and the comfort we all find here. We are blessed here wtih such a brilliant combination of support, information (science!), humour and silliness....fun and love. Great place you founded, Rachel!

My focus is on family today but you'll all be in the back of my mind and heart....Vincent, do keep us updated on Megan. I haven't had time to check that site yet.

Blessings to all!

p.s. donna - where do you live, and where near Yosemite does your sister live? Used to go to Yosemite every other weekend, at least....*sigh*

VydorScope Proficient
VydorScope
Posted
My focus is on family today but you'll all be in the back of my mind and heart....Vincent, do keep us updated on Megan. I haven't had time to check that site yet.

Last Update (already posted this to Megans thread)

TUESDAY, JULY 25, 2006 08:10 AM, CDT

Just heard from Tanya, they have just taken Megan back. They had given her some medicine to make her loopy, and she was. Tanya said that they would let them know something in 1 hour - 1.5 hours after they got the IV's in; at this point they would start the procedure. It should take around 5-6 hours. I will post every time I get an update.

Cotrena

dlp252 Apprentice
dlp252
Posted
p.s. donna - where do you live, and where near Yosemite does your sister live? Used to go to Yosemite every other weekend, at least....*sigh*

Will be keeping you and your family in prayer as well! I live in Campbell and my sister lives near Mariposa...about 30 miles away from Yosemite. I don't get up there much...did I mention I was lazy. :P

VydorScope Proficient
VydorScope
Posted

MEGAN UPDATE!

TUESDAY, JULY 25, 2006 09:59 AM, CDT

Tanya just called and said that they made the incision about 10 minutes ago. It took them a while to get the IV's started because of veins. But they did say that she went to sleep very peacefully. They are going to give them updates in another 1-2 hours

dlp252 Apprentice
dlp252
Posted

Thanks Vincent!

Oh, and I forgot to post in my reply above that I want to help Sally in her bum duties! :lol:

jerseyangel Proficient
jerseyangel
Posted

Vincent--I think it's so thoughtful of you to post the updates here as well as in Tanya's thread. You're the bestest :D

VydorScope Proficient
VydorScope
Posted

MEGAN UPDATE !!

TUESDAY, JULY 25, 2006 11:34 AM, CDT

Just got another call from Tanya. She said she talked to one of the nurses. The nurse said that everything was going just wonderful right now. It was one of the smoothest surgeries that they had seen. They planned on taking their time so it would be another 3-4 hours before they were done.

WOOHOO!!!!!

Judyin Philly Enthusiast
Judyin Philly
Posted

yes thanks Vincent--for covering this thread just went her cause saw patti was last post and wanted tosee what 'bits' of wisdom she had to share..

Vincent--there is a new update you might want to post ...will let you do it..it's all good

judy in philly

VydorScope Proficient
VydorScope
Posted
yes thanks Vincent--for covering this thread just went her cause saw patti was last post and wanted tosee what 'bits' of wisdom she had to share..

Vincent--there is a new update you might want to post ...will let you do it..it's all good

judy in philly

Waaaaaay ahead of you Judy :P Already posted in both threads and IM'd it out to otheres hehe :P

nikki-uk Enthusiast
nikki-uk
Posted
I disagree with Cissie, here. We've got to have bats! They'll be hair-hating bats and will help pollenate our crops. Um, let's make them purple and glittery, just for a little flair!! They will also never go within 100 feet of Susan. Somebody's got to help the overtaxed geese and dingos :rolleyes:

Susan, be like batman! Remember why he chose a bat? Because he was afraid of bats!

...well I suppose them(purple glittery-loving that ) hair hating bats will keep me busy in R-villes salon.

Apart from Miss Susan (can't recall what your official post is in R-ville is) who will have a protective aura around her damn fine tresses, making her excempt from the bat-hair-mess thingy-going on with all the other residents :D .

Now,did someone ask me about jojoba oil,frizz and leave in conditioner about 10 pages ago?

I suppose jojoba oil could work just as well as coconut oil or frizz ease (i'm not familiar with it)but ladies please use sparingly.Only on mid lengths and ends.

Repeat after me-'mid lengths and ends only' (else you end up looking greasy).

I actually have the dryest,curliest ,frizziest hair ever and I must admit-in this heat I'm struggling to contain it!It keeps growing bigger and bigger :lol: (big hair-not a good look)

I don't bother with 'leave in' conditioners.

I've been putting just normal conditioner on them 'mid lengths and ends' whilst wet and leaving it to dry.Then put a little oil on ends when dry.

Hair consultation over :D .

Thinking of wee Megan today.I can't work out the time differences but I think U.K is ahead of the states(?) so I'm hoping her op is all done now( it's around 6.02 pm here now).

VydorScope Proficient
VydorScope
Posted
Thinking of wee Megan today.I can't work out the time differences but I think U.K is ahead of the states(?) so I'm hoping her op is all done now( it's around 6.02 pm here now).

Nope, in progress... prbly 3 to 4 more hours to go. :huh:

jerseyangel Proficient
jerseyangel
Posted
just went her cause saw patti was last post and wanted tosee what 'bits' of wisdom she had to share..

Judy--you're so cute :D Not sure how much wisdom you'll get out of me--definately a lot of yapping..... :lol:

dlp252 Apprentice
dlp252
Posted
I've been putting just normal conditioner on them 'mid lengths and ends' whilst wet and leaving it to dry.Then put a little oil on ends when dry.

Yes, I've been doing this too since my hairdresser told me...works very well. Usually only do it when I'm not going out for the day though, lol.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. dixonpete
      0

      Hookworm load planner

    2. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    3. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    4. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    5. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,090
    • Most Online (within 30 mins)
      7,748
    Jamie B
    Newest Member
    Jamie B
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.