Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

CarlaB Enthusiast
Oooh...Caramel. :D

Love the new pic......heck....I couldnt even tell which was was you...everyone looks healthy and happy. :)

I'm the one on the upper right with the bangs ... I cut my bangs last week.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
Anne AMP Apprentice

I don't know who did the test. The local lab said they had to send the specimen somewhere else cause they couldn't do it. What did you do for your leaky gut?

Rachel--24 Collaborator

:lol::lol:

Sorry...I guess Carla and Donna beat me to the punch about Lyme testing! :ph34r:

So yeah...anyone else wanna add that Igenix is the best lab for testing?? :P

Rachel--24 Collaborator
I don't know who did the test. The local lab said they had to send the specimen somewhere else cause they couldn't do it. What did you do for your leaky gut?

I'm not doing anything specific as far as treating leaky gut. Candida and Leaky gut are generally a symtpom of a larger problem. For me its mostly mercury and other heavy metals...and I also have Lyme.

I'm addressing those things since if it werent for them I wouldnt have leaky gut to begin with.

My gut isnt going to heal with all this other stuff going on...so I have to prioritize. Get rid of the big issues and then the body can pretty much heal itself.

dlp252 Apprentice
I'm the one on the upper right with the bangs ... I cut my bangs last week.

OMGosh! I can't see the new pic here at home, but I think I saw it at work before I left...I thought that was a group of kids, lol!!!! :lol:

Anne AMP Apprentice
I'm not doing anything specific as far as treating leaky gut. Candida and Leaky gut are generally a symtpom of a larger problem. For me its mostly mercury and other heavy metals...and I also have Lyme.

I'm addressing those things since if it werent for them I wouldnt have leaky gut to begin with.

My gut isnt going to heal with all this other stuff going on...so I have to prioritize. Get rid of the big issues and then the body can pretty much heal itself.

How do you get metal toxicity diagnosed?

Rachel--24 Collaborator
I don't know who did the test. The local lab said they had to send the specimen somewhere else cause they couldn't do it.

I wouldnt trust those test resuts. <_<

The labs most doctors use have something like 60% sensitivity for picking up Lyme. Thats real bad...you want something close to 100% sensitive when testing for something as serious as Lyme. This is why most cases go undiagnosed. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast
OMGosh! I can't see the new pic here at home, but I think I saw it at work before I left...I thought that was a group of kids, lol!!!! :lol:

It is, who says I'm a grown up??? :lol: If you hit refresh, you should be able to see it.

happygirl Collaborator

Happy Birthday, Carla!!!!!!!!!

I hope you are having a wonderful day!!!!!!!!

xoxo

AndreaB Contributor
I'm the one on the upper right with the bangs ... I cut my bangs last week.

I guessed that that one was you only because the other one that looked older than the ones in front looked like Morgan. You look like teenager.

So yeah...anyone else wanna add that Igenix is the best lab for testing?? :P

Me, Me, Me!

AndreaB Contributor

Happy Birthday Carla!

Enjoy your dessert. Have some for me......that means you need to have much more than you normally would. :P

dlp252 Apprentice
It is, who says I'm a grown up??? :lol:

:lol:

Rachel--24 Collaborator
How do you get metal toxicity diagnosed?

I have real good Dr.'s who specialize in this type of stuff. They understand how all this works and what types of things cause it.

Conventional...or "mainstream" Dr.'s do not really address these issues. I see "Integrative" Dr.'s who diagnose and treat all sorts of things but mostly specialize in Mercury Detox, Lyme Disease and Autism.

Also these things seem to be intertwined.

If you have Lyme you tend to have issues with heavy metals....if you have heavy metals for sure you've got candida...if you've got candida and mercury then you've probably got leaky gut....if you've got leaky gut you're likely dealing with a whole lot of intolerances...and so on and so on.

If your a small child with all of this going on....that would be called Autism. :(

So I have Dr.'s who know how it works. I've only very recently started any treatment. I've treated candida and leaky gut in the past....to no avail...because I wasnt really getting to the root of my problems. I was basically doing it on my own.

CarlaB Enthusiast
How do you get metal toxicity diagnosed?
You take a chelating agent and do a urine test.
CarlaB Enthusiast

Thanks Andrea and Laura.

Laura, have you started the new antibiotic yet? What are you now taking?

Off for ice cream and presents. Andrea, ANY ice cream is more than normal!! LOL Normally I'd eat a whole pint, tonight, just a half pint. :P

happygirl Collaborator

yes. zithromax (no doxy bc of the sun) 3 x a week.

CarlaB Enthusiast
yes. zithromax (no doxy bc of the sun) 3 x a week.

I'm on Biaxin,from the same family. My insurance wouldn't approve the zith. :blink: They have no problem with Mepron, but they denied zith. Strange.

I'm on doxy, but they're going to change it for the summer, probably to mino. Good thing you're not on it, I got sun poisoning on my hand through the car window when I had #35 sunscreen on.

Anne AMP Apprentice
I'm on Biaxin,from the same family. My insurance wouldn't approve the zith. :blink: They have no problem with Mepron, but they denied zith. Strange.

I'm on doxy, but they're going to change it for the summer, probably to mino. Good thing you're not on it, I got sun poisoning on my hand through the car window when I had #35 sunscreen on.

Hi Carla,

Is it too nosey of me to ask why you are taking doxy? My sister was on it for about a year and had wonderful result for pain.

CarlaB Enthusiast
Hi Carla,

Is it too nosey of me to ask why you are taking doxy? My sister was on it for about a year and had wonderful result for pain.

No, it's not too nosey, this is the stuff we talk about! :) I have Lyme Disease and a babesia coinfection. I'm on a bunch of medication and supplements for it -- medications to kill the bugs, supplements to rebuild my immune system.

AndreaB Contributor

Here's a link to root canals and cancer for anyone interested.

Open Original Shared Link

I know my doctor has told me they have been implicated in women with breast cancer as well.

There is another good site which I think Rachel already linked.....tuberose.

Rachel--24 Collaborator
You take a chelating agent and do a urine test.

:blink:

Just noticed I totally read the question wrong. Thought she asked "How did you get diagnosed for heavy metal toxicity?" My post makes no sense. :ph34r:

Ummm...yeah...what Carla said.

You take a chelating agent and do a urine test. :D

NoGluGirl Contributor

Dear Andrea and Rachel,

Now I am back where I started! I just want to cry! :( This root canal business is causing major problems. All I know is I am in pain and need to fix it. The problem is what is the answer?

Dear Donna,

I think the Valerian may be the trouble. I know it gave me difficulty. The morning supplements should not be a problem. However, the 5-HTP could be the source. My father said it could do that, too. He used to work for an herbal company. Anyway, those are two possibilities.

Dear Mango,

:lol: Those geese do sound like ours! They stole them! The Auxigro people poisoned them, then brainwashed them! You know what this means...another lawsuit. As District Attorney of Rachelville, I am obligated to file a major lawsuit. They won't get away with this! :angry:

Dear Laura,

We can take Zithromax? I did not know that! It is one of the few antibiotics I tolerate! It is great, you only take it once a day. Those others you have to take four times a day.

Dear Carla,

Skyline Chili sounds terrific! So does the ice cream and caramel sauce! You really do look like a kid in that pic! I kept thinking "Where is Carla?" :lol: HAPPY BIRTHDAY!

Sincerely,

NoGluGirl

Rachel--24 Collaborator
Good thing you're not on it, I got sun poisoning on my hand through the car window when I had #35 sunscreen on.

WTH?? :unsure:

I did not know this about Doxy....you cant take it during the summer?? :huh:

When I was first getting sick and my face was totally burning from the neurotoxins...they stupidly diagnosed me with Rosacea and put me on high doses of Tetracycline. Yeah...what do you think that did to me?? :rolleyes:

Hint: It did not help. :angry:

Anyways...they said I couldnt go out in the sun...because the antibiotic makes you more susceptible to sunburn. Is that the case with Doxy as well?? Why is it that the antibiotic causes this? :unsure:

I did go out in the sun while I was on Tetracycline and I didnt have any adverse reactions that I can recall.

Clark Bent as Stupor-Man Contributor

happy birthday carla...

I was reading some lymenet posts over the weekend and read a post that reminded me of what you said regarding your lyme situation... saw the name was sixgoofykids and the location was ohio so I'm assuming that's you, right?

Rachel--24 Collaborator

Andrea....I read the link you posted.

I had read about the testing on rabbits in one of the posts on LymeNET.

I just cant believe I never knew any of this stuff was so toxic or harmful. It blows my mind. :blink:

On the one hand I sort of feel fortunate to be learning...so that I'm informed and dont end up causing more harm to myself down the road.

And then on the other hand I just want to put my hands over my ears and eyes and just walk around going "La -la-la-la-la-la-......I cant hear you...I cant see you....La-la-la-la" :ph34r:

Yeah...I just wanna block it all out and go back to normal when I didnt know anything and I wasnt sick...and I could eat all kinds of garbage...and I was just a normal fast food eating citizen who'd never heard of a neurotoxin. :huh:

Anyone else??

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      High DGP-A with normal IGA

    2. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      High DGP-A with normal IGA

    3. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      High DGP-A with normal IGA

    4. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      High DGP-A with normal IGA

    5. - trents replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Finding gluten free ingredients


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748

    Tony White
    Newest Member
    Tony White
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.