Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

rinne Apprentice

Voila, part three.....

Did our geese escape??? :o:o

They have left us...apparantly someone fed them Auxigro....they've lost their minds!! :blink:

They abandoned Rachelville....the geese got chemicalized...total MSG addicts now....giving into the temptations of the crazy gluteny world.....and television. :o:o

What are we gonna do now?? :rolleyes:

:lol:

Dear Mango,

:lol: Those geese do sound like ours! They stole them! The Auxigro people poisoned them, then brainwashed them! You know what this means...another lawsuit. As District Attorney of Rachelville, I am obligated to file a major lawsuit. They won't get away with this! :angry:

:lol:

So I guess I should read the stuff about cavitations since I had one fixed last fall. <_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
AndreaB Contributor
I think this is my cue to say, "LYME CLAN". :ph34r:

:lol::lol:

We'll be waiting for when your product "hits the shelves". I assume you'll keep us posted.

CarlaB Enthusiast
did I read something about cake?

Thank you.

No, no, no, something WAY better than cake -- Haagen Dazs with hot carmel topping! I've always liked it better than cake! Cake is only a vehicle for eating icing! :P Now I have the excuse to skip the cake part. :lol:

I ate the leftover Haagen Dazs and carmel topping yesterday. :ph34r: Oddly enough, I've had bad GI symptoms ever since starting Omnicef and Probenecid a month and a half ago, so I doubled up on my VSL#3 a few days ago ... even with the sugar, I still saw, umm, improvement ... not ppp but improvement.

dlp252 Apprentice

:o I think I may have dodged a bullet today, lol. I can't do a search right now cuz I'm downloading an update from McAfee which is going to take 2 hours...can you say SLOW computer, lol. Did we talk about tetinus shots on this thread, or was it just other types of shots. Anyway, my doctor did the exam and asked when was the last time I had a tetinus shot. I couldn't remember so she wanted to give me one today. I don't know whether she forgot to write it on the lab slip or the lab just didn't see it, but I totally forgot and didn't remember until I got home. One I remembered, I suddenly had the thought about thimerasol...do tetinus shots contain thimerasol??? If so, all I can say is phew! :lol: I don't think I'll be reminding my doctor anytime soon if that's the case.

The same dentist does the cavitat and takes care of cavitations that does the amalgam removal as well. I found him looking for a dentist that does cavitations. There were some listed in California. Do a search on Dental Help. The dentist I found was one of the founders of the Biological Dentist something or other. :P

I hope you don't have a compatibility issue. :(

Hope you get to eat soon. :( I wasn't able to make dinner last night since I had to go shopping and pick up the paycheck. So we don't have any leftovers to eat. I'll probably only eat 2 meals today since that's easier that trying to figure out what else to have.

Me too on the compatibility issue. I took my lunch with me and started eating it as soon as I got to my car, lol. Wow, I could never make it on only two meals...I usually eat 5 or 6 times a day...on a really busy day, I might only get to eat 4 times. :lol:

I came across this in reading some stuff about Lyme.

Open Original Shared Link

It was interesting to me because stress has triggered symptoms three times, and they went away three times. This time I was also under stress, but was sick and took 21 days of doxy. Maybe that's why I have to more specifically address it this time.

I still think that if it's true I have lyme, I bet I was helped by those 3 years on the mega doses of antibiotics. Looking back, times of sickness usually followed times of extreme stress...after my dad died, after my hysterectomy (even though I wanted it, badly, it was still stressful), and recently at work. The last two or three years at work have been extremely stressful.

I've been busy developing a product that I hope to take to market this summer, at the very least I've made arrangements to launch it at a folk festival in September. I'm very excited about this, I told my sweetie that I have decided to become a tycoon but for some reason he refers to me as the "taifun".

Taifun :lol: Can't wait to hear about this once it hits the shelves!

I think this is my cue to say, "LYME CLAN".

:lol: As soon as Scott said "I definitely see lyme" I thought Lyme Clan. :lol: Good thing I have my bright lyme green purse. ;)

Cake is only a vehicle for eating icing!

:lol: Exactly!!!! I've been known to eat only the frosting, lol.

CarlaB Enthusiast

I wouldn't get a tetanus shot for no reason ... if you let air get to a cut, the bacteria can't live. If you have one that needs stitches so air can't get to it, then I might get one, especially if I cut myself on a rusty, barbed wire fence. But I wouldn't get one just in case I needed it because if I needed it, I'd get another one anyway!

I don't know if they have thimersol ... if I had a chance of having tetanus, I don't guess I'd care. :P

Anyway, good thing you didn't get it. :)

Rachel--24 Collaborator
I wonder what kind of a bully Lyme could be if it wasn't backed up by mold, candida and metals.

Rinne...I had to laugh when I read that. :lol:

Yeah...I dont think Lyme would get very far without its buddies to "hide" behind. <_<

From all that I've read it just doesnt seem to be able to take us down on its own...it waits for things to pile up.

I think what it does do on its own is make it more difficult for our bodies to detox some of the other things...so yeah...they build up and then Lyme has all its buddies to "support" it. Its not the bacteria itself which makes us sick....its the toxins it produces.

I think in most cases our bodies can cope with the toxins...but once we've got metals. parasites, candida, etc...on TOP of the Lyme toxins...then yeah...we break down. :(

Lyme seems to need the other toxins to come in.....otherwise I think the immune system pretty much keeps it in check.

Rachel--24 Collaborator
The interesting thing is that if I had not been ill I would not have created this. Sorry, I know this will be annoying but I am not going to say more until it hits the shelves, except maybe that I have shelves waiting for it at an organic grocery store I shop at.

Awww man....you're KILLIN me Rinne. :lol:

I'll be rooting for you...even though I dont know exactly what you've created...I'm sure it is GREAT....and it will be on shelves of all the health stores in the country....and I'll say...I know the person that MADE this....I met her in Rachelville and she is the founder of the Lyme Clan. B)

Good luck Rinne...you GO girl!! ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator
The same dentist does the cavitat and takes care of cavitations that does the amalgam removal as well. I found him looking for a dentist that does cavitations.

Andrea,

I dont know much about Cavitat.....but definately look into it first.

I did read this on LymeNET though.....

The only way to really find out is to send your pano x-ray to a lyme literate dentist or dental surgeon. Most dentists are not able to read the x-ray correctly. The CAVITAT machine is not totally conclusive. When I recently asked a competent surgeon about it, the answer was "if I thought they worked, I would have one". We have a CAVITAT locally in the city - none of the patients are referred there.

I dont know what the *real* story is on the Cavitat. I'm sending my x-rays to one of the surgeons.

Rachel--24 Collaborator
Keeping in mind that I know pratically nothing about TMJ, but that it is associated with lyme.

I don't know if it is associated with anything else but could it be possible that those who have TMJ have lyme that is undiagnosed?

I'm sure in some cases Lyme is involved....other times it might be something else. I think infections have alot to do with TMJ...probably moreso than any other condition.

I never had problems with my jaw at all..I never had any pain there whatsoever...no "clicking"...my bite was normal...all was good.

Then I got sick...almost immediately my bite was "off", I'm grinding, clenching, my jaw clicks, doesnt open all the way...etc.

Way back then the specialists were telling me that my jaw was in terrible shape, it was grinding and grating and wearing down the bone....they said I had serious TMJ. I had to go to a TMJ clinic and learn exercises and stuff like that. They talked about how stress and things like this can give us TMJ.

Maybe for some people but I never believed it for me...a person just doesnt go from normal jaw to seriously messed up jaw....just like that. <_<

I definately think its 100% related to infections in my case.

Nearly all of the infectious diseases note "TMJ" as a symptom...or jaw "tightness", clenching, grinding, etc. A major symptom of Fibro. is TMJ...and I also consider Fibro. to be an infectious disease....despite what Western Medicine wants to label it. <_<

rinne Apprentice
As soon as Scott said "I definitely see lyme" I thought Lyme Clan. :lol: Good thing I have my bright lyme green purse. ;)

:lol:

Awww man....you're KILLIN me Rinne. :lol:

I'll be rooting for you...even though I dont know exactly what you've created...I'm sure it is GREAT....and it will be on shelves of all the health stores in the country....and I'll say...I know the person that MADE this....I met her in Rachelville and she is the founder of the Lyme Clan. B)

Good Like Rinne...you GO girl!! ;)

:lol:

I think we know who the true founder of Lyme Clan is...... :P Madame President, I only named what was obvious.

I will be sure to update you on my progress in the marketplace. It's funny, I have never cared enough about money to do anything just for the sake of having it but now I really want to figure it out. It strikes me that it would be a good thing to create a business that supported organic and fair trade growers and that provides something better than the average product out there. Becoming a grandmother has a lot to do with it too, I have someone I really want to spoil.

No, no, no, something WAY better than cake -- Haagen Dazs with hot carmel topping! I've always liked it better than cake! Cake is only a vehicle for eating icing! Now I have the excuse to skip the cake part.

That sounds delicious and so true, I totally don't miss cakes.

I laugh out loud more often here than anywhere else, I thank you all for the giggles. They are wonderful medicine.

dlp252 Apprentice
I wouldn't get a tetanus shot for no reason ... if you let air get to a cut, the bacteria can't live. If you have one that needs stitches so air can't get to it, then I might get one, especially if I cut myself on a rusty, barbed wire fence. But I wouldn't get one just in case I needed it because if I needed it, I'd get another one anyway!

I don't know if they have thimerasol ... if I had a chance of having tetanus, I don't guess I'd care. :P

Anyway, good thing you didn't get it. :)

I'm thinking it was good too...funny, they really seemed to want to give it to me too. First the assistant who was doing the preliminary stuff like blood pressure, etc. talked to me about it. She asked if I had had any surgeries, and I said yes, two, one in 2001 and one last year in January, so she says "oh, then you probably had a booster before the one in 2001 then". I thought that was the end of it, but the doctor came in and I told her the same thing, but she really wanted me to have one, lol so I said okay. :lol:

~~~~

Hey, speaking of blood pressure...my blood pressure was 108/70, which is way up! I was thinking that it must be almost normal again cuz I haven't been so light headed lately and they were able to draw blood today without the lights going out in my head. :lol:

AND!!! THE BEST PART!!!!

I'm taller! I am 5'4"!!! Last time I was measured that I remember I was 5'3 and 1/4" :lol:

All that chiropractic/PT stuff must be working after all. :P

CarlaB Enthusiast
AND!!! THE BEST PART!!!!

I'm taller! I am 5'4"!!! Last time I was measured that I remember I was 5'3 and 1/4" :lol:

:lol::lol: Too funny!

My grandfather was short, my grandmother is 5'8". She always said tall women needed short men and vice versa, to even out the gene pool. Adam and I are both tall! So are our kids.

My grandfather had bad bow legs, and bad knees ... so he had a knee replacement, which straightened out his legs, so he was taller. Then he fell off a ladder and fused a few vertebrae, so he was short again.

Rachel--24 Collaborator
AND!!! THE BEST PART!!!!

I'm taller! I am 5'4"!!! Last time I was measured that I remember I was 5'3 and 1/4" :lol:

YAY Donna. I'm glad you are growing taller. :lol:

So thats what I need to do then...go get some PT?? :unsure:

I'm still 5'2...I have not grown at all. :huh:

Rachel--24 Collaborator

Oh...Donna....I'm pretty sure the tetanus shot does have thimersol. I got a tetanus shot awhile back...I didnt get sick from it though...I guess my body wasnt ready to break at that time. :P

Good thing you passed it up. :o

AndreaB Contributor
Andrea,

I dont know much about Cavitat.....but definately look into it first.

I did read this on LymeNET though.....

I dont know what the *real* story is on the Cavitat. I'm sending my x-rays to one of the surgeons.

Hm, I just added the Cavitat to my round of preliminary stuff. He does do extractions as well. Don't they have to be surgeons to do those anymore?

I know tuberose has stuff on cavitations. I forget how I found out about cavitat. I'll have to go back and look.

Donna,

I'm glad you didnt' get the tetanus shot. Yay and the blood pressure and height gain. :)

AndreaB Contributor

This is what tuberose has to say (and where I learned about) cavitat.

Sonic Imaging

There is a new technology that has been developed that can image the jawbone using unfocused ultrasound that provides a color-coded three dimensional representation of the density of the bone and shows loss of bone or ischemic dying bone tissue that is usually not seen on x-ray imaging. This technology, called a Cavitat, has been approved by the FDA and is now available. It has an incredibly high accuracy record in the findings of a correctly performed scan. This can be done chair-side at a dental facility so equipped. Check out the Cavitat website at www.dentalhelp.org. They have references for dentists who have cavitat devices, as well as other educational materials, etc.

Rachel--24 Collaborator

I'm frusterated...ready to pull all my hair out is more like it. <_<

I cant get through to the oral surgeon for two days now. :(

I wanna get the ball rolling on this. I was reading how cavitations can cause trigeminal neuralgia type facial pain. Even said that most cases of it are actually caused by undiagnosed cavitations.

In the beginning I had so much facial and jaw pain it was almost unbearable. They thought I might have Trigenimal Neuralgia but the neurologist ruled it out.

I had to go to physical therapy for my jaw which was kind of lame....but it did feel good to get my head and neck massaged. :P

I seriously think I got "cavitated". :angry:

I read this and it gave me hope....I hope I can be one of these success stories. :)

I can line you up many patients I have become friends with, who after addressing the teeth and cavitations, are doing fine.

That does not mean you do not have to do anything else. But it is the strongest element in the cure of any chronic disease.

My husband had Parkinsons and Lyme. I know people who had cancer and Lyme. I know people who have MS and Lyme. I know people who have ALS and have Lyme. All of them had to attend to their mouth before they were able to heal and get well.

AndreaB Contributor
I read this and it gave me hope....I hope I can be one of these success stories. :)

Wow, that's interesting! Definately keep trying to get ahold of the surgeon. Maybe he's on vacation this week and his office is closed. :)

Rachel--24 Collaborator

Andrea...I think the Cavitat has shown that basically everyone has cavitations....but mostly in the jaw bone. Obviously not everyone is sick though. So yeah....you could see someone and they use a cavitat....tell you that you have cavitations...need surgery...etc...but it actually might not be affecting your health.

Since you're not sick...I dont know that I would go through all that.

This is what one Dr. says...

Here I differ from many holistic dentists and physicians. Almost everyone has a cavitation somewhere - remember these can occur in any bone, but especially in the bones of the jaw. Use of the Cavitat confirms that just about everyone has a jaw bone cavitation.

However, I believe (and it is just a belief - I cannot back this up scientifically) that if a Cavitat demonstrated cavitation is present, but is not showing with the EAV to be having a systemic effect, I would not tend to treat it surgically if the person is healthy.

Honestly, if I were in your shoes (healthwise)...I wouldnt even worry about it. I know you are concerned about the mercury...so if you get them out safely and take stuff to help detox it....you should be fine.

Rachel--24 Collaborator
Hm, I just added the Cavitat to my round of preliminary stuff. He does do extractions as well. Don't they have to be surgeons to do those anymore?

When I had my one tooth extracted Dr. A. sent me to a surgeon for that.

AndreaB Contributor
Honestly, if I were in your shoes (healthwise)...I wouldnt even worry about it. I know you are concerned about the mercury...so if you get them out safely and take stuff to help detox it....you should be fine.

Well maybe I should cancel that part and just see if he sees anything on the xrays. I can always take care of that if I get sick down the road I suppose and I don't have money for surgeries and amalgam removal.

I guess I'll call and cancel the cavitat part again tomorrow. They're going to think I'm crazy. :rolleyes:

Clark Bent as Stupor-Man Contributor
:o I think I may have dodged a bullet today, lol. I can't do a search right now cuz I'm downloading an update from McAfee which is going to take 2 hours...can you say SLOW computer, lol. Did we talk about tetinus shots on this thread, or was it just other types of shots. Anyway, my doctor did the exam and asked when was the last time I had a tetinus shot. I couldn't remember so she wanted to give me one today. I don't know whether she forgot to write it on the lab slip or the lab just didn't see it, but I totally forgot and didn't remember until I got home. One I remembered, I suddenly had the thought about thimerasol...do tetinus shots contain thimerasol??? If so, all I can say is phew! :lol: I don't think I'll be reminding my doctor anytime soon if that's the case.

the tetanus shots do have thimerosal... it's the TT (tetanus toxoid) vaccine in table 3 on this site: Open Original Shared Link

unless you know otherwise about a specific vaccination, I would also assume that all adult vaccinations contain thimerosal... I'm sure some adult vaccs don't have mercury but the CDC only agreed to take the mercury out of pediatric vaccines (of course it's now in the flu one that's recommended for kids 6 months to 5 years annually)....

Clark Bent as Stupor-Man Contributor

donna, the other test for mercury that I couldn't remember is a test for at least certain types of porphyrins... I don't really know anything about the testing, just that they look for the presence of certain porphyrins... you can google porphyrins and mercury and get plenty of information.. I think UPPA (urinary porphyrin profile analysis) is the testing used... I think I've now written porphyrins enough that I won't forget the test again for a while B)

when I saw my nutritionist a week ago, I asked her what her opinion was on the different kinesiology-related testing... she didn't know much about bioset but she had some interesting opinions on NAET... she said that when a lot of western medical doctors start converting over to the more alternative approaches and treatments, they want to know the science behind any testing and whatnot... in the case of NAET, I guess there isn't too much firm science behind it but she was saying it's hard to argue with the results... she mentioned that in some cases people who had anaphylactic reactions to certain foods were able to eat them without incident afterwards... I'm sure it also depends on the practitioner at least to some extent...

either way, it was interesting to me as her view was in tune with what I feel about the subject as of now.. I'm still on the fence, probably mostly because I don't feel I have enough knowledge on the actual testing methods and the details behind them... but if it works and produces beneficial results (assuming I can hear that from people who have seen any practitioners I might check out), then I guess it doesn't really matter if I don't really know the reasons why...

NoGluGirl Contributor

Dear Carla,

Thanks for the mouth guard info! I am going to get me one! ;) I chew gum or put it between my teeth just to help relieve a bit of the pain and stop my teeth from rubbing each other! My jaw clenches constantly. I do not think it ever relaxes or feels right. I get headaches practically everyday.

Dear Donna,

I eat pretty frequently throughout the day, too. I hate fasting procedures! :( My blood sugar dips, and I have to eat every four hours or so. I normally eat 4 to 6 times a day, depending on how hungry I am! Some days I hardly want to eat, others I am hungry all the time!

The Marvel thing is going to take some work. I have to do the pencil drawings. Then, I have to make black and white copies. They are extremely particular about what they like, and how it is done. Everything must be as perfect as possible.

Dear Rinne,

I am intrigued. I wonder what your invention is. That will be interesting! I have some ideas for inventions, but do not have money to build prototypes and stuff. :( We are all so proud of our resident Taifun! :lol: AWWWWW! We love you too! :wub:

Dear Andrea,

I checked out the Cavitat. I was not shocked we have no one who does that here. Biological dentistry just is not mainstream here. In fact, we do not have hardly any dentists in general! The closest to our town is 3 hours away in St. Louis. :( I don't know how I could do any of this, even if my grandfather would pay.

Dear Charlie,

Thanks for the info on UPPA. That is good to look up. Mercury poisoning is tricky to test for sometimes. This seems more reliable. The vaccine info was very helpful, too. I am so glad you found this!

Sincerely,

NoGluGirl

miamia Rookie

Hey all-

First of all A happy Belated Birthday to Carla!!!

(sorry so late)

Ok quick update- everything is still kind of in flux with me I am waiting to hear from my doc on whether or not he was able to work out something with this new doctor he wants me to see about insurance issues. I did get a call earlier this week that he was working on it so I am going to call today to see whats going on.

Yesturday I had my first chiropractor appt. I decided to try this because the pain in my gut- escessive pressure is definitly putting stress on my back as well. It was interesting because he felt a lot of misallignment and especially alot of issues on my left side which is where I feel most of my pain along my rib cage in the front. The chiropractor does not take my insurance but my father goes to him and he takes his so he has agreed to just put me under my dad so I just have small co pay- isn't that amazing!! So he thinks for now I should try to come in 2 times a week and see if by ]easing some of the pain in the back I can ease some of the pain in the front. I definitly felt looser after the appt. So I am curious to see if it can be beneficial for me.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      5

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    5. - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,256
    • Most Online (within 30 mins)
      7,748

    Christie Fassel
    Newest Member
    Christie Fassel
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.