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Omg...i Might Be On To Something

Rachel--24

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jerseyangel Proficient
jerseyangel
Posted
And it's so nice, we have this place not only where "everybody knows your name," but where "everybody knows your CRAP," literally! :lol:

:lol::lol::lol:

Glad Stinker is rallying yet again! Bless her heart :)

Soooo....yesterday a customer told my boss that she needs to take me outside and SMACK ME AROUND for awhile!! :blink:

and on my BIRTHDAY even!! :o

Well, pooh on her :angry:

just a quick goodmorning to all---still reading along.

i'm off to an IV and an impromptu drs visit...having some other issues...then off to my first visit with a PT.

on top of all this, I've had D for the past four days. I think its because I added alinia for three days. Delightful.

I still owe a catch up post, but tonight we are going out of town AGAIN. The next two weekends after we are home, and I am so excited. I need to rest!

I'll write more...eventually ;). Hope everyone has a wonderful weekend. R-happy you got an app't with Dr. A.

Laura sweety, I'm sorry you're having a hard time this week--and with so much to do :(

Glad you're getting some downtime soon--try not to over do, and don't worry about writing here. We'll be here when you get the chance ;)

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miamia Rookie
miamia
Posted

Hi all

ok quick update- am having a really rough time- I have stopped the diflucan and the hormones for right now- I think they were just completly overloading my system. I have an appointment wiht my doctor on monday and we will discuss the next steps. I made a big list of stuff I want to discuss with him and it seems to keep getting longer. I kind of cant wait to get in there.

Right now i am just trying to relax- basically living with my hot water bottle on my stomach and doing castor oil packs at night.

Laura-

I did a 3 day alinia- that stuff killed me- it made me constipated instead of D though- but I always go that way. I hope you are alright.

Rachel-

I am so glad you were able to get an appointment- nice birthday gift.

Andrea-

hope everythign with T is going better.

Susie-

happy to hear stinker is doing better.

Rinne-

I think we have the same food tastes I am all about the thin crust pizza- my favorite used to be from this brick oven place in Brooklyn- so good.

Has anyone heard of the body ecology diet- I forgot the womens name Dianne something?

I know I forgot alot of people and alot of things but I will post more later

miamia Rookie
miamia
Posted

oh Patti-

I could never forget you I hope you are feeling better!!!!!

and Donna- hope your gree toes are making you happy its so weird how little things like painting your nails can make you happy- I painted my toe nails watermelon color its my favorite- I think painting my toe nails is the one "girly " thing I do

CarlaB Enthusiast
CarlaB
Posted

Hi everyone! My brain just isnt' working right, so I don't have much to say. :blink: Strange for me.

Rachel, what was the customer's problem? That you don't eat very many things? I loved retail ... I find people to be amusing. I didn't like managing apartments though ... when it's their place of residence, EVERYTHING is serious!

Once after a particularly hard day, a man came in to tell me there was a problem with his stove. He had a pan on it and the bottom of the pan blew out! :unsure: I told him I thought it was a problem with his pan, not the stove because the stove is supposed to get hot! I told him that if anything weird happenend again, then let me know ... it never did ... not with him anyway. That job caused a Lyme flare ... it was the one I'd go into and get sick.

I can't figure out why I'm not feeling as good as I was before. I had a few good hours yesterday, but went to bed yesterday afternoon for the rest of the day.

Rachel's post reminds me, I haven't felt good enough to sit out in the sun, I must do that today. We haven't had rain in so long the smog is bad. Normally we don't get this till August.

Charlie, judging by how the posts are done at Lymenet, I'd say a lot of us have trouble with large paragraphs!

jerseyangel Proficient
jerseyangel
Posted

Hi Miamia,

Probably a good idea to stop the meds for now--you don't want to get any worse. I hope that the doctor, on Monday, will have something else to offer.

It's been such a long road for you--I think about you often :)

dlp252 Apprentice
dlp252
Posted

Carla - hope you feel better soon! We're having an epidemic here aren't we?!

I am glad you finally got to paint your toes! It always makes me feel better getting pretty! I love make-up! I am getting some new make-up tomorrow. I may go to the grocery as well! They have Lay's Stax on sale! Yay!

Yes, like Mia said...painting my toes is one of the girly things I do that always makes me feel good. I only paint them in the summer though...gotta give them a break to breathe in the winter months. I also LOVE make up...only wear it on Sundays and special ocassions, but I still love to buy it. :P

Glad you got your new cookware! Cleaning is a bit easier if you put water in it while it is still hot.

Good thing I've got some muscles on me cuz these pots and pans are like weights!! I could totally work out with my cookware!!

They are multi-functional.

Do some bicep curls whilst removing the pans from the stove. :P

I swear...if someones gonna get lost...wether its in a dream....real life...whatever....its always ME!!

What is up with that?

I'm thinking it wasn't YOU who was lost but WE who lost you...as in we just didn't know where you were...or I should say I didn't know where you were, but I suspect the PT guy did. :lol: :lol: :lol:

Sleep

Choose a regular pattern of sleep. Your body and brain repair themselves during sleep. Your body sleeps better (deeper and more restful) the hours before midnight. It is best to be in bed by 10:00 p.m. If you awaken early, do not get up if it is before 5:00 a.m. Try to fall asleep again. Even if you are awake, stay in bed until after 5:00. This will help you develop a natural rhythm and pattern that your body will begin to follow. Be consistent. You should get between 8 and 9 hours of sleep every night. Also, maintain your sleep schedule even on weekends and vacations.

This was a great list!!! I do much of it already. This sleep thing is interesting. I've tried to stay to a regular sleep pattern as much as possible for the last 10 years or so (wish THAT had helped me more, lol), but these specific times are very interesting. I always go to bed at 9:00, even on weekends, cuz I have to get up so darned early during the work week...and I used to get up when I woke up, but lately I've been staying in bed until after 5:00...mostly because I just CAN'T get up, but now I'm glad I'm not forcing myself. :P

and as you've been doing, you can see improvement in symptoms without necessarily directly treating an underlying condition... this is what I was doing for the past 15 months until I finally got a diagnosis of lyme disease through a positive blood test with Igenex last month... I saw improvement in a number of areas through dieting, taking supplements, a mostly regular sleep schedule, and exercise and physical activity the past few months as I was again able to do so... so continuing along the same lines of what you're doing now might be your best option while saving up money to do some further testing...

Great ideas! I've just been doing what I can to take stressors off my body...getting enough rest (as much as I can with my horrible insomnia), eating foods that agree with my body as much as possible, etc., continuing to exercise, etc. Those are all things which really don't cost money but help.

and I am watching, whilst puttering around in the studio-slash-office, the Spelling Bee, how lame is that?????

Whic would be why you know words like Scatological! :lol:

Go Stinker, Go Stinker, Go Stinker!

Soooo....yesterday a customer told my boss that she needs to take me outside and SMACK ME AROUND for awhile!!

Hum, I have no official enactment duties in Rachelville, but I say we should have retail therapy...only instead of shopping, perhaps we can take the customer outside and smack them around. :P

I totally agree that further food intolerance testing isnt useful...it wasnt helpful for me at all. It doesnt get to the root of the problem and since with leaky gut intolerances are constantly manifesting and changing...testing isnt really beneficial...that was my experience anyway.

It was helpful for me, but only because I don't have immediate reactions to stuff--my reactions are almost always delayed and sometimes by a day or two. :P Knowing which foods were contributing allowed me to take more burden off my body by avoiding them completely. If I got immediate reactions I would have just tried my best to avoid the stuff that caused it and wouldn't have needed the testing.

just a quick goodmorning to all---still reading along.

i'm off to an IV and an impromptu drs visit...having some other issues...then off to my first visit with a PT.

on top of all this, I've had D for the past four days. I think its because I added alinia for three days. Delightful.

Hope you have a good weekend too. Hope the appointment goes well! Sorry about the D...unfortunately, I know all to well what that's like. :(

ok quick update- am having a really rough time- I have stopped the diflucan and the hormones for right now- I think they were just completly overloading my system. I have an appointment wiht my doctor on monday and we will discuss the next steps. I made a big list of stuff I want to discuss with him and it seems to keep getting longer. I kind of cant wait to get in there.

Right now i am just trying to relax- basically living with my hot water bottle on my stomach and doing castor oil packs at night.

I've heard of the Body Ecology diet, but don't know what it is exactly.

I am so sorry you are better yet!

jerseyangel Proficient
jerseyangel
Posted
Hum, I have no official enactment duties in Rachelville, but I say we should have retail therapy...only instead of shopping, perhaps we can take the customer outside and smack them around. :P

Or better yet, we Rachelvillians take her outside and open up a can of whup-a** :P That oughta teach her :lol::ph34r:

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dlp252 Apprentice
dlp252
Posted
Or better yet, we Rachelvillians take her outside and open up a can of whup-a** :P That oughta teach her :lol::ph34r:

That'll work. :P Bet we wouldn't even have to make contact....can you imagine staring down any combination of us on a bad day. :P

CarlaB Enthusiast
CarlaB
Posted
That'll work. :P Bet we wouldn't even have to make contact....can you imagine staring down any combination of us on a bad day. :P

We'll send in Susan and the Dingos! They have the stare down.

jerseyangel Proficient
jerseyangel
Posted
....can you imagine staring down any combination of us on a bad day. :P

I shudder to think.... :o:unsure::P

DingoGirl Enthusiast
DingoGirl
Posted
Or better yet, we Rachelvillians take her outside and open up a can of whup-a** :P That oughta teach her :lol::ph34r:

Patti :lol::lol::lol: And remember, this can apply to certain bosses, too, who need a good beating in the parking lot ;)

We'll send in Susan and the Dingos! They have the stare down.

:lol: *I* don't really stare that much, but

:mellow: <------ that is kind of how the dingos stare - - only you can FEEL what they're thinking, as they WILL YOU with their thoughts to get you to do things..... :lol:

morning, all. :)

oh, I posted a picture of my silly Annie, she does the CUUUUUUUTEST face when I use this certain voice, it happens when she has gotten into the recycling, and I find, say, an ice cream carton torn into hundreds of bits, or when she has taken her little raccoon hands and gotten up and gotten a bag of chips or something and rachelled the whole thing......so all I have to do is say, in a very low and menacing and slow voice - "DID YOU DO THIS????? and she slithers to the ground, curls her lips and shows her teeth - - I let her stay scared for about 10 seconds, and then say "I STILL LOVE YOU" and she immediately melts and we kiss and make up.....but the funniest thing is, if she's done something naughty, she assumes this position the minute I walk in the door - - before I've even discovered it, thereby giving herself away - - - it is the most adorable thing I've ever seen..... :)

dlp252 Apprentice
dlp252
Posted

Very cute picture of Annie!

AndreaB Contributor
AndreaB
Posted
just a quick goodmorning to all---still reading along.

Good to hear from you Laura. :) I hope all goes well with your appointments today and that you get a reprieve. Have a fun weekend, but try to get your rest as well.

We'll be here when you're able to update us. :D

Hi all

ok quick update- am having a really rough time- I have stopped the diflucan and the hormones for right now- I think they were just completly overloading my system.

Glad you are giving your body a break. Hopefully your doctor will be able to help with your questions.

T is still being very moody. Don't know if it was seeing Grandma this last weekend or the cinnamon crunch cereal or something else. She's usually worse after seeing Grandma but not this bad.

Hi everyone! My brain just isnt' working right, so I don't have much to say. :blink: Strange for me.

I would suspect the amoxy and how it was making you feel coupled with the herx you are starting. Hope you bounce back quickly.

This was a great list!!! I do much of it already. This sleep thing is interesting. I've tried to stay to a regular sleep pattern as much as possible for the last 10 years or so (wish THAT had helped me more, lol), but these specific times are very interesting. I always go to bed at 9:00, even on weekends, cuz I have to get up so darned early during the work week...and I used to get up when I woke up, but lately I've been staying in bed until after 5:00...mostly because I just CAN'T get up, but now I'm glad I'm not forcing myself. :P

I've been very, very bad about this this last year. I'm up til 12 or 1 most nights and your supposed to get the best benefits from sleep before then. I listen to messages at night if Mitch gets off the computer in time. Can't do that during the noise of the day. I probably need to try and get myself used to going to bed early and waking up early. Seems like when I tried that before Talitha would get up if she saw a light on out here. Seth is still in my room and he goes through some rough mornings at times. If I'm still in bed I can just tell him to go back to sleep. I'll have to think on this though.....it may be worth another trial run. Of course that would also mean I can't wait up for Mitch when he's late.

We'll send in Susan and the Dingos! They have the stare down.

:lol::lol:

:lol: *I* don't really stare that much, but

:mellow: <------ that is kind of how the dingos stare - - only you can FEEL what they're thinking, as they WILL YOU with their thoughts to get you to do things..... :lol:

:lol:

oh, I posted a picture of my silly Annie, she does the CUUUUUUUTEST face when I use this certain voice, it happens when she has gotten into the recycling, and I find, say, an ice cream carton torn into hundreds of bits, or when she has taken her little raccoon hands and gotten up and gotten a bag of chips or something and rachelled the whole thing......so all I have to do is say, in a very low and menacing and slow voice - "DID YOU DO THIS????? and she slithers to the ground, curls her lips and shows her teeth - - I let her stay scared for about 10 seconds, and then say "I STILL LOVE YOU" and she immediately relaxes.....but the funniest thing is, if she's done something naughty, she assumes this position the minute I walk in the door - - before I've even discovered it, thereby giving herself away - - - it is the most adorable thing I've ever seen..... :)

How cute! :D

AndreaB Contributor
AndreaB
Posted

Patti,

Are you doing a little bit better today? A lot better?

jerseyangel Proficient
jerseyangel
Posted
Patti,

Are you doing a little bit better today? A lot better?

About the same, thanks :)

Did Talitha get my email?

GRUMP 1 Contributor
GRUMP 1
Posted
Yep. :D Love that place! We also shop at Wild Oats and Fred Meyer, oh and Country Village in Longview.

I don't know Wild Oats. Do they have a good selection of stuff? Where are they at? Shop at Freddy's from time to time. Love Country Village, but they need more selection of things.

Grump

AndreaB Contributor
AndreaB
Posted
Did Talitha get my email?

Yep, she liked the pictures. :D

I don't know Wild Oats. Do they have a good selection of stuff? Where are they at? Shop at Freddy's from time to time. Love Country Village, but they need more selection of things.

Wild Oats has a decent selection. Nothing like Lingonberries since Lingonberries specializes in gluten-free stuff. Wild Oats is off exit 28 (Mill Plain Blvd), left at ramp light and down 2-3 miles. I think it's off 160th.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Thank you for clearing up the funky screen issue! I thought the forum changed its format. It was harder to keep up with everyone the way it was. It was either the outline format, or the linear one. Whatever it was, I did not like it! I did what you told me, and now it is back to normal!

Glad everythings back to normal. It happened to me once and it was not fun trying to read the threads that way.

I'll write more...eventually ;). Hope everyone has a wonderful weekend. R-happy you got an app't with Dr. A.

Thanks Laura. Glad you got the next 2 weekends for yourself and some much needed rest....you've been on the go go go...its gonna really feel good to just relax after this. :)

Well, pooh on her :angry:

Yeah...but get this....the customer that wanted me smacked around was a GUY! :huh:

He even did a demonstration of how my boss should go about this "beating". :rolleyes:

What a LOSER.

Right now i am just trying to relax- basically living with my hot water bottle on my stomach and doing castor oil packs at night.

Mia....I hope you're appt. goes well. I'll be thinking of you. :)

I know things have been really rough for you lately...I agree that the estrogen and diflucin were probably too much for your system. I think you may need to do things in baby steps....like me you are probably pretty toxic right now. Diflucin is so hard on the liver....it cant be good for someone who's already toxic.

I'm glad you stopped and can give your body a rest now.

Rachel, what was the customer's problem? That you don't eat very many things?

:lol::lol:

Noooo...it didnt have anything to do with my lack of food choices....not this time anyway. :rolleyes:

It was because it got busy up front so I went up there to open a checkstand. I pulled a bunch of people over and was starting to ring up someones groceries. This rude guy blasted over to me demanding to know where some type of wine was. He was loud and said he was in a hurry and had no time to look through all the wines...he wanted me to direct him to the location of the wine.

I know NOTHING about wine....he could probably find it faster than I could. Regardless...I was BUSY with a long line of customers and he was demanding and rude. :angry:

I told him there wasnt much I could do from where I was...I couldnt leave my checkstand...I was helping other people, etc. I could call someone to meet him on the aisle but not sure if anyone was available at that moment...all I could do from where I stood was call someone for assistance.

He said "THEN DO IT!!" "I'M IN A HURRY!!" :angry:

I called my boss...she said she knew nothing about wine. "I told her she better go help him cuz he's freaking out on me. :rolleyes:

A few minutes later I see him getting all irritated and about throw another fit in the front lobby cuz he didnt want to wait in line....my boss rang him up. :rolleyes:

So yeah...I guess he had told her she needed to smack me around. She told him "Ummm....how bout I DONT smack her around...but just talk to her instead." :rolleyes:

I really cant stand customers who come into the store and get all demanding like that because they are running late. I would NEVER go into a store acting that way....nobody is sympathetic to people who act that way.

I've had customers come in all freaking out because they are in a hurry and have this WHOLE list of groceries to buy...and are wanting ME to go around doing ALL their shopping for them because they are in too much of a hurry to look for the items they need. :blink:

I think its rude. I'm not a "personal shopper" for people who are capable of doing it themselves. Elderly or disabled people...I have no problem assisting them...rude people who are running late...ummm...PUHLEEEEEZ. :rolleyes:

People have no manners...I can be very obviously busy with a customer and have another customer step in and totally interupt...asking for my help with something.....not even saying "excuse me" or anything. Those people are alot less likely to get my help. :angry:

I know in retail "the customer is always right"....but I will NEVER let a customer get away with being disrespectful to me...or to assume that they can take their anger issues out on me because I'm wearing a store uniform. I DONT THINK SO!

So yeah...sometimes customers get upset with me when I dont cater to their rudeness. :rolleyes:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Carla - hope you feel better soon! We're having an epidemic here aren't we?!

Yeah...I stayed home from work today!! :blink:

I'm better now and might go in to get my work done but this morning my head hurt really bad, eyes blurry, dizzy, sore, etc.

I know why though...it was because I ate 3/4 of a bag of my moldy sunflower seeds last night. :ph34r:

I had only planned on eating like 2 or 3....but yeah I cant "Carla" anything.....I racheled it. I think instead of eating only 2 seeds...I ate all but 2. :rolleyes:

I knew it would probably mess me up....I even did an enema thinking maybe I could sweep out all the poison. :ph34r:

Ummm....I guess it didnt work. :P

Hum, I have no official enactment duties in Rachelville, but I say we should have retail therapy...only instead of shopping, perhaps we can take the customer outside and smack them around. :P

:lol::lol:

Yeah....that could be very therapuetic!!! :D After our "retail therapy" when we're feeling nice and relaxed....we can then go SHOPPING! :lol:

That'll work. :P Bet we wouldn't even have to make contact....can you imagine staring down any combination of us on a bad day. :P

HEINOUS!! :lol:

but the funniest thing is, if she's done something naughty, she assumes this position the minute I walk in the door - - before I've even discovered it, thereby giving herself away - - - it is the most adorable thing I've ever seen..... :)

One of my old roommates had a dog that did this. She was the most perfect dog I've ever been around....very well behaved. Her only bad habit was getting into the garbage. You could never get upset with her cuz she was just too darned CUTE about it....always giving herself away.

By the way...her name was Annie....not the dog....but her owner. :)

The dogs name was Lady....she was a golden retriever. :)

AndreaB Contributor
AndreaB
Posted
I know in retail "the customer is always right"....but I will NEVER let a customer get away with being disrespectful to me...or to assume that they can take their anger issues out on me because I'm wearing a store uniform. I DONT THINK SO!

So yeah...sometimes customers get upset with me when I dont cater to their rudeness. :rolleyes:

UNBELIEVABLE!!!! :angry: The nerve of some people. I'm in disbelief over here. :blink: I knew people were rude, but......

When I'm in a hurry I just try to get the children moving faster and cooperating. :huh:

AndreaB Contributor
AndreaB
Posted
Yeah...I stayed home from work today!! :blink:

I'm better now and might go in to get my work done but this morning my head hurt really bad, eyes blurry, dizzy, sore, etc.

I know why though...it was because I ate 3/4 of a bag of my moldy sunflower seeds last night. :ph34r:

I had only planned on eating like 2 or 3....but yeah I cant "Carla" anything.....I racheled it. I think instead of eating only 2 seeds...I ate all but 2. :rolleyes:

Uh oh. :( Glad you are feeling well enough now to consider going in for the rest of your shift though. :)

AndreaB Contributor
AndreaB
Posted
The dogs name was Lady....she was a golden retriever. :)

I :wub: golden retrievers. :)

happygirl Collaborator
happygirl
Posted

someone sent this to me:

Open Original Shared Link

tabasco32 Apprentice
tabasco32
Posted

Hi everyone again

So yeah on the skunky diarrhea, no I didn't eat any doritos I just smelled and tasted it in my brothers room not tasted it literrally but if someone is eating something salty like chips or crakers I can taste the salt. It had to be the doritos in his room. How sensitive can you be? I don't have celiac disease unless leaky gut and mercury can also mimic that! Is this for real? So I went back to my gi doctor big mistake. He says I need to eat more I am anorexic. Yeah when It hurts to eat anything! He says if I keep losing weight he will lock me up against my will and put a tube in my stomach. I showed him my mercury results test and He said it has nothing to do with what is going on with me that mercury is neurologic. He wants me to do a mercury plasma blood test. NO MORE BLOOD TEST! 10 blood test in one year, last one I fainted because I am so weak. On tuesday I am having a digestion test done. They give you some radioactive solution to drink with food or something to check how your digestion is working. Should this be safe with mercury and candida? He also wants to do an endoscopy to check for celiac? Is this safe with mercury? I haven't even had wheat or gluten for 8 or 9 months. He says I might have a lazy stomach. It empties slow or something because I get bloated on one side of my upper left abdomen after I eat. dont know.

Take care

Lisa

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
UNBELIEVABLE!!!! :angry: The nerve of some people. I'm in disbelief over here. :blink: I knew people were rude, but......

Yeah...I think it might be a "Bay Area" thing....everyones always in a rush here. <_<

I didnt realize it until I first moved to Manteca in 1999. OMG....everyone was so pleasant and everyone seemed to move at a slow pace. It was like a whole different world. :unsure:

There was farming all over....some intersections didnt have any lights...it was QUIET and PEACEFUL....I could hear the cows mooooing every once in awhile.

Its not like that anymore though....in 8 years alot of that farmland has houses now...the intersections and roads have been expanded and have lights...overpasses now go over the traintracks...I rarely hear the cows anymore and people are getting just as rude and impatient as they are here in the Bay.

Its all about lifestyle. If you live somewhere where its calm and quiet.....spend a day in a retail store over here...you would not BELIEVE it. :blink: You would gladly go home at the end of the day. :P

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      how much gluten do I need to eat before blood tests?

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I...
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    • suek54
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By suek54 · Posted

      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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