Omg...i Might Be On To Something

[Murph]

Arrgh this thing cut off most of my last post. Musta been because I snuck in the high-ACSII character for trademark right after Sidekick. (Only know the code cuz tm are my initials)

Now I forgot everything I'd written except for saying I'm a guy.

[Murph]

Murph, have you tried Bragg's Liquid Aminos? It's similar to soy sauce, but not fermented. It is gluten-free.

Aha! I'd heard of it, found it at a store, but then unsure of what I'd do w/ it, didn't buy it.

Has anyone used Bragg's in a stir-fry in place of tamari/soy sauce? Successfully?

[rinne]

Mia- That is so funny. I want to make a tshirt for all of us that says "TICKS BITE!"

...

I'd like to see one that says "Ticks Happen".

....

The amino acids and minerals are ESSENTIAL for detoxing heavy metals and other toxins. Mostly Glutathione and cysteine. These amino acids are both in the whey protein my Dr. has me taking.

I've read alot about this in the past....if a person isnt getting sufficient minerals and amino acids in their diet....it leaves room for mercury to settle in.

.....

More excellent scientificness. Thanks Rachel.

[nikki-uk]

Open Original Shared Link

I REALLY didn't know that SCATOLOGY is a REAL (not made up by Susan ) word!!!!!

EXCELLENT!!

I can't help wondering if those that say the H in herb (Brits for sure & whoever else) also say it in heir.

Loving these WORDY discussions - and we Brits pronounce heir as 'air' (silent H)

[AndreaB]

does anyone remember when we posted the C D 57 results? I am scared to go back

Reference range 60-300

<20 highly advanced 20-60 active >60 less active > 200 normal

Charlie May 07 60

Rachel May 07 78

Donna May 07 84

Bev May 07 32

Well, Andrea, you are learning this stuff well. I spoke to my nurse at the LLMD's office and she said that what I had did NOT sound like a herx, that the Lyme was flaring due to the cold. That the immune system is so overwhelmed that it couldn't keep up with it all.

I should have proofread my post......I meant that a little mercury can tie up a lot of lead. Didn't you say lead was a problem?

This test makes Enterolab's look like a walk in the park. First, there is nothing to hold the tray, which looks like a french fry container ... or a hot dog container ... like at a fair or something. Then it has to be scooped into a vial and mixed with a fluid. It might make me puke. Gross.

Eeeewwwww!!! I wouldn't want to do that either. I guess, if you don't have a choice, you don't have a choice though do you?

Aha! I'd heard of it, found it at a store, but then unsure of what I'd do w/ it, didn't buy it.

Has anyone used Bragg's in a stir-fry in place of tamari/soy sauce? Successfully?

We used to used Braggs all the time. It works real well. We also used it in Tahini Dressing, which was really good. I sold that cookbook but I can see if I have it anywhere on the computer if you're interested.

[miamia]

ok I am confused about my c d 57 results Mine is 26- any opinions

[AndreaB]

Murph,

I must say welcome to the second regular guy on the thread. We used to have others but haven't seen them in awhile. Cruiser Bob pops in once in awhile.

What testing have you done in the past? What has made you question that something else is going on?

Where do you hail from? Do you know if there are good doctors/holistic/naturopath or LLMD's around where you are?

[DingoGirl]

Hey! Anyone else like America's Test Kitchen on PBS? Nothing gluten-free there, but for me starting w/ so little cooking knowledge, it's been great.

OMG - - I LOVE that show....used to watch cooking shows back to back on sat. mornings - - and this is the reason I'm now allowed - self-imposed rule - to have expanded cable - - would watch Food Channel endlessly - - remember? it's PORN for Celiacs.....

I REALLY didn't know that SCATOLOGY is a REAL (not made up by Susan ) word!!!!!

EXCELLENT!!

Loving these WORDY discussions - and we Brits pronounce heir as 'air' (silent H)

HI NIKKI!! Yup, it's a REAL WORD!! The only word I"ve made up that people use here is HEINOSITY...there are others but haven't shared them with you guys

Bloody hot here - - - and tika is covered wtih mud - Annie knocked her over in the orchard whilst they were drinking water - - so sad. Annie is such a little savage at times! must go wash dingos....again....

[AndreaB]

ok I am confused about my c d 57 results Mine is 26- any opinions

According to what the reference ranges are you have an active lyme infection. That would pretty much go along with how you are feeling.

When did you have these done please. I'm keeping track of dates and scores so we can see how the numbers progress through treatment and see if they correlate to how everyone is feeling.

Have you been tested for co-infections? Did you ever redo the Igenex? You've probably been on enough of a lot of different things to stir everything up quite a bit.

[dlp252]

This test makes Enterolab's look like a walk in the park. First, there is nothing to hold the tray, which looks like a french fry container ... or a hot dog container ... like at a fair or something. Then it has to be scooped into a vial and mixed with a fluid.

Yep, I've done a few like this...once they gave me a container the size of a small margine tub! Um, I don't think so, lol. Last time I just covered the bowl with plastic wrap ... much larger, lol. HATE, HATE, HATE scooping it into the little fluid filled tubes!!!!

Now I forgot everything I'd written except for saying I'm a guy.

Yay, another regular guy poster! Okay, so you can have slippers other than pink if you want.

I'd like to see one that says "Ticks Happen".

ok I am confused about my c d 57 results Mine is 26- any opinions

I am not surprised! I would expect that yours would be very low just by how badly you've been feeling.

[dlp252]

Grump is a guy too, right?, so we have 3 regular male posters now...

[tabasco32]

Hi everyone

Well I was wondering if anyone knew if taking whey protein can constipate you like milk does. Milk constipates me so I am afraid to take the whey protein but I know I need it so I should just take it anyway. Are castor oil packs or vinegar oil packs or aloe vera gel ok to take right now. Hey rachel what is the name of that chicken because i can't do rosie either it gives me discharge and it is really oily and gross.

lisa

[AndreaB]

Bloody hot here - - - and tika is covered wtih mud - Annie knocked her over in the orchard whilst they were drinking water - - so sad. Annie is such a little savage at times! must go wash dingos....again....

You don't have to life these guys into the tub do you?

Grump is a guy too, right?, so we have 3 regular male posters now...

I stand corrected. Sorry Grump.

We have Charlie, Grump and Murph, along with Cruiser Bob popping in once in awhile.

[CarlaB]

Now I forgot everything I'd written except for saying I'm a guy.

That would have been my guess.

Aha! I'd heard of it, found it at a store, but then unsure of what I'd do w/ it, didn't buy it.

Has anyone used Bragg's in a stir-fry in place of tamari/soy sauce? Successfully?

I have. It's not as strong tasting, but other than that it's very similar. My favorite way to use it is on popcorn with coconut oil, butter and salt.

I just used it on sushi today. Yes, I had sushi ... I have it about twice per month ... which is good because I could eat it EVERY DAY! I do get it with brown rice though, so the only concern is the mercury.

Loving these WORDY discussions - and we Brits pronounce heir as 'air' (silent H)

So do we.

I should have proofread my post......I meant that a little mercury can tie up a lot of lead. Didn't you say lead was a problem?

You didn't have to admit it!! The pa at the doctor's office said the symptoms were from the borrelia. I even think that the babesia is becoming less and less of an issue. Can't tell you the last time I had a night sweat ... think it was when I was in Phoenix and off the meds.

ok I am confused about my c d 57 results Mine is 26- any opinions

I would have guessed low for you because you are so symptomatic. If my LLMD used it, I would guess low for me, too.

[Murph]

Loving these WORDY discussions - and we Brits pronounce heir as 'air' (silent H)

AHA! Thx for clearing that up for me!

I think it was Ricky Gervais I saw on Leno joking that the Brit way of saying herb was right cuz "u can't ignore the H!".

Wish Jay had brought up heir. He also made fun of his own pronunciation of aluminum as aluminIum. Pretty weird to throw in an extra syllable, imo. Y'all don't mess w/ platinum that way do ya? I'll guess no.

[Mtndog]

ok I am confused about my c d 57 results Mine is 26- any opinions

If I'm a 32 and you're a 26 then that must mean we both have a whole lotta Lyme. I feel pretty consistently bad these days so i would imagine if you are a 26 you do too.

Mirror mirror on the wall

who's the Lymiest of them all?

Hugs Mia! :wub: :wub: :wub:

[Murph]

Murph,

What testing have you done in the past? What has made you question that something else is going on?

Where do you hail from? Do you know if there are good doctors/holistic/naturopath or LLMD's around where you are?

I grew up in Mt. Prospect, IL, just a couple miles outside Chicago (Go Bears!) but spent most of my adult life in the bay area - San Jose & Fremont. Right now I'm in Phx, where the forecast is 107/108F today! Ugh.

Was diagnosed w/ celiac when I was 2 or 3, in the 60s. Oh so unfortunate for me at the time the prevailing wisdom was that I'd "grow out of it" and be fine until a possible problem "when I got old". So I guess "old" was 35, when I think it got triggered by the death of my little brother. Things had gotten so bad that I thought I was months away from needing institutional care. There's much of it that I still can't think about w/out beginning to cry so you'll have to forgive me for leaving out a great deal of the story. I'd been mostly wheat-free for awhile but the worst symptoms only got worse while new symptoms were tacked on until I went seriously 100% gluten-free.

After some months w/ digestive symptoms remaining I did a York Labs food panel of 116 foods. When it came back yeast I quickly (well maybe 6-8hrs online) became convinced it was candida. I started that diet and got a Naturopath appt the next day and have felt much better ever since.

The trouble now is mostly fatigue and a bad back, tho there can be occasional digestive issues and brain fog.

Actually, the day I came back I also started going soy-free, as a test since the last time I was unintentionally soy-free it seemed my brain worked better. Sadly, that was for my other brother's memorial last year - in a part of Alaska where even a regular store was an hour away, much less anywhere to find soymilk or soyDelicious fake ice cream. (Just the 3 or so 'fruit-sweetened' varieties w/ no vanilla)

Yikes I'm typing a lot.

Oh yeah . . . doctors. I've recently found 3 in the area that are worth a look. NDs mostly. Like most of us, I've had terrible experiences w/ MDs.

[CarlaB]

Murph, I take NT Factor for fatigue. It helps a lot. Donna takes it, too. You have to get it through a doc, so maybe one of your naturopaths can get it for you.

We spent several days in Phoenix about a month ago. You were having a cold snap, so the weather was beautiful!!! Low 80's I believe. Every restaurant I ate at went out of their way to take care of me ... of course, we were being entertained by vendors so they were all rather pricey.

I got my new sauna part today!! Just took one. I'll be gone for a while now, lots to do tonight. Catch you all later.

[AndreaB]

I grew up in Mt. Prospect, IL, just a couple miles outside Chicago (Go Bears!) but spent most of my adult life in the bay area - San Jose & Fremont. Right now I'm in Phx, where the forecast is 107/108F today! Ugh.

Those temps sound unbearable to me. Rachel would probably love them though.

Monsoon season is coming up too isn't it? I thought that was July/August.

I was down in Tucson visiting my dad last November. He passed away in February. November is a nice time to be down there. We got spoiled by the warmth and then came home to snow/ice. We hardly ever see any but it had to choose that weekend to get cold.

I'm sorry about your brothers.

I only mentioned doctors in that list because some people still like theirs. I have an MD gone holistic so it's kinda the best of both worlds. He's no longer affiliated with any hospitals though, so I guess he's more holistic.

[DingoGirl]

You don't have to life these guys into the tub do you?

no silly in the warm weather, I just hose them off. Full bath every couple of weeks, a hose-off the rest of the time.

Pretty weird to throw in an extra syllable, imo. Y'all don't mess w/ platinum that way do ya? I'll guess no.

speaking of extra syllables, people always add an extra one in MISCHIEVOUS - - which is a three-syllabled word - MISS-chi-vus - - - and they always say miss-CHEE-vee-us. OH!!!! and guess what else? my favorite word - - - it is pronounced, as we know, HAY-nus (although HEE-nus is correct also) but sometimes people say - HAY-nee-us - adding that syllable! Makes me daft...

I am wondering, Murph, if we should start a separate thread for parsing and such.....words and usages that drive us crazy (like our President (GDub, not Rachel ) saying NUKE-you-lar.....

Hugs Mia! :wub: :wub: :wub:

well you are one of the SILLIEST Lymies of all!

Murph - you've lost TWO brothers, then? I am so sorry. these stresses on the body can be too much to bear.......

[Rachel--24]

It literally feels like the heat goes up into my head and causes pressure--that's the only way to describe it. Rather overwhelming...

Yeah...that actually happens to me too...but only if I overdo it. It doesnt really happen from the weather....only when I would go to the gym and spend like up to an hour in the sauna. I would come out for breaks but then get right back in.

It was intense heat and then eventually I would feel my head pounding and there would be a ton of pressure...veins buldging out, etc.

Its the same thing that would happen when I'd get a very bad reaction to something like say MSG in processed food. If I went out to dinner I would always end up with these type reactions.

Now I'm thinking all that time in the sauna probably mobilized some mercury or other toxins and my immune system responded....cuz thats what it does....it reacts to everything....including the metals, candida toxins, etc. So my immune system was reacting to something after I let myself get overheated.

[tabasco32]

mia

that stuff you use for constipation, is it good and do you use it everyday? What do you do or take for this problem

thanks

lisa

[Rachel--24]

I did it when I started the IVs...for a couple weeks, maybe?

Laura....How did it go for you??

Any noticeable difference? Bad reactions??

And, to me, the Frequency kHz part is pretty goofy. I've taken far too much physics and materials science to buy into that.

Hmmm....I'll have to look at the page again. I've only ever looked at the foods to avoid list...I dont recall anything about Frequency kHz ....I probably didnt read far enough down the page. I'll have to check it out later.

Dr. S has me on a liquid glutathione...I've read that same article about it that you posted and was wondering why he has me on the oral...he DID say that if I have gut issues we can do IVs for most of this stuff. He did not put me on any of the precursors I don't think...didn't see any of mine mentioned in that article.

Yeah...I'm thinking he probably does use the IV's for glutathione so I'm gonna ask him...I think I see him in about 3 weeks.

Now I forgot everything I'd written except for saying I'm a guy.

I had already figured that.

[Rachel--24]

ok I am confused about my c d 57 results Mine is 26- any opinions

I would say that you have a pretty active case of Lyme Disease....you have the lowest cell count posted here so far.

Did your Dr. say anything to you about this?? He didnt explain what the results mean??

Basically its an indication of how well your immune system is dealing with Lyme. The lower the number the more difficult it is for your immune system to fight off the infection.

My CD57 was 78.....which means my immune system is keeping Lyme in check for now...its dealing with it. My LLMD is happy with this number but ultimately he would like to see my count above 100....probably closer to 150.

The CD57 goes up when the infection is under control by the immune system. If you feel better but still have a low CD57....the chances for relapse are high....it means that your immune system isnt ready to handle the infection on its own.

The only thing known to suppress the CD57 cells is Lyme Disease.

Heres some info about the test (from Scotts site)...

CD57 - We have all likely heard of people with HIV/AIDS getting their T-cell counts or CD4 cell counts checked on a regular basis. Current information suggests that there is a similar population of NK (natural killer) cells called CD57 cells that are known only to be suppressed in the presence of Lyme disease.

Generally guidelines are that a score of < 20 indicates advanced or highly active Lyme disease.

Scores of 20-60 are indicative of active Lyme disease where scores > 60 start to suggest that the Lyme infection is less active. A normal test result would be > 200.

It is my opinion that treatment is necessary until the CD57 test score is 150 or above. The lower the result, the more likely a relapse if treatment is terminated.

The test can be an indication of progression of disease or of progress in treatment. However, it should be noted that it is not uncommon to see only small changes in the results until the end of treatment where the results often then jump quickly to higher levels.

For now, it is my opinion, that this test can both be used as an indicator of Lyme disease presence and as a marker for when to consider stopping treatment.

With everything that you've gone through and are still going through...I think it might really be important for you to see an LLMD...if at all possible. You're really going to need someone very knowledgeable to get you through this and to take the proper steps to get you well again.

Has your Dr. tested you for co-infections....heavy metals...or all the other stuff associated with Lyme? You're gonna have to get a good picture of whats going on so that you can start moving in the right direction with treatment. I'm assuming you're not on any Lyme treatment right now??

[Rachel--24]

Are castor oil packs or vinegar oil packs or aloe vera gel ok to take right now. Hey rachel what is the name of that chicken because i can't do rosie either it gives me discharge and it is really oily and gross.

I do castor oil packs....I'm not familiar with the others but castor oil packs are good.

Lisa....the chicken is "Wise Organic Pastures". I found it frozen in the meat dept. at Whole Foods.

Mirror mirror on the wall

who's the Lymiest of them all?

LOL....Bev....you are a NUT!!

I think I might be the most "poisoned" but I'm definately not the Lymiest.

Murph....Wow...I'm sorry for all you've gone through.

This is a very supportive thread...we sometimes pour our hearts out here....break-ups, deaths, family problems...we've been comforting each other for over a year now....through all the rough stuff that we've encountered. There are some great "listeners" here.

Just wanted to say if you ever need a place to "get stuff out"....we're always here.