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Recent Activity
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- trents replied to lizzie42's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7
Confusion about my son's results
Most doctors don't even order anything besides the tTG-IGA and maybe total IGA when doing blood testing for celiac disease. The EMA is the very first celiac blood antibody test that was developed and has largely been replaced by the tTG-IGA which is less expensive to run in the lab. My understanding is they both pretty much check for the same thing. The IGG... -
- lizzie42 replied to lizzie42's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7
Confusion about my son's results
But yes seeing all those negatives does give me a bit of doubt! I feel confident but those results give me a seed of doubt. Especially since it's a lifelong diet for him! -
- lizzie42 replied to lizzie42's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7
Confusion about my son's results
When I originally posted I hadn't talked to the pediatrician yet and didn't realize about the budosinide. Now I feel pretty confident. I was concerned that all of the tests didn't come back positive - that seemed kind of ambiguous to me. I didn't realize that was common. Do a lot of people on here have a positive tTG but negative other tests? I thought the... -
- trents replied to lizzie42's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7
Confusion about my son's results
@lizzie42, So, I'm confused with what you are uncertain about. Do you really have any doubt that your 5 year-old son has celiac disease? Is it because he isn't exhibiting anemia and the rash as did your daughter? The genes are certainly there and the antibody testing certainly indicates celiac. And given the fact that he was on a reduced gluten diet... -
- lizzie42 replied to lizzie42's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7
Confusion about my son's results
These are my sons results. My daughter was high positive on everything and maxed out the tests in addition to being anemic, bad rash, etc. Yes, he has been eating mostly gluten free (not completely). He was also on a high dose of budosinide at the time of testing due to some asthma and sickness. I didn't realize that affects the results. This...
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