Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

mftnchn Explorer
mftnchn
Posted
I'm glad my PA appt was delayed so I could have a good feel for how I feel today before I talk to her. I didn't start back on herbs/meds till I hear what she has to say. I'm hoping for a cholestyramine/actos detox as Dr. Shoemaker recommends in his videos.

I'll update you all later.

Glad you are a lot better, hope you can get the meds you need with the area hit so badly.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
mftnchn Explorer
mftnchn
Posted
Hi everyone!

I had a question. My stepdad had lyme disease about 20 years ago. He found it quick and was treated with abx. Hadn't had much problem since. Now he has atrophy in the frontal lobe indicating alzheimers. He's 81 now. He doesn't have any other symptoms to indicate that lyme could be causing any nuero symptoms.

Do you guys think that should be checked? He does have lots of fillings and dental work. I KNOW they probably won't do anything about that though. Just wondering which direction I should send my mom in. He's really healthy except for the neuro stuff and some cholestorel problems.

I'd agree with Carla. It could be that he didn't have a long enough abx treatment and as he is aging his immune system can no longer keep it at bay.

It could be that treatment might give him a number of great years still.

mftnchn Explorer
mftnchn
Posted
Sherry,

That is interesting how much better you feel on the Zith. Are you on a 2 week on/2 week off schedule with that?

Yes, I am alternating Zith and Enula on a two week schedule to try it for 2 months. My LLMD would like me on both but ART says I shouldn't so he wants to try this first.

ShadowSwallow Newbie
ShadowSwallow
Posted

Our power went out for about 18hrs yesterday. It's back on now. I have no idea what would happen if it went out for a week! :o We'd probably end up moving into a hotel for a while, since we have a well our water goes out with our power.

Kassandra,

So glad you're making progress!! :lol: 45-55% days are awesome!!!

Carla,

Glad you're feeling better.

Paula,

I hope this detox sticks! Hang in there!

Donna,

Glad the consult went well. Hope the surgery goes well. :wub:

Today I went and toured the college I hope to attend... rather torturous walking through the cafeteria, but I'm hopeful that by next year I'll be eating "normally" again. :) Really puts the pressure on, though! :lol:

Birdy

mftnchn Explorer
mftnchn
Posted
I really liked the surgeon. He made me feel much better.

The surgery is going to be major surgery (he called it "top of the line" LOL), but still not the really scarey one unless he gets in there and can't get the tumor out for some reason. They'll definitely have to reroute the pancreatic and bile ducts, and maybe some of my intestine (just to help with digestion if the swelling is too bad at the surgical site). In any case the incision is big, from chest to abdomen. :( He said something about putting the IV in my NECK!!! That scares me more than the surgery, lol.

The scarey version involves taking out a portion of the pancreas and a bunch of other stuff you'd generally not want done, lol, so I hope that isn't necessary.

:o Donna you have/are going through a lot!!! This is scary, but glad you like the surgeon. I find surgeons can be very offhand and not personable at all.

Sherry

CarlaB Enthusiast
CarlaB
Posted
There is a lot of research and documentation that supports this. I think that when we are holding back on the emotional things--with denial or whatever like you mentioned Kassandra--we also don't connect that we are in this category. We can block out whole incidents or block out the significance of them or whatever. Then not connect that we need to deal with it.

This is my experience. Very interesting the other stuff you wrote. :)

Our power went out for about 18hrs yesterday. It's back on now. I have no idea what would happen if it went out for a week! :o We'd probably end up moving into a hotel for a while, since we have a well our water goes out with our power.

Yeah, where we used to live we had a well. When the power would go out, we'd go get buckets of water from the pond to flush the toilet with. We'd have to buy bottled water to drink. We bathed in the pond (very, very clean, clear water). We were without power for several days at a time quite often because we were the second to the last on the line coming from the power company.

Glad yours is back on. :) Ours never went out, but much of the city is without power still.

mftnchn Explorer
mftnchn
Posted
I'm feeling much, much better today .... not back to where I was yet, but I'm on the upswing. But my rash on my forehead and chin is bad. One of the "blisters" is really bugging me.

I find this curious because after my mold shot reaction I have had a rash area on my hairline, and more facial breakout. The rash is very unusual for me and it is sort of like what you describe.

Sherry

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


aprilh Apprentice
aprilh
Posted

Off Topic:

Please everyone, go online or write or call your senator and ask them to vote YES for the Protect Our Children Act #1738 2008. The bill will be voted on 9-26-08. If approved, this bill will fund law enforcement agencies around the US to catch child predators who are using the internet as a means to show and view child rape and molestation.

Right now we don't have enough law enforcement officers working on the thousands and thousands of cases that come along everyday!

We need this bill to pass!

Here is more information if you wish to look into further. And more information about how to find and write your senator.

Open Original Shared Link

confused Community Regular
confused
Posted

Hello everyone, just popping in for a few. I have been up most of the night. Our neighbors came over at a little over 11 to tell us that there was a major water break. There was so much water everywhere. We had to move cars and then like 10 of us stood outside til about 2 am. The cops here are jokes, they were the first ones here and they just stood there and looked at all the water. Then the city came and they were so happy to be out there lol. Then we had to call excel to find the gas line. The road around the hole has pretty much caved in. The water that was gushing out was the worst smelling and looking water i have ever seen. No matter I am so sick.

I did make it to my sons first football game yesterday, i was so proud of myself. I am not sure how I am feeling today cause I am so tired.

paula

ill respond to other post when i can think straight im so behind on everything

dlp252 Apprentice
dlp252
Posted

I am totally freaking out about the IV in the neck, lol. I can't get past that! :lol:

:o Donna you have/are going through a lot!!! This is scary, but glad you like the surgeon. I find surgeons can be very offhand and not personable at all.

I've been so lucky with all my surgeons, lol. The doctors in this medical group have all been very personable.

AndreaB Contributor
AndreaB
Posted

Paula,

Hope you are/were able to get some rest. :o on the water!

AndreaB Contributor
AndreaB
Posted
I am totally freaking out about the IV in the neck, lol. I can't get past that! :lol:

I don't blame you one bit. There's got to be a better area to put an IV......like your hand? I don't understand why it has to be in the neck. Talk about a pain in the neck! :lol:

dlp252 Apprentice
dlp252
Posted
I don't blame you one bit. There's got to be a better area to put an IV......like your hand? I don't understand why it has to be in the neck. Talk about a pain in the neck! :lol:

I didn't catch the why of it all, lol, but I did a search today, and from what I've been reading, it's probably because there'll already be one in my hand, lol. :o

AndreaB Contributor
AndreaB
Posted
I didn't catch the why of it all, lol, but I did a search today, and from what I've been reading, it's probably because there'll already be one in my hand, lol. :o

:o:huh::o:ph34r::blink:

nora-n Rookie
nora-n
Posted

I am looking at the photos of the devastations after Ike, they posted some links in the hurricane Ike thread at the delphi celiac forum.

Several people post from Huston and around Huston, and they have family and houses in Galveston and Bolivar. They say reporters are not allowed to Bolivar , or take photos because there are too many bodies around , like in trees and everywhere. hundreds of bodies. Plus those in the debris on the ground.

One posted her uncle's house in Galveston is not flooded.

I gather millions are without power not just in texas, but nothing in the news here like after katrina, when BBC Prime and CNN were showing the damage for days, and our channels too. They just talk about the AIG and the other financial bank problems every hour.

nora

CarlaB Enthusiast
CarlaB
Posted

Nora, that is NOT TRUE! It's pure hearsay. The gov released sattelite pics so clear that I could find the slab of where my Mom's beach house used to be on Crystal Beach. The news reporters flew over and took videos. No one can get to the island because there is no way to get there ..... the ferry is closed. The bridge to Galveston is out.

Here are plenty of detailed pictures, all taken by air. Open Original Shared Link

Also this. Open Original Shared Link

You can read about power restoration here: www.centerpointenergy.com There are still 66% without power as of this morning. Heck, there are a half million here this morning, in Ohio, still without power. Adam's office still has none.

nora-n Rookie
nora-n
Posted

I read they could also make out the missing houses on google earth. Have not tried it. There is said to be a tiger loose too.

About the bodies and reporters not being allowed to publish pictures of bodies, it is in the second half of the Ike thread. There was a lot of pressure to get permission to even let the media fly over the areas and take pictures and videos according to postings in this thread too. Go over there to check if you want. It is in the kitchen table off topic folder.

nora

CarlaB Enthusiast
CarlaB
Posted

There is a man with a lion locked up in a Baptist Church. They are not going to try to make him leave as the emergency people understand who's the highest on the food chain! The man collects exotic animals.

I don't know what website you are talking about, sorry. I do know that the only way my family is getting news is from people texting them so I'm sure there are a lot of rumors going around.

I know there is always media coverup with this kind of thing. Obviously there are thousands of people they haven't accounted for .... 140,000 stayed .... they have found 2 or 3 thousand?

dlp252 Apprentice
dlp252
Posted
Here are plenty of detailed pictures, all taken by air. Open Original Shared Link

Wow, those pictures are amazing. I wish I knew my online friend's address. I had it at one time, and she sent me a package once, but I can't find it here at work.

AndreaB Contributor
AndreaB
Posted
Here are plenty of detailed pictures, all taken by air. Open Original Shared Link

I just checked this link at this time. Boy, that's a lot of damage! Is this worse than Katrina was as far as damage? Looks like it.

CarlaB Enthusiast
CarlaB
Posted

I don't know that it's necessarily as bad as Katrina, though it might be. Crystal Beach was a vacation community where all the houses were on stilts. Then again, it's amazing that the roadways were as washed out as they were. I can't believe people stayed on these beaches. I've been there.

What really amazes me is the high rise downtown with nearly all the windows on one side blown out!!!

I don't know if it's as bad as Katrina, I guess we'll find out. It seems that Katrina's biggest issue was the levy?

tabasco32 Apprentice
tabasco32
Posted

Hey Andrea

Happy belated birthday!!! ^_^ I am as well going to the Old Spaghetti Factory next Tuesday with about 30 women from church, so not looking bored and dumb because I can't eat much, what did you have and what seems to be the safest thing on the menu to get??

AndreaB Contributor
AndreaB
Posted
Hey Andrea

Happy belated birthday!!! ^_^ I am as well going to the Old Spaghetti Factory next Tuesday with about 30 women from church, so not looking bored and dumb because I can't eat much, what did you have and what seems to be the safest thing on the menu to get??

I don't know what all you can handle with food. We always get the gluten free pasta, which is corn. Then we either get the marinara (with or without mushrooms) or the Mizithra cheese. We usually get salad with pesto dressing as that is gluten free as well.

tabasco32 Apprentice
tabasco32
Posted
This is my experience. Very interesting the other stuff you wrote. :)

My experience as well on the emotional blockage. Dr. M. said that I was dealing with emotional trauma and blockage. So I went to a psychiatrist or couselor and we uncovered a whole bunch of stuff under the roughage.

Things I never really knew about. I don't go anymore, but I should. She thinks I was, you know, the M word when I was a child. :( I still see little clips of my past as a little girl but something really blocks out a lot. I feel like if I can get through this all this stuff in me will just leave.

AndreaB Contributor
AndreaB
Posted

Lisa,

I'm sorry to hear you had to go through that as a child. :(

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Seeking advice on potential gluten challenge

      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced. Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well. Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside...
    2. Wheatwacked
      - Wheatwacked replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Have I got coeliac disease

      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins...
    3. Jmartes71
      - Jmartes71 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Gluten tester

      I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that...
    4. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Seeking advice on potential gluten challenge

      Oops! @Staticgypsy, I’ll get the book! Thank you!
    5. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Seeking advice on potential gluten challenge

      Thank you so much for your help, @trents and @Staticgypsy! I so appreciate your thoughts. My diet is high in foods with oxalates and I don’t notice any issues there. If eliminating gluten from my diet had changed anything I’d be happy to just keep on the gluten-free diet, but with eating gluten several times with no rash, and having a rash when I was man...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,150
    • Most Online (within 30 mins)
      7,748
    gingerc
    Newest Member
    gingerc
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced.  Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well.  Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside of Celiac, too.  Symptoms can wax and wane depending on dietary intake.  I knew an alcoholic who had the "boots" of Pellagra, which would get worse when he was drinking more heavily, and improve when he was drinking less.   Niacin deficiency is called Pellagra.  Symptoms consist of dermatitis, diarrhea, dementia, and death (the four D's).  A scaly rash on the feet and hands and arms are called the "boots" and "gloves" of Pellagra.  Darkened skin around the neck exposed to the sun is Casal's necklace.  Poor farmers with niacin deficient diets were called "red necks" because of this.    Does your rash get worse if you're in the sun?  Mine did.  Any skin exposed to the sun got blistered and scaly.  Arms, legs, neck, head.  Do you have dry, ashy skin on your feet?  The itchiness was not only from the rash, but neuropathy.   My doctors were clueless.  They didn't put all my symptoms together into the three D's.  But I did.  I'd learned about Pellagra at university.  But there weren't supposed to be deficiency diseases anymore in the developed world.  Doubtful it could be that simple, I started supplementing with Niacin and other essential nutrients.  I got better.   One of Niacinamide functions is to help stop mast cells from releasing histamine.  Your allergist gave you doxepin, an antihistamine which stops mast cells from releasing histamine.   Since you do have a Celiac gene, staying on the gluten free diet can prevent Celiac disease from being triggered again.   Interesting Reading: These case studies have pictures... Pellgra revisited.  https://pmc.ncbi.nlm.nih.gov/articles/PMC4228662/ Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Cutaneous signs of nutritional disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8721081/#:~:text=Additional causes of yellow skin,the clinical features of Kwashiorkor.   Hello, @Staticgypsy, I would not recommend cutting so many nutritious foods out of ones diet.  Oxalates can cause problems like kidney stones, but our bodies can process oxalates out of our systems with certain vitamins like Vitamins A and D and Pyridoxine B 6.   People with Celiac disease are often low in fat soluble vitamins A and D, as well as the water soluble B vitamins like Pyridoxine B 6.  Focus on serving your granddaughter nutrient dense meals to ensure she gets essential vitamins and minerals that will help her grow. Micronutrient inadequacy and urinary stone disease: an analysis of the National Health and Nutrition Examination Survey 2007-2018 https://pubmed.ncbi.nlm.nih.gov/36976348/ Multivitamins co-intake can reduce the prevalence of kidney stones: a large-scale cross-sectional study https://pubmed.ncbi.nlm.nih.gov/38564076/
    • Wheatwacked
      Have I got coeliac disease

      By Wheatwacked · Posted

      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins and minerals.  Low or deficient  Vitamin D is almost always found in undiagnosed Celiac Disease. "Over 900 genes have been reported as regulated by vitamin D"  Possible Role of Vitamin D in Celiac Disease Onset  "The overall prevalence rate of vitamin D deficiency was 41.6%, with the highest rate seen in blacks (82.1%), followed by Hispanics (69.2%)."    Prevalence and correlates of vitamin D deficiency in US adults
    • Jmartes71
      Gluten tester

      By Jmartes71 · Posted

      I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that food smell of nasty gluten- migraine and same with Walmart subway.I absolutely HATE im that sensitive, my body reacts.Sadly medical hasn't taken core issue of celiac being an issue considering glutenfree ever since 1994 and in their eyes not because they didn't diagnose me. I am and wish I wasn't. If there was a detector of gluten in the air it would make a world of difference. 
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Oops! @Staticgypsy, I’ll get the book! Thank you! 
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much for your help, @trents and @Staticgypsy! I so appreciate your thoughts. My diet is high in foods with oxalates and I don’t notice any issues there. If eliminating gluten from my diet had changed anything I’d be happy to just keep on the gluten-free diet, but with eating gluten several times with no rash, and having a rash when I was many years into gluten-free eating (and was much more careful at that point), I’m just baffled. Many, many thanks to you both. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.