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Omg...i Might Be On To Something

Rachel--24

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jerseyangel Proficient
jerseyangel
Posted

Laura, Very important question--what color was your dress for the wedding? I can't tell by the picture. Did the bridesmaids wear the same color?

I like to picture things :unsure:

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Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Rinne, if the girl is 16, can you approach HER and not her parents? GIve her lots of celiac.com info, and most importantly, tell her YOU BELIEVE HER and that you know what she is going through. Does she have a website on Lame Advertisement? Maybe there's a way you can email her? And you can ask her to tell her parents that SHE came across these things on the internet (sort of true, right?)--she would certainly undestand that you don't want to destroy your relationship with her parents. Maybe she can even bring celiac.com downloads to the school nurse and hope that the school nurse has some sense?

Just a thought--I really don't have a clue how your friend's mind works, so sorry if this is off the mark.

CarlaB Enthusiast
CarlaB
Posted
Evie, I am hoping to see you back on and know that you are at home and hopefully doing better. We are all thinking about you and praying for you. I hope the doctors treat you well and help you find some relief.

i've been reading .... rinne and carla, in particular, i am thinking about you both. xoxo

Thank you. :)

You look beautiful in that picture. I know you're concerned about your weight, but you carry "the lack of it" very well!!!

dlp252 Apprentice
dlp252
Posted
I haven't been through what you guys (or should I say gals :) ) have either, but I still like to try and be there for everyone.

Rachel has been sweet enough to educate me on some things too.....which is nice.

Still learning and bookmarking pages for further reference.....as long as my computer doesn't die. :blink:

I sometimes feel the same way...I don't have nearly the problems that many on this thread do, but I do feel like I might be headed there, so this thread is just a life saver for me! I don't know what I'd do without YOUR support!!!

Well girls and ocassional guys, I've tried to read the last 4 pages, but can't remember a single thing...THOUGHTS DINGOED BIG TIME...hopefully work will be slower tomorrow so I can reread. Some of the things posted by Rinne and Rachel were really good. I cut and pasted some of the mercury stuff into my running mercury info document.

I survived my day yesterday and the singing went well, lol It was a long day and there were times when I actually didn't think I would make it--almost asked them to just take me home. Several times I felt really light-headed and almost nauseated. The car was really hot, and I think that just didn't help.

First was church...had to be there by 7:30 to rehearse our small group song, then at 8:00 was rehearsal for choir stuff...service starts at 9:00, lol. :blink: Then our church is participating in the Beautiful Day ministries, and my friend and I have been helping them at the information table, so after the service did that for a while. Then it was off to my friend's house (ate in the car on the way over to her house), where we waited for her friends to pick us up...we went to see The King and I at the San Jose Center for Performing Arts...it was fun...very nice show. Then we went to dinner at Outback--they picked that place because they have gluten-free stuff for me!

I didn't get home until 6:30 and was just exhausted. Took my blood pressure cuz I could just tell it was down--91/55. I made sure I drank plenty of water throughout the day, and as hectic as my day sounds, I actually ate well, lol.

Laura, Very important question--what color was your dress for the wedding? I can't tell by the picture. Did the bridesmaids wear the same color?

I like to picture things :unsure:

Yes, very important!!! :lol: Oh, and one of the things I forgot was to say that Laura's new picture is absolutely BEAUTIFUL!!! Wow!

rinne Apprentice
rinne
Posted
Rinne, if the girl is 16, can you approach HER and not her parents? GIve her lots of celiac.com info, and most importantly, tell her YOU BELIEVE HER and that you know what she is going through. Does she have a website on Lame Advertisement? Maybe there's a way you can email her? And you can ask her to tell her parents that SHE came across these things on the internet (sort of true, right?)--she would certainly undestand that you don't want to destroy your relationship with her parents. Maybe she can even bring celiac.com downloads to the school nurse and hope that the school nurse has some sense?

Just a thought--I really don't have a clue how your friend's mind works, so sorry if this is off the mark.

I think you are totally on the mark :) but maybe cause some of what you suggest I have already done. In the summer when I first learned of this she and I talked and I made it very clear to her that I completely believed her. I also told her about Celiac.com at that point so it is possible that she has visited. When I see her again, and I am going to make a point of it, I will get her email address. That's a great suggestion, thanks. :)

Yes, where is Richard?

I've started the Samento for the treatment of Lyme and the information I am finding says that it is good for all autoimmune disorders.

Some of the beneficial properties of Samento are attributed to the pentacyclic oxindole alkaloids(POAs) that are found in the plant that act on the cellular immune system and demonstrate powerful immune system modulating properties. SAMENTO does not contain the tetracyclic oxindole alkaloids (TOAs) that are found in traditional Cat's Claw. TOAs disrupt central nervous system function and greatly inhibit the effects of the POAs.

Some researchers believe that Samento may be as much as 1000 times more effective than Cat’s Claw. One difference between Samento and Cat’s Claw is that Cat’s Claw is an immune system stimulant and Samento is an immune system modulator. Also, Samento can be used to treat all autoimmune disorders; this is not the case with regular Cat’s Claw.

In May 2005, pharmacological studies were conducted in laboratory rodents at the University of Guayaquil . The anti-inflammatory effect study showed that Nutramedix Samento extract inhibits inflammation by 83.8%.

There are no known contraindications, no known side effects and no known interactions with other drugs when using Samento. In May 2005, toxicology studies were conducted on Nutramedix Samento at the University of Guayaquil, Ecuador. No toxic effects were reported even when laboratory rodents received 120,000 times the equivalent human dose.

Open Original Shared Link

I wonder if anyone has used Samento for Celiac disease. <_<

AndreaB Contributor
AndreaB
Posted
I survived my day yesterday and the singing went well, lol It was a long day and there were times when I actually didn't think I would make it--almost asked them to just take me home. Several times I felt really light-headed and almost nauseated. The car was really hot, and I think that just didn't help.

Your day sounds tiring to me. Glad you had a good time and that was nice of them to pick Outback for you.

happygirl Collaborator
happygirl
Posted

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rinne Apprentice
rinne
Posted

Open Original Shared Link

"Samento from the Peruvian rainforest is a favorite for stimulating the immune system. Worldwide research done on this powerful herb has led scientists to patent many of the single chemicals found in it for use in healing cancer, arthritis, AIDS and other diseases. However, traditional wisdom shows that using the whole plant can be far more powerful than any one isolated ingredient. Dr. Brent W. Davis referred to Samento as "the opener of the way" because of its remarkable ability to cleanse the entire intestinal tract. Because of this ability, Samento can be used for Crohn's disease, hemorrhoids, parasites, leaky bowel syndrome, ulcers, gastritis, allergic disorders, diverticulitis, stabilizing intestinal flora and other gastrointestinal issues.

It would seem that Samento would be good to take for quite a variety of problems including Celiac.

AndreaB Contributor
AndreaB
Posted

Aw Laura, I'm sorry. :(

Together we'll try and help you find the answers and regain your health and vitality that goes with it.

dlp252 Apprentice
dlp252
Posted
Changing subjects....kind of .... but because of my issues and my weight loss (97 and dropping), my monthly friend has now stopped. Sniffle. (And yes, I tested to make sure it was not for other reasons). I was shocked, but my mom said she was just waiting for it to happen, basically. I am losing my curves, have no fat, no boobs, and now, no period....... :(

:o Wow! That must be a little scarey! I'll be so happy when your testing is done! Thinking of you!!!

happygirl Collaborator
happygirl
Posted

x

dlp252 Apprentice
dlp252
Posted
x....

I couldn't remember if you had already started, but it seemed like I remembered it was right after the wedding...praying it really won't be bad at all! I say do whatever you can to pamper and take care of yourself...do nothing, sleep, watch favorite movies, whatever makes you relaxed and calm and feel better.

rinne Apprentice
rinne
Posted

Laura, you look radiant in that photo, how special to have so many wonderful memories. :) As for the dress, I am glad it worked out in the end. I know what it is like to lose breasts and hips, though not quite to the extreme you have, it is still shocking.

Last Christmas my sweetie gave me a $200.00 gift certificate for my favourite lingerie store. I purchased a purple lace bra embroidered with lilac flowers that was/is stunning, it cost nearly the whole amount and I lucked out because it was on sale. I never would have been able to indulge if it was more than the gift certificate, not because of my sweetie but because I do have limits. :lol: It was the first time that I ever owned such a beautiful bra and I didn't wear it everyday, I might have worn it four or five times and I discovered it was too big for me. :( After some debate I went looking for falsies :lol: and found expensive silicone, how do you spell that?, ones and that worked for a brief while. To sum it up, I've gone from a 36DD to a 32D and the best thing I can think to say about that is to quote Cybil Sheperd, "the great thing about aging breasts is that you can wear them up, or you can wear them down". :ph34r::lol::lol:

Donna, how are you doing?

miamia Rookie
miamia
Posted
Susan, I think you are right, there are people who have celiac disease and nothing else. The thing is, I don't have celiac, but am gluten intolerant and I'm not getting better. I feel like my gluten intolerance was actually triggered by something else ... and this probably happens for some celiacs, too. I don't necessarily think my gluten intolerance will go away when I'm treated for whatever other problem I have since it's already triggered, like celiac would be, but it would be nice to think that I won't be as hyper-sensitive to it.

I think it can get rather complicated ... like figuring out a puzzle.

I feel so bad for that little girl ... no one believed me when I was little and sick either, but I was never taken to a psychiatrist ... that's why no one takes me seriously now.

Carla-

this is my situation too- I don't have celiac just gluten intolerance and I definitly think its been triggered by something else- i just still cannot seem to figure out what that something else is. I often wonder if I discover it what I will be able to handle. I could easily do without gluten at this point if I could just start to tolerate some other foods. I also can realte to that little girl so many people still give me so much stress about my weight - I eat all the time though. It seems like people are unwilling to believe you woulden;t want to be thin.

Miamia

rinne Apprentice
rinne
Posted

###

We'll be here happygirl. :)

miamia Rookie
miamia
Posted
Tomorrow is my last regular day of work and then I start eating "bad" foods tomorrow night.....very sad. I am hoping that it won't be too bad....

what are the bad foods you have to eat

happygirl Collaborator
happygirl
Posted

x

CarlaB Enthusiast
CarlaB
Posted

After breastfeeding five kids, I already had a shrinkage problem, but as I started losing weight, my own grandmother asked if I had a breast reduction!! Like I needed one???? I was never bigger than a C before! Now I joke that I look like a guy ... hubby assures me I don't. ;)

Laura, losing your period is natural when you lose so much weight. It will come back when you gain it back. Like I said, you look good .... actually GREAT!! People are usually surprised I want to gain weight, too ... it's so fashionable to be thin right now.

rinne Apprentice
rinne
Posted
Carla-

this is my situation too- I don't have celiac just gluten intolerance and I definitly think its been triggered by something else- i just still cannot seem to figure out what that something else is. I often wonder if I discover it what I will be able to handle. I could easily do without gluten at this point if I could just start to tolerate some other foods. I also can realte to that little girl so many people still give me so much stress about my weight - I eat all the time though. It seems like people are unwilling to believe you woulden;t want to be thin.

Miamia

:(

People keep asking me WHAT I am eating and when I tell them that I am eating enough that I would have gained weight before, I know they don't believe me. When they stand back, look at me and say but you look really good I feel exhausted by the exchange. I know they don't get it. I am thinner than I want to be and I am afraid because I know that there is no way I should be thin given what I eat.

I've decided we need to differentiate between being sick and being ill. I think that if we understood being sick as having the flu or a cold with obvious symptoms that resolve quickly and being ill as no obvious symptoms but also no quick resolution of the symptoms, it would be easier for people to understand when we say we are ill. Does that make sense?

happygirl Collaborator
happygirl
Posted

x

CarlaB Enthusiast
CarlaB
Posted

Truthfully, I am happy I have a disease that makes me thin rather than one that makes me obese ... if I had to choose, I would have chosen this ... if I had to choose a disease at all. It is a constant struggle for me to keep my weight on. I have to eat all the time, in fact I'm eating two pieces of gluten-free toast with coconut oil and almond butter on them. If I had eaten this before, I would have gained weight like crazy ... especially if it was at 9:30 at night after a full dinner!!! The bad thing is, I never have much of an appetite, but I do make myself eat. If I don't eat at night, I wake up with what I think is low blood sugar. I never used to appreciate my curves ... but I do now!! I used to gain weight sooo easily. You'll gain it back ... at least some of it.

You say you're down to 97. How tall are you?

Donna 90/55 ... that's what mine was last time it was checked.

happygirl Collaborator
happygirl
Posted

x

AndreaB Contributor
AndreaB
Posted

Am I the only one that doesn't appreciate being well endowed? <_<:blink::ph34r:

rinne Apprentice
rinne
Posted

Laura, thanks for the recommendation, for anyone else interested:

Open Original Shared Link

Mtndog Collaborator
Mtndog
Posted
I knew I had him at hello :lol::lol::lol:

Yes of course Bev you can come visit us at our cabin :rolleyes: But maybe we should go on a date first.... (I mean this guy and me, not you and I, dear Bev) :lol:

Oh c'mon...I can chaperone :P

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    • Wends
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      By Wends · Posted

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It takes weeks to months of at least a few hundred milligrams of gliadin daily for the innate immune system followed by the adaptive immune system in coeliac disease to kick in and start producing antibodies and cause villous atrophy. “3. Is an endoscopy (without biopsy) enough to tell if my intestines are healed? I’d pay privately if it could help and if i dont get a refferal. Or do i need a biopsy?” Only biopsy, as the gold standard of diagnosis, can tell for certain if villi have recovered. Having said that video capsule etc. can give an indication of any inflammation. “4. Could my job (powder coating, sandblasting, etc.) expose me to gluten or damage my intestines through air/dust?” Assuming your employer provides all necessary PPE - appropriate mask and overalls etc. All you can do is take the precautions that are advised according to risk assessments and regulations of the relevant industry governing bodies? (I don’t know what this would be in the USA. Sorry. But there’s safety and governing regs in the UK for this sort of thing. Assuming it would be very similar over the pond in fairness). “5. Do I need certified gluten-free toothpaste, hand soap, shampoo, or moisturizer? (For example: Vaseline and Colgate don’t contain gluten ingredients but say they can’t guarantee it’s gluten-free.)” This comes down to personal threshold of gluten tolerance. People that are highly sensitive may need certified products. Especially those with dermatitis herpetiformis - the skin manifestation of gluten sensitivity. Listen to your body on this one. “6. Is spices like pepper with “may contain traces of gluten” safe if no gluten ingredients are listed? Or does everything need to be labeled gluten-free?” This one is easy - when following a strict gluten free diet, avoid products that say May contain traces of gluten. But it does not have to be labelled gluten free. There are many foods naturally gluten free. 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    • maryannlove
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      By maryannlove · Posted

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    • KimMS
      Gluten free thyroid medications

      By KimMS · Posted

      Thanks for sharing this! Have you started taking the Amneal? I'm curious how it's going for you. My pharmacy gave me the option of Accord, Macleod or Amneal. I didn't realize that Amneal was formerly Lannett, or I might have chosen that one. However, I did read some anecdotal reports that some people had side effects with Amneal, so I chose Accord. I have been taking it for 3-4 weeks and the past 10 days I have developed extreme fatigue/sluggishness, joint pain and some brain fog. I don't know if it is the new levo med, but nothing else has changed. Has anyone else taken Accord levo? Any issues? It seems to fall into the "no gluten ingredients, but we can't guarantee 100%, but it's likely safe category." I'm wondering if it is worth switching to Amneal or at least getting my thyroid levels checked. If the med is causing my symptoms, I'm guessing it's not because of gluten but maybe the potency is different from Mylan and I need different dosing. Accord was recalled for lower potency, but my pharmacist said the pills I have were not part of that lot.  
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