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Omg...i Might Be On To Something


Rachel--24

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CarlaB Enthusiast

Rachel, I've always had swollen glands ... they're swollen all the time.


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Rachel--24 Collaborator
Rachel, I've always had swollen glands ... they're swollen all the time.

Carla...more than just my glands are swollen...my entire head is swollen....not so that other people can notice it...but its there. The imflamation is everywhere from the shoulders up. I cant touch any area of my head without feeling the imflammtion. Its especially in my jaw area, around my ears, in my temples and around my eyes...but it can affect all areas of my head and face.

The only time *other* areas of my body become affected or my joints get alot of imflammation is if I eat the sulfur foods...or the moldy foods...or stuff with chemicals or other toxins.

Clark Bent as Stupor-Man Contributor
That's me.

I'm not posting/reading much there anymore .... I realized that it wasn't helping me, only getting me down .... there are so many there who never seem to get better ... that gets me down .... it was a help at first, but this thread is more supportive/hopeful. :)

Oh, and those are four of my goofy kids in my avatar!

I've checked out some stuff on lymenet the past month or 2... I see what you're saying but I'm just trying to familiarize myself with lyme disease, different treatments, etc...

it's funny, when I went to reply to this post, your avatar didn't have your kids, still was the same avatar you had before... I was going to mention that and when I hit reply, my browser crashed for some reason and your new avatar was up afterwards when I restored my session... don't know if firefox caches certain data like that when browsing the same site...

Rachel--24 Collaborator

I would say the *focal* point of all my imflammation is in that area where you can feel your TMJ. This is where it originated from but over time it sort of spread. :(

It comes from the back of my mouth and I used to reach back there and rub the gums where my wisdom teeth used to be...and all around there...because it hurt. :( That was in the very beginning. My amalgams were not far from that area either....so its basically that whole back molar area.

I had went to about 4 specialists back then and I cant even tell you how many x-rays of my teeth I got in the first two years...but they all said that everything looked great...except for my jaw...which they said was really messed up...because of TMJ. :rolleyes:

Ummm...DUH...my jaw was hurting really bad....thats why I was there. :angry:

I never had any problems with my jaw...or anything else tooth related until I got sick.

Also...right in that TMJ area....you know that area in front of your ear where you can feel your jaw open and close??? Well right in that exact area on both sides of my face I would get blisters.....like pimples but different. It was like blisters that would swell and then subside.

It only stopped doing that when I took all of the added toxins out of my diet.

I used to wonder why it would happen in the exact area where my pain was originating from...and on both sides. :unsure:

It made me think it was really toxic there and the toxins were trying to escape through my skin or something??

As long as I control my diet the pain is not so bad and I dont get the blisters.

Do you think that an infection in the general area could create blisters...like cystic type acne?? :huh:

I had never had any type of blisterings like that ever.....until my symptoms hit. <_<

CarlaB Enthusiast

Wow, my internet is really having a problem. It takes about 3 minutes to get to a fresh page ... so when I post this reply, it will take three minutes or so from my end. :blink: We live in a downtown area where the houses are close together, so we thought maybe too many neighbors/businesses were using our wireless, but that's not the problem. We'll have to call our internet provider tomorrow.

Charlie, I did learn a lot on Lymenet. I still read threads that look interesting to me and sometimes post. But I'm avoiding more of the threads than I used to.

Rachel, I think it's plausible that the acne was from the toxins in that area. It makes sense.

Well, I'm done trying to mess with this stupid internet. Good night!

Clark Bent as Stupor-Man Contributor

I went to both a LLMD and free bioset consultation last week... I got a few tests run for lyme, one for co-infections, one for the Igenex western blots, and one other test for something else relating to the immune system and lyme if I remember right... most of the testing was actually covered upfront by my insurance..

I was also given cat's claw to try taking for now in limited amounts... and if I react when I take it, it could be a herx, which could be indicative of the presence of lyme... I haven't taken it yet though because I'm too busy lately and feeling decent enough to have to deal with a herx type reaction even if short-lasting..

as for the bioset consultation, I'm unsure where I really stand on it... certainly not anything I'm going to do now if only because I don't want to spend the $ for it right now... overall, I had mixed feelings... the practitioner seemed very genuine in her persistence that bioset works very well, helps a lot of people, etc. and although she was strongly advocating using bioset, it didn't come off as a business push for $ as much as her genuine belief that it is very helpful... she was a former patient of ellen cutler and trained under her afterwards... but I didn't get enough of a grasp from her on the science behind it and the technical aspects... she also didn't seem to be someone who I could communicate with quite as well as I would like... I might give it a shot in the future if my sensitivities to a broad range of foods don't seem to resolve themselves after I address any underlying elements...

AndreaB Contributor
Seems like pieces are starting to really come together for me today....

This has definately been an OMG moment :o ....a relevation :blink: ...and ummmm...I think I might be on to something?? :unsure:

:o:blink:


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celitiredu Newbie
:o:blink:

Ok something that is on my happy help list acupuncture it sound painful but it has not been for me. I have been doing it for more than a year. It is better than what my MD was doing for the sickness that would come up for days. I have seizures from my celiacs it took the nuts 30 years to find it! Oh well that is the past on with the rest of my life at least now I know!!! I have not had a seizure in a year!!! I read everything before I put it near me. You may need to watch out for shampoos they will get you they don't use the word wheat, call them before you buy. And lotions don't use the word they are a watch for to. I think you already know that. I just get to going. I don't want anybody to go through what I have. Just to do womething as simple as live.

Rachel--24 Collaborator

Heres a good site about cavitations...for anyone who might be interested.

Open Original Shared Link

Andrea...I always like the tuberose pages....they have lots of scientificness. :P

I basically found out about cavitations from reading on LymeNET. The people who were stressing the importance of things like oral infections and recovery were getting totally bashed for even suggesting such a thing.

In everything I've read I would say that every word rings true...and maybe this is why alot of people on that site dont get better?? Maybe because they arent open to looking into other things that could be hindering their immune system. Maybe they are too busy attacking each other...instead of learning from each other. <_<

Anyways....from what I've read...a cavitation could definately prevent healing....from Lyme...or any other illness.

The cavitation officially forms when healing at the top is complete. The healing over on top allows the rapid development of an oxygen-deprived, or anaerobic, state in the hole. Native mouth bacteria produce highly toxic metabolic by-products when deprived of oxygen.

Bacteria that are normally harmless to man when oxygen is present form a deadly toxin when oxygen is removed. An example of deadly toxins forming when oxygen is absent is the botulism toxin, resulting from vacuum-packed foods, sealed with bacteria present. Some toxins found at cavitation sites are up to 1,000 times more toxic than botulism in their effects on enzymes systems.

Antibiotics will not help the individual poisoned with botulism, nor will they help the cavitation patients, as the problem stems primarily from bacterial toxins, not bacteria. Only a rapid neutralization of a large toxin dose will save the patient.

Toxins in both cavitations and root canal filled teeth rapidly kill vital human enzymes at the lowest imaginable concentrations.

Cavitation toxicity tends to be cumulative. The more cavitations you have, the more toxicity is present.

***Cavitations also may make other diseases worse. They will make it more difficult for a compromised immune system to ever completely recover.

***The immune system characteristically tolerates all stresses fairly well until it collapses relatively suddenly. It will compensate as long as possible, then very suddenly its defenses will no longer be effective.

Cavitations might not be the cause of an illness, but they can easily be the factor that prevents recovery from it.

----------------------------------------------------------------

From what I've read....wisdom teeth extractions are the most common as far as cavitations ....because of the size of the extractions.

Even when large wisdom teeth are removed surgically from impacted sites with extensive excavation, cavitations are nearly always present.

When the excavated hole is large enough, cavitation formation can be anticipated, even if most, or all, of the periodontal ligament is removed, since so much more new bone growth is needed to completely fill the hole.

Condensing osteitis must be completely removed to give the opportunity for complete healing. Solid, healthy bone must be reached to allow the normal regeneration of bone. When infection or necrosis remain throughout the socket and adjacent bone, with or without condensing osteitis, healing will rarely ever be completed.

AndreaB Contributor
Andrea...I always like the tuberose pages....they have lots of scientificness. :P

I basically found out about cavitations from reading on LymeNET. The people who were stressing the importance of things like oral infections and recovery were getting totally bashed for even suggesting such a thing.

In everything I've read I would say that every word rings true...and maybe this is why alot of people on that site dont get better?? Maybe because they arent open to looking into other things that could be hindering their immune system. Maybe they are too busy attacking each other...instead of learning from each other. <_<

Sounds like I need to have the cavitat when I go to the dentist for my cleaning/exam/xrays instead of waiting until I go in for my crowns/removals. <_<

I think I have tuberose bookmarked. I'll have to double check. :)

This stuff sounds awful. I certainly don't want to create a toxic problem with cavitations if I have them and have my teeth taken care of first.

That's real sad about the fighting and bickering. You would think people would just want to get better. :(

NoGluGirl Contributor
Ok something that is on my happy help list acupuncture it sound painful but it has not been for me. I have been doing it for more than a year. It is better than what my MD was doing for the sickness that would come up for days. I have seizures from my celiacs it took the nuts 30 years to find it! Oh well that is the past on with the rest of my life at least now I know!!! I have not had a seizure in a year!!! I read everything before I put it near me. You may need to watch out for shampoos they will get you they don't use the word wheat, call them before you buy. And lotions don't use the word they are a watch for to. I think you already know that. I just get to going. I don't want anybody to go through what I have. Just to do womething as simple as live.

Dear celitiredu,

Welcome to the thread! I am glad your seizures stopped. Gluten causes me to have a violent GI reaction. Everyone has different problems with it, I think. Doctors are idiots, it seems. I went through Hell, and I cannot forgive them for doping me up on pills and telling me I was crazy, when I was just sick. :angry: This is a common story of a Celiac. You are right about being careful with lotions and stuff! I made sure to check that stuff out, too. Luckily, Suave and Dove are two brands that have many gluten free products, including hair styling aids, shampoos, conditioners, and lotions.

Dear Carla,

Those symptoms sound like mine! I have bad TMJ with the bone scraping against the bone next to my ear. My jaw is so far out of alignment, the dentist was very concerned. I just feel like I am between a rock and a hard place. There are so many problems that could occur.

Dear Rachel,

Now I think I am as freaked as you about this! I am worried about all of this! :ph34r: The problems with your sinuses and head swelling, swollen glands that hurt under your jaw, and those painful zit blisters all are a problem for me too! I am scared to death to do anything, or not to at this point. There will be huge cavitations if I get those molars removed. Then, if I get the root canals (even with the Lava crowns) there is still a possibility of problems. I do not want to lose my teeth, and I am in pain. Once again, I am in panic mode! :unsure:

Sincerely,

NoGluGirl

AndreaB Contributor
I do not want to lose my teeth, and I am in pain. Once again, I am in panic mode! :unsure:

Something needs to be done, it's just a matter of what the best course is. Do a seach on cavitat. It will come up with a link (I think it is dental help) with some doctors that do Cavitats which are scans that look for cavitations. I don't know if your grandfather would be willing to pay for that or not. It would be a biological dentist. In my opinion, they would be more knowledgeable about what the best way to go about getting your teeth taken care of would be.

NoGluGirl Contributor
Something needs to be done, it's just a matter of what the best course is. Do a seach on cavitat. It will come up with a link (I think it is dental help) with some doctors that do Cavitats which are scans that look for cavitations. I don't know if your grandfather would be willing to pay for that or not. It would be a biological dentist. In my opinion, they would be more knowledgeable about what the best way to go about getting your teeth taken care of would be.

Dear Andrea,

I will do the search. I know there are no biological dentists here, though. I have looked for them. Thank you for the info! My grandfather would not be willing. I know him. :( There is a sales rep here for Lava crowns, though. I was surprised! My doctor is a holistic physician. I see her next week. Perhaps she could point me in the right direction.

Sincerely,

NoGluGirl

CarlaB Enthusiast

NGG, all my TMJ work was covered under my medical (not dental) insurance. I know you've said you don't have insurance, but I wanted to let you know that since it's a joint problem, it will be covered under medical once you do get coverage. I lived with it for years, so I know how much of a pain it is, literally. You will need to see an ortho who specializes in TMJ treatment. My jaw bone that is supposed to be round is worn down so it looks more like a half-moon.

NoGluGirl Contributor
NGG, all my TMJ work was covered under my medical (not dental) insurance. I know you've said you don't have insurance, but I wanted to let you know that since it's a joint problem, it will be covered under medical once you do get coverage. I lived with it for years, so I know how much of a pain it is, literally. You will need to see an ortho who specializes in TMJ treatment. My jaw bone that is supposed to be round is worn down so it looks more like a half-moon.

Dear Carla,

Wow! I did not expect medical to cover that! How interesting! TMJ sucks. You know that part by your ear where your jaw connects to the bone? You know how there is supposed to be a padded disk there? Mine is so misaligned, that it cannot do its job, and the bone is scraping against bone. :( My jaw is always so tense, too. My mouth is too small, and my wisdom teeth need removed. Now I am all freaked out about cavitations! That is awful your jaw bone is so worn down. I hope I do not get that! I am afraid to get braces, because there is no gaurantee that it won't make the TMJ worse! Plus your teeth can move back! I wish I could work a regular job with insurance. I am going to send some artwork in to Marvel Comics soon. If I get called from them, I will move to New York so fast, you wouldn't believe it! :lol: Working as an artist for them would be a dream come true!

Sincerely,

NoGluGirl

P.S. Send me your e-mail address, and I will send you some art!

Dear Claire,

I hope your treatments worked! Good luck! Keep us posted!

CarlaB Enthusiast

NGG, since TMJ is a joint, that's why it's medical. You are right, braces CAN make it worse. That's why you need a TMJ specialist. First you wear a splint on your bottom teeth 24/7 so that your muscles are retrained to hold your jaw in the right place. Then you get braces to keep your jaw in the new position.

For comfort, you might try one of those mouth guards you can get at the pharmacy. It wasn't enough to help me much, but it did make me more comfortable at night. My bite was so bad that the guard felt good. I could close my teeth and they'd touch properly... well, they'd touch the appliance and it would feel like they were touching properly. It might be a "band-aide" solution for you for the time being.

As far as teeth moving back, my ortho puts in a permanent retainer behind the front teeth on both the top and bottom. It's a small thing that keeps the teeth in place. Orthodontics have come a long way. You can check out the braces I have at Open Original Shared Link. They're GREAT! I don't have to go in for monthly adjustments, they adjust themselves. I go in every other month to get looked at.

I hope you get the artist job!

NoGluGirl Contributor
NGG, since TMJ is a joint, that's why it's medical. You are right, braces CAN make it worse. That's why you need a TMJ specialist. First you wear a splint on your bottom teeth 24/7 so that your muscles are retrained to hold your jaw in the right place. Then you get braces to keep your jaw in the new position.

For comfort, you might try one of those mouth guards you can get at the pharmacy. It wasn't enough to help me much, but it did make me more comfortable at night. My bite was so bad that the guard felt good. I could close my teeth and they'd touch properly... well, they'd touch the appliance and it would feel like they were touching properly. It might be a "band-aide" solution for you for the time being.

As far as teeth moving back, my ortho puts in a permanent retainer behind the front teeth on both the top and bottom. It's a small thing that keeps the teeth in place. Orthodontics have come a long way. You can check out the braces I have at Open Original Shared Link. They're GREAT! I don't have to go in for monthly adjustments, they adjust themselves. I go in every other month to get looked at.

I hope you get the artist job!

Dear Carla,

I could go for any form of help! The pressure on the jaw is really bad! You know what is strange? The dentist I am with now does not order a mouth splint. That is really odd. The dentist I saw before her was ready to order one immediately. I had to stop going to him, though, because my grandfather thought he was too expensive.

Finding a guard small enough is the trouble. I have a small head, even! I had to get children's glasses the last time I went to the eye doctor! :lol: I am very petite at 5'1. That is good my head is small, too!

Thanks for the site. I have it in my favorites now! That is so cool about them adjusting automatically! I originally wanted to get the invisalign, but they said my teeth are too crooked for that.

They look like a train wreck, or a car pile-up.

I hope Marvel likes my art as well! We will see! I might as well try! The worst that will happen is I do not hear anything. It is just, I do not want to always worry what could have been! I am working on my own comic books and an anime. One of the comic books is an all female mafia. No one has ever done that! So, that is my main focus now.

Sincerely,

NoGluGirl

CarlaB Enthusiast

NGG, I'm sure you'd be able to get one that works for you. They become very pliable when you heat them up to fit them to your mouth, and you cut off where they're too long. It gave me some temporary comfort. Sometimes I'd even wear it during the day if my jaw was bothering me.

dlp252 Apprentice

I'm hungry! :lol: I have my annual exam today and am fasting for bloodwork so haven't eaten yet..by now I've usually eaten twice. :lol: Anyway, I took the day off cuz hunger and work just don't work for me and I'm sure anyone I work with would agree with that. :lol:

Digestive wise, I had PPP (practically perfect poop). The only thing I'm doing for my digestion right now is eating the home brewed kefir, also referred to as milk beer! It's good stuff for the gut, I'm convinced!

:lol: Congrats on the PPP!

Seems like pieces are starting to really come together for me today....

...

This has definately been an OMG moment :o ....a relevation :blink: ...and ummmm...I think I might be on to something??

Wow, I agree it sounds like this might be the missing link! Or, at least ONE missing link, lol.

Rachel, I've always had swollen glands ... they're swollen all the time.

Mine too!

Also...right in that TMJ area....you know that area in front of your ear where you can feel your jaw open and close??? Well right in that exact area on both sides of my face I would get blisters.....like pimples but different. It was like blisters that would swell and then subside.

...

Do you think that an infection in the general area could create blisters...like cystic type acne??

I would definitely think it could.

I went to both a LLMD and free bioset consultation last week... I got a few tests run for lyme, one for co-infections, one for the Igenex western blots, and one other test for something else relating to the immune system and lyme if I remember right... most of the testing was actually covered upfront by my insurance..

I was also given cat's claw to try taking for now in limited amounts... and if I react when I take it, it could be a herx, which could be indicative of the presence of lyme... I haven't taken it yet though because I'm too busy lately and feeling decent enough to have to deal with a herx type reaction even if short-lasting..

as for the bioset consultation, I'm unsure where I really stand on it... certainly not anything I'm going to do now if only because I don't want to spend the $ for it right now... overall, I had mixed feelings... the practitioner seemed very genuine in her persistence that bioset works very well, helps a lot of people, etc. and although she was strongly advocating using bioset, it didn't come off as a business push for $ as much as her genuine belief that it is very helpful... she was a former patient of ellen cutler and trained under her afterwards... but I didn't get enough of a grasp from her on the science behind it and the technical aspects... she also didn't seem to be someone who I could communicate with quite as well as I would like... I might give it a shot in the future if my sensitivities to a broad range of foods don't seem to resolve themselves after I address any underlying elements...

Wow, can't wait to hear the results of all the tests. Did the BioSET person actually do any testing on you or was it just talking to you? (which is probably a silly question cuz if it was free I bet there wasn't any actual testing, lol) I read something yesterday that explained how it works--it was the first time I read it and it actually sort of made sense to me...I think it was in a booklet they just gave me at my BioSET place. I didn't know what to think at my first session, but so far the testing seems fairly accurate...the only thing that was off seems to be the Lyme and I think I may be more inclined to trust the BioSET than the ART in this case, lol. :lol:

Ok something that is on my happy help list acupuncture it sound painful but it has not been for me.

Hello and welcome. I'd be more inclined to try acupuncture now than I would have a few months ago since I've been getting prolotherapy which is a series of injections at the point where the muscles meet the bone...I would actually think acupuncture would be much less painful cuz I don't think they go down to the bone and these injections aren't really even that bad.

Even when large wisdom teeth are removed surgically from impacted sites with extensive excavation, cavitations are nearly always present.

When the excavated hole is large enough, cavitation formation can be anticipated, even if most, or all, of the periodontal ligament is removed, since so much more new bone growth is needed to completely fill the hole.

:o:o

Sounds like I need to have the cavitat when I go to the dentist for my cleaning/exam/xrays instead of waiting until I go in for my crowns/removals. <_<

I was thinking about the dentist you mentioned yesterday...I think he sounds like a good one. Dr. A was great but he didn't do compatibility testing on me...if I'd thought about it I would have asked if he could have done it. I did ask about compatibility and what he said was that this was the one he found to be the least reactive in people. That's great if you're not one of the few that DID reaction to it, lol. :lol: Is this the same one you'd go to for the cavitat?

I hope Marvel likes my art as well! We will see! I might as well try! The worst that will happen is I do not hear anything. It is just, I do not want to always worry what could have been! I am working on my own comic books and an anime. One of the comic books is an all female mafia. No one has ever done that! So, that is my main focus now.

Wow, how very cool!! You're smart to give it a shot...fortunatley I don't have a lot, but do have SOME "I wish I had" moments.

AndreaB Contributor
I was thinking about the dentist you mentioned yesterday...I think he sounds like a good one. Dr. A was great but he didn't do compatibility testing on me...if I'd thought about it I would have asked if he could have done it. I did ask about compatibility and what he said was that this was the one he found to be the least reactive in people. That's great if you're not one of the few that DID reaction to it, lol. :lol: Is this the same one you'd go to for the cavitat?

The same dentist does the cavitat and takes care of cavitations that does the amalgam removal as well. I found him looking for a dentist that does cavitations. There were some listed in California. Do a search on Dental Help. The dentist I found was one of the founders of the Biological Dentist something or other. :P

I hope you don't have a compatibility issue. :(

Hope you get to eat soon. :( I wasn't able to make dinner last night since I had to go shopping and pick up the paycheck. So we don't have any leftovers to eat. I'll probably only eat 2 meals today since that's easier that trying to figure out what else to have.

CarlaB Enthusiast

I came across this in reading some stuff about Lyme. Open Original Shared Link

The incidence of asymptomatic infection has not been adequately delineated. There appear to be substantial numbers of patients who remain asymptomatic, but reactivate their disease a number of months or years later, following trauma, pregnancy, a medical illness for which an antibiotic is prescribed, or other stresses, including psychological stresses

It was interesting to me because stress has triggered symptoms three times, and they went away three times. This time I was also under stress, but was sick and took 21 days of doxy. Maybe that's why I have to more specifically address it this time.

AndreaB Contributor

Keeping in mind that I know pratically nothing about TMJ, but that it is associated with lyme.

I don't know if it is associated with anything else but could it be possible that those who have TMJ have lyme that is undiagnosed?

CarlaB Enthusiast

Andrea, I don't think that would be the case. TMJ problems can be because of the stress put on the joint from a bad bite, which was where my real problem was. From what Rachel was saying and because it can be a symptom of Lyme, I'd say the Lyme can be the cause of the pain in a normal TMJ or maybe it can aggravate the pain, but it's not necessarily the cause of all TMJ disorders.

I don't think the Lyme caused my bone to have worn away, that was misalignment of the joint. However, the Lyme could have taken advantage of the problem and made the pain worse, which I think it did. I had a lot of pain in that joint when I started the TMJ treatment, yet I've had TMJ problems as long as I can remember. Prior to this flare of Lyme symptoms, it was more annoying than painful.

rinne Apprentice

I have to post though I haven't caught up, I feel like I am paddling as fast as I can and I still can't keep up to you prolific women. :P:lol:

I've been busy developing a product that I hope to take to market this summer, at the very least I've made arrangements to launch it at a folk festival in September. I'm very excited about this, I told my sweetie that I have decided to become a tycoon but for some reason he refers to me as the "taifun". :lol:

The interesting thing is that if I had not been ill I would not have created this. Sorry, I know this will be annoying but I am not going to say more until it hits the shelves, except maybe that I have shelves waiting for it at an organic grocery store I shop at.

It feels like all the various threads of my life are coming together and for the first time I can really begin to appreciate the pattern that is my life, after all I would not have found you if I had never become ill and this friendship thread, as odd as it is, has supported and encouraged me when I had need of it. I will always be grateful. :wub:

Well, are ya sitt'n down...cuz you aren't going to believe this, lol. :lol:

.......

LYME!

He found LYME!!! The main one plus a couple of co-infections. Babesia, Erlawhatever and a third one which I can't remember (fortunately he will email me a report so I won't have to remember anything, lol, but that may mean more details tomorrow). He found that facinating since it was a really strong reaction and because Anna had tested me for it TWICE and didn't find anything. He tested that thing every which way and rechecked them all many times.

He tested that backwards and forwards and with all kinds of other things and it always came back to Lyme. He was just fascinated with the whole thing. I mentioned my antibiotic history and the fact that I had been on some mega doses of antibiotic about every six weeks for nearly 3 years and asked if that could be why my testing is whacko...he wasn't sure, but his friend's face looked like it could be, lol.

I think this is my cue to say, "LYME CLAN". :ph34r:

rinne Apprentice

Emoticon overload, part two.

Greetings dear friends, and just a pop-in/drive by to wish everyone a very happy Easter! :)

Carla, an early happy birthday wish to you , also. Pray, do tell, WHAT kind of hot carmel syrup???? oh my gosh......does anything sound yummier than that? :rolleyes: I am making the chocolate pavlova mentioned on this forum for easter tomorrow....can't wait.

Donna - - - LYME????????????????????? :o Jeez, I pop in for two seconds and find this out....oh my gosh! I'll pop in again to see what's up........with all of you.....

Rachel - a new car coming up? that is exciting! I would love a new, clean car....one that doesn't smell like a wet kennel..... :huh:

Ciao everybody...... :)

Hi Susan. :wub:

Umm, Andrea, I can't believe you're still hanging around this thread (we want you here though) ... it's seeming that all of us are getting diagnosed with Lyme ... maybe you should just skip the other stuff and go straight to Lyme testing. LOL. ;)

:lol:

A belated Happy Birthday Carla, did I read something about cake?

I'm planning on getting my other crowns done this fall which won't leave me mercury free but will greatly reduce what's there. I don't know whether I have amalgam left under the current crowns or not. I was only told the doctor usually took it out, nothing definative. I'm thinking of having my root canal tooth pulled since I've heard so many bad things healthwise that they can cause. I know the dentist did not use mercury on top of the crown but it looks like amalgam now. :huh: My doctor gave me the name of a dentist down south that does mercury removal for a good price but we figure with the cost of flying down there, hotel and eating it wouldn't be worth the savings.

I'm glad you'll be able to do that Andrea. :)

This is random but did anyone see "Planet Earth" last night? There was this scene showing really fierce protective geese trying to scare away a fox. I was thinking those are the exact geese Rachelville needs :lol:

:lol:

The issues of mold, candida and metals are showing strong in all of the tests...all of the time. I think Lyme just hides within them and sometimes avoids detection. <_<

I wonder what kind of a bully Lyme could be if it wasn't backed up by mold, candida and metals.

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    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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