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Omg...i Might Be On To Something

Rachel--24

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AndreaB Contributor
AndreaB
Posted

Donna,

Like your new picture. Now tell the rest of the story. Obviously you were caught in the act of doing something you weren't supposed to or she said you could let the bird out. Since Timmy wasn't willing to take part I assume it was the first suggestion. :P

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CarlaB Enthusiast
CarlaB
Posted
Carla,

Now you got my curiosity picked with the Bells Palsy. Which thread is that?

It's called something like facial numbness.

jerseyangel Proficient
jerseyangel
Posted
No, mine is more like "deer-in-the-headlights", hers is much cuter, lol.

Naw--I think we were both pretty adorable in our black and white pictures :D (before cameras were invented :lol: )

jerseyangel Proficient
jerseyangel
Posted

Andrea--Your new pic is great! You remind me of somebody--it'll come to me....

Donna--your new one cracks me up--you at the birdcage and Timmy walking away with a shiner. There's a story there :lol:

dlp252 Apprentice
dlp252
Posted
Like your new picture. Now tell the rest of the story. Obviously you were caught in the act of doing something you weren't supposed to or she said you could let the bird out. Since Timmy wasn't willing to take part I assume it was the first suggestion.

Well, there is a towel or something on the chair, and while I was an exceptional smart child :lol: I think I probably DID have some kind of permission and SOMEONE probably put that towel there...not sure though...Timmy wouldn't be running away if we had that much permission...still someone was taking the picture...I'll have to ask my mom if she took that, lol.

Naw--I think we were both pretty adorable in our black and white pictures :D (before cameras were invented :lol: )

Okay, I have to agree. :P

Donna--your new one cracks me up--you at the birdcage and Timmy walking away with a shiner. There's a story there :lol:

I'll have to ask my mom if she remembers more about it, lol. Course, that WAS at least 49 years ago, lol.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
What is he giving you for the babesia? Is tonic water mild enough on the quinine that you can handle it? What about Artemisia?

Oh yeah...we talked about this.

He had asked if Dr. Amy felt I have Lyme Disease. I said "Oh yeah...she found Lyme but the only residence was in my head...and she also said I have Babesia."

Thats when he said that yeah...he would really suspect Babesia is there. He talked more about Babesia causing my detox problems...and really getting in the way of recovery...not much was said about Lyme.

I read alot about that on LN too....that if you dont treat babesia effectively you cant get better from Lyme or anything else.

So he asked if she put me on Artemisia. I told him she has me on Noni.

He was totally confused about the Noni...and had never heard of it for treating infections....or having antimicrobial effects. He said it was just a juice that boosts the immune system. :huh:

He's thinking of Noni Juice...like what they sell in the health stores. Its not the same thing. I'm taking PC-Noni...its the extract from the fruit but also the bark and other stuff. I tried to explain...he just said "OK...well if it has some effect I dont know about...GREAT....but could you ask Amy why shes not using Artemisia???" :unsure:

I told him she tested both and I responded very well to the Noni....he did understand that...but he still wanted me to ask about the Artemisia next time I see her.

So I'm trying to find whatever info. I can about it so I can print it out and give it to him on Tuesday. I think using Noni is pretty new. Dr. K uses it alot because he's finding patients test very well for it and get a good response to treatment. Scott probably knows alot about it so I'm gonna ask him for the info.

The only thing with the Noni is that Samento and Noni do not like each other at all...they interfere with each other. I have to take them at least 30 minutes apart.

I couldnt find the Noni at first...Denise at BioSET told me they dont carry it. When I went for my sauna I saw it on the shelf so I bought it. The receptionist said they had just started ordering it.

Guess what...after I paid for it ($35)....I turned around and dropped it on the floor and broke it. :o

I had to pay again for a new bottle!!! I was kind of upset about that...given the fact that I've spent alot of money there. Having been working in retail for many years...I dont consider this to be the best customer service to say the least. <_<

I might even cut down on my treatments because it irritated me that much. My mom said to just dont worry about it....and she paid for the other bottle so I wouldnt be sad about the loss....but the money really isnt the point....although it does suck to pay for something twice. :( It didnt matter to me that the second bottle wasnt coming directly out of my pocket...it still sucked. :angry:

So anyways I didnt take it until I could have Denise test me for it last Thursday. She doesnt know anything about Noni either but she did say "Wow...your body really seems to like this stuff." So yeah...I tested extremely well for it in BioSET too. :)

I started taking it last night so I dont know how well it will work...its supossed to work slowly but its very effective against the co-infections from what I've read.

This is what Dr. K. said about it..

PC-Noni (a concentrated energy-enhanced extract of Noni where the ingredients are made bio-available with a unique proprietary process)is, by experience the most reliable remedy to treat and eliminate intracellular microbes over time (Babesia, Bartonella, Ehrlichiosis, Herpes family). This process is slow (months) and very rewarding.

Several German practitioners have found this amazing property mostly with darkfield microscopy. He is not aware of unbiased published studies to confirm this. However, it is consistent with ART findings and clinical observation.

Dosage: starting with 6 drops twice daily and increase to a total of 3 dropper full/a day for 1 year.

CarlaB Enthusiast
CarlaB
Posted

I was taking noni extract along with artemisia, samento, salt, and vitamin C while I waited for my LLMD appt.

I know noni strengthens the immune system, but I didn't realize it works on babs. I took artemisia for 3 months, then took a month off. I start it back up next week when I start my new meds.

Adam is totally not thrilled to give me the billicin injections! I have two friends who are nurses ... he says to have them do it. I think it's a lot to ask of someone .... twice a week injections ... neither of them works outside the home, so I guess it wouldn't be a big deal. Maybe I can always make Adam go with me so that he learns to do it and gets more comfortable with the idea.

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Mtndog Collaborator
Mtndog
Posted
HI BEV...

I SEE YOU AND READ WHAT YOUR POSTED BUT I'LL KEEP IT ON THE DOWN LOW.

WHAT AM I CHOPPED LIVER? :lol:

I READ ALMOST EVERY 2 DAYS BUT DON'T POST

HUGS

J

Judy- If you are chopped liver, then you are pate!!!!!!!!!!!!!! :wub:

rachel- You're SO cute!

AndreaB Contributor
AndreaB
Posted
Maybe I can always make Adam go with me so that he learns to do it and gets more comfortable with the idea.

That sounds like a good idea.

I got stuff for b12 injections last year which I never used. I got an injection at my new doctors and then a month later tested with my healthplan doctor and they said levels were normal. They never did call me back and tell me what the numbers were though. <_<

Anyway, Mitch wasn't/isn't too thrilled with the idea of giving me injections either.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Andrea, It's the thread about facial numbness.

Carla--I still have it, only it comes and goes. :unsure: All the rest of the tingling and numbness went away gradually after going gluten-free, but the left side of my face never completely resolved. I didn't realize that was a Lyme symptom, too.

Hmmm...I have facial numbness too. I think it mostly just "feels" sorta numb from the swelling I get.

About 3 years ago I thought I had Bells Palsy because the swelling was just more on one side and so it sorta made my mouth look lopsided. :huh:

At the time I didnt know what was going on...just that my face didnt look right and my head didnt feel too good and yeah...it felt numb.

I remember complaining to my Dr. about it...he could see that my mouth was lopsided but said he'd seen far worse. :rolleyes:

I told him I couldnt feel as much in my jaw area...he got a sharp needle type thing and was poking me...I could hardly feel it. My left side has always been worse than my right.

The swelling is still there but I'm not lopsided since I changed my diet. :)

I had so many strange sensations in my head I was evaluted and/or tested for Trigeminal Neuralgia, Myasthenia Gravis, Bells Palsy and MS.

Obviously it ended up being from the infections and mercury. Dont know if its one thing or just a result of everything...but I'm looking forward to it getting better with treatment. :)

I loved your description of going slow and having better results. It makes sense...a lighter and steady rain would serve the ground much more effectively. Its a good way for me to think about it. :)

Mtndog Collaborator
Mtndog
Posted

Rachel - I was reading your post about wanting to go faster and all I could think was "Yep- that's me!" I'd be the same way- in fact my hubby was just reminding me that now I'm off the Nexium I have to go slow. Got sick last night after eating salsa because I forgot I have acid reflux- nexium makes you feel like you don't have it at all but uhm, I do. Then I said "I'm going to try that orange peel extract NoGluGirl told me about. Can't hurt!" He just looked at me and burst out laughing and was like "Slow down!"

Slow and steady is hard!

I have to ask you- what nationality you are....you look so exotic!

Andrea- I uploaded my horse pic before I saw you had done yours. I want the story! Who's the beauty you're with? Mine is Mr. Spoons- he wasn't mine but I rode him in shows. He was the best! That was me in 7th grade. :rolleyes:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
What the heck is mycoplasma, lol.

Donna...you can read about it here.

Open Original Shared Link

I know I was ART tested for mycoplasma with all the co-infections.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Got sick last night after eating salsa because I forgot I have acid reflux- nexium makes you feel like you don't have it at all but uhm, I do. Then I said "I'm going to try that orange peel extract NoGluGirl told me about. Can't hurt!" He just looked at me and burst out laughing and was like "Slow down!"

:lol: Yup...thats me. :P

I have to keep thinking "slow and steady wins the race....slow and steady wins the race....slow and steady..."

I gotta drill it into my head :rolleyes:

I have to ask you- what nationality you are....you look so exotic!

Exotic?? Me??? :unsure:

:lol::lol: Thats funny!!

My mom is Spanish/Italian and my dad is Hispanic (Mexican)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Donna--your new one cracks me up--you at the birdcage and Timmy walking away with a shiner. There's a story there :lol:

Timmy has a shiner??? :o:o

Hmmm.....and Donna looks so innocent standing there in her little dress <_<

Thats my favorite pic so far Donna!!!! Wish I could see everyone better on this computer. I cant see the black eye. :(

Andrea...thats a great picture of you too!! :)

AndreaB Contributor
AndreaB
Posted
Andrea- I uploaded my horse pic before I saw you had done yours. I want the story! Who's the beauty you're with? Mine is Mr. Spoons- he wasn't mine but I rode him in shows. He was the best! That was me in 7th grade. :rolleyes:

I love your picture! Mr Spoons looks like a real nice horse too. How'd he do for you.

My beauty is Shia (I always pronouced the i like an e).....like Talitha's name too. :P I got her when I was a sophmore in high school and showed extensively after the first year. Thankfully mom and dad had the money to allow me to. Sometimes I'd have a show every weekend in the summer getting ready for fair. That got tiring, bathing the horse and clipping her every week. I always had to have someone else do her ears....she didn't like to have them done.

She was the sweetest horse though. You could crawl all around her etc. We actually used an electric sander on her one time. She stood still for it. She had four white hooves. She loved the show ring and was such a show off. I worked with her on voice training, so at shows she'd listen for the announcer so I always had to be on my toes to try and look like she wasn't beating me to the cue.

She was 1/2 Arab-1/2 QH. My old 4h leader took her off my hands after she had been on lease for awhile. I gave her to her. She so much wanted a Palomino baby out of her but wasn't successful. Shia foundered real bad when Talitha was a baby so I'm assuming she was put down after that since the special shoes would have been cost prohibitive for a pasture horse. I felt so bad for her.

A few of us once rode our horses into town (about 2-3 miles) and went through McD's drive thru. The cashier took forever to get to us because she was telling everyone there were horses in the drive thu. It was so funny.....and fun! :lol:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I said that me me wonder if the fibroids were caused by whatever "bacteria" is lurking around...the look on her face said that could be a possibility.

Donna..I wouldnt be surprised. I got a fibroid too since I got sick. <_<

Stupid Bugs. :angry:

OMGosh, how cute are those pictures...in the one on your personal page your smile is exactly like your normal avatar picture. :P

LOL....except I have more teeth now. :lol:

Ha, well if you're going on Tuesdays we might run into one another one day. :P I have a followup for Tuesday the 15th (I think that's the tuesday)...do they call you with results or do you just wait to see him?

Donna...how could we not run into each other one of these days??? :P

They always schedule my next appt when I leave but this time everyone was getting ready to go home and we forgot to schedule it. I'm gonna have to schedule when I go back on Tuesday. My next appt. wont be for 2 more months.

They've never called me with results. I dont know if you recall how stressed out I was last year when I wanted my Lyme results and I kept calling them. The lady didnt want to give me the results over the phone because she said he would explain it to me at my follow-up appt.

That didnt go over well with me so I pushed her to answer negative or positive. She finally said ok...its negative but the Dr. will have to explain everything when he sees you.

So yeah...I told everyone I didnt have Lyme. :ph34r:

And there ended up being that positive IFA test which I knew nothing about until I saw him.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
A few of us once rode our horses into town (about 2-3 miles) and went through McD's drive thru. The cashier took forever to get to us because she was telling everyone there were horses in the drive thu. It was so funny.....and fun! :lol:

Andrea...OMG...how FUN!!!! :lol:

and I'm not just talking about the horses....but also getting the Mickey D's FOOD while riding the horses. :P

jerseyangel Proficient
jerseyangel
Posted

Interesting about the fibroids--the one I had was 8 centimeters (grapefruit sized). So many women have them--there has to be more to it than meets the eye.....

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
Patti, I read the thread about Bell's Palsy ... I had to control myself from bringing up Lyme in yet another thread, but I'm comfortable mentioning here ... that's a sign of Lyme .... so is muscle twitching, etc. Maybe you should be tested ... but then again, if it's gone away, who knows?

Is it the Bell's Palsy that's a sign of Lyme or the numbness? Or both?

Either way, seems like it might be worth bringing up in any thread where you feel it's appropriate, just as a possibility to be explored?

CarlaB Enthusiast
CarlaB
Posted
Is it the Bell's Palsy that's a sign of Lyme or the numbness? Or both?

Either way, seems like it might be worth bringing up in any thread where you feel it's appropriate, just as a possibility to be explored?

Both, I think.

I do bring it up sometimes ... usually it's when I think that someone has a big possibility of having Lyme, but Scott doesn't want me to bring it up all the time.

dlp252 Apprentice
dlp252
Posted
My mom is Spanish/Italian and my dad is Hispanic (Mexican)

Ha, my mom is Italian/Polish/Dutch and my father was Hispanic.

Thats my favorite pic so far Donna!!!! Wish I could see everyone better on this computer. I cant see the black eye.

There's one better coming up, lol...it's my mom's absolute favorite of me, but I'll save that one for tomorrow.

Donna..I wouldnt be surprised. I got a fibroid too since I got sick.

Stupid Bugs.

Yeah, stupid bugs! The fibroids popped up all of a sudden too, between that year and the year before...there may have been some small ones in there, but the big one that the doc felt on my annual exam popped up in a year's time.

They've never called me with results. I dont know if you recall how stressed out I was last year when I wanted my Lyme results and I kept calling them. The lady didnt want to give me the results over the phone because she said he would explain it to me at my follow-up appt.

That didnt go over well with me so I pushed her to answer negative or positive. She finally said ok...its negative but the Dr. will have to explain everything when he sees you.

Ah, okay...that's what I was thinking...then I'll just have to wait the three weeks, lol.

Andrea...OMG...how FUN!!!! :lol:

and I'm not just talking about the horses....but also getting the Mickey D's FOOD while riding the horses. :P

It is fun!!!

Interesting about the fibroids--the one I had was 8 centimeters (grapefruit sized). So many women have them--there has to be more to it than meets the eye.....

Yeah, I agree. :(

happygirl Collaborator
happygirl
Posted

Donna, I was positive for mycoplasma pneumonaie.

about bells palsy:

from Open Original Shared Link

The etiology of Bell palsy remains unclear, although vascular, infectious, genetic, and immunologic causes have all been proposed. Patients with other diseases or conditions sometimes develop a peripheral facial nerve palsy, but these are not classified as Bell palsy (see Differentials).

Viral infections: Clinical and epidemiologic data lend credence to an infectious origin, which triggers an immunologic response, resulting in damage to the facial nerve. Pathogens leading the list include herpes simplex virus type 1 (HSV-1); herpes simplex virus type 2 (HSV-2); human herpesvirus (HHV); varicella zoster virus (VZV); Mycoplasma pneumoniae; Borrelia burgdorferi; influenza B; adenovirus; coxsackievirus; Ebstein-Barr virus; hepatitis A, B, and C; cytomegalovirus (CMV); and rubella virus.

also:

Open Original Shared Link

Open Original Shared Link

from Open Original Shared Link

" Lyme disease is also a common cause of Bell's palsy, especially in the northeastern United States."

Open Original Shared Link

dlp252 Apprentice
dlp252
Posted

Thanks for the info on mycoplasma Rachel!

Donna, I was positive for mycoplasma pneumonaie.

about bells palsy:

from Open Original Shared Link

The etiology of Bell palsy remains unclear, although vascular, infectious, genetic, and immunologic causes have all been proposed. Patients with other diseases or conditions sometimes develop a peripheral facial nerve palsy, but these are not classified as Bell palsy (see Differentials).

Viral infections: Clinical and epidemiologic data lend credence to an infectious origin, which triggers an immunologic response, resulting in damage to the facial nerve. Pathogens leading the list include herpes simplex virus type 1 (HSV-1); herpes simplex virus type 2 (HSV-2); human herpesvirus (HHV); varicella zoster virus (VZV); Mycoplasma pneumoniae; Borrelia burgdorferi; influenza B; adenovirus; coxsackievirus; Ebstein-Barr virus; hepatitis A, B, and C; cytomegalovirus (CMV); and rubella virus.

also:

Open Original Shared Link

Open Original Shared Link

from Open Original Shared Link

" Lyme disease is also a common cause of Bell's palsy, especially in the northeastern United States."

Open Original Shared Link

Hum, I wonder if Dr. S will test for mycoplasma as well. It's interesting because I tested (stool test) for klebsiella, which I also saw mentioned on one of the mycoplasma pages... Maybe I'll mention it when I see him in May.

And, re the bells palsy...I don't think it applies to me, but I do notice that one side of my mouth droops and my eyes droop when I'm really, really tired. Not the normal droop, but the outer corners of my eyes droop. Sometimes my smile is just off a little with one side higher than another...it's noticable in some of my more recent pictures, but not so much in my older ones and definitely not in my baby/childhood pics. I don't have any numbness in my face though.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Bells Palsy is definately a symptom of Lyme. I would think anyone with Bells Palsy should be tested for Lyme to make sure thats not the cause.

I first learned of Bells Palsy when I was researching about mercury....because I still had all that galvanic reaction going on in my mouth.

Its also a symptom of mercury toxicity. I recall one womens site which had a picture of her prior to getting her fillings out and going through chelation. She had Bells Palsy...it was very apparant.

After she got detoxed the Bells Palsy was gone!! She looked totally healthy in her "after treatment" picture.

Mercury symptoms are a mile long (just like Lyme) but Bells Palsy is there with the muscular and skeletal symptoms

Muscular and skeletal

Back pain

Foot problems

Muscle weakness

Muscle atrophy

Cramps

Muscle twitches

Neck/shoulder pains

Scoliosis

Bell's palsy

Shooting pain

Joint pain

Open Original Shared Link

AndreaB Contributor
AndreaB
Posted
Interesting about the fibroids--the one I had was 8 centimeters (grapefruit sized). So many women have them--there has to be more to it than meets the eye.....

One thing I didn't mention was that at my doctor's visit in March he said my uterus was larger than it should be and asked if that was normal for me. I told him I didn't know. :blink:

I'm hoping it's not fibroids, but I'm hoping if it is that taking care of the amalgams and chelation will take care of it.

I agree that there has to be something that is causing these and that there are so many women that have them.

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      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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