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Omg...i Might Be On To Something


Rachel--24

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AndreaB Contributor
Stuff about mercury...

This makes is so difficult to wait over another year before I get my teeth taken care of. :( Just can't do it this year. The rise in prices is going to eat us alive as it is.


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NoGluGirl Contributor

Dear Susie and Bev,

Yeah! We are the Tornado Trio! ;) It will be so exciting! We would have to make sure to go with a professional, though. I wish I could take credit for Twister Sisters, but that title was invented by two women who chase storms together already! My witch name is Weathr because of my affinity with weather. Plus, no Goddess names really fit me. :lol: My name is sacred to the Craft.

Dear Susie,

We love you goofball! :) You are fun to hang out with. If it were not for you, things would not be as interesting here in Rachelville. Everyone has their own wonderful qualities! Your humor and insights are greatly appreciated by us all!

Regarding the Pepe Le Pew Poo, I think that is a job for the Dookie Detectives! :lol: Or would the Poop Patrol be more fitting? Only in Rachelville can this exist! There is a lot of scientificness involved, and therefore, must be analyzed before making a decision. After all, it is of the utmost importance that the Diarrhea Diagnosticians be taken seriously!

Dear Jenny,

Your symptoms sound so much like mine! :o The GI issues especially are all too familiar. I went through a lot of misery as well to be told I was either crazy or just had IBS. I finally realized there is no way those morons in labcoats were right! The Celiac certainly has played a role in the suffering.

However, since a course of antibiotics, I returned to the horrible nausea and other things plaguing me once more. :( The reflux was unbearable for me before going gluten-free. I actually was taking twice the dosage of Prilosec a day and still had to sleep practically sitting straight up! After going gluten-free, I can sometimes even cheat and not take my second dose! The other day, I actually went more than 24 hours without it!

Dear Bev,

I do not think there is such a thing as too much information here either! :lol: As they said on "Scrubs", "It All Comes Down to Poo!" :lol::P Did you see that? It was hilarious! We have talked about Casper Crap, and so much more!

The possibilities are endless!

The potato chips can be an issue. Lay's Stax, as Carla mentioned, are safe. I am nervous about the flavored ones. I might try some and see if I tolerate them. The plain ones taste just like Pringles, but without the gluten! They are delicious!

Dear Andrea,

You got it! My appointment is the 5th of June, the same day as Judy's! I will be sure to keep what you told me in mind. I will have to order the kit, then have the blood drawn at the doctor's office and shipped directly to IgeniX from there?

Is that how that goes?

I am sorry to hear you are having such difficulty with Talitha. My friend Jacqui said her daughter's personality has changed suddenly. She said she was the poster child for kids, then just some weeks ago, it changed. Her daughter is acting out all of the time. I think it is either the gluten she is eating at school, or Lyme she may have gotten from Jacqui if she has it.

Dear Laura,

Thanks for adding the bugs and viruses! That is an important part of the Lyme spectrum. We do not want to neglect those! Lyme is linked to so many things! It is evil! :angry:

Dear Rachel,

I am glad you explained the mercury issue more. It makes a lot of sense. Some people just do not naturally chelate. Others are impaired by factors such as illness and environmental exposure. There are quite a few pieces to that puzzle.

Dear Donna,

I am glad you finally got to paint your toes! It always makes me feel better getting pretty! I love make-up! I am getting some new make-up tomorrow. I may go to the grocery as well! They have Lay's Stax on sale! Yay!

Dear Patti,

I am sorry you are still itchy. That is a bummer. At least you have an idea of what the cause was now, though. With frail systems like ours, the slightest difference can be trouble! This is so unfair! Hopefully you will start to see a difference soon!

Dear Robbin,

It is nice to see you again! How are you doing? We are glad you have come back to Rachelville! It is wonderful to have others pop in! Feel free to visit more often!

Dear Lisa,

I know it is difficult waiting on your teeth to be finished. Your system is having a lot of trouble. The chelation cannot occur until you have removed the amalgams. The mercury will continue to leach into your system while they are in there! We understand your frustration, but know going slow is the best thing.

Dear Carla,

I hope Morgan's health does not suffer for waiting! Maybe she will be lucky and not have Lyme? We can hope, anyway. I am having a tough time giving up sugar, but do not eat as much of it as I used to. I did have chocolate chip cookies yesterday, and I was in heaven.

That is, until they made me queasy. They were gluten and dairy free, but I do not think it was the cookies so much, but maybe because I waited to long to eat. I was extremely hungry by then. I get sick if I wait too long to eat, too. My blood sugar gets low. They probably had too much fat, though. That did not help any.

Dear Judy,

I am pulling for you! I hope you post your Western Blot results. The ladies on here could help interpret them. I am curious. Do it when you can!

Dear Patti and Judy,

Which one of you mentioned the other day about those toaster bags? I saw those at the Kinnickinnick site. They are a good price. They would be helpful! We certainly do not have enough room for two toasters on the counter! I was pretty sure it was one of you two who mentioned this. I forgot to respond, though. It is difficult to keep up with this thread the way the new format is.

Dear Everybody,

I got my new cookware set the other day. It is stainless steel. Although it is not easy to clean, it is great! The food tastes better! That nonstick coating was making me dizzy and queasy smelling it while I cooked. I got my set at Wal-Mart. It is by Tramontina. I have a dutch oven, two different sauce pans (and their lids), plus a skillet! They were only $22.88.

Sincerely,

NoGluGirl

AndreaB Contributor
I got my new cookware set the other day. It is stainless steel. Although it is not easy to clean, it is great! The food tastes better! That nonstick coating was making me dizzy and queasy smelling it while I cooked. I got my set at Wal-Mart. It is by Tramontina. I have a dutch oven, two different sauce pans (and their lids), plus a skillet! They were only $22.88.

Yay on the new cookware. Better a little more work than making yourself sick. :P

As far as Igenex I believe if you take the paperwork in that the doctor would mail it out. Carla would know for sure though since she did this.

Rachel--24 Collaborator
Wheat I knew about since my doctor told me. Carrots and lettuce. :blink: Are we to assume that organic would be ok? :unsure: I hope, I hope, I hope. Course you still have runoff I'm sure. :rolleyes:

Andrea...dont know about the carrots and lettuce?? :unsure:

I cant eat carrots at all...I never could figure out exactly why...is it the Auxigro?? :unsure: Or maybe something they put on the baby carrots which are packaged?? Or is it this...something about mercury?? :unsure: Is it mold?? WTH??? :huh:

There is just too many possibilities...all I really know is carrots are NOT ok for me. <_<

The mercury contaminated grains has come up lots of times before but every time I have to wonder WHY??? Why on earth do they willingly and knowingly use a toxic substance to "protect" the crops?? :huh:

More mercury stuff....

Allergies

If you have allergies to foods, it is best to avoid them during the first three months of treatments. This is especially true if you react to grains since many of them are treated with a mercury fungicide. You might be reacting to the fungicide and not to the grain.

GREAT....if its not the fungus itself...then its the darned poison to get rid of the fungus. I just cant win! :angry:

My oats are gone....I'm grainless once again. :rolleyes:

Andrea....no more bad news tonight.....I promise. ;)

This is regarding chelation with DMPS...

How soon will I feel better?

You will probably begin to feel worse, first! The DMPS causes mercury to mobilize in your system, disrupts its stability and exacerbates your symptoms. But as there is less and less mercury in your system, you begin to notice that your symptoms will gradually lessen and finally disappear.

How long does it take for the symptoms to go away?

Much of that will depend on how long you have been sick, how much mercury you are storing in your body, and how you react to the treatment. Most patients will conclude their therapy anywhere from 6 months to 2 years.

What are the side effects of the therapy?

Sometimes your symptoms will appear to worsen for a few days as the mercury mobilizes. Other side effects include flu-like symptoms. You should be carefully monitored for worsening symptoms or new symptoms.

Will I be completely normal again?

In most cases, yes. :) However, many people suffer the destruction of mercury toxicity for years and years. Some of that damage, for instance to your liver or brain, may not be 100 percent recovered. Only time will answer that question.

Sounds pretty good to me...the Dr. already said my liver wont be 100% again...but it'll be close...I'm cool with that. B)

CarlaB Enthusiast

Jin, you take the kit to the doctor's office. It's a box with everything that's needed for testing.

Rachel--24 Collaborator
I got my new cookware set the other day. It is stainless steel. Although it is not easy to clean, it is great! The food tastes better!

YAY!!!

I know how muh you wanted new cookware...I'm glad you were able to swing it. :)

I got my new stuff....what is that French word?? :unsure:

I think its "Le Creuset" or something like that....I've used them a few times already....LOVE it. :D

I'm kinda scared by how heavy they are though :blink:

Good thing I've got some muscles on me cuz these pots and pans are like weights!! I could totally work out with my cookware!! :P

They are multi-functional. :D

AndreaB Contributor
Andrea...dont know about the carrots and lettuce?? :unsure:

I can't eat carrots either. I tested very low for them but they don't like me or Seth (or maybe it was just Seth....I don't remember). I do eat lots of lettuce though.

Now I wonder how much of our "problems with most grains" come from being treated. We do well with rice. The only corn we eat is in corn flakes for the most part.


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NoGluGirl Contributor

Dear Andrea and Carla,

Thank you for the information on the IgeniX testing. I will make sure to do exactly what I am supposed to. That is, assuming my doctor knows how to interpret the results. It is also assuming she does not think I am a hypochondriac. Meanwhile, I am happy I atleast know the procedure!

Dear Andrea and Rachel,

I love my new cookware! I agree that the effort is worth it. Since I have the Dawn Power Disolver and Brillo pads, that helps! I called on the Brillo Soap Pads last week. I am so glad they are safe!

Dear Rachel,

I am glad my pans are light. However, I get a pretty good workout with our dog. He is always wanting carried. So, I lift him a lot. He weighs 7.5 pounds, which is not too much. Even so, I think he has helped me build strength in my arms. The other day, I move a whole box of lead chrystal for my mom. I never used to have that strength in my arms!

Sincerely,

Jin

P.S. For a good laugh, I decided in case you have not seen that "Scrubs" episode, here is a link. Go to Open Original Shared Link so that you can view it. Just click the "Play Video" part! Zach Braff is even cute singing about poo! How many guys can you say that about?

Rachel--24 Collaborator
Regarding the Pepe Le Pew Poo, I think that is a job for the Dookie Detectives!

ROFLMAO

:lol::lol:

Hey Susan...was it you who asked if anything was considered TMI in this thread?? Ummm....I'm thinking NO at this point. :lol:

Donna.....your dream totally had me cracking up on my lunch today. :lol:

Why do I always have to be the one who gets LOST though??!! :o

I swear...if someones gonna get lost...wether its in a dream....real life...whatever....its always ME!! :ph34r:

What is up with that? :huh:

I'm glad you were concerned about finding me :) ....other people have not been so concerned when I've gone "missing". :rolleyes:

Oh....and the part about thinking I was off somewhere racheling ice cream... :lol::lol:

Dang...you guys know me so well. :P

NoGluGirl Contributor
ROFLMAO

:lol::lol:

Hey Susan...was it you who asked if anything was considered TMI in this thread?? Ummm....I'm thinking NO at this point. :lol:

Donna.....your dream totally had me cracking up on my lunch today. :lol:

Why do I always have to be the one who gets LOST though??!! :o

I swear...if someones gonna get lost...wether its in a dream....real life...whatever....its always ME!! :ph34r:

What is up with that? :huh:

I'm glad you were concerned about finding me :) ....other people have not been so concerned when I've gone "missing". :rolleyes:

Oh....and the part about thinking I was off somewhere racheling ice cream... :lol::lol:

Dang...you guys know me so well. :P

Dear Rachel,

I thought you might enjoy that line about Pepe Le Pew Poo and Dookie Detectives! :lol: There are so many fun combinations we can create! Speaking of dreams, I had one as well. It was all about food, as usual! :lol: If it makes you feel any better, I would worry if you went missing! :(

Sincerely,

Jin

Rachel--24 Collaborator

Lisa....heres some stuff you can keep in mind while trying to get through everything right now...

Avoid

Items to avoid that are harder to digest or have little nutritional value are refined foods, processed foods, fast foods, fried or visibly greasy foods.

Fish

Avoid fish and seafood at all costs! The majority of fish and seafood are known to have heavy metals, including mercury. Do not eat any!

Allergies

If you have allergies to foods, it is best to avoid them during the first three months of treatments. This is especially true if you react to grains since many of them are treated with a mercury fungicide. You might be reacting to the fungicide and not to the grain.

Water

This nutrient is essential for chemical reactions, cleansing, and optimal body function in the brain, kidneys, liver and GI tract. Use filtered or distilled water. Avoid straight tap water since it can have lead, aluminum, PVC, mercury, copper, and other chemicals and metals. These only add more stress to your already stressed state. Drink at least one 8-ounce glass of water every hour throughout the day.

Sunshine

This is a regulator of your circadian rhythms (the cycle of hormones that regulates metabolism and organ function). It also stimulates your skin to produce vitamin D. It is recommended that you have 15 to 20 minutes of exposure per day. Besides that, it feels good!

Activity

Exercise, even if you feel you cannot. Just walk. Walk around the block if that is all you can do. Ride a stationary bicycle or treadmill (it's a great way to catch up on movies you might have missed). You must exercise. Advance slowly. If you are able, lift weights. When you exercise, you tone your muscles and organs. The tissues in the muscles break down and release the cellular toxins and you body is better able to cleanse itself and rebuild healthy tissue.

You should have 20 minutes of exercise per day, 3 days a week. Increase to exercising every day for 20 minutes and then begin to increase the duration and the intensity of the exercise. Variety will keep you interested. An exercise partner will help you be faithful.

Sleep

Choose a regular pattern of sleep. Your body and brain repair themselves during sleep. Your body sleeps better (deeper and more restful) the hours before midnight. It is best to be in bed by 10:00 p.m. If you awaken early, do not get up if it is before 5:00 a.m. Try to fall asleep again. Even if you are awake, stay in bed until after 5:00. This will help you develop a natural rhythm and pattern that your body will begin to follow. Be consistent. You should get between 8 and 9 hours of sleep every night. Also, maintain your sleep schedule even on weekends and vacations.

Bowels

Mercury and other toxins are eliminated in the stool more than in the urine. Constipation is your worst enemy. If the toxins stay in your bowels for too long, then they will be reabsorbed.

It is recommended that you have one or two stools a day. However, this is not always possible if you are not eating much. Just make sure they are consistent (once every 2 or 3 days) and soft.

Do not take laxatives since they can cause an imbalance in the absorption process in the GI tract. Stool softeners and bulking agents are preferred. Drinking all the water your body requires helps a great deal, too. And, vitamin C will also help remove mercury

Supplements

If you have found supplements, through trial and error, that make you feel better or function better in daily life

Rachel--24 Collaborator

From Klinghardts "9 Steps To Detox From Mercury Fillings"

The Klinghardt Neurotoxin Elimination Protocol

Open Original Shared Link

I've referred to this page countless times...and still learn stuff from it.

Here is part of his program for detox...

High protein, mineral, fatty acid and fluid intake

Rationale:

Proteins provide the important precursors to the endogenous metal detox and shuttle agents, such as coeruloplasmin, metallothioneine, glutathione and others. The branched-chain amino acids in cow and goat whey have valuable independent detox effects.

(My Dr. currently has me on whey protein.....as does Lisa's)

Metals attach themselves only in places that are programmed for attachment of metal ions. Mineral deficiency provides the opportunity for toxic metals to attach themselves to vacant binding sites.

A healthy mineral base is a prerequisite for all metal detox attempts (selenium, zinc, manganese, germanium, molybdenum etc.). Substituting minerals can detoxify the body by itself. Just as important are electrolytes (sodium, potassium, calcium, magnesium), which help to transport toxic waste across the extra-cellular space towards the lymphatic and venous vessels.

(Dr. Amy has me on the multi-minerals....both the whey and the minerals also contain eloctrolytes.)

Lipids (made from fatty acids) make up 60
Clark Bent as Stupor-Man Contributor

jenny,

do you have health insurance? if you do, you should be able to do a number of tests through a standard doctor... you can have your blood tested for vitamin levels, hormone levels, serotonin, etc. as well as thyroid testing... you may find some levels that could benefit from supplementation and improve to some extent upon boosting any deficient levels...

there's other simple tests you can do that might benefit you for the time being like the candida spit test and a ph test using ph strips... I haven't done either test so I can't vouch for them but it's something that you could check out and won't cost you money...

and as you've been doing, you can see improvement in symptoms without necessarily directly treating an underlying condition... this is what I was doing for the past 15 months until I finally got a diagnosis of lyme disease through a positive blood test with Igenex last month... I saw improvement in a number of areas through dieting, taking supplements, a mostly regular sleep schedule, and exercise and physical activity the past few months as I was again able to do so... so continuing along the same lines of what you're doing now might be your best option while saving up money to do some further testing...

at this point, I would recommend doing no further food intolerance testing because I think your food intolerances (for the most part at least) are likely the result of a compromised system from some unidentified root cause(s)... I'd be inclined to think for a couple reasons (cost, accessibility, diagnostic efficacy, and likelihood to play a part in your situation) that the Igenex IGG and IGM Western Blots would be the best test to run when you get the money... the cost would be $190 though you might also have to pay out of pocket for a doctor depending on what doctor you are able to get to authorize and draw the blood for the testing...

it might also be beneficial for you to do a general parasite test and these are relatively cheap (if I recall right, I don't think you'd be paying more than $150 and it might be less than that)... you can get a candida test done along with most parasite tests as well.. I did these tests through a nutritionist who used a couple labs for the tests..

in regards to lyme disease and ticks, I don't even remember getting bit by a tick (except for once as a kid)... seems to be the case for a respectable percentage of people who test positive for lyme...

and as for not being able to take vitamins now, it might just be that the ones you've tried aren't as hypoallergenic as some others... some of the better vitamins might cost a bit more but won't have a lot of the filler ingredients and additives in other vitamins... I was hit or miss with different vitamins last year as I was trying to find ones my body agreed with and I seem to do good with the brand "Pure"... don't know what brands are sold at stores in your area...

oh, and carla, thanks for breaking up her post... I also have trouble reading posts that aren't broken up into small paragraphs...

DingoGirl Enthusiast
Regarding the Pepe Le Pew Poo, I think that is a job for the Dookie Detectives! :lol: Or would the Poop Patrol be more fitting? Only in Rachelville can this exist! There is a lot of scientificness involved, and therefore, must be analyzed before making a decision. After all, it is of the utmost importance that the Diarrhea Diagnosticians be taken seriously!

:lol: Jin, you are a lunatic! Um.....Dookie Detectives, Poop Patrol, ha ha. Rachel has declared that she isn't able to assume the role of Diarrhea Diagnostician, hence, she is going to be the Constipation Consultant, all of this falling under the umbrella of

Scatological Surveys. :lol::lol: [SCATOLOGY, great word, and for those who don't know, it is the study of, um, excrement.]

Hey Susan...was it you who asked if anything was considered TMI in this thread?? Ummm....I'm thinking NO at this point. :lol:

:lol: Indeed, no. And it's so nice, we have this place not only where "everybody knows your name," but where "everybody knows your CRAP," literally! :lol:

Stinker (aka, The Dog Who Will Not Die, christened by friends), she is madly fetching her ball, two days on thyroid meds and she is spunky again (albeit much slower and less agile), revived as a wilted plant given water. :) She has survived so many many things........and still going. Friends and relatives say she will outlive us all. :huh:

and I am watching, whilst puttering around in the studio-slash-office, the Spelling Bee, how lame is that????? :lol:

Rachel--24 Collaborator

Soooo....yesterday a customer told my boss that she needs to take me outside and SMACK ME AROUND for awhile!! :blink:

and on my BIRTHDAY even!! :o

Yeah...I get these crazy type customers now and then. :rolleyes: Retail is HEINOUS!!

Susan...I'm sure you can relate. ;)

or...maybe in your case....it was actually your bosses which were the heinoisty...and not the customers. :P

But nooo...my boss did not follow through on this. :P

Although today when I told her that just cuz I cant eat anything doesnt make me "crippled"....she said "Well...once I take you outside and smack you around...you WILL be." :rolleyes:

Rachel--24 Collaborator
at this point, I would recommend doing no further food intolerance testing because I think your food intolerances (for the most part at least) are likely the result of a compromised system from some unidentified root cause(s)... I'd be inclined to think for a couple reasons (cost, accessibility, diagnostic efficacy, and likelihood to play a part in your situation) that the Igenex IGG and IGM Western Blots would be the best test to run when you get the money... the cost would be $190 though you might also have to pay out of pocket for a doctor depending on what doctor you are able to get to authorize and draw the blood for the testing...

Charlie,

Great post....all very good advice for Jenny and I totally agree with everything you said....well...except for the candida spit test. :P

I think the spit test is not diagnostic of candida and can be influenced by many things.....alot of people with no illness whatsoever will test positive...people have even tested their pets...and guess what...they have candida too!! :o

Well...we all do have candida...its a part of us...so I'm not sure what the test proves??

I just think its a bogus test.

I totally agree that further food intolerance testing isnt useful...it wasnt helpful for me at all. It doesnt get to the root of the problem and since with leaky gut intolerances are constantly manifesting and changing...testing isnt really beneficial...that was my experience anyway.

Its also only focusing on symptoms of disease rather than the cause of disease itself...as you stated.

I saw improvement in a number of areas through dieting, taking supplements, a mostly regular sleep schedule, and exercise and physical activity the past few months as I was again able to do so... so continuing along the same lines of what you're doing now might be your best option while saving up money to do some further testing...

This is exactly what I did for about a year and a half...I got myself well enough to return to work. I focused on diet (candida diet.. no sugar, processed foods, organic, etc), spending time outside working in my yard, doing saunas, avoiding chemicals, lots of rest, lots of water, positive thoughts and antifungals.

This is what I did until I was able to get with some really knowledgeable Dr.'s.

Rachel--24 Collaborator
Rachel has declared that she isn't able to assume the role of Diarrhea Diagnostician, hence, she is going to be the Constipation Consultant,

:lol::lol:

Ummm...yeah...seee this is something I am very familiar with. :P

Dont think I'll be adding my newest title to my signature though. :ph34r:

Can you just see it now...

Constipation Consultant for Rachelville

Stinker (aka, The Dog Who Will Not Die, christened by friends), she is madly fetching her ball, two days on thyroid meds and she is spunky again (albeit much slower and less agile), revived as a wilted plant given water. :) She has survived so many many things........and still going. Friends and relatives say she will outlive us all. :huh:

GO STINKER!! :D

Robbin.....as always its nice to see you. :)

Dont be a stranger....as you can see you've got lots of friends here....we love to hear from you. :)

G'nite all :wub:

DingoGirl Enthusiast
or...maybe in your case....it was actually your bosses which were the heinoisty...and not the customers. :P

But nooo...my boss did not follow through on this. :P

Although today when I told her that just cuz I cant eat anything doesnt make me "crippled"....she said "Well...once I take you outside and smack you around...you WILL be." :rolleyes:

:lol::lol::lol::lol::lol::lol:

Why yes, you are COMPLETELY CORRECT in your assessment!! customers LOVED me!!!!!!!!!!! Um, did I mention, NO ONE in that family paints or does anything remotely creative, and so they hide in the back office??????? so that WE can answer the questions????? (residual rage coming through here, folks)

Rachel - - - did your boss say it with a winky face, or is she seriously going to beat you? ;):ph34r::lol:

Judyin Philly Enthusiast
Dear Judy,

I am pulling for you! I hope you post your Western Blot results. The ladies on here could help interpret them. I am curious. Do it when you can!

Dear Patti and Judy,

Which one of you mentioned the other day about those toaster bags? I saw those at the Kinnickinnick site. They are a good price. They would be helpful! We certainly do not have enough room for two toasters on the counter! I was pretty sure it was one of you two who mentioned this. I forgot to respond, though. It is difficult to keep up with this thread the way the new format is.

Sincerely,

NoGluGirl

THANKS JIN...

WILL TRY TO GET AND POST FOR YOU ALL

I TOLD YOU ABOUT THE TOASTER BAGS BUT ALSO THE SHEET OF PAPER AND ROUND ONE FOR THE PIZZA OR WHAT EVER..........CAME FROM QVC. IF YOU CAN ONLY GET THE BAGS...THEY ARE SOOOOOOOOOOOOOOOOOOOOO WORTH IT.

JUDY

HI ROBBIN...........SO NICE TO SEE YOU HERE TOO

Judyin Philly Enthusiast

HI ANDREA

HOW ARE YOU DOING AND YOUR LITTLE "t'

AndreaB Contributor
Stinker (aka, The Dog Who Will Not Die, christened by friends), she is madly fetching her ball, two days on thyroid meds and she is spunky again (albeit much slower and less agile), revived as a wilted plant given water. :) She has survived so many many things........and still going. Friends and relatives say she will outlive us all. :huh:

Yay for Stinker! So glad she is feeling better. :D

Soooo....yesterday a customer told my boss that she needs to take me outside and SMACK ME AROUND for awhile!! :blink:

But nooo...my boss did not follow through on this. :P

Although today when I told her that just cuz I cant eat anything doesnt make me "crippled"....she said "Well...once I take you outside and smack you around...you WILL be." :rolleyes:

:lol::lol::lol:

AndreaB Contributor
HI ANDREA

HOW ARE YOU DOING AND YOUR LITTLE "t'

Been a very trying day and now I've got to get everyone to bed......be back in a bit. :) Mitch has to stay over a couple hours from here.....

Rachel--24 Collaborator
Rachel - - - did your boss say it with a winky face, or is she seriously going to beat you? ;):ph34r::lol:

:lol::lol:

Definately a winky face this time. ;)

I'm pretty sure there are other times she might truelly wanna beat me down....the law just prevents her from doing so. :P

Oh yeah....and then there are my muscles...she may be somewhat intimidated. B)

Hey Jin...what new board format?? :unsure:

My format is the same....maybe you got swtiched to "linear" by accident??

Try going to "Options" at the top right hand side....go down to display modes and set it on "standard". See if that helps. ;)

NoGluGirl Contributor

Dear Susie,

Yep! I am a lunatic! A laughing lunatic! :lol: Scatology is a new word for me! :lol: Hence, I now know the word for "the study of crap." :lol:

That is wonderful news about Stinker! I am so glad to hear she is doing better! Tasha Bear was a lot like her. She went through a lot, but managed to survive. Animals truly are amazing!

Dear Judy,

I thought it was you who mentioned the bags! I know you always type in caps, and that is why I thought it was probably you and not Patti. The bags would definitely be worth getting. Then I could have toast again once in a while! :) I had no idea QVC sold stuff like that! Thank you for the information!

Dear Rachel,

I took the information you provided on the mercury sources and pasted it into Word. It is now in my Health Folder. I also bookmarked the link you gave us. I would not be surprised if I had mercury poisoning, because there are times where I have eaten 12 oz. (2 whole cans) of tuna per week!

That would be hilarious if you put "Official Constipation Consultant of Rachelville" on your signature! :lol: People will be like "WTH?" :blink: That is so funny! Plus, Susie could teach at Rachelville University. She will be a Professor of Scatology! :lol: We will have a sign that says "Our professor knows her crap!" :lol:

I cannot believe that customer you had! Retail does suck. My brother used to work at Wal-Mart. He was there for six or seven years. Chad does not recommend anyone getting into retail, because it has not been a good experience.

Thank you for clearing up the funky screen issue! I thought the forum changed its format. It was harder to keep up with everyone the way it was. It was either the outline format, or the linear one. Whatever it was, I did not like it! I did what you told me, and now it is back to normal!

Sincerely,

Jin

happygirl Collaborator

just a quick goodmorning to all---still reading along.

i'm off to an IV and an impromptu drs visit...having some other issues...then off to my first visit with a PT.

on top of all this, I've had D for the past four days. I think its because I added alinia for three days. Delightful.

I still owe a catch up post, but tonight we are going out of town AGAIN. The next two weekends after we are home, and I am so excited. I need to rest!

I'll write more...eventually ;). Hope everyone has a wonderful weekend. R-happy you got an app't with Dr. A.

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    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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