Omg...i Might Be On To Something

[NoGluGirl]

Dear Richard,

I understand why you feel that way. It stressed me out reading the statements! This is so unlike everyone. I do not know what happened here. All of the sudden, everyone started losing it!

Dear Donna,

My sentiments exactly! I love everyone, too! This is so tragic. Rachelville was our little Perfect, like in the Walgreens commercials. Now it is like to real world. Full of insanity and fury. That is not the Rachelville we know!

I do not believe I had any other symptoms of Shingles. At least, not that I know of. My grandmother had it, but she had a lot of other things besides the rash. My rash was not extremely painful. It itched mostly. I cannot say it was or was not Shingles though!

Sincerely,

Jin

[Clark Bent as Stupor-Man]

put me in the not feeling great recently camp, but just to add real quick...

I've benefited a lot from reading posts from both carla and rachel in this thread, probably the two of you for my particular situation moreso than anyone else in this thread.. not having both of you post would take away a valued source of information and perspectives for myself and many others, both those who are known to read and reply to this thread and who knows how many others who check out this thread for any insight into their situations...

it's only natural to expect some disagreements over time on message boards, and it probably doesn't help when it comes to these disagreements that we're dealing with subjects as personal as these regarding our health... but we're all here for a common goal and it would be disappointing to lose either one of your voices as a result of this..

[dlp252]

I do not believe I had any other symptoms of Shingles. At least, not that I know of. My grandmother had it, but she had a lot of other things besides the rash. My rash was not extremely painful. It itched mostly. I cannot say it was or was not Shingles though!

My mother just had shingles last year...she had it on her face. The spot was on her eye and forehead...looked almost more like a sore than a rash. It was very painful, and I don't remember her saying it itched much.

I had mine in a strip around my waist from the middle of my back around to the frong of my waist. The was pain first then the rash came out, and I just can't remember if it itched...the pain was just etched on my brain I think.

[AndreaB]

Oh, you and me both...it's been especially bad the last couple of weeks...my eyes just gloss over at the darnedest things. I'm even zoning out while at work...hard to proof legal documents when you can't read more than three words at a time.

I can see how that would be real difficult.

I do hope things calm down and everyone starts posting again.

[jerseyangel]

this thread has been almost entirely about love and support. Over 1100 pages of pure support. What's happened in the last few days is a shocker and is not really what has been going on here the entire time.

Donna, this is so true. This thread, the friends I have here, will always have a special place in my heart.

I sure hope that we can keep contact somehow--there will definately be a void for me if this ceases to continue.

Shingles--my dad is suffering through his second bout with it right now. The first was not nearly as bad as the second. This one was most likely brought on by stress, and is primarily very, very itchy--not really painful. I know some people have horrible pain, so it's probably just an individual thing. His doctor has him on Valtrex for it.

[mftnchn]

Hi everyone. I am really busy so can't read the posts yet, will try to later if I can.

Just a note that I am much better today. 4th day off all grains and legumes. The day before my next flagyl dose.

Also, yesterday I was feeling really fatigued, thought it might be allergy withdrawal symptoms. I remembered my allergist told me I could take 2000mg of Vit C every two hours for allergy symptoms (I can't take hardly any antihistamines as they cause insomnia).

So I took a scoop of C powder, has 2350 mg C, 350 mg Calcium, 350 mg Magnesium, and 99 mg Potassium per rounded scoop. I immediately felt much better for the rest of the day! And today one of the best days I have had. Pain isn't gone but only just a bit of stiffness.

So I took a total yesterday of 1600 mg Magnesium, and 4350 mg vitamin C. This morning I had stool that was slightly loose. Yeah!!!

Sooo, next time I think I am having a herx I am going to do this again. I can't believe the size of the doses that I seem to need.

[AndreaB]

Sooo, next time I think I am having a herx I am going to do this again. I can't believe the size of the doses that I seem to need.

Glad you had a better day today Sherry.

That does seem like alot of C.

[gdsaddler]

My doc had gone trhough something similar that is when he did a full testing panel through Enterolab abd found out he was intolerant of soy, dairy and gluten it even took him a while to figure out...

[Fiddle-Faddle]

I thought maybe it was a full moon, as we all seem to have gone barking mad. But apparently, it's only a waning crescent.

However, I did find a very cool website that can help us keep track of the full moon (this way, we'll know when we're supposed to howl): Open Original Shared Link

Awoo-OOO--0000--OOOOO--

Oh, shoot, not time yet!

[AndreaB]

Awoo-OOO--0000--OOOOO--

Oh, shoot, not time yet!

Tee Hee.

[NoGluGirl]

Dear Donna,

The rash I had was more like your in location. However, it did not hurt so much. The itch was annoying. The cream did the job. I do not recall having any other symptoms.

Dear Patti,

I have no idea if it was poison oak or sumac, or what. All I know is, the hydrocortisone really did the trick. I thought Shingles was scaly. My grandmother was in terrible pain like Donna. I did not really have pain, except maybe a slight burning sensation.

Dear Patti, Andrea, Alison, and Donna,

I sure hope things get back to normal, too. This craziness is scary! It is hecka freaky! No one ever gets this hot and bothered! Incidentally, I always know the moon phases if anyone needs to know.

Dear gdsaddler,

There do seem to be more doctors with food allergies now. Apparently, they are not immune to it either! Just because you are studying health, does not mean you can escape sensitivities! The sad part for me was, no doctors knew anything about them. I have been ill for so long, and the doctors seem to take their sweet time. You just feel like screaming "Dude! I sort of do not want to die! Could you hurry it up a little?"

Dear Sherry,

I am so glad you are feeling better! I need to remember that stuff you take! In case I have a herx, I will know what to try. Of course, that is, if there is not a metal situation going on. At this point, it is difficult to say.

Sincerely,

Jin

[tom]

Hi everyone.

Well . . . . . . . I had quite a day.

I expect everyone here has lost someone they loved. The first anniversary of a death is a different type of day.

Since Pat was such an outdoorsman, I went to do a little hike in South Mountain Park here. I haven't been able to even consider a possible hike in I don't know how many years.

Discovered why people don't hike in Phx in the summer. It may have been >100 degrees by 10am!! Pretty much a giant DUH for me.

Spent much of the day w/ Mom.

Pretty surprised to see so many new pages here today.

So . . . . .did I miss anything?

[tom]

Ok yes I know a little of what went on today. Seems a shame.

I was only reading parts while waiting for page loads on this phone.

But I saw enough to know it wasn't the same thread we've all come to know and love. (Even at 5 measly weeks I know *this*!)

I could've sworn there was a lovefest just days ago.

I did see a post from Donna (Hi Donna!) that seemed like a great reminder of how much help so many have gotten here.

I'm sure plenty of other ppl posted similar - I just haven't yet been ready to catch up.

I'd just like to toss a couple comments in.

I doubt any of the regulars can say there hasn't been a time (probably many times) that this thread didn't provide *exactly* what they needed that day.

Maybe it's a new medical clue, or a different slant on their health situation. Could be a little tip on doing something slightly differently, and that small change has a larger impact.

Maybe it's just reading along on a crappy day, and unexpectedly having a first laugh for that day.

All of these are important and I know everyone's been there.

I'll wade thru the vitriol tomorrow I'm sure and have a better idea of what's heppened.

But it won't affect the feeling that this thread has served everyone well, and should continue w/ the same roster of regulars, posting what they post.

Hehehe Letterman on and just said the TopTen list started in sep'85 w/ "TopTen things that almost rhyme w/ Peas".

What a goofball!

[AndreaB]

Tom,

The thread has gone through upheavals before. Hopefully it will continue after things have cooled down for a few days. That's what happened before anyway.

[mftnchn]

Just a note, as I have caught up on reading the threads. I think many very good things have been said about what has happened here.

I have really appreciated this thread too, and both Rachel and Carla's contributions as well as many others. I've appreciated that several people have even researched or looked for information in my behalf.

I have noticed at times that the tone of a post strikes me as passionate, and also sometimes not open to other ideas (that's how it strikes me, not necessarily the intent of the writer). For myself, I just read what is valuable to myself and skip past the rest, while trying to give a bit of support or ideas to others as my energy allows.

At the same time, sometimes I wish the info was posted on a separate thread with a clear topic so that I can find what is pertinent to me a bit quicker.

Along with that, I also see the power of this thread in terms of support and connection.

[KAG]

I just started reading this thread not too long ago. I tried to go back from the beginning but it's just way too time consuming. I guess I just don't know you guys very well, but it didn't seem TOO heated to me. I appreciate differences of opinions. And I guess I can appreciate everyone's passion. I know that I can't talk to most of my friends about this stuff because they have no clue and think I'm just some kind of nut.

I do know that reading this thread has helped me quite a bit. I have been dealing with major issues for over 10 years now and I seem to jump from one idea to another and then forget the first idea. They really are all related. I know that I have forgotten all about my candida issue and while it is not as bad, I think that I am still dealing with it. I do know that gluten is a major problem for me but it is not the only one. Substituting gluten free foods for all this sugar is still bad for me.

I just wanted to say thanks for all of your postings. It really does matter. You guys are helping others. It's hard for me to communicate this way since I am not used to talking to people this way, so I am sorry if I tend to just focus on myself, but thank you.

Kim

[jerseyangel]

Hi Kim,

I understand completely what you are saying. When I found this board a couple years ago, and later, this thread, I literally couldn't believe I had found a group of people who were discussing all of the things I was going through but just handling by myself.

At the time, I wasn't even particularly computer literate--I was looking up an ingredient, and stumbled on this board. I had to ask my son to help me join up and post!

Anyway, it's been a big help to me, and I only wish everyone here the best. I'm glad you posted and there really is a ton of great info in these pages.

[dlp252]

Good morning everyone...I hope everyone is feeling better today. Me, I'm home sick. I could NOT sleep for anything last night and when I got up I was very shakey, so decided to call in sick. That leaves them with NO ONE in our department today at all, but I was actually afraid to drive today. Just had breakfast and my vitamins....feeling a bit shakey again, so glad I stayed home. I think the most ambitious thing I will do today is wash my sheets...I recorded a Lindley murder mystery last night, so that's it...I'm laying on the couch and watching my murder mystery.

Dinner was really, really fun, but I ate a little bit of yam and a little bit of the gluten-free brownie they have (I ate just a small part...my friends ate the rest and the ice cream that comes with it). One of those two things didn't sit well.

Hey Lisa - something else came to my mind last night as I was laying awake hour after hour...if you take magnesium today and react...wait until your reaction STOPS before trying to take anything else (3 days at least but more if necessary). If you're still having a reaction from the last thing you took, you may or may not be able to tell with the new stuff. Hope that makes sense?

Just a note that I am much better today. 4th day off all grains and legumes. The day before my next flagyl dose.

Also, yesterday I was feeling really fatigued, thought it might be allergy withdrawal symptoms. I remembered my allergist told me I could take 2000mg of Vit C every two hours for allergy symptoms (I can't take hardly any antihistamines as they cause insomnia).

So I took a scoop of C powder, has 2350 mg C, 350 mg Calcium, 350 mg Magnesium, and 99 mg Potassium per rounded scoop. I immediately felt much better for the rest of the day! And today one of the best days I have had. Pain isn't gone but only just a bit of stiffness.

So I took a total yesterday of 1600 mg Magnesium, and 4350 mg vitamin C. This morning I had stool that was slightly loose. Yeah!!!

Sooo, next time I think I am having a herx I am going to do this again. I can't believe the size of the doses that I seem to need.

This is interesting (Oh, glad you are feeling better by the way, lol). I've had two or three doctors tell me to take vitamin C. I'm currently taking about 2500 mg of the power (about half a teaspoon in divided doses). Doctor also wants me to take 500mg of magnesium, which seems like a lot to me. I'm hoping by the time I get to experience a herx I can tolerate a bit more vit C.

My doc had gone trhough something similar that is when he did a full testing panel through Enterolab abd found out he was intolerant of soy, dairy and gluten it even took him a while to figure out...

Hello and welcome!

I thought maybe it was a full moon, as we all seem to have gone barking mad. But apparently, it's only a waning crescent.

However, I did find a very cool website that can help us keep track of the full moon (this way, we'll know when we're supposed to howl): Open Original Shared Link

Well, I swear I thought there was one last week!

I sure hope things get back to normal, too. This craziness is scary! It is hecka freaky! No one ever gets this hot and bothered! Incidentally, I always know the moon phases if anyone needs to know.

Yeah, like Andrea said, we've had some hiccups here before, but I don't think I've ever seen it this scarey.

I expect everyone here has lost someone they loved. The first anniversary of a death is a different type of day.

Yes it is indeed!

Since Pat was such an outdoorsman, I went to do a little hike in South Mountain Park here. I haven't been able to even consider a possible hike in I don't know how many years.

Discovered why people don't hike in Phx in the summer. It may have been >100 degrees by 10am!! Pretty much a giant DUH for me.

Well, I give you a big yay for even thinking you WANTED to hike. I hope you didn't try a very long one though.

So . . . . .did I miss anything?

Oh, well, maybe just a little.

(Hi Donna!)

...

Maybe it's just reading along on a crappy day, and unexpectedly having a first laugh for that day.

Hi Tom! Yes, in fact, just last week (last week was particularly horrendous mood-wise for me for some reason). I had basically decided I needed to take a break from the boards. I was grouchy and I feel like I haven't been contributing much, and basically just feeling sorry for myself and my situation. I logged on two different mornings to quietly announce that I was going to take a break so no one would worry, and lo and behold someone had posted something that made me smile, and wham...I was right back in the swing of things.

I have great friends, who really, really want to understand what's going on with me, and some have a basic knowledge, but none of them has the depth of knowledge that any of you do about what it is specifically that I'm dealing with...I mean, I could hardly talk about scatology at dinner last night could I?

Along with that, I also see the power of this thread in terms of support and connection.

Yeah, and I think this is what has kept us from doing the separate threads before...there was a synergy about this particular thread. We tried a couple of offshoots for the fun and games aspect, but that died out after a while.

I just started reading this thread not too long ago. I tried to go back from the beginning but it's just way too time consuming. I guess I just don't know you guys very well, but it didn't seem TOO heated to me. I appreciate differences of opinions. And I guess I can appreciate everyone's passion. I know that I can't talk to most of my friends about this stuff because they have no clue and think I'm just some kind of nut.

I do know that reading this thread has helped me quite a bit. I have been dealing with major issues for over 10 years now and I seem to jump from one idea to another and then forget the first idea. They really are all related. I know that I have forgotten all about my candida issue and while it is not as bad, I think that I am still dealing with it. I do know that gluten is a major problem for me but it is not the only one. Substituting gluten free foods for all this sugar is still bad for me.

I just wanted to say thanks for all of your postings. It really does matter. You guys are helping others. It's hard for me to communicate this way since I am not used to talking to people this way, so I am sorry if I tend to just focus on myself, but thank you.

Kim

Thank you Kim, that was a very nice thing to post!

[CarlaB]

-

[angel-jd1]

I saw almost every moderator on here last night ... since I haven't heard anything from them, I am assuming we were keeping within the lines of respect that they expect on the board. So, we disagreed and got through it.

Carla-

It is Scott's decision at this point as to what he does/doesn't do with the thread and the people involved in the argument. Moderators are continuing to monitor this thread. I do believe it would be best to just "drop it" and quit bringing it up.

-Jessica

[CarlaB]

-

[dlp252]

This is a very important point you make, Donna. It seems doctors say to space things three days apart, but don't mention what to do if there's a reaction.

500 mg. is not too much. When I taught NFP, I had a nutrition book I would quote from to help women with their cycles. Cramping is usually a B6 and Magnesium deficiency. I had to walk that fine line so I wouldn't get accused of giving medical advice, so I'd quote this book. They recommended 1000 mg. I currently take 800. It's not going to hurt you. But be sure you take it away from iron.

Right before Scott changed the name of this thread to the Lyme Disease thread, he had asked me to start a Lyme thread. I was too sick and disoriented to do it. He told me to put it under related disorders and research.

With the break from here yesterday and with my better health, I finally did it yesterday. It got moved to the gab room though.

I hope those of you with Lyme will help keep the thread alive. I don't know about the rest of you, but I've gotten countless PM's from people wanting more info on Lyme. For every one who wrote, I'm sure there are others who did not.

I think that a Lyme thread would be beneficial for many on the board ... the intention of the thread is to have Lyme information readily available to those who need it. Most don't come looking to this thread for Lyme info. Very few of the ones I've told about this thread to have joined.

Yes, when I did the elimination diet back in November...it was part of the instructions from my doctor on what to do if you had a reaction. They said to wait until the reaction stopped before introducing anything else new. I suspect supplements would be the same principle.

As for the magnesium...the only thing that worries me is the D aspect. Course I've been having C the last 3 weeks or so, so maybe it's not a bad idea, lol. I think the only thing that I take that has iron in it is the liquid minerals thing that I have to take 2 hours apart from everything anyway...hum, have to check the calcium supplements though.

I haven't had any PMs about lyme really...a couple about H.Pylori and a few about the elimination diet. A separate thread would certainly make it easy to find info though...I'd like to still talk about it here though too.

[CarlaB]

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[tom]

Rachel - I'd like to express that I think u shouldn't change a thing in what & how u post.

I've said before I believe it has great value.

Most of my own last 5-8yrs, I wouldn't have been able or willing to go find such info on my own, and I'm sure plenty of readers are in that situation, whether we see their names or not. (I know we all see the #s of guests in the thread)

Having said that, I can't help but add that some of the value of the thread is in ppl politely disagreeing sometimes. We're not dealing w/ "is 2 + 2 really 4" here, and there are usually several valid viewpoints.

I regret my recent posts, but know that my original point had validity. I *am* unbelieveably better, w/out more treatment than anti-candida pills & strict diet, to the extent that the word "resurrection" is not an exaggeration.

(BTW to all - dictionary supports use of the word in non-religious contexts)

Perhaps I should have just stated my position by itself, and only have presented my supporting info/data if prompted.

Regardless of any BS I got into, please Rachel, keep doing what u do.

Wishing the best for u and everyone else who passes thru here. The level of support and help is nothing short of astounding.

Tom

[AndreaB]

I have really appreciated this thread too, and both Rachel and Carla's contributions as well as many others. I've appreciated that several people have even researched or looked for information in my behalf.

Me too.

I just started reading this thread not too long ago. I tried to go back from the beginning but it's just way too time consuming. I guess I just don't know you guys very well, but it didn't seem TOO heated to me. I appreciate differences of opinions. And I guess I can appreciate everyone's passion. I know that I can't talk to most of my friends about this stuff because they have no clue and think I'm just some kind of nut.

Kim,

I hope we see you around more often.

At the time, I wasn't even particularly computer literate--I was looking up an ingredient, and stumbled on this board. I had to ask my son to help me join up and post!

I didn't know that! Look at you now.

Good morning everyone...I hope everyone is feeling better today. Me, I'm home sick. I could NOT sleep for anything last night and when I got up I was very shakey, so decided to call in sick. That leaves them with NO ONE in our department today at all, but I was actually afraid to drive today.

I'm glad you stayed home. They need to come get your fax line set up so you can work from home when you aren't feeling well and they could still get a little of the work completed anyway.

I think all of us can take away something from this and be a better part of the thread. Maybe there will be more respect for differing opinions.

I hope so. I love this place and everyone in it......I know I said that yesterday.

I came from feeling that I can't make it to the point where I am now. I am making some serious progress. I'm about 70% on a non-herx day (I was only about 15% before treatment). I think that this shows hope to those just starting out on their journey.

I am so happy for you and the progress you've seen thus far.

I also think that my experience in suffering, in searching for answers, in struggling through treatment and herxes, all helps others.

Agreed. Everyone has a different experience overall, but different aspects of that experience will resonate with someone else.

I do not make scientific posts with quotes from Doctors. I did enough of that kind of thing in college ... not that it's not valuable, it's that I don't want to do it.

What I do instead is take my experience along with what I've read to come to my own opinions. That is what they are, opinions based on research and experience. Of course, that is what the doctors have too, their opinions based on research and experience. The doctors don't even agree on the best way to handle chronic illnesses, it would be silly to think we would.

I've done that a lot too.

I have learned though all this that I am not weak because of my physical weakness. I am strong. I am only now seeing how strong I have had to be to get to where I am.

You have to be strong to fight a chronic illness. It's just hard to see it when you're going through it.

My babs symptoms always act up immediately prior to a herx ... today I'm having trouble breathing, having heart palpitations, and I had a night sweat last night. It's coming.

Hope it's a short one and continues getting better each time.