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How Soon After Eating Gluten Do You Fall Ill?


againstthegrain

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againstthegrain Newbie

How quickly after eating gluten do you fall sick? Does it take hours? days?


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Carriefaith Enthusiast

I usually get brain fog within a few hours. My other symptoms don't appear until after about 12 hours and they can last for several days to two weeks.

natalunia Rookie

I have had diarrhea hit after only one hour after eating cake around 6pm (after not eating much earlier in the day). Typically though, the diarrhea hits me about 4-8 hours later. I haven't really paid attention to whether I get brain fog, but I now seem to get itchy when exposed to gluten now that I have been on a gluten free diet for 3 weeks. I usually have the diarrhea for anywhere from 8 to 72 hours. It all depends on how quickly the Imodium works! <_<

GreySaber Apprentice

Now, I'm not sure if I'm a celiac or an allergy, but I usually start to feel ill, maybe fourty minutes after I start.

IE, If I eat out and I eat something I ought not to have, I usually can tell as we walk out the door how fast we need to drive home. It's sort of like everything is fine, then there is a chain reaction in the intestines, which feels like everything dropped two inches inside me.

Then it's time to drive fast before everything comes out as very bad poo. There is a certain amount of intestinal discomfort, but that's less serious (to me) then the fact I have to go to the bathroom and deal with the bad poo.

tiffjake Enthusiast
Now, I'm not sure if I'm a celiac or an allergy, but I usually start to feel ill, maybe fourty minutes after I start.

IE, If I eat out and I eat something I ought not to have, I usually can tell as we walk out the door how fast we need to drive home. It's sort of like everything is fine, then there is a chain reaction in the intestines, which feels like everything dropped two inches inside me.

Then it's time to drive fast before everything comes out as very bad poo. There is a certain amount of intestinal discomfort, but that's less serious (to me) then the fact I have to go to the bathroom and deal with the bad poo.

Ditto! If I eat something with gluten in it (like hidden gluten in a sauce) when eating out, then I ususally don't get out of the place before going to the bathroom with D. It is within 20 min that I have D. And the depression and brain fog starts within 4-6 hours, ususally with a migrane. I have the D for about a day, maybe two (I just figured it I have it untill I get all of the gluten out) and then back to "normal" or normal for not eating gluten. BUT my grandmother had SEVERE celiac, and I take after her, so my D is a FAST reaction. I have thrown up too, and my doc says that my intestines "reject" the food, and shut down, so the stomach will send it back up. That is rare though. I have heard others take hours or days to get sick, but not me, it is super fast. Don't know what that means.....if anything.

againstthegrain Newbie

Have you gotten so sick from being glutened you had to go to the hospital?

tiffjake Enthusiast
Have you gotten so sick from being glutened you had to go to the hospital?

Me? Yes, my intestines shut down. It was nasty.


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mouse Enthusiast

Since I have been gluten-free for over two years (except for 2 testing instances), I have found that within 3 to 4 bites I know I have ingested gluten. Cross contamination takes a little longer for me and I feel sick in 20 minutes.

Ursa Major Collaborator

I will start itching all over (enough to feel like I am going insane) after a few hours, break out in DH within a day or two, and get terrible D anywhere from four days to a week after eating gluten (it used to be 30 minutes, in January it was 24 hours, now it takes up to a week). That will take one or two days, and then I go back to normal. I also get short tempered, very tired and sluggish within a day after ingesting gluten.

jerseyangel Proficient

After 2 hours, I begin to get the stomach rumbling, then gas, and then D. For the next 5 days or so, I have D, nausea, brain fog, anxiety, fatigue and achiness. Then, over the next few days, it gradually lets up.

whitball Explorer

I usually know right away with some things. Like corn flour, I have felt it burn my throat on the way down. Most other things take about 30 minutes before the cramping, pain, and stomach rumbling starts. I have not had to go to the hospital, but I did think about it a few times because of the pain intensity.

GreySaber Apprentice
Ditto!

Tiff, do you agree with the sensation feeling like everything inside 'drops two inches'? or is it different for you?

eleep Enthusiast

Takes me 1-2 hours to get intense anxiety and brain fog -- which I'm still learning to identify as a reaction to food since I've got a bunch of stuff to logically be anxious about right now. Within 12 hours I've got the gastro symptoms.

tiffjake Enthusiast
Tiff, do you agree with the sensation feeling like everything inside 'drops two inches'? or is it different for you?

I don't know that I would have put it like that, but I think I know what you mean. I feel like I am preggers with triplets,and they are all kicking my intestings (like, I hear noises, and I "feel" the D moving quickly.....ew, that was gross.....um.....I don't know how else to put it!) I didn't think about it feeling like everything "drops two inches" until I saw that you put that. And now that I think about it, it is like that. Like everything has to shift or something......I don't know.....but I DID get glutened at Outback on Monday, and I was sick before I even left. And I was just sitting there, and BAM (gurgle, rumble, :blink: got to run to the bathroom). Fast.

And I have had a headache since, and have been sleeping 12 hours a night. But I think this was not bad, because the manager and I talked yesterday, and the only thing we can figure is that a crouton fell in the dressing and no one saw it. So it would have been CC and a TRACE amount of gluten, but I guess that is enough for me! I ate there again last night (the manager begged me to give them another change to get it right, and they did! They pulled out FRESH dressing, just for me, and no sickness! Now I will know what to ask for next time!)

Laura Apprentice
It's sort of like everything is fine, then there is a chain reaction in the intestines, which feels like everything dropped two inches inside me.

Then it's time to drive fast before everything comes out as very bad poo.

Ok, I loved this. And it is so exactly my experience. Chain reaction in the intestines...I feel a little rumble, the kind that might be nothing but then it builds into this sensation of, like, motion, and then like you say everything drops two inches - perfect description!

And "very bad poo." Boy howdy! Perfect, and fabulous, way to put it.

elonwy Enthusiast

About 15-20 minutes after eating the offensive item, I start to bloat up and get stomach cramps. I don't get "bad poo" until about 2 hours later, then I'm going every hour until its done. My brain fog and aches usually hang out for about three days though, and my tummy will bloat up when I eat anything for the next few days.

Elonwy

Guest cassidy

I start feeling bad sometimes at 3 bites in, my gut starts "singing" making these high pitch, loud noises which I know means gluten. If I can't hear that (in a restaurant or eating with people and trying not to think about it) then the D or severe stomach pain will hit before I leave the table. I've tried taking a few bites and waiting to see if I can hear/feel a reaction, but if I do have a reaction it doesn't seem to be any less severe if I've consumed 3 bites versus the whole meal.

Matilda Enthusiast

..

Terrilyn Rookie

I am new to this disease so everything for me is still trial and error. If I eat anything with gluten, it is usually a couple of hours before I feel anything. I get the low abdominal pain, bloating and gas. I sometimes feel as if my intestines want to push there way out of me. I don't get diarrhea in the loose runny way but, I do usually have to go to the bathroom at least 3 - 4 times a day. After these BM's I usually feel so exhausted that I could go to sleep. All of this goes on for at least 3 - 4 days if not longer. Since I have been diagnosed in March 2006 I have only had 1 straight run of 8 days of feeling good. I have been averaging 3 good 4 bad etc. I am also slightly lactose intolerant and even though I am taking an over the counter pill I think it still affects me. I do use a little milk in coffee but, I definetly stay away from cheese, that really does not agree with me.

Terrilyn

Elizabeth-Elindel Rookie

I get a reaction before I finish my meal - usually about 5 - 10 minutes into it. LBM sets in later that day and lasts for about two days, and the joint pain/brain fog lasts about 10 days.

The sad thing is, the longer you're off, the worse your reaction seems to be. :)

grrtch Rookie
The sad thing is, the longer you're off, the worse your reaction seems to be. :)

I am noticing exactly that! Been working on keeping this diet for a month now, and before I went on it, I was like, "Oh yeah, some D, nothing too bad, but last week, I got nailed by non-dairy creamer in coffee someone served me during a professional apppointment. D for a day, then lethargy and foggy head for two. Thought I was improving when I got nailed again eating out either Friday night or Saturday lunch. Eight to ten hours later, I had bubbly tummy and D that lasted for four days, fatigue/brain fog/depression for five. That darn gluten is one sneaky critter!! I'm remembering this for when I get a craving for some old treat I used to enjoy... The payback is hell!

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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